Vulvodynia Support
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» Hope to all my suffering ladies
Talking to Employers EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Talking to Employers EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Talking to Employers EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Talking to Employers EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Talking to Employers EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Talking to Employers EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Talking to Employers EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Talking to Employers EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Talking to Employers EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Talking to Employers

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Talking to Employers Empty Talking to Employers

Post  KatieMay Wed Oct 29, 2014 1:03 pm

I am wondering if anyone has had a conversation with their employer(s) regarding V?

I imagine a lot of you are unable to work either permanently or from time time with flair ups, and you have to have frequent trips to doctors...how have your employers reacted to this?

Have any of you been brave enough to be upfront with your employers and told them the truth about whats going on or have you done the usual, migranes, stomach upsets etc?

My boss wants to know why I have been off so much lately...I dont know how to brach the topic at all, in truth it is mostly the stress of the condition thats caused me to have time off (as well as lots of doctors appointments) rather than the symptoms themselves, but I dont know how to explain this to him...any suggestions?

Thanks
: )

KatieMay

Posts : 9
Join date : 2014-10-20

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Post  Sparkle Thu Oct 30, 2014 1:33 pm

I told my boss I was diagnosed with a condition that relates to a women's issues and I was embarwased to say what it was. I told him it causes me pain sontimes and that stress bring on flare ups. He's been quite good with doctors appointments as long as I make up the time told me if I have a high pain day to let him know and we can sort out goog home early or for a break... this was following me walking out of work one day and lots of mistakes beinf made on my part where I couldn't concentrate.

Sparkle

Posts : 84
Join date : 2014-10-03

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Post  Sparkle Thu Oct 30, 2014 1:35 pm

You should also mention that is a condition that has no cure so u have to find ways to manage it. And that somtines it can cause u to have down days where u feel exremely sresses out

Sparkle

Posts : 84
Join date : 2014-10-03

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Post  sailor_moon Sat Nov 01, 2014 12:35 am

You don't need to say the specifics. Just say that you have a serious gynecological condition that causes you great pain ect and that the doctors don't know how to cure it and that you are still in the midst of getting proper treatment.
ust make sure each time you are off you get a medical certificate.
sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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