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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 4

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Talking to Employers

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Talking to Employers

Post  KatieMay on Wed Oct 29, 2014 1:03 pm

I am wondering if anyone has had a conversation with their employer(s) regarding V?

I imagine a lot of you are unable to work either permanently or from time time with flair ups, and you have to have frequent trips to doctors...how have your employers reacted to this?

Have any of you been brave enough to be upfront with your employers and told them the truth about whats going on or have you done the usual, migranes, stomach upsets etc?

My boss wants to know why I have been off so much lately...I dont know how to brach the topic at all, in truth it is mostly the stress of the condition thats caused me to have time off (as well as lots of doctors appointments) rather than the symptoms themselves, but I dont know how to explain this to him...any suggestions?

Thanks
: )

KatieMay

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Re: Talking to Employers

Post  Sparkle on Thu Oct 30, 2014 1:33 pm

I told my boss I was diagnosed with a condition that relates to a women's issues and I was embarwased to say what it was. I told him it causes me pain sontimes and that stress bring on flare ups. He's been quite good with doctors appointments as long as I make up the time told me if I have a high pain day to let him know and we can sort out goog home early or for a break... this was following me walking out of work one day and lots of mistakes beinf made on my part where I couldn't concentrate.

Sparkle

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Re: Talking to Employers

Post  Sparkle on Thu Oct 30, 2014 1:35 pm

You should also mention that is a condition that has no cure so u have to find ways to manage it. And that somtines it can cause u to have down days where u feel exremely sresses out

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Re: Talking to Employers

Post  sailor_moon on Sat Nov 01, 2014 12:35 am

You don't need to say the specifics. Just say that you have a serious gynecological condition that causes you great pain ect and that the doctors don't know how to cure it and that you are still in the midst of getting proper treatment.
ust make sure each time you are off you get a medical certificate.
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