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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Menopause and Vulvodynia!

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Menopause and Vulvodynia!

Post  DAMSEL on Sat Nov 01, 2014 5:26 pm

Hi ladies, just found this site! Been post menopause for 3 years, and gone through hell with "physical" symptoms that appeared overnight, vaginal atrophy, IBS, pelvic floor tightness, GERD..... you name it, but the one symptom that started it off, and I found so hard to explain to clinicians, was a weird tingling in the clitoris and vaginal opening, like I was biting on silver paper, does that make any sense to anyone? None of the Gynaecologists that I saw really "got me", until in desperation, one of them suggested Vulvodynia, and it kinda makes sense, I think!

When I have this feeling, it seems to go right up inside me, and I feel the pelvic floor go into a spasm, like a weird "flip", does anyone understand? Sometimes it goes even higher, under the breastbone, and I feel the solar plexus squeeze. Am I talking garbage? I have been put onto Pregabalin to help the nerve pain, but not sure it is doing much good, can I be turned into a man!!! As I said to one of the consultants, "how come you can turn a man into a woman, but you can't turn a woman back into a woman?!!"

Sorry for the essay on my first post, I have been onto a well known menopause forum, and mostly it's all about periods and hot flushes!

Thanks for listening!

DAMSEL (in distress!) xxx


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Re: Menopause and Vulvodynia!

Post  sailor_moon on Wed Nov 05, 2014 9:34 am

Ok....I am not a woman who should be menopausal. But, I am a 27 year old woman who IS literally menopausal due to a rare hormone deficiency. I have basically no estrogen production
.It all started when I went off the pill and the vulvodynia,  IBS, TERRIBLE GERD.....to the point I would have reflux so bad I would have regurgitated food come up while I was talking to people.

Have you had your hormones tested over a month to see what your levels are actually doing?

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