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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Gabapentin 100mgx3

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Gabapentin 100mgx3

Post  Zbrown on Sun Nov 09, 2014 10:42 pm

Has anyone found this to eliminate pain a good majority of my burning has calmed down yet to try sex as my boyfriends in uni a bit away so visiting him on Friday and see if it's changed. Althowe I may go up a dose have a appointment tomarrow so what she suggests. Has anyone here had sucess with this med ??? For generalized ?? Xoxo

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Tue Nov 11, 2014 5:31 pm

Im probably going to try the nortriptyline first, and then go to the gabapenton if that doesn't work. I tried the topical gabapenton but it flared me really bad, took me 2 weeks just to recover from the reaction.

Nice to know that's helping you with the burning. I assume you are on an oral form, not a topical? I may have to ask my Dr about that ...

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Tue Nov 11, 2014 11:08 pm

Yeah on oral that's the first medication been prescribed well except all the antibiotics at the start thrush treatment ect. Yeah iv moved up to 100mgx4 now starting today so
Far last few days have been good which I'm glad for ☺️ Althowe haven't tried intercourse since last month (boyfriend away) visiting Friday.

The only bad side effects iv had a lot of bloating and sleepy sometimes morning and night. So
The cream is a big no ?? Have you found the cause of yours is it generalized or just the vestibule ?? Have u painful legs at all ??? Mine are
So bad Los of which I think varicose veins popped up since this started. It's great talking to people who know what we are talking about xoxox

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Tue Nov 11, 2014 11:57 pm

Zbrown wrote:Yeah on oral that's the first medication been prescribed well except all the antibiotics at the start thrush treatment ect. Yeah iv moved up to 100mgx4 now starting today so
Far last few days have been good which I'm glad for ☺️ Althowe haven't tried intercourse since last month (boyfriend away) visiting Friday.  

The only bad side effects iv had a lot of bloating and sleepy sometimes morning and night. So
The cream is a big no ?? Have you found the cause of yours is it generalized or just the vestibule ?? Have u painful legs at all ??? Mine are
So bad Los of which I think varicose veins popped up since this started. It's great talking to people who know what we are talking about xoxox

Yeah my pain goes into my legs often, and the bottoms of my feet sometimes. Usually it hangs around my sit bone and just aches there, and rope burn pain all around the pelvic floor and vulva is 24/7. It's horrible. Sometimes i get relief randomly, i never know what causes it, and then just as unexpectedly it's back. My understanding from what i have read is that something happens to irritate the pudendal nerve, either a fall or an infection, and it starts to produce extra nerve fibers that signal pain, even after the infection gone.

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Thu Nov 13, 2014 12:07 am

Yeah funny you say that I fell the night before this happened on to my bum very hard was sore

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Thu Nov 13, 2014 3:59 am

Zbrown wrote:Yeah funny you say that I fell the night before this happened on to my bum very hard was sore

Wow interesting. Have you had your physio person have a look at that? Sometimes it can be a pelvis misalignment that causes all this stuff. A good body worker person should be able to check you and see if you need some scar tissue released, or a hip adjustment. The pudendal nerve runs through the sacrum and into all our delicate bits, and then over to the sit bone. So if something is pinching the nerve it can feel like burning in the vulva area. It's not the only cause of V, but one thing to rule out anyway.

Hope everything goes well with your boyfriend!

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Thu Nov 13, 2014 12:47 pm

In went to physio about 6 times maybe 7 ??? She checked me ect no longer going now. Do you think a chriopractor ? Althowe I feel as thowe my pelvic muscle inside sorry for sounding odd haha are very tight compared to what they use to be also very dry no natural moisture down there :/ xxx

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Re: Gabapentin 100mgx3

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