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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Gabapentin 100mgx3

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Gabapentin 100mgx3

Post  Zbrown on Sun Nov 09, 2014 10:42 pm

Has anyone found this to eliminate pain a good majority of my burning has calmed down yet to try sex as my boyfriends in uni a bit away so visiting him on Friday and see if it's changed. Althowe I may go up a dose have a appointment tomarrow so what she suggests. Has anyone here had sucess with this med ??? For generalized ?? Xoxo

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Tue Nov 11, 2014 5:31 pm

Im probably going to try the nortriptyline first, and then go to the gabapenton if that doesn't work. I tried the topical gabapenton but it flared me really bad, took me 2 weeks just to recover from the reaction.

Nice to know that's helping you with the burning. I assume you are on an oral form, not a topical? I may have to ask my Dr about that ...

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Tue Nov 11, 2014 11:08 pm

Yeah on oral that's the first medication been prescribed well except all the antibiotics at the start thrush treatment ect. Yeah iv moved up to 100mgx4 now starting today so
Far last few days have been good which I'm glad for ☺️ Althowe haven't tried intercourse since last month (boyfriend away) visiting Friday.

The only bad side effects iv had a lot of bloating and sleepy sometimes morning and night. So
The cream is a big no ?? Have you found the cause of yours is it generalized or just the vestibule ?? Have u painful legs at all ??? Mine are
So bad Los of which I think varicose veins popped up since this started. It's great talking to people who know what we are talking about xoxox

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Tue Nov 11, 2014 11:57 pm

Zbrown wrote:Yeah on oral that's the first medication been prescribed well except all the antibiotics at the start thrush treatment ect. Yeah iv moved up to 100mgx4 now starting today so
Far last few days have been good which I'm glad for ☺️ Althowe haven't tried intercourse since last month (boyfriend away) visiting Friday.  

The only bad side effects iv had a lot of bloating and sleepy sometimes morning and night. So
The cream is a big no ?? Have you found the cause of yours is it generalized or just the vestibule ?? Have u painful legs at all ??? Mine are
So bad Los of which I think varicose veins popped up since this started. It's great talking to people who know what we are talking about xoxox

Yeah my pain goes into my legs often, and the bottoms of my feet sometimes. Usually it hangs around my sit bone and just aches there, and rope burn pain all around the pelvic floor and vulva is 24/7. It's horrible. Sometimes i get relief randomly, i never know what causes it, and then just as unexpectedly it's back. My understanding from what i have read is that something happens to irritate the pudendal nerve, either a fall or an infection, and it starts to produce extra nerve fibers that signal pain, even after the infection gone.

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Thu Nov 13, 2014 12:07 am

Yeah funny you say that I fell the night before this happened on to my bum very hard was sore

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Thu Nov 13, 2014 3:59 am

Zbrown wrote:Yeah funny you say that I fell the night before this happened on to my bum very hard was sore

Wow interesting. Have you had your physio person have a look at that? Sometimes it can be a pelvis misalignment that causes all this stuff. A good body worker person should be able to check you and see if you need some scar tissue released, or a hip adjustment. The pudendal nerve runs through the sacrum and into all our delicate bits, and then over to the sit bone. So if something is pinching the nerve it can feel like burning in the vulva area. It's not the only cause of V, but one thing to rule out anyway.

Hope everything goes well with your boyfriend!

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Thu Nov 13, 2014 12:47 pm

In went to physio about 6 times maybe 7 ??? She checked me ect no longer going now. Do you think a chriopractor ? Althowe I feel as thowe my pelvic muscle inside sorry for sounding odd haha are very tight compared to what they use to be also very dry no natural moisture down there :/ xxx

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Re: Gabapentin 100mgx3

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