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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Gabapentin 100mgx3

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Gabapentin 100mgx3

Post  Zbrown on Sun Nov 09, 2014 10:42 pm

Has anyone found this to eliminate pain a good majority of my burning has calmed down yet to try sex as my boyfriends in uni a bit away so visiting him on Friday and see if it's changed. Althowe I may go up a dose have a appointment tomarrow so what she suggests. Has anyone here had sucess with this med ??? For generalized ?? Xoxo

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Tue Nov 11, 2014 5:31 pm

Im probably going to try the nortriptyline first, and then go to the gabapenton if that doesn't work. I tried the topical gabapenton but it flared me really bad, took me 2 weeks just to recover from the reaction.

Nice to know that's helping you with the burning. I assume you are on an oral form, not a topical? I may have to ask my Dr about that ...

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Tue Nov 11, 2014 11:08 pm

Yeah on oral that's the first medication been prescribed well except all the antibiotics at the start thrush treatment ect. Yeah iv moved up to 100mgx4 now starting today so
Far last few days have been good which I'm glad for ☺️ Althowe haven't tried intercourse since last month (boyfriend away) visiting Friday.

The only bad side effects iv had a lot of bloating and sleepy sometimes morning and night. So
The cream is a big no ?? Have you found the cause of yours is it generalized or just the vestibule ?? Have u painful legs at all ??? Mine are
So bad Los of which I think varicose veins popped up since this started. It's great talking to people who know what we are talking about xoxox

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Tue Nov 11, 2014 11:57 pm

Zbrown wrote:Yeah on oral that's the first medication been prescribed well except all the antibiotics at the start thrush treatment ect. Yeah iv moved up to 100mgx4 now starting today so
Far last few days have been good which I'm glad for ☺️ Althowe haven't tried intercourse since last month (boyfriend away) visiting Friday.  

The only bad side effects iv had a lot of bloating and sleepy sometimes morning and night. So
The cream is a big no ?? Have you found the cause of yours is it generalized or just the vestibule ?? Have u painful legs at all ??? Mine are
So bad Los of which I think varicose veins popped up since this started. It's great talking to people who know what we are talking about xoxox

Yeah my pain goes into my legs often, and the bottoms of my feet sometimes. Usually it hangs around my sit bone and just aches there, and rope burn pain all around the pelvic floor and vulva is 24/7. It's horrible. Sometimes i get relief randomly, i never know what causes it, and then just as unexpectedly it's back. My understanding from what i have read is that something happens to irritate the pudendal nerve, either a fall or an infection, and it starts to produce extra nerve fibers that signal pain, even after the infection gone.

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Thu Nov 13, 2014 12:07 am

Yeah funny you say that I fell the night before this happened on to my bum very hard was sore

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Thu Nov 13, 2014 3:59 am

Zbrown wrote:Yeah funny you say that I fell the night before this happened on to my bum very hard was sore

Wow interesting. Have you had your physio person have a look at that? Sometimes it can be a pelvis misalignment that causes all this stuff. A good body worker person should be able to check you and see if you need some scar tissue released, or a hip adjustment. The pudendal nerve runs through the sacrum and into all our delicate bits, and then over to the sit bone. So if something is pinching the nerve it can feel like burning in the vulva area. It's not the only cause of V, but one thing to rule out anyway.

Hope everything goes well with your boyfriend!

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Re: Gabapentin 100mgx3

Post  Zbrown on Thu Nov 13, 2014 12:47 pm

In went to physio about 6 times maybe 7 ??? She checked me ect no longer going now. Do you think a chriopractor ? Althowe I feel as thowe my pelvic muscle inside sorry for sounding odd haha are very tight compared to what they use to be also very dry no natural moisture down there :/ xxx

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Re: Gabapentin 100mgx3

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