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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Gabapentin 100mgx3

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Gabapentin 100mgx3

Post  Zbrown on Sun Nov 09, 2014 10:42 pm

Has anyone found this to eliminate pain a good majority of my burning has calmed down yet to try sex as my boyfriends in uni a bit away so visiting him on Friday and see if it's changed. Althowe I may go up a dose have a appointment tomarrow so what she suggests. Has anyone here had sucess with this med ??? For generalized ?? Xoxo

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Tue Nov 11, 2014 5:31 pm

Im probably going to try the nortriptyline first, and then go to the gabapenton if that doesn't work. I tried the topical gabapenton but it flared me really bad, took me 2 weeks just to recover from the reaction.

Nice to know that's helping you with the burning. I assume you are on an oral form, not a topical? I may have to ask my Dr about that ...

yoginimom

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Re: Gabapentin 100mgx3

Post  Zbrown on Tue Nov 11, 2014 11:08 pm

Yeah on oral that's the first medication been prescribed well except all the antibiotics at the start thrush treatment ect. Yeah iv moved up to 100mgx4 now starting today so
Far last few days have been good which I'm glad for ☺️ Althowe haven't tried intercourse since last month (boyfriend away) visiting Friday.

The only bad side effects iv had a lot of bloating and sleepy sometimes morning and night. So
The cream is a big no ?? Have you found the cause of yours is it generalized or just the vestibule ?? Have u painful legs at all ??? Mine are
So bad Los of which I think varicose veins popped up since this started. It's great talking to people who know what we are talking about xoxox

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Tue Nov 11, 2014 11:57 pm

Zbrown wrote:Yeah on oral that's the first medication been prescribed well except all the antibiotics at the start thrush treatment ect. Yeah iv moved up to 100mgx4 now starting today so
Far last few days have been good which I'm glad for ☺️ Althowe haven't tried intercourse since last month (boyfriend away) visiting Friday.  

The only bad side effects iv had a lot of bloating and sleepy sometimes morning and night. So
The cream is a big no ?? Have you found the cause of yours is it generalized or just the vestibule ?? Have u painful legs at all ??? Mine are
So bad Los of which I think varicose veins popped up since this started. It's great talking to people who know what we are talking about xoxox

Yeah my pain goes into my legs often, and the bottoms of my feet sometimes. Usually it hangs around my sit bone and just aches there, and rope burn pain all around the pelvic floor and vulva is 24/7. It's horrible. Sometimes i get relief randomly, i never know what causes it, and then just as unexpectedly it's back. My understanding from what i have read is that something happens to irritate the pudendal nerve, either a fall or an infection, and it starts to produce extra nerve fibers that signal pain, even after the infection gone.

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Re: Gabapentin 100mgx3

Post  Zbrown on Thu Nov 13, 2014 12:07 am

Yeah funny you say that I fell the night before this happened on to my bum very hard was sore

Zbrown

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Re: Gabapentin 100mgx3

Post  yoginimom on Thu Nov 13, 2014 3:59 am

Zbrown wrote:Yeah funny you say that I fell the night before this happened on to my bum very hard was sore

Wow interesting. Have you had your physio person have a look at that? Sometimes it can be a pelvis misalignment that causes all this stuff. A good body worker person should be able to check you and see if you need some scar tissue released, or a hip adjustment. The pudendal nerve runs through the sacrum and into all our delicate bits, and then over to the sit bone. So if something is pinching the nerve it can feel like burning in the vulva area. It's not the only cause of V, but one thing to rule out anyway.

Hope everything goes well with your boyfriend!

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Re: Gabapentin 100mgx3

Post  Zbrown on Thu Nov 13, 2014 12:47 pm

In went to physio about 6 times maybe 7 ??? She checked me ect no longer going now. Do you think a chriopractor ? Althowe I feel as thowe my pelvic muscle inside sorry for sounding odd haha are very tight compared to what they use to be also very dry no natural moisture down there :/ xxx

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Re: Gabapentin 100mgx3

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