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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Nortriptline vs amitriptyline

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Nortriptline vs amitriptyline

Post  yoginimom on Mon Nov 10, 2014 6:50 pm

I was reading in the 'V book' that nortriptyline has way less side effects than amitriptyline and just as effective. Does anyone have any experience with either of these drugs? What was your experience, did it work? side effects? Is it worth a try?

I am diagnosed with unprovoked V, (though i am much worse with provokation) and pudendel nerve irritation.

yoginimom

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Re: Nortriptline vs amitriptyline

Post  Zbrown on Tue Nov 11, 2014 11:12 pm

What tests did they do to diagnose you ??? Iv just been told it's something to do with the nerves no explanation lol .... I do think mines generalized I had to do so much research and found here it was a godsend !!! I thought I was going crazy imagining things very depressing looking back xx

Zbrown

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Re: Nortriptline vs amitriptyline

Post  yoginimom on Tue Nov 11, 2014 11:50 pm

Zbrown wrote:What tests did they do to diagnose you ??? Iv just been told it's something to do with the nerves no explanation lol .... I do think mines generalized I had to do so much research and found here it was a godsend !!! I thought I was going crazy imagining things very depressing looking back xx

They first ruled out all STD's and infections and even though i test negative for yeast they still think i have it, so i'm on supressive treatment for that and i'm supposed to be taking the nortriptyline, but i haven't started it yet. Then the gyno did the q-tip test to diagnose generalized Vulvadynia. My gyno works with a pelvis floor PT who she referred me to, and she diagnosed the pudendal nerve irritation. Though according to the 'V book' those 2 diagnoses often go hand in hand. If you haven't read it yet i highly recommend it. My gyno recommended it and i have found it really informative. I think it's terrible that they don't help us get informed about what this is. I hope you find a treatment that works for you! Is the gabapentin all you have tried so far?

yoginimom

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Re: Nortriptline vs amitriptyline

Post  Zbrown on Thu Nov 13, 2014 12:38 am

So far iv done acupuncture , physical therapy , yeast testaments , antibiotics , steroid creams , other creams now gapapentin. I am also back on to birth control cliest but i don't know if hormones are my problem. Physio thinks tight pelvic floor tight muscles irritation of nerves same with acupuncture ( stopped these two things a few months ago) and my doctor agrees nerve related. Gabapebtin is helping makes me so hungry !!! Althowe weather it helps with sexual intercourse still yet to find out moved up too 4x100 a day.

Iv only read "why Sex hurts" it gave me a great idea of reasons and things to further ask my doctor . They suggested a pain clinic if gabapebtin failed ? Well the specialist suggested my doctors are very stingey with referrals lol !!! Are u feeling better yourself xxz

Zbrown

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Re: Nortriptline vs amitriptyline

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