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» Anyone have pain with urination?
Yesterday at 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

» Dose HAVING VULVODYNIA MEANS YOU HAVE LUPUS?? HELP IM FREAKING OUT!
Wed Oct 10, 2018 2:01 pm by pussycat

» From a concerned husband
Wed Oct 10, 2018 1:46 pm by shope610

» Had this for 5 years, looking for people who understand
Wed Oct 10, 2018 1:55 am by Npage14

» 6 year sufferer but I’ve found some hope
Wed Oct 10, 2018 1:33 am by Npage14

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Nortriptline vs amitriptyline

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Nortriptline vs amitriptyline

Post  yoginimom on Mon Nov 10, 2014 6:50 pm

I was reading in the 'V book' that nortriptyline has way less side effects than amitriptyline and just as effective. Does anyone have any experience with either of these drugs? What was your experience, did it work? side effects? Is it worth a try?

I am diagnosed with unprovoked V, (though i am much worse with provokation) and pudendel nerve irritation.

yoginimom

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Re: Nortriptline vs amitriptyline

Post  Zbrown on Tue Nov 11, 2014 11:12 pm

What tests did they do to diagnose you ??? Iv just been told it's something to do with the nerves no explanation lol .... I do think mines generalized I had to do so much research and found here it was a godsend !!! I thought I was going crazy imagining things very depressing looking back xx

Zbrown

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Re: Nortriptline vs amitriptyline

Post  yoginimom on Tue Nov 11, 2014 11:50 pm

Zbrown wrote:What tests did they do to diagnose you ??? Iv just been told it's something to do with the nerves no explanation lol .... I do think mines generalized I had to do so much research and found here it was a godsend !!! I thought I was going crazy imagining things very depressing looking back xx

They first ruled out all STD's and infections and even though i test negative for yeast they still think i have it, so i'm on supressive treatment for that and i'm supposed to be taking the nortriptyline, but i haven't started it yet. Then the gyno did the q-tip test to diagnose generalized Vulvadynia. My gyno works with a pelvis floor PT who she referred me to, and she diagnosed the pudendal nerve irritation. Though according to the 'V book' those 2 diagnoses often go hand in hand. If you haven't read it yet i highly recommend it. My gyno recommended it and i have found it really informative. I think it's terrible that they don't help us get informed about what this is. I hope you find a treatment that works for you! Is the gabapentin all you have tried so far?

yoginimom

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Re: Nortriptline vs amitriptyline

Post  Zbrown on Thu Nov 13, 2014 12:38 am

So far iv done acupuncture , physical therapy , yeast testaments , antibiotics , steroid creams , other creams now gapapentin. I am also back on to birth control cliest but i don't know if hormones are my problem. Physio thinks tight pelvic floor tight muscles irritation of nerves same with acupuncture ( stopped these two things a few months ago) and my doctor agrees nerve related. Gabapebtin is helping makes me so hungry !!! Althowe weather it helps with sexual intercourse still yet to find out moved up too 4x100 a day.

Iv only read "why Sex hurts" it gave me a great idea of reasons and things to further ask my doctor . They suggested a pain clinic if gabapebtin failed ? Well the specialist suggested my doctors are very stingey with referrals lol !!! Are u feeling better yourself xxz

Zbrown

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Re: Nortriptline vs amitriptyline

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