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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Nortriptline vs amitriptyline

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Nortriptline vs amitriptyline

Post  yoginimom on Mon Nov 10, 2014 6:50 pm

I was reading in the 'V book' that nortriptyline has way less side effects than amitriptyline and just as effective. Does anyone have any experience with either of these drugs? What was your experience, did it work? side effects? Is it worth a try?

I am diagnosed with unprovoked V, (though i am much worse with provokation) and pudendel nerve irritation.

yoginimom

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Re: Nortriptline vs amitriptyline

Post  Zbrown on Tue Nov 11, 2014 11:12 pm

What tests did they do to diagnose you ??? Iv just been told it's something to do with the nerves no explanation lol .... I do think mines generalized I had to do so much research and found here it was a godsend !!! I thought I was going crazy imagining things very depressing looking back xx

Zbrown

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Re: Nortriptline vs amitriptyline

Post  yoginimom on Tue Nov 11, 2014 11:50 pm

Zbrown wrote:What tests did they do to diagnose you ??? Iv just been told it's something to do with the nerves no explanation lol .... I do think mines generalized I had to do so much research and found here it was a godsend !!! I thought I was going crazy imagining things very depressing looking back xx

They first ruled out all STD's and infections and even though i test negative for yeast they still think i have it, so i'm on supressive treatment for that and i'm supposed to be taking the nortriptyline, but i haven't started it yet. Then the gyno did the q-tip test to diagnose generalized Vulvadynia. My gyno works with a pelvis floor PT who she referred me to, and she diagnosed the pudendal nerve irritation. Though according to the 'V book' those 2 diagnoses often go hand in hand. If you haven't read it yet i highly recommend it. My gyno recommended it and i have found it really informative. I think it's terrible that they don't help us get informed about what this is. I hope you find a treatment that works for you! Is the gabapentin all you have tried so far?

yoginimom

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Re: Nortriptline vs amitriptyline

Post  Zbrown on Thu Nov 13, 2014 12:38 am

So far iv done acupuncture , physical therapy , yeast testaments , antibiotics , steroid creams , other creams now gapapentin. I am also back on to birth control cliest but i don't know if hormones are my problem. Physio thinks tight pelvic floor tight muscles irritation of nerves same with acupuncture ( stopped these two things a few months ago) and my doctor agrees nerve related. Gabapebtin is helping makes me so hungry !!! Althowe weather it helps with sexual intercourse still yet to find out moved up too 4x100 a day.

Iv only read "why Sex hurts" it gave me a great idea of reasons and things to further ask my doctor . They suggested a pain clinic if gabapebtin failed ? Well the specialist suggested my doctors are very stingey with referrals lol !!! Are u feeling better yourself xxz

Zbrown

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Re: Nortriptline vs amitriptyline

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