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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Ipl/lazer hair removal bikin line

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Ipl/lazer hair removal bikin line

Post  Mary1000 on Sat Nov 15, 2014 6:58 pm


Was wondering if anyone has ever had ipl/lazer hair removal on their bikini line before?

Or if you know if it would effect my vulvadynia.

I'm not in acute stage of it like I was last year. The constant pain stopped from seeing a physio and many other things like coconut oil.also breaking up with my boyfriend so not having sex which caused a lot of emotions as wasn't able too. Still have slight pain when it becomes irritated from urine. But nothing like before. And still can't go swimming. If the outer labia has hair removed could it cause my inner vulva pain to worsen? I wanted to get it all removed around that area.

Thanks for any responses received.

Never wrote on a forum before but read everyone on the internet when I was first diagnosed and am always great full for them.

Also just wanted to say it took 10 years for me to be properly diagnosed but I am now coming out of the other side and sometimes I forget it's even there. Some days not. May change again if I get a boyfriend and am slightly scared it will come back full power then. But hopefully will feel more confident if my hair removal is fixed.

Please don't loose hope. It can and will get better. X


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Re: Ipl/lazer hair removal bikin line

Post  Georgia H on Wed Nov 19, 2014 2:54 am

Hi Mary! Good timing I've just started IPL and have been wondering the same thing for ages and then just decided to take the plunge! My pain is only where I have pubic hair... It's like the pubic hair is the trigger and the hair follicles are over senstive. Neuro meds not helping so I figure if I get rid of the hair, I won't feel the pain (sounds too easy doesn't it...?)

Anyway. Gynae seemed to think it would be worth the risk and shouldn't make the pain worse and it's been fine so far! Only had one session though, but it certainly didn't hurt any more than waxing etc.

I had a Hollywood, but if you're worried maybe start with an extended bikini?


Georgia H

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Re: Ipl/lazer hair removal bikin line

Post  Mary1000 on Sat Dec 06, 2014 12:28 am

Hi Georgia,

Thank you so so much for your reply and advice.

Glad to hear you didn't have any issues with it.

Totally feel for you and how annoying to have pain on the actual hair.

Hope it's gets better for you and all your hair never grows back.

Thanks again Smile x


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Re: Ipl/lazer hair removal bikin line

Post  keepsmiling on Sat Dec 13, 2014 3:49 pm

Hi Mary, I'm new to this forum and have just come across your post.
I am a vulvodynia sufferer of over 2 and a half years and I can honestly say that IPL has not aggravated my vulvodynia at all.
I would say go for it!


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Re: Ipl/lazer hair removal bikin line

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