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» Hope to all my suffering ladies
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Dermatologist in Melbourne Australia Cured my Vulvodynia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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Dermatologist in Melbourne Australia Cured my Vulvodynia

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Dermatologist in Melbourne Australia Cured my Vulvodynia Empty Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  angelique Tue Feb 01, 2011 6:30 am

A Dermatologist in Melbourne Australia cured my Vulvodynia, below are the details I hope it helps some of you, as this illness is so debilitating and painful, I nearly went out of my mind with pain.

Contact your doctor and have him organise a referral to a specialist Dermatologist that should be able to help you, if your in Victoria contact, Josephine Yeatman, Dermatologist, 154 Grimshaw St, Greensborough, VIC, 3088, Australia, t: (03) 8418 0193, you will need a referral and also it will take a while to get in to see any Dermatologist.


Ask your Doctor about ADVANTAN FATTY OINTMENT in the meantime and see if he will prescribe it for you, then start applying this to the Vulva area ONLY at NIGHT when going to bed, this is very important, use sparingly, this is even more important as it can thin the skin with prolonged use and you don’t want that part of your body thinning do you now.
I used ALLEGRON, 10ml, also prescribed by the Dermatologist, one at night, or half a tablet at night only, this will desensitise the nerve endings and give you pain relief, I was amazed when I went to the Pharmacist for this medication and he asked me is it for pain relief, even though this medication is an anti-depressant, it is widely used for pain relief, the dosage is extremely low, so even if you are feeling a little down with this whole situation, it might help you feel better over all.
Use lubricants. If you’re sexually active, apply lubricants before and while engaging in sexual intercourse.
Look for triggers and avoid them. The triggers that can make vulvar pain worse tend to be different for each woman. Your observations of what causes you pain are important and then tell your doctor or dermatologist
Use only white, unbleached toilet paper and 100 percent cotton sanitary products.
I couldn’t use tampons I had to use pads, as it was to painful to insert tampons
I also only wore cotton panties, this lets the skin breath and didnt wear panties when I went to bed again to let the skin breath and heal with the medication

It took about three months to completely heal, however I did start to notice quite a significant decrease in pain within a week, I also found once it was healed I had to do pelvic floor exercises as the muscles had also weakened, I have been cured for 5 years now, had Vulvodynia for about 5 months, went around and around from doctor to doctor, to gyno to gyno, to Oncologist and then finally the dermatologist, just think of this illness as being a skin condition rather than a gyno problem, and that is why the dermatologist cured my Vulvodynia.

Dont’s

Don’t use Monistat or Canestan creams or other thrush treatments, if your doctor has examined you and your tests prove you dont have thrush then you will only make the Vulvodynia worse, the thrush creams irritate this area terribly and will prolong healing of the skin
Don’t take Keflex or other urinary tract tablets, if you have been tested and no bladder infections show up then no point wasting your money, the urinary tract is irritated because of the damaged skin and swelling, this will ease as the Advantan Fatty Ointment starts to work on healing the skin
Avoid hot baths. Spending time in a hot tub may lead to even further major discomfort and it will prolong health of the vulva skin
Avoid excessive hygiene. Don’t wash or scrub the affected area harshly or too often can increase even more irritation. Instead, use plain water to gently clean your vulva and pat the area dry.
If you are now using Advantan Fatty Ointment don’t wash it all off in the shower, try to keep some there during the day, however DO NOT reapply more as it will make the skin rub to much and trigger things off again, this ointment can only be used when you are resting and a sleep at night
Don’t use to much of Advantan Fatty Ointment you must use it sparingly and a very small amount goes a long way, once it comes in contact with the warm skin of the vagina it instantly melts down and it covers a lot of area, you may like to use a cotton wool bud to apply the ointment if you are very sore
Avoid riding bikes or horses until you are feeling better, exercising will be very difficult, I could barely even sit let alone walk around.


Last edited by angelique on Tue Feb 01, 2011 10:54 am; edited 2 times in total
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Post  tweety Tue Feb 01, 2011 10:14 am

Hi Angelique,

Thanks for posting this up. I just wanted to know, did the dermatologist notice anything usual specifically with your skin? Like redness?

Cheers,

Sue

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Post  angelique Tue Feb 01, 2011 10:37 am

Hi Sue,

Yes the dermatologist could see that it was very red and very sore to touch, the doctors and gyno's couldn't distinguish between the normal color of the skin and the redness, but the dermatologist could, obviously she had seen it before many times, she knew exactly what it was as soon as she looked there. I told her that the Oncologist gave me some ointment Ecolan (a type of steriod) I think it was anyway it burnt like all hell and just made things worse, as soon as I told her this, she said I have a much better Ointment that wont burn and will heal the skin, and she was right it worked very well, got some good relief within a week, but it did take three months or so to heal properly. Advantan Fatty Ointment.

I hope this information will help you, I do believe that only a few Dermatologist will look at this area of the body, when I spoke to the Oncologist about going to see the dermatologist, he said she was about the only one that would deal with women's issues in Melbourne. Thank God for her, I don't think I would have been able to continue, the pain was so excruciating.


Last edited by angelique on Tue Feb 01, 2011 10:59 am; edited 2 times in total
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Post  angelique Tue Feb 01, 2011 11:26 am

Advantan Fatty Ointment is only available in a few countries, it is not distributed in the UK, it is available in Australia, America, Canada and a few other places I believe.



Last edited by angelique on Wed Feb 02, 2011 12:24 am; edited 1 time in total
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Post  Sarah001 Tue Feb 01, 2011 1:17 pm

For all the UK girls it seems that ointment isn't available here but it's a steroid ointment so probably not suitable for most of us anyway. I'm wondering angelique how the oncologist fits into your treatment? Did you have radiotherapy or something like that? I see a vulvar dermatologist and she's firmly against steroids on the area but I'm glad it worked for you. I think most of the ladies on here have dropped all chemicals, use cotton pads and underwear etc so it's not the solution for everyone but obviously helps some people. Nice to hear about a success story even if us UK ladies won't be able to try the ointment anyway! Rolling Eyes
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Post  angelique Wed Feb 02, 2011 12:15 am

It is very disappointing that all the girls in the UK are not able to try this medication, even though it is a type of steriod, if it worked then wouldn't you use it, because it definately worked for me, and I am just announcing that it is out there, there is some help for this illness. Anyway as for your question about the Oncologist, the doctors thought perhaps I had cancer in this area, so off I went to get looked at, he was an Oncologist/Gynaecologist that dealt with women's issues in particular with cancer, I didn't have radio therapy, he looked over the area, could see it was very red, irritated and had tiny splits in the skin, he was the one that recommended seeing the Dermatologist.

I can only hope that someone is interested enough in what I have written and takes the time to speak to a Dermatologist about the Ointment and Anti-depressant, maybe if it worked for them to they might post back on here, it just seems after going to several forum places and other websites and placing this information on it, no one is interested, or even tries the Ointment, it just makes me shake my head.
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Post  angelique Wed Feb 02, 2011 12:19 am

Sarah, I note your comment re: "steroid ointment so probably not suitable for most of us anyway" Why is the ointment not suitable for most of you?
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Post  Sebby (Admin) Wed Feb 02, 2011 9:13 am


Im having to come off Citalopram (SSRI antidepressant) for anxiety in order to be presribed an antidepressant such as Ami otherwise I could be doped up too much!

I have another med for anxiety and getting therapy so hopefully I can cope with the withdrawal from the cit

Then at least I can look to trying the antidepressant fpr pain

As for the steriod cream im not suprised we cant get it in the uk..I was interested in looking at Gabapentin cream (an anticonvulsant med that calms down nerves) but looks like this is difficult to get hold of in the uk. Really I think the Uk are bloody backward when It comes to Vulvodynia Treatment

Some women find steriods aggraivate the condition. I havnt found this I just found they didnt work but I was only prescribed a low dose cream anyway.

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Post  Sarah001 Wed Feb 02, 2011 10:10 am

The reason a steroid ointment wouldn't help alot of us is partly because most of us have tried them as a first line of treatment with no success and secondly if they don't work they can just thin the skin so it's as Sebby said it can make things worse. There are some women who do recover with steroid creams etc but the majority don't which is probably why most women don't react much to the information, most of them have probably already tried that route. Of course if steroid creams worked we'd all be rushing for them but I can't speak for everyone on here but I personally tried 3 different ones in the first few months and none of them made a bit of difference except one burnt a layer of skin off and made things alot worse. Again as Sebby said we seem to have less options for creams etc here in the UK, I too tried to get hold of topical gabapentin but we just don't have it here. However any women who live elsewhere who haven't tried the steroid cream/ointment route could give your method a go.

I take anti-depressants too but they don't help much with the pain in my case. We're all a bit different how we respond to things so don't get offended if people don't jump to try another steroid ointment, it's probably just that they've already been down that road several times with no improvement. It's great it worked for you though, it's very lucky that it made a difference.
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Dermatologist in Melbourne Australia Cured my Vulvodynia Empty More help available in Melbourne

Post  Bee Fri Feb 11, 2011 11:35 am

For anyone else in Melbourne, see if you can get your GP to refer you to the Vulval clinic at the Women's Hospital. They're really organised there, they treat women with Voluvodynia all the time. It can take a few months of waiting to get in to see the Vulvual Dermotologist at first, but then they put you onto the specialist physio and there's a whole program to follow. (never even knew there were physios for this kind of thing!)

I've only just started the treatment program so it's early days, but the fact they have a clinic especially for this condition makes me feel a lot less alone. The first physio appointment is actually a group session - an odd concept at first! But it's just like a lesson with the phsyio who teaches the group about the condition, and by the end you're laughing along with each other and feeling so much better because you're not the only one - and from then on you have individual appointments a few weeks apart. And the best thing is that all the consultations are free and completely covered by Medicare.

Still early days for me, but I'm using the dilators and other exercises from the phsyio so at least I feel like I'm making some progress, unlike all the years I suffered in silence.

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Post  Sebby (Admin) Fri Feb 11, 2011 8:11 pm


Hey Bee and welcome to the forum Smile

How you getting on with the dilators? I'm struggling to be honest..had a flare up, then came of period, then another flare up i'm scared to start back using them

Only just started so am on the thinest one and the next size up even looks scary! lol
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Post  noni Sat Feb 12, 2011 12:27 am

Just a question....do dilators strengthen the pelvic muscles? Or is it just to treat vaginismus?

Thanks Smile
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Post  Bee Sat Feb 12, 2011 5:44 am

Ah, the dilators... got through the first one without a problem so thought 'hey, this is fine!' and then have hit a bit of a wall with the second one. Having a few days' break at the moment because I was getting tense about the very idea of it let alone trying to use it Smile But I shall persist! Don't like the look of the third and fourth ones, but trying not to think about them yet...

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Post  Sebby (Admin) Sat Feb 12, 2011 8:20 pm


Yeah I can use the first one..I get pain but its bearable. I have vaginismus too mainly cos Im so scared of the pain I tense up!

Gonna practise a bit more with the first and then try the second...even if I only manage a little bit in I guess its all progress :/

Oh and the forth one can bugger off!! that way to big lol
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Post  noni Sun Feb 13, 2011 4:51 am

You guys make it sound sooo scary !!!....the real willies are even scarier!!! affraid
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Post  Remi88 Tue Mar 22, 2011 10:52 am

Just stumbled upon this post in my desperate research. I am 23 years old, and for the last month I have seen 3 gynaecologists and have had no diagnosis or results for the vulva pain I have been experiencing. Just guessing games, suspected HPV, antibiotics, steriod cream, estrogen cream, total change in diet and no change. There is just redness and inflamation, no other symptoms which seems to rule out most conditions. Although it seems like early days compared to what you went through, it has been an extremely stressful time, the fact that there is no urgency and it takes weeks at a time to get in to see specialists. I am also in a new relationship, which adds pressure and is awkward to explain. All of my test results are fine, they cannot find any sign of infection or STD/STI, and although i do find solace in this information, there is no explanation for this pain...perhaps until now. I have a referral to the vulval clinic at the Royal Womans Hospital, but I will also most certainly contact the dermatologist you recommend. Thank you for posting this information, you may have put me on the path to happiness.

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Post  Sebby (Admin) Tue Mar 22, 2011 8:06 pm


Hi Remi

Good luck with your dermo treatment! With regards to your new relationship, do not put pressure on yourself to have intercourse just yet. Explain that as you are seeking treatment it may take time to get better so try to enjoy other aspects of sex..known as foreplay but also known as outercourse!

A Good book is 'Let Me Count The Ways' by Marty Klien and Riki Robbins

Take Care
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Post  Remi88 Sat Jul 16, 2011 11:28 am

Thank you so very much for posting this information. If I had not come across it, I would most likely still be suffering. I was able to contact the dermatologist you recommended and after being on medication for a few months my pain has completely gone! I was prescribed, and still taking Endep25 (amitriptyline hydrochloride) which is an anti depressant drug. My life is coming back together and my relationship is better than ever. My boyfriend is currently in Vietnam and I will be meeting him over there very soon for a much needed holiday Smile
Thanks again x

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Post  Natalie Mitchell Sun Apr 15, 2012 9:13 am

Hey All,
My name is Natalie and I have been suffering with Vulvodynia for almost a year now. I have been to three gynaecologists time after time and had a biopsy done with the results being Lichen Sclerosis. They have given me Steroid cream to cure it and nothing would work until I saw a dermatologist called Josephine Yeatman in Greensborough on Friday the 13/4/12 she told me i was suffering from this. I was so relieved in a way because LS is horrible and incurable. I have been given Fatty Ointment for night time and Endep 10 anti-depressants to take nightly. I am a bit unsure with the fatty ointment, most of my pain is inside, is this cream only for external use? And has anyone done all these steps and actually been cured? I cannot have sex without a huge amount of pain and I also get pain from tampons.

This has ruined me as a person, and to see there is hope I am finally excited.
Any advice would be muchly appreciated.
Thank You

Natalie Mitchell

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Post  ophir Tue May 29, 2012 8:37 am

Hi Natalie
I also went to see Josephine Yeatman yesterday as a result of reading this forum. I had to wait 7 weeks for my appointment!
I've also read a really good guide on vulval conditions by Gayle Fischer called 'vulval problems: a self help guide' - google it and it states that steroid ointment can be applied inside the vagina. If in doubt I'd call Dr Yeatman.
I've been on Advantan Fatty for 3 months, I requested it from the GP before I saw Dr Yeatman and had lots of improvement but trouble tapering it off. She has prescribed Diprosone OV for a few days until it clears. Hopefully it'll work.

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Post  tinkerbelle2 Fri Nov 14, 2014 12:18 pm

ZARLI if you still come on these boards i thought this may be helpful to you as you're an Aussie I love you
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Post  zarli Mon Nov 17, 2014 9:04 am

Thank you Tinks, yes have tried this in the past fid not help me. Mine is nerve related. Thank you so muvh for thinking of me. I hope you are going well xx

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Post  sailor_moon Sat Nov 22, 2014 12:32 am

Dr Gayle Fischer is a f*ckwit. I travelled 6 hours and waited 3 months to see her, and when I finally did, she told me to keep using steriod cream, for 3 months which made me worse!Then when I told her it made me worse and that I really believe thw issue is hormonal and coming from the inside out, she told me that there was nothing she could do, to not contact her again and that I need councilling and antidepressants. 

After finding my wonderful new doctor, he said he has had multiple women  complain to him about her, they got treated the same way I did. And turns out I have a multitude of severe hormone problems as well as suspected endometriosis. 

If steriod cream ect is not working, chances are that the problem is coming from the inside, not just a skin surface problem. If you really want to know if it is a skin issue/condition,  get a biopsy. I have had 2, both of which showed nothing but inflammation. Biopsies are nowhere near as painful as you think, I'd rather the pain of a biopsy than the discomfort of V on a bad day. At least it rules out skin issues.
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