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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Any experiences with long-term lidocaine cream?

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Any experiences with long-term lidocaine cream?

Post  horsejumper on Sun Nov 30, 2014 4:26 am

I'm starting topical lidocaine use 1x daily, putting it everywhere in the vestibule and just slightly internally (like, only up to the very top knuckle of my finger). I'm continuing on this plan indefinitely. My doctor's theory is that eventually, your brain learns what not having pain in that area is like and that it doesn't have to process pain all the time...this will eventually lead to the nerve signals from the area becoming reduced (or the brain won't process them into pain as strongly).

I was just wondering what kind of relief this has given you guys. Obviously it's good to use before sex or other internal procedures, but I'm more interested in if you've had long-term results. Has anyone had any noticeable and lasting reductions in burning after using it for a while?


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Re: Any experiences with long-term lidocaine cream?

Post  Sparkle on Mon Dec 01, 2014 9:51 pm

Hey horse jumper,

Yes I've been using it for about 3 months and my pain has gone. I would get burning through intercourse and stabbing pains in the vestibules only on touch. I still use it now but my pain started to go a few weeks after starting, it kept getting less and less. I also got rid of purfumes products in bath and stopped washing undies with fabric Softner, only use non bio powder.

Mine is provoked pain tho, whats yours?x


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Re: Any experiences with long-term lidocaine cream?

Post  horsejumper on Tue Dec 02, 2014 4:34 am

Mine is mostly provoked. Occasionally it's random, but when that happens it's not horrible pain by any stretch. Actually applying or touching any sort of anything in the vestibule and about an inch internally is when the pain is greatest (it's not as bad during sex or deeper internal examination).

I'm so relieved to hear that you had some long-term improvement from it! I was worried, since I'm not currently sexually active, that I was just numbing the area to prepare for provoked contact that never came. Smile


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Re: Any experiences with long-term lidocaine cream?

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