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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

More bad news.Anyone else on here unable to have kids?

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More bad news.Anyone else on here unable to have kids?

Post  sailor_moon on Thu Dec 04, 2014 6:09 am

So...I had a follow-up appointment to all the tests I have been having done. Turns out I have a lot more than just V to deal with....turns out I may not be able to have kids either.

My Estrogen is low, my LSH and FSH are out of whack....they are too high and one is not in sync with the other (or something like that, it's all very complicated and confusing). Either my pituarity gland is f*cked, or my ovary is f*cked and failing. If my ovary is the problem my chances of conceiving naturally are pretty much zero. And I mean absolutely no offence when I say this, but I really don't think I could bring myself to do IVF because there is no REAL guarantee someone isn't going to fuck up and put the wrong egg with the wrong sperm... also, I can't afford it. Doesn't it cost thousands of dollars? And other personal reasons. I know people will probably say " Well if you are against IVF don't whinge about not being able to conceive"...but hey, it is so hard to get my head around any of it.  I may change my mind later on but at this point I couldn't do it. And I don't think I could have a baby with V....I can not imagine how bad and painful the labor would be Sad

Worst part is I have no idea if my hormone imbalance is related to the V or not. In the meantime I am getting no treatment so I am still suffering V while feeling so fatigued like I have been hit by a train every single day.

I have to take the pill for a month and then after I bleed I need to take Clomifen (an ovulation stimulation drug) and on day 12 go back for a scan to see if I am ovulating via drug stimulation. If I do, it's a good sign. If not, I unfortunately won't be having kids.

And I am still waiting for an operation. Laparoscopy and Hysteroscopy to see what is going on inside...possible endometriosis and lord knows what else that could be causing vulvodynia.

Has anyone else had any of these sorts of issues, both physically and mentally?  I just can't get my head around it.  V is bad enough,  let alone all this shit on top of it.

Has anyone else gone through any if this? Any advice would be much appreciated. 

I probably sound like a petty whinging b*tch at the moment and I apologise if it comes across that way, I'm just feeling very confused at the moment.

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Re: More bad news.Anyone else on here unable to have kids?

Post  Alana3 on Mon Dec 15, 2014 7:52 pm

You know I have.. Never went thru the lap but a hysteroscopy I have. Prepare to bleed a lot... And my pain came back within a week. But hopefully youll get an answer. I'm at work, but let me know if you need to talk- I agree IVF is fucking ridiculous- and god only knows what those drugs do to you. Not good!


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Re: More bad news.Anyone else on here unable to have kids?

Post  sailor_moon on Thu Dec 18, 2014 10:53 am

Thanks Alana,

This shit sure is exhausting, I don't know how you dealt with it for 7 years straight! How on earth did you get through it without necking yourself? Neutral
Are you completely cured now or do you still have issues after surgery?

It just keeps getting worse and worse for me, more bad news each time...more and more problems. Ahhh we are only in our 20's, we are too young for this crap!

Lignocaine is the only thing keeping me sane at the moment. It provides the most effective relief out of everything I have tried, but ATM my symptoms are so bad [like itchy stinging nettles type feeling] that the Lignocaine isn't working too well. I am back on the pill just for the month so I have a withdrawal bleed and they can do an ovulation test afterwards using an ovulation drug, and I am wondering if the pill is making me worse, despite the fact that I am low in estrogen and progesterone, so you think it would be making me feel better rather than worse, giving me a hormone boost? I don't get it. I have certainly felt more exhausted and moody.


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Re: More bad news.Anyone else on here unable to have kids?

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