Vulvodynia Support
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» Hope to all my suffering ladies
More bad news.Anyone else on here unable to have kids? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
More bad news.Anyone else on here unable to have kids? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
More bad news.Anyone else on here unable to have kids? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
More bad news.Anyone else on here unable to have kids? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
More bad news.Anyone else on here unable to have kids? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
More bad news.Anyone else on here unable to have kids? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
More bad news.Anyone else on here unable to have kids? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
More bad news.Anyone else on here unable to have kids? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
More bad news.Anyone else on here unable to have kids? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


More bad news.Anyone else on here unable to have kids?

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Post  sailor_moon Thu Dec 04, 2014 6:09 am

So...I had a follow-up appointment to all the tests I have been having done. Turns out I have a lot more than just V to deal with....turns out I may not be able to have kids either.

My Estrogen is low, my LSH and FSH are out of whack....they are too high and one is not in sync with the other (or something like that, it's all very complicated and confusing). Either my pituarity gland is f*cked, or my ovary is f*cked and failing. If my ovary is the problem my chances of conceiving naturally are pretty much zero. And I mean absolutely no offence when I say this, but I really don't think I could bring myself to do IVF because there is no REAL guarantee someone isn't going to fuck up and put the wrong egg with the wrong sperm... also, I can't afford it. Doesn't it cost thousands of dollars? And other personal reasons. I know people will probably say " Well if you are against IVF don't whinge about not being able to conceive"...but hey, it is so hard to get my head around any of it.  I may change my mind later on but at this point I couldn't do it. And I don't think I could have a baby with V....I can not imagine how bad and painful the labor would be Sad

Worst part is I have no idea if my hormone imbalance is related to the V or not. In the meantime I am getting no treatment so I am still suffering V while feeling so fatigued like I have been hit by a train every single day.

I have to take the pill for a month and then after I bleed I need to take Clomifen (an ovulation stimulation drug) and on day 12 go back for a scan to see if I am ovulating via drug stimulation. If I do, it's a good sign. If not, I unfortunately won't be having kids.

And I am still waiting for an operation. Laparoscopy and Hysteroscopy to see what is going on inside...possible endometriosis and lord knows what else that could be causing vulvodynia.

Has anyone else had any of these sorts of issues, both physically and mentally?  I just can't get my head around it.  V is bad enough,  let alone all this shit on top of it.

Has anyone else gone through any if this? Any advice would be much appreciated. 

I probably sound like a petty whinging b*tch at the moment and I apologise if it comes across that way, I'm just feeling very confused at the moment.
sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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Post  Alana3 Mon Dec 15, 2014 7:52 pm

You know I have.. Never went thru the lap but a hysteroscopy I have. Prepare to bleed a lot... And my pain came back within a week. But hopefully youll get an answer. I'm at work, but let me know if you need to talk- I agree IVF is fucking ridiculous- and god only knows what those drugs do to you. Not good!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  sailor_moon Thu Dec 18, 2014 10:53 am

Thanks Alana,

This shit sure is exhausting, I don't know how you dealt with it for 7 years straight! How on earth did you get through it without necking yourself? Neutral
Are you completely cured now or do you still have issues after surgery?

It just keeps getting worse and worse for me, more bad news each time...more and more problems. Ahhh we are only in our 20's, we are too young for this crap!

Lignocaine is the only thing keeping me sane at the moment. It provides the most effective relief out of everything I have tried, but ATM my symptoms are so bad [like itchy stinging nettles type feeling] that the Lignocaine isn't working too well. I am back on the pill just for the month so I have a withdrawal bleed and they can do an ovulation test afterwards using an ovulation drug, and I am wondering if the pill is making me worse, despite the fact that I am low in estrogen and progesterone, so you think it would be making me feel better rather than worse, giving me a hormone boost? I don't get it. I have certainly felt more exhausted and moody.

sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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