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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

More bad news.Anyone else on here unable to have kids?

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More bad news.Anyone else on here unable to have kids?

Post  sailor_moon on Thu Dec 04, 2014 6:09 am

So...I had a follow-up appointment to all the tests I have been having done. Turns out I have a lot more than just V to deal with....turns out I may not be able to have kids either.

My Estrogen is low, my LSH and FSH are out of whack....they are too high and one is not in sync with the other (or something like that, it's all very complicated and confusing). Either my pituarity gland is f*cked, or my ovary is f*cked and failing. If my ovary is the problem my chances of conceiving naturally are pretty much zero. And I mean absolutely no offence when I say this, but I really don't think I could bring myself to do IVF because there is no REAL guarantee someone isn't going to fuck up and put the wrong egg with the wrong sperm... also, I can't afford it. Doesn't it cost thousands of dollars? And other personal reasons. I know people will probably say " Well if you are against IVF don't whinge about not being able to conceive"...but hey, it is so hard to get my head around any of it.  I may change my mind later on but at this point I couldn't do it. And I don't think I could have a baby with V....I can not imagine how bad and painful the labor would be Sad

Worst part is I have no idea if my hormone imbalance is related to the V or not. In the meantime I am getting no treatment so I am still suffering V while feeling so fatigued like I have been hit by a train every single day.

I have to take the pill for a month and then after I bleed I need to take Clomifen (an ovulation stimulation drug) and on day 12 go back for a scan to see if I am ovulating via drug stimulation. If I do, it's a good sign. If not, I unfortunately won't be having kids.

And I am still waiting for an operation. Laparoscopy and Hysteroscopy to see what is going on inside...possible endometriosis and lord knows what else that could be causing vulvodynia.

Has anyone else had any of these sorts of issues, both physically and mentally?  I just can't get my head around it.  V is bad enough,  let alone all this shit on top of it.

Has anyone else gone through any if this? Any advice would be much appreciated. 

I probably sound like a petty whinging b*tch at the moment and I apologise if it comes across that way, I'm just feeling very confused at the moment.

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Re: More bad news.Anyone else on here unable to have kids?

Post  Alana3 on Mon Dec 15, 2014 7:52 pm

You know I have.. Never went thru the lap but a hysteroscopy I have. Prepare to bleed a lot... And my pain came back within a week. But hopefully youll get an answer. I'm at work, but let me know if you need to talk- I agree IVF is fucking ridiculous- and god only knows what those drugs do to you. Not good!


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Re: More bad news.Anyone else on here unable to have kids?

Post  sailor_moon on Thu Dec 18, 2014 10:53 am

Thanks Alana,

This shit sure is exhausting, I don't know how you dealt with it for 7 years straight! How on earth did you get through it without necking yourself? Neutral
Are you completely cured now or do you still have issues after surgery?

It just keeps getting worse and worse for me, more bad news each time...more and more problems. Ahhh we are only in our 20's, we are too young for this crap!

Lignocaine is the only thing keeping me sane at the moment. It provides the most effective relief out of everything I have tried, but ATM my symptoms are so bad [like itchy stinging nettles type feeling] that the Lignocaine isn't working too well. I am back on the pill just for the month so I have a withdrawal bleed and they can do an ovulation test afterwards using an ovulation drug, and I am wondering if the pill is making me worse, despite the fact that I am low in estrogen and progesterone, so you think it would be making me feel better rather than worse, giving me a hormone boost? I don't get it. I have certainly felt more exhausted and moody.


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Re: More bad news.Anyone else on here unable to have kids?

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