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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

More bad news.Anyone else on here unable to have kids?

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More bad news.Anyone else on here unable to have kids?

Post  sailor_moon on Thu Dec 04, 2014 6:09 am

So...I had a follow-up appointment to all the tests I have been having done. Turns out I have a lot more than just V to deal with....turns out I may not be able to have kids either.

My Estrogen is low, my LSH and FSH are out of whack....they are too high and one is not in sync with the other (or something like that, it's all very complicated and confusing). Either my pituarity gland is f*cked, or my ovary is f*cked and failing. If my ovary is the problem my chances of conceiving naturally are pretty much zero. And I mean absolutely no offence when I say this, but I really don't think I could bring myself to do IVF because there is no REAL guarantee someone isn't going to fuck up and put the wrong egg with the wrong sperm... also, I can't afford it. Doesn't it cost thousands of dollars? And other personal reasons. I know people will probably say " Well if you are against IVF don't whinge about not being able to conceive"...but hey, it is so hard to get my head around any of it.  I may change my mind later on but at this point I couldn't do it. And I don't think I could have a baby with V....I can not imagine how bad and painful the labor would be Sad

Worst part is I have no idea if my hormone imbalance is related to the V or not. In the meantime I am getting no treatment so I am still suffering V while feeling so fatigued like I have been hit by a train every single day.

I have to take the pill for a month and then after I bleed I need to take Clomifen (an ovulation stimulation drug) and on day 12 go back for a scan to see if I am ovulating via drug stimulation. If I do, it's a good sign. If not, I unfortunately won't be having kids.

And I am still waiting for an operation. Laparoscopy and Hysteroscopy to see what is going on inside...possible endometriosis and lord knows what else that could be causing vulvodynia.

Has anyone else had any of these sorts of issues, both physically and mentally?  I just can't get my head around it.  V is bad enough,  let alone all this shit on top of it.

Has anyone else gone through any if this? Any advice would be much appreciated. 

I probably sound like a petty whinging b*tch at the moment and I apologise if it comes across that way, I'm just feeling very confused at the moment.

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Re: More bad news.Anyone else on here unable to have kids?

Post  Alana3 on Mon Dec 15, 2014 7:52 pm

You know I have.. Never went thru the lap but a hysteroscopy I have. Prepare to bleed a lot... And my pain came back within a week. But hopefully youll get an answer. I'm at work, but let me know if you need to talk- I agree IVF is fucking ridiculous- and god only knows what those drugs do to you. Not good!


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Re: More bad news.Anyone else on here unable to have kids?

Post  sailor_moon on Thu Dec 18, 2014 10:53 am

Thanks Alana,

This shit sure is exhausting, I don't know how you dealt with it for 7 years straight! How on earth did you get through it without necking yourself? Neutral
Are you completely cured now or do you still have issues after surgery?

It just keeps getting worse and worse for me, more bad news each time...more and more problems. Ahhh we are only in our 20's, we are too young for this crap!

Lignocaine is the only thing keeping me sane at the moment. It provides the most effective relief out of everything I have tried, but ATM my symptoms are so bad [like itchy stinging nettles type feeling] that the Lignocaine isn't working too well. I am back on the pill just for the month so I have a withdrawal bleed and they can do an ovulation test afterwards using an ovulation drug, and I am wondering if the pill is making me worse, despite the fact that I am low in estrogen and progesterone, so you think it would be making me feel better rather than worse, giving me a hormone boost? I don't get it. I have certainly felt more exhausted and moody.


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