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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


New to vulvodynia and searching for solutions

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New to vulvodynia and searching for solutions

Post  justbecca28 on Sun Dec 07, 2014 12:39 am

Hi,
I am 30 and was just diagnosed with vulvodynia about 6 months ago. Since the first time I had sex, when I was 16, I knew there was something wrong. My bf at the time couldn't even penetrate, and when he finally did, the pain was unbearable. To this day I have never had sex without pain. I didn't even understand that what I was experiencing was not normal until I was probably 20. I thought to myself - everyone experiences pain when they first have sex right? Maybe I just need to have more sex and the pain will go away? Well, a few years and a few boyfriends later, the pain was still there. I was so embarrassed and ashamed and didn't have a clue how to talk about it with anyone. I got married when I was 22 and for the first time saw very clearly that something was not right, and how badly it would affect my life if I did not do something about it. I was able to share with my husband what was going on and he encouraged me to talk to my doctor. This started a long and aggravating journey of Dr's basically telling me there was nothing wrong with me, and that I just needed to engage in more foreplay. I gave up hope that there was an answer until a year and a half ago, when a therapist I was seeing assured me that what I was experiencing was not normal, and that there are solutions. Due to lack of insurance and other life circumstances I was not able to see a specialist until this year. That's when I found out that what I have been suffering from is called vulvodynia. I also found out that they don't know the cause or have a definitive cure. Ugh. Well, two steps forward and one step back, but that's ok. I'm still one step forward.

Surprisingly I have been able to maintain a fairly healthy marriage for 8 years, but the lack of sexual intimacy is really starting to take a toll on both of us and I am in search of solutions. As I have searched the web and read posts on this forum, I see that my symptoms are pretty mild compared to many, and I am thankful for that. I don't think my pain is nerve related, but seems to be more of a combo between skin irritation (maybe food/chemical allergy related?) and a hormone imbalance. Honestly, what I am looking for is just people to have a dialogue with, and natural solutions. I hate the idea of putting chemicals into my body for the rest of my life. If you can relate, I would love to chat and hear your suggestions and stories.

Thanks for reading!

justbecca28

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Re: New to vulvodynia and searching for solutions

Post  EverythingIsDifferentNow on Sun Dec 07, 2014 5:04 pm

Hi newly member (: I've been a member for a few months now and have traveled a long, hard road to recovery. I'm 16 by the way. What really helps me more than anything is EXERCISE. Every. Single. Day. If you do not know what to do, try ab challenges you find online. They really help. I also take vitamin pills and don't eat too much junk food. Also DIET has A LOT to do with your body, especially your vagina. There are cures out there, it is NOT incurable. If your body was able to produce this terrible condition, it is able to reverse the situation. So find out about your diet, do exercises that work out your core and abs, and find out if your spine or pelvis is causing the problem. My spine (I have mild sclerosis) is a factor to my vulvodynia and i've been doing physical therapy to help me. Anyways let me give you some tips:
-don't use tampons, use pads (unscented)
-find out what detergent your using, it can be a cause. Sounds weird, but I know people who have had vulvodynia because their detergent had been irritating them down there causing all sorts of problems. Make sure it's unscented also (:
-loose fit clothing
-heating pad works wonders for me, but an ice pack works wonders for almost everyone
-vitamin pills (all natural)
-exerciseexerciseexerciseexercise (this is my cure or excellent treatment for me)
-don't go to the pool or beach
-change your pads frequently throughout the day
-look up more treatments for vulvodynia and please RESEARCH. If i had not researched about this excessively i would have not found my cure which is simple and easy. Please please research as much as you can. Lots of love xx
P.S. Never give up sunny

EverythingIsDifferentNow

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Join date : 2014-09-13

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Re: New to vulvodynia and searching for solutions

Post  justbecca28 on Sun Dec 07, 2014 7:21 pm

Thanks for the tips! I just started to implement some of these things - new detergent, etc. So it's good to hear it's working for you. And nice job at taking charge of your health at such a young age! Your body will love you for it later. Smile I've always led a pretty active lifestyle so I think I've got the exercise thing down. Hopefully with the help of other things, it will all work together to make a difference. Thanks again! Smile

justbecca28

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Re: New to vulvodynia and searching for solutions

Post  Alana3 on Mon Dec 15, 2014 7:46 pm

I jumped through a ton of hoops before a doctor would do surgery on me and I am so happy with it. I can have sex painfree now (not to brag, I was in your shoes for 7 years and it absolutely was terrible, so I can relate). Things I tried before I went to surgery, and hopefully they help you better then me:

Estrace (didn't do shit my doc said Vulovynia was only due to not keeping clean BULL SHIT my hooha is very clean she was stupid)
Coconut oil
Low oxalate diet or whatever
baking soda wash (helped but not for long period of time)
various compounds... meh gabapentin, amitryptyline and lidocaine
acycolvir- no I do not have herpes and run like hell if anyone gives this to you for vulvodynia. It's not a treatment
Various sopositories (fun shit I love shoving shit up my vagina)
Various vitamins
changing pads blah blah blah
loose clothing
changing immeadiately from wet clothing
At any rate, none of it helped so I got the surgery, very happy with the outcome hope this helps some...

Alana3

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Re: New to vulvodynia and searching for solutions

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