Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New to vulvodynia and searching for solutions

View previous topic View next topic Go down

New to vulvodynia and searching for solutions

Post  justbecca28 on Sun Dec 07, 2014 12:39 am

Hi,
I am 30 and was just diagnosed with vulvodynia about 6 months ago. Since the first time I had sex, when I was 16, I knew there was something wrong. My bf at the time couldn't even penetrate, and when he finally did, the pain was unbearable. To this day I have never had sex without pain. I didn't even understand that what I was experiencing was not normal until I was probably 20. I thought to myself - everyone experiences pain when they first have sex right? Maybe I just need to have more sex and the pain will go away? Well, a few years and a few boyfriends later, the pain was still there. I was so embarrassed and ashamed and didn't have a clue how to talk about it with anyone. I got married when I was 22 and for the first time saw very clearly that something was not right, and how badly it would affect my life if I did not do something about it. I was able to share with my husband what was going on and he encouraged me to talk to my doctor. This started a long and aggravating journey of Dr's basically telling me there was nothing wrong with me, and that I just needed to engage in more foreplay. I gave up hope that there was an answer until a year and a half ago, when a therapist I was seeing assured me that what I was experiencing was not normal, and that there are solutions. Due to lack of insurance and other life circumstances I was not able to see a specialist until this year. That's when I found out that what I have been suffering from is called vulvodynia. I also found out that they don't know the cause or have a definitive cure. Ugh. Well, two steps forward and one step back, but that's ok. I'm still one step forward.

Surprisingly I have been able to maintain a fairly healthy marriage for 8 years, but the lack of sexual intimacy is really starting to take a toll on both of us and I am in search of solutions. As I have searched the web and read posts on this forum, I see that my symptoms are pretty mild compared to many, and I am thankful for that. I don't think my pain is nerve related, but seems to be more of a combo between skin irritation (maybe food/chemical allergy related?) and a hormone imbalance. Honestly, what I am looking for is just people to have a dialogue with, and natural solutions. I hate the idea of putting chemicals into my body for the rest of my life. If you can relate, I would love to chat and hear your suggestions and stories.

Thanks for reading!

justbecca28

Posts : 2
Join date : 2014-12-06

View user profile

Back to top Go down

Re: New to vulvodynia and searching for solutions

Post  EverythingIsDifferentNow on Sun Dec 07, 2014 5:04 pm

Hi newly member (: I've been a member for a few months now and have traveled a long, hard road to recovery. I'm 16 by the way. What really helps me more than anything is EXERCISE. Every. Single. Day. If you do not know what to do, try ab challenges you find online. They really help. I also take vitamin pills and don't eat too much junk food. Also DIET has A LOT to do with your body, especially your vagina. There are cures out there, it is NOT incurable. If your body was able to produce this terrible condition, it is able to reverse the situation. So find out about your diet, do exercises that work out your core and abs, and find out if your spine or pelvis is causing the problem. My spine (I have mild sclerosis) is a factor to my vulvodynia and i've been doing physical therapy to help me. Anyways let me give you some tips:
-don't use tampons, use pads (unscented)
-find out what detergent your using, it can be a cause. Sounds weird, but I know people who have had vulvodynia because their detergent had been irritating them down there causing all sorts of problems. Make sure it's unscented also (:
-loose fit clothing
-heating pad works wonders for me, but an ice pack works wonders for almost everyone
-vitamin pills (all natural)
-exerciseexerciseexerciseexercise (this is my cure or excellent treatment for me)
-don't go to the pool or beach
-change your pads frequently throughout the day
-look up more treatments for vulvodynia and please RESEARCH. If i had not researched about this excessively i would have not found my cure which is simple and easy. Please please research as much as you can. Lots of love xx
P.S. Never give up sunny

EverythingIsDifferentNow

Posts : 30
Join date : 2014-09-13

View user profile

Back to top Go down

Re: New to vulvodynia and searching for solutions

Post  justbecca28 on Sun Dec 07, 2014 7:21 pm

Thanks for the tips! I just started to implement some of these things - new detergent, etc. So it's good to hear it's working for you. And nice job at taking charge of your health at such a young age! Your body will love you for it later. Smile I've always led a pretty active lifestyle so I think I've got the exercise thing down. Hopefully with the help of other things, it will all work together to make a difference. Thanks again! Smile

justbecca28

Posts : 2
Join date : 2014-12-06

View user profile

Back to top Go down

Re: New to vulvodynia and searching for solutions

Post  Alana3 on Mon Dec 15, 2014 7:46 pm

I jumped through a ton of hoops before a doctor would do surgery on me and I am so happy with it. I can have sex painfree now (not to brag, I was in your shoes for 7 years and it absolutely was terrible, so I can relate). Things I tried before I went to surgery, and hopefully they help you better then me:

Estrace (didn't do shit my doc said Vulovynia was only due to not keeping clean BULL SHIT my hooha is very clean she was stupid)
Coconut oil
Low oxalate diet or whatever
baking soda wash (helped but not for long period of time)
various compounds... meh gabapentin, amitryptyline and lidocaine
acycolvir- no I do not have herpes and run like hell if anyone gives this to you for vulvodynia. It's not a treatment
Various sopositories (fun shit I love shoving shit up my vagina)
Various vitamins
changing pads blah blah blah
loose clothing
changing immeadiately from wet clothing
At any rate, none of it helped so I got the surgery, very happy with the outcome hope this helps some...

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New to vulvodynia and searching for solutions

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum