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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Finally relief

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Finally relief

Post  bluejean on Tue Dec 09, 2014 7:55 am

Hello all, It's been a couple of months since I've been on here but I wanted to share my relief that I've had. For the last two years I've suffered from V. I tried everything. I started out learning that I couldn't use anything with any fragrance in it down there. Sometimes I would think I was using something without it and I would discover it did...........so now .....nothing but plain unscented soap. I also started using frangrance free so dye laundry detergent. I finally had a little relief but still lots of pain.

My Dr prescribed me Gabo Pentin. Last year I used it and it didn't work.......at the time I had not quit using plain soaps or changed my detergent so I gave up on the Gabopentin.
Dr asked me to try Gabopentin again.,,,,,,,,,so I did. I finally ......in two years........have found relief. I think the two things combined........cutting out all frangrance of any kind and the Gabopentin has done it. I havn't felt so much relief in so long.

Also, through research I believe Vulvodynina is connected with fibromyalgia (sp?) and also bone being out of place. I went to the chiropractor and had an adjustment and I even felt more relief. I also suffer from shingles which break out during stress and I think it's related somehow.

Anyway.........I hope this information can help someone else...........cut out all fragrance......only use unscented ivory soap or dove soap and try the crème Gabopentin.......only one pharmacy in my area can fill it cause it has to be compounded.

Praying for you all healing from this terrible thing.


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Re: Finally relief

Post  JulesB on Sat Jan 17, 2015 9:07 pm

Blue jean, I am so pleased for you. Well done for not giving up. Like you, I persisted and found the right combination of treatments that worked for me, although there were many times that I felt so dragged down by the constant pain that I just felt like having it all cut off. It took me around two years also, until I felt pain free, but still vulnerable. I have put posts all over this site to share with others what worked for me because it is the most horrible, depressing pain. I am sure you will join me in saying to others, still in the midst of the hellish pain, keep trying to find what works for you. Reading the posts, it seems that we are all different, our vulvodynia has different, often multiple causes, and the appropriate treatment(s) will also differ. What works for one woman, will not work for another. There are lots of different success stories on this site, so there are lots of treatments to try - some conventional medicines like amitriptylene / gabapentin and steroid creams; others alternative approaches such as chiropraction, acupuncture, essential oils - there should (I sincerely hope) be some combination of treatments that will work for each and every one of us.


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