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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Finally relief

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Finally relief

Post  bluejean on Tue Dec 09, 2014 7:55 am

Hello all, It's been a couple of months since I've been on here but I wanted to share my relief that I've had. For the last two years I've suffered from V. I tried everything. I started out learning that I couldn't use anything with any fragrance in it down there. Sometimes I would think I was using something without it and I would discover it did...........so now .....nothing but plain unscented soap. I also started using frangrance free so dye laundry detergent. I finally had a little relief but still lots of pain.

My Dr prescribed me Gabo Pentin. Last year I used it and it didn't work.......at the time I had not quit using plain soaps or changed my detergent so I gave up on the Gabopentin.
Dr asked me to try Gabopentin again.,,,,,,,,,so I did. I finally ......in two years........have found relief. I think the two things combined........cutting out all frangrance of any kind and the Gabopentin has done it. I havn't felt so much relief in so long.

Also, through research I believe Vulvodynina is connected with fibromyalgia (sp?) and also bone being out of place. I went to the chiropractor and had an adjustment and I even felt more relief. I also suffer from shingles which break out during stress and I think it's related somehow.

Anyway.........I hope this information can help someone else...........cut out all fragrance......only use unscented ivory soap or dove soap and try the crème Gabopentin.......only one pharmacy in my area can fill it cause it has to be compounded.

Praying for you all healing from this terrible thing.


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Re: Finally relief

Post  JulesB on Sat Jan 17, 2015 9:07 pm

Blue jean, I am so pleased for you. Well done for not giving up. Like you, I persisted and found the right combination of treatments that worked for me, although there were many times that I felt so dragged down by the constant pain that I just felt like having it all cut off. It took me around two years also, until I felt pain free, but still vulnerable. I have put posts all over this site to share with others what worked for me because it is the most horrible, depressing pain. I am sure you will join me in saying to others, still in the midst of the hellish pain, keep trying to find what works for you. Reading the posts, it seems that we are all different, our vulvodynia has different, often multiple causes, and the appropriate treatment(s) will also differ. What works for one woman, will not work for another. There are lots of different success stories on this site, so there are lots of treatments to try - some conventional medicines like amitriptylene / gabapentin and steroid creams; others alternative approaches such as chiropraction, acupuncture, essential oils - there should (I sincerely hope) be some combination of treatments that will work for each and every one of us.


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