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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Finally relief

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Finally relief

Post  bluejean on Tue Dec 09, 2014 7:55 am

Hello all, It's been a couple of months since I've been on here but I wanted to share my relief that I've had. For the last two years I've suffered from V. I tried everything. I started out learning that I couldn't use anything with any fragrance in it down there. Sometimes I would think I was using something without it and I would discover it did...........so now .....nothing but plain unscented soap. I also started using frangrance free so dye laundry detergent. I finally had a little relief but still lots of pain.

My Dr prescribed me Gabo Pentin. Last year I used it and it didn't work.......at the time I had not quit using plain soaps or changed my detergent so I gave up on the Gabopentin.
Dr asked me to try Gabopentin again.,,,,,,,,,so I did. I finally ......in two years........have found relief. I think the two things combined........cutting out all frangrance of any kind and the Gabopentin has done it. I havn't felt so much relief in so long.

Also, through research I believe Vulvodynina is connected with fibromyalgia (sp?) and also bone being out of place. I went to the chiropractor and had an adjustment and I even felt more relief. I also suffer from shingles which break out during stress and I think it's related somehow.

Anyway.........I hope this information can help someone else...........cut out all fragrance......only use unscented ivory soap or dove soap and try the crème Gabopentin.......only one pharmacy in my area can fill it cause it has to be compounded.

Praying for you all healing from this terrible thing.


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Re: Finally relief

Post  JulesB on Sat Jan 17, 2015 9:07 pm

Blue jean, I am so pleased for you. Well done for not giving up. Like you, I persisted and found the right combination of treatments that worked for me, although there were many times that I felt so dragged down by the constant pain that I just felt like having it all cut off. It took me around two years also, until I felt pain free, but still vulnerable. I have put posts all over this site to share with others what worked for me because it is the most horrible, depressing pain. I am sure you will join me in saying to others, still in the midst of the hellish pain, keep trying to find what works for you. Reading the posts, it seems that we are all different, our vulvodynia has different, often multiple causes, and the appropriate treatment(s) will also differ. What works for one woman, will not work for another. There are lots of different success stories on this site, so there are lots of treatments to try - some conventional medicines like amitriptylene / gabapentin and steroid creams; others alternative approaches such as chiropraction, acupuncture, essential oils - there should (I sincerely hope) be some combination of treatments that will work for each and every one of us.


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