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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Finally relief

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Finally relief

Post  bluejean on Tue Dec 09, 2014 7:55 am

Hello all, It's been a couple of months since I've been on here but I wanted to share my relief that I've had. For the last two years I've suffered from V. I tried everything. I started out learning that I couldn't use anything with any fragrance in it down there. Sometimes I would think I was using something without it and I would discover it did...........so now .....nothing but plain unscented soap. I also started using frangrance free so dye laundry detergent. I finally had a little relief but still lots of pain.

My Dr prescribed me Gabo Pentin. Last year I used it and it didn't work.......at the time I had not quit using plain soaps or changed my detergent so I gave up on the Gabopentin.
Dr asked me to try Gabopentin again.,,,,,,,,,so I did. I finally ......in two years........have found relief. I think the two things combined........cutting out all frangrance of any kind and the Gabopentin has done it. I havn't felt so much relief in so long.

Also, through research I believe Vulvodynina is connected with fibromyalgia (sp?) and also bone being out of place. I went to the chiropractor and had an adjustment and I even felt more relief. I also suffer from shingles which break out during stress and I think it's related somehow.

Anyway.........I hope this information can help someone else...........cut out all fragrance......only use unscented ivory soap or dove soap and try the crème Gabopentin.......only one pharmacy in my area can fill it cause it has to be compounded.

Praying for you all healing from this terrible thing.


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Re: Finally relief

Post  JulesB on Sat Jan 17, 2015 9:07 pm

Blue jean, I am so pleased for you. Well done for not giving up. Like you, I persisted and found the right combination of treatments that worked for me, although there were many times that I felt so dragged down by the constant pain that I just felt like having it all cut off. It took me around two years also, until I felt pain free, but still vulnerable. I have put posts all over this site to share with others what worked for me because it is the most horrible, depressing pain. I am sure you will join me in saying to others, still in the midst of the hellish pain, keep trying to find what works for you. Reading the posts, it seems that we are all different, our vulvodynia has different, often multiple causes, and the appropriate treatment(s) will also differ. What works for one woman, will not work for another. There are lots of different success stories on this site, so there are lots of treatments to try - some conventional medicines like amitriptylene / gabapentin and steroid creams; others alternative approaches such as chiropraction, acupuncture, essential oils - there should (I sincerely hope) be some combination of treatments that will work for each and every one of us.


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