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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Vulvodynia nerve pain after having baby

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Vulvodynia nerve pain after having baby

Post  ethome on Tue Dec 09, 2014 8:33 pm

I recently had my second baby 7 months ago and since then I have had pain at the site where I tore and just inside my vagina. It only really hurt if pressure was applied but I have recently had a steroid and anesthetic injection into the vagina area to help treat this. This has made things so much worse as now I have pain all the time. It throbs and burns constantly. I went back to the gynae who treated me and he said that there was no reason for me to be feeling like this. He couldn't say a lot other than I shouldn't be in discomfort and gave me some lidocane gel. I am keen to know if anyone else has experienced this and if it will subside. This was 4 weeks ago. Thank you

ethome

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In a similar situation

Post  Kissimmo on Wed Dec 24, 2014 11:46 am

Hi there,

This is my first time on this site, I've only just discovered it. Bit overwhelmed by the wealth of information and advice but finally not feeling so alone!

I had my little girl just over 7 years ago. I experienced a third degree. 10 weeks later, we had sex, it really hurt but kind of thought it was normal and would ease with time. A year down the line it was still hurting. I was diagnosed with 'vaginismus' described to me as a pyschological condition that manifests itself physically i.e. it my body was remembering the pain of childbirth and tensing up the muscles and therefore hurting. I had a session of counselling and it was quickly noted that I really didn't have an 'issue'. I then had a year or so of physiotherapy to 'retrain the muscles'. It had no effect. Years followed of frustrating appointments with various people. Eventually a doctor decided I actually wasn't phycially right down there. She did a biopsy and it turned out I have a skin condition called 'lichen planus'. It's an autoimmune thing. They don't know what caused it, perhaps being pregnant or perhaps a weakness around the scar tissue.....but unfortunately there is no cure. However, there are ways of treating the symptoms. Sadly, none of the steroids/creams worked for me. Lidocaine didn't make a difference to the pain either. I am currently on Nortriptyline which is usually used as a anti depressant but in this case can help weaken the nerves down there. So far it hasn't worked, I've been asked to double the dose from 50mg to 100mg and see if that makes any difference.

Looking on here there seems to be so many routes to go down....acupuncture, homeopathy.....I'm not sure where to go next but feel like I need to give this medication a proper shot first.

I'm so sorry your doctor has been so unhelpful! I have just started to see a dermatologist at the hospital who specialises in skin disorders of this area. Would it be possible for you to maybe ask your GP if there is similar in your area and get referred? I forgot to add to 'my story' I also had allergy tests. I have never reacted to anything before so was very surprised to learn I am allergic to fragrance. I have completely stopped using fragrance body washes etc and wash my underwear in non-allergic non-frangranced stuff. It seems childbrith can make this area susceptible to reactions to things, perhaps you didn't react well to the injection? Sorry I haven't been very helpful in offering advice, but hope it's some comfort knowing it's not just you! I really hope things improve for you soon. It's very frustrating I know!

Kissimmo

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