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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Vulvodynia nerve pain after having baby

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Vulvodynia nerve pain after having baby

Post  ethome on Tue Dec 09, 2014 8:33 pm

I recently had my second baby 7 months ago and since then I have had pain at the site where I tore and just inside my vagina. It only really hurt if pressure was applied but I have recently had a steroid and anesthetic injection into the vagina area to help treat this. This has made things so much worse as now I have pain all the time. It throbs and burns constantly. I went back to the gynae who treated me and he said that there was no reason for me to be feeling like this. He couldn't say a lot other than I shouldn't be in discomfort and gave me some lidocane gel. I am keen to know if anyone else has experienced this and if it will subside. This was 4 weeks ago. Thank you

ethome

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In a similar situation

Post  Kissimmo on Wed Dec 24, 2014 11:46 am

Hi there,

This is my first time on this site, I've only just discovered it. Bit overwhelmed by the wealth of information and advice but finally not feeling so alone!

I had my little girl just over 7 years ago. I experienced a third degree. 10 weeks later, we had sex, it really hurt but kind of thought it was normal and would ease with time. A year down the line it was still hurting. I was diagnosed with 'vaginismus' described to me as a pyschological condition that manifests itself physically i.e. it my body was remembering the pain of childbirth and tensing up the muscles and therefore hurting. I had a session of counselling and it was quickly noted that I really didn't have an 'issue'. I then had a year or so of physiotherapy to 'retrain the muscles'. It had no effect. Years followed of frustrating appointments with various people. Eventually a doctor decided I actually wasn't phycially right down there. She did a biopsy and it turned out I have a skin condition called 'lichen planus'. It's an autoimmune thing. They don't know what caused it, perhaps being pregnant or perhaps a weakness around the scar tissue.....but unfortunately there is no cure. However, there are ways of treating the symptoms. Sadly, none of the steroids/creams worked for me. Lidocaine didn't make a difference to the pain either. I am currently on Nortriptyline which is usually used as a anti depressant but in this case can help weaken the nerves down there. So far it hasn't worked, I've been asked to double the dose from 50mg to 100mg and see if that makes any difference.

Looking on here there seems to be so many routes to go down....acupuncture, homeopathy.....I'm not sure where to go next but feel like I need to give this medication a proper shot first.

I'm so sorry your doctor has been so unhelpful! I have just started to see a dermatologist at the hospital who specialises in skin disorders of this area. Would it be possible for you to maybe ask your GP if there is similar in your area and get referred? I forgot to add to 'my story' I also had allergy tests. I have never reacted to anything before so was very surprised to learn I am allergic to fragrance. I have completely stopped using fragrance body washes etc and wash my underwear in non-allergic non-frangranced stuff. It seems childbrith can make this area susceptible to reactions to things, perhaps you didn't react well to the injection? Sorry I haven't been very helpful in offering advice, but hope it's some comfort knowing it's not just you! I really hope things improve for you soon. It's very frustrating I know!

Kissimmo

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Join date : 2014-12-24

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