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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Vulvodynia nerve pain after having baby

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Vulvodynia nerve pain after having baby

Post  ethome on Tue Dec 09, 2014 8:33 pm

I recently had my second baby 7 months ago and since then I have had pain at the site where I tore and just inside my vagina. It only really hurt if pressure was applied but I have recently had a steroid and anesthetic injection into the vagina area to help treat this. This has made things so much worse as now I have pain all the time. It throbs and burns constantly. I went back to the gynae who treated me and he said that there was no reason for me to be feeling like this. He couldn't say a lot other than I shouldn't be in discomfort and gave me some lidocane gel. I am keen to know if anyone else has experienced this and if it will subside. This was 4 weeks ago. Thank you

ethome

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In a similar situation

Post  Kissimmo on Wed Dec 24, 2014 11:46 am

Hi there,

This is my first time on this site, I've only just discovered it. Bit overwhelmed by the wealth of information and advice but finally not feeling so alone!

I had my little girl just over 7 years ago. I experienced a third degree. 10 weeks later, we had sex, it really hurt but kind of thought it was normal and would ease with time. A year down the line it was still hurting. I was diagnosed with 'vaginismus' described to me as a pyschological condition that manifests itself physically i.e. it my body was remembering the pain of childbirth and tensing up the muscles and therefore hurting. I had a session of counselling and it was quickly noted that I really didn't have an 'issue'. I then had a year or so of physiotherapy to 'retrain the muscles'. It had no effect. Years followed of frustrating appointments with various people. Eventually a doctor decided I actually wasn't phycially right down there. She did a biopsy and it turned out I have a skin condition called 'lichen planus'. It's an autoimmune thing. They don't know what caused it, perhaps being pregnant or perhaps a weakness around the scar tissue.....but unfortunately there is no cure. However, there are ways of treating the symptoms. Sadly, none of the steroids/creams worked for me. Lidocaine didn't make a difference to the pain either. I am currently on Nortriptyline which is usually used as a anti depressant but in this case can help weaken the nerves down there. So far it hasn't worked, I've been asked to double the dose from 50mg to 100mg and see if that makes any difference.

Looking on here there seems to be so many routes to go down....acupuncture, homeopathy.....I'm not sure where to go next but feel like I need to give this medication a proper shot first.

I'm so sorry your doctor has been so unhelpful! I have just started to see a dermatologist at the hospital who specialises in skin disorders of this area. Would it be possible for you to maybe ask your GP if there is similar in your area and get referred? I forgot to add to 'my story' I also had allergy tests. I have never reacted to anything before so was very surprised to learn I am allergic to fragrance. I have completely stopped using fragrance body washes etc and wash my underwear in non-allergic non-frangranced stuff. It seems childbrith can make this area susceptible to reactions to things, perhaps you didn't react well to the injection? Sorry I haven't been very helpful in offering advice, but hope it's some comfort knowing it's not just you! I really hope things improve for you soon. It's very frustrating I know!

Kissimmo

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