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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Vulvodynia nerve pain after having baby

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Vulvodynia nerve pain after having baby

Post  ethome on Tue Dec 09, 2014 8:33 pm

I recently had my second baby 7 months ago and since then I have had pain at the site where I tore and just inside my vagina. It only really hurt if pressure was applied but I have recently had a steroid and anesthetic injection into the vagina area to help treat this. This has made things so much worse as now I have pain all the time. It throbs and burns constantly. I went back to the gynae who treated me and he said that there was no reason for me to be feeling like this. He couldn't say a lot other than I shouldn't be in discomfort and gave me some lidocane gel. I am keen to know if anyone else has experienced this and if it will subside. This was 4 weeks ago. Thank you

ethome

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In a similar situation

Post  Kissimmo on Wed Dec 24, 2014 11:46 am

Hi there,

This is my first time on this site, I've only just discovered it. Bit overwhelmed by the wealth of information and advice but finally not feeling so alone!

I had my little girl just over 7 years ago. I experienced a third degree. 10 weeks later, we had sex, it really hurt but kind of thought it was normal and would ease with time. A year down the line it was still hurting. I was diagnosed with 'vaginismus' described to me as a pyschological condition that manifests itself physically i.e. it my body was remembering the pain of childbirth and tensing up the muscles and therefore hurting. I had a session of counselling and it was quickly noted that I really didn't have an 'issue'. I then had a year or so of physiotherapy to 'retrain the muscles'. It had no effect. Years followed of frustrating appointments with various people. Eventually a doctor decided I actually wasn't phycially right down there. She did a biopsy and it turned out I have a skin condition called 'lichen planus'. It's an autoimmune thing. They don't know what caused it, perhaps being pregnant or perhaps a weakness around the scar tissue.....but unfortunately there is no cure. However, there are ways of treating the symptoms. Sadly, none of the steroids/creams worked for me. Lidocaine didn't make a difference to the pain either. I am currently on Nortriptyline which is usually used as a anti depressant but in this case can help weaken the nerves down there. So far it hasn't worked, I've been asked to double the dose from 50mg to 100mg and see if that makes any difference.

Looking on here there seems to be so many routes to go down....acupuncture, homeopathy.....I'm not sure where to go next but feel like I need to give this medication a proper shot first.

I'm so sorry your doctor has been so unhelpful! I have just started to see a dermatologist at the hospital who specialises in skin disorders of this area. Would it be possible for you to maybe ask your GP if there is similar in your area and get referred? I forgot to add to 'my story' I also had allergy tests. I have never reacted to anything before so was very surprised to learn I am allergic to fragrance. I have completely stopped using fragrance body washes etc and wash my underwear in non-allergic non-frangranced stuff. It seems childbrith can make this area susceptible to reactions to things, perhaps you didn't react well to the injection? Sorry I haven't been very helpful in offering advice, but hope it's some comfort knowing it's not just you! I really hope things improve for you soon. It's very frustrating I know!

Kissimmo

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