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» Vulvodynia is a secret
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Just found this site.. thank god.

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Just found this site.. thank god.

Post  abbey5531 on Sat Dec 27, 2014 2:59 am

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I think it was partially due to the fact that we couldn't connect without having sex, and he thought that I just didn't want to do anything with him. Anyways, back in February, I was given my diagnosis and began amitriptyline. I didn't have sex for a month or two after, but I immediately realized that the pain wasn't there. I was ecstatic! Since then, I have realized that some condoms or lubricants can increase my symptoms, and have steered clear of them. Recently, I started another relationship and sex has become more regular. I also got a Paragard IUD. I chose this one because it is nonhormonal, and the hormones in birth control gave me chronic bacterial vaginosis and yeast infections, which led to my vulvodynia. I think that I may need to increase my prescription of amitriptyline because my symptoms seem to be returning but, I'm nervous, because I think that the medicine prevents me from having an orgasm. I think that it blocks the good feelings as well as the bad, and I don't think that increasing my prescription would help this. Maybe it is a psychological issue, but I'm not sure. I love my boyfriend very much and trust him, and before my symptoms returned I could come close to an orgasm, but not all the way, but would not experience any kind of pain at the time or afterwards. I have an appointment to talk to my doctor, but I just wanted to get opinions on other treatments out there. I've never met anyone else with this problem, and am so thankful to have found a place to get some feedback. Things to keep in mind: I am in a monogomous relationship, I have an extremely effective form of birth control, and I have tried amitriptyline. I eat fairly healthy, well, for a 21 year-old college student. I will appreciate ANY sort of advice out there. I just want to be able to have a normal, consistent, conventional sex life. Is that too much to ask? Thanks, ladies. I'm really glad I found this group.


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Meds that work

Post  lexiharley on Mon Dec 29, 2014 5:09 am

I was diagnosed with vulvadynia 14 years ago. I suffered horribly for a very long time. I was put on Amytriptyline and clonazepam and I have been mostly pain free for 10 years, I did join a health club and my symptoms returned so I had to quit. I can now walk on the treadmill but that is about it...but I can wear jeans again...so yeah!!!!


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Re: Just found this site.. thank god.

Post  Sparkle on Tue Dec 30, 2014 9:18 pm

Hey abbey, what else have your tried minus the ami? When I went to the doctors she wanted to put me on that too but I went down another route which included vitamins and using no purfumes products down Ther...wasging knickers in non bio powder no Softner and using only aqeous creme to wash with. Maybe your should try those aswell. I have tried anti depressents bwfore wen I got quite depressed and they stopped me from having an orgasm too. I think they block it tbh... That's the main reason I tried other route before trying them and my methods made me better after a month. I get flare ups wen I get lazy and forget stuff or I get thrush can bring it back for a few weeks.
I would suggest trying a few other things after coming off ami. Ami is a last resort and not everyone needs it. If you want Me to send u exactly what I did to get rid of my pain let me no. X


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Post  OBRN2007sms on Tue Feb 10, 2015 4:56 am

Just wondering how taking antidepressants helps with this condition? Other than I am very depressed about the life I am living right now, but if it helps I am willing to try. No


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Re: Just found this site.. thank god.

Post  gsygrl8 on Tue Mar 10, 2015 7:43 am

Anti depressants helps with chronic muscle and nerve pain it helps to relieve it, doctors tend to use them for many other conditions, normally at a lower dosage then they would be used as an anti depressant! X


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Re: Just found this site.. thank god.

Post  Mariek on Tue Mar 10, 2015 6:41 pm

Wellbutrin is the only anti depressant that did not give me sexual side effects. I took them for years, went off them 8 months ago and now due to vulvodynia I'm thinking of going back on them. Can't seem to win! My doctor said use nothing. It water for cleaning that area, no lotions or fabric softeners and only clear detergents.


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anti depressants

Post  desperate on Thu Mar 19, 2015 11:10 am

I am very new to this site, having discovered you through research.   This is a very new issue with me, since the end of Oct.   I'v been to three gynocologist since then and no one has ever mentioned vulvodynia.  I had to discover it on my own through research and I fit to a "T".      I've tried extra strength Tylenol, lidocain, which does not seem to help.  Is there something stronger than that???
I have been taking half of a 2mg Xanax and think I get more relief from that, but really don't want to keep doing that.
I have, or until this at least, a very active sex life and I am NOT ready to give that up.
So thankful to have found this site and all the different things to try.


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Re: Just found this site.. thank god.

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