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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Just found this site.. thank god.

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Just found this site.. thank god.

Post  abbey5531 on Sat Dec 27, 2014 2:59 am

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I think it was partially due to the fact that we couldn't connect without having sex, and he thought that I just didn't want to do anything with him. Anyways, back in February, I was given my diagnosis and began amitriptyline. I didn't have sex for a month or two after, but I immediately realized that the pain wasn't there. I was ecstatic! Since then, I have realized that some condoms or lubricants can increase my symptoms, and have steered clear of them. Recently, I started another relationship and sex has become more regular. I also got a Paragard IUD. I chose this one because it is nonhormonal, and the hormones in birth control gave me chronic bacterial vaginosis and yeast infections, which led to my vulvodynia. I think that I may need to increase my prescription of amitriptyline because my symptoms seem to be returning but, I'm nervous, because I think that the medicine prevents me from having an orgasm. I think that it blocks the good feelings as well as the bad, and I don't think that increasing my prescription would help this. Maybe it is a psychological issue, but I'm not sure. I love my boyfriend very much and trust him, and before my symptoms returned I could come close to an orgasm, but not all the way, but would not experience any kind of pain at the time or afterwards. I have an appointment to talk to my doctor, but I just wanted to get opinions on other treatments out there. I've never met anyone else with this problem, and am so thankful to have found a place to get some feedback. Things to keep in mind: I am in a monogomous relationship, I have an extremely effective form of birth control, and I have tried amitriptyline. I eat fairly healthy, well, for a 21 year-old college student. I will appreciate ANY sort of advice out there. I just want to be able to have a normal, consistent, conventional sex life. Is that too much to ask? Thanks, ladies. I'm really glad I found this group.
-Abbey

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Meds that work

Post  lexiharley on Mon Dec 29, 2014 5:09 am

I was diagnosed with vulvadynia 14 years ago. I suffered horribly for a very long time. I was put on Amytriptyline and clonazepam and I have been mostly pain free for 10 years, I did join a health club and my symptoms returned so I had to quit. I can now walk on the treadmill but that is about it...but I can wear jeans again...so yeah!!!!

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Re: Just found this site.. thank god.

Post  Sparkle on Tue Dec 30, 2014 9:18 pm

Hey abbey, what else have your tried minus the ami? When I went to the doctors she wanted to put me on that too but I went down another route which included vitamins and using no purfumes products down Ther...wasging knickers in non bio powder no Softner and using only aqeous creme to wash with. Maybe your should try those aswell. I have tried anti depressents bwfore wen I got quite depressed and they stopped me from having an orgasm too. I think they block it tbh... That's the main reason I tried other route before trying them and my methods made me better after a month. I get flare ups wen I get lazy and forget stuff or I get thrush can bring it back for a few weeks.
I would suggest trying a few other things after coming off ami. Ami is a last resort and not everyone needs it. If you want Me to send u exactly what I did to get rid of my pain let me no. X

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curious

Post  OBRN2007sms on Tue Feb 10, 2015 4:56 am

Just wondering how taking antidepressants helps with this condition? Other than I am very depressed about the life I am living right now, but if it helps I am willing to try. No

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Re: Just found this site.. thank god.

Post  gsygrl8 on Tue Mar 10, 2015 7:43 am

Anti depressants helps with chronic muscle and nerve pain it helps to relieve it, doctors tend to use them for many other conditions, normally at a lower dosage then they would be used as an anti depressant! X

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Re: Just found this site.. thank god.

Post  Mariek on Tue Mar 10, 2015 6:41 pm

Wellbutrin is the only anti depressant that did not give me sexual side effects. I took them for years, went off them 8 months ago and now due to vulvodynia I'm thinking of going back on them. Can't seem to win! My doctor said use nothing. It water for cleaning that area, no lotions or fabric softeners and only clear detergents.

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anti depressants

Post  desperate on Thu Mar 19, 2015 11:10 am

I am very new to this site, having discovered you through research.   This is a very new issue with me, since the end of Oct.   I'v been to three gynocologist since then and no one has ever mentioned vulvodynia.  I had to discover it on my own through research and I fit to a "T".      I've tried extra strength Tylenol, lidocain, which does not seem to help.  Is there something stronger than that???
I have been taking half of a 2mg Xanax and think I get more relief from that, but really don't want to keep doing that.
I have, or until this at least, a very active sex life and I am NOT ready to give that up.
So thankful to have found this site and all the different things to try.

desperate

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Re: Just found this site.. thank god.

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