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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Just found this site.. thank god.

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Just found this site.. thank god.

Post  abbey5531 on Sat Dec 27, 2014 2:59 am

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I think it was partially due to the fact that we couldn't connect without having sex, and he thought that I just didn't want to do anything with him. Anyways, back in February, I was given my diagnosis and began amitriptyline. I didn't have sex for a month or two after, but I immediately realized that the pain wasn't there. I was ecstatic! Since then, I have realized that some condoms or lubricants can increase my symptoms, and have steered clear of them. Recently, I started another relationship and sex has become more regular. I also got a Paragard IUD. I chose this one because it is nonhormonal, and the hormones in birth control gave me chronic bacterial vaginosis and yeast infections, which led to my vulvodynia. I think that I may need to increase my prescription of amitriptyline because my symptoms seem to be returning but, I'm nervous, because I think that the medicine prevents me from having an orgasm. I think that it blocks the good feelings as well as the bad, and I don't think that increasing my prescription would help this. Maybe it is a psychological issue, but I'm not sure. I love my boyfriend very much and trust him, and before my symptoms returned I could come close to an orgasm, but not all the way, but would not experience any kind of pain at the time or afterwards. I have an appointment to talk to my doctor, but I just wanted to get opinions on other treatments out there. I've never met anyone else with this problem, and am so thankful to have found a place to get some feedback. Things to keep in mind: I am in a monogomous relationship, I have an extremely effective form of birth control, and I have tried amitriptyline. I eat fairly healthy, well, for a 21 year-old college student. I will appreciate ANY sort of advice out there. I just want to be able to have a normal, consistent, conventional sex life. Is that too much to ask? Thanks, ladies. I'm really glad I found this group.
-Abbey

abbey5531

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Meds that work

Post  lexiharley on Mon Dec 29, 2014 5:09 am

I was diagnosed with vulvadynia 14 years ago. I suffered horribly for a very long time. I was put on Amytriptyline and clonazepam and I have been mostly pain free for 10 years, I did join a health club and my symptoms returned so I had to quit. I can now walk on the treadmill but that is about it...but I can wear jeans again...so yeah!!!!

lexiharley

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Re: Just found this site.. thank god.

Post  Sparkle on Tue Dec 30, 2014 9:18 pm

Hey abbey, what else have your tried minus the ami? When I went to the doctors she wanted to put me on that too but I went down another route which included vitamins and using no purfumes products down Ther...wasging knickers in non bio powder no Softner and using only aqeous creme to wash with. Maybe your should try those aswell. I have tried anti depressents bwfore wen I got quite depressed and they stopped me from having an orgasm too. I think they block it tbh... That's the main reason I tried other route before trying them and my methods made me better after a month. I get flare ups wen I get lazy and forget stuff or I get thrush can bring it back for a few weeks.
I would suggest trying a few other things after coming off ami. Ami is a last resort and not everyone needs it. If you want Me to send u exactly what I did to get rid of my pain let me no. X

Sparkle

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curious

Post  OBRN2007sms on Tue Feb 10, 2015 4:56 am

Just wondering how taking antidepressants helps with this condition? Other than I am very depressed about the life I am living right now, but if it helps I am willing to try. No

OBRN2007sms

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Re: Just found this site.. thank god.

Post  gsygrl8 on Tue Mar 10, 2015 7:43 am

Anti depressants helps with chronic muscle and nerve pain it helps to relieve it, doctors tend to use them for many other conditions, normally at a lower dosage then they would be used as an anti depressant! X

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Re: Just found this site.. thank god.

Post  Mariek on Tue Mar 10, 2015 6:41 pm

Wellbutrin is the only anti depressant that did not give me sexual side effects. I took them for years, went off them 8 months ago and now due to vulvodynia I'm thinking of going back on them. Can't seem to win! My doctor said use nothing. It water for cleaning that area, no lotions or fabric softeners and only clear detergents.

Mariek

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anti depressants

Post  desperate on Thu Mar 19, 2015 11:10 am

I am very new to this site, having discovered you through research.   This is a very new issue with me, since the end of Oct.   I'v been to three gynocologist since then and no one has ever mentioned vulvodynia.  I had to discover it on my own through research and I fit to a "T".      I've tried extra strength Tylenol, lidocain, which does not seem to help.  Is there something stronger than that???
I have been taking half of a 2mg Xanax and think I get more relief from that, but really don't want to keep doing that.
I have, or until this at least, a very active sex life and I am NOT ready to give that up.
So thankful to have found this site and all the different things to try.

desperate

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Re: Just found this site.. thank god.

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