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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Just found this site.. thank god.

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Just found this site.. thank god.

Post  abbey5531 on Sat Dec 27, 2014 2:59 am

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I think it was partially due to the fact that we couldn't connect without having sex, and he thought that I just didn't want to do anything with him. Anyways, back in February, I was given my diagnosis and began amitriptyline. I didn't have sex for a month or two after, but I immediately realized that the pain wasn't there. I was ecstatic! Since then, I have realized that some condoms or lubricants can increase my symptoms, and have steered clear of them. Recently, I started another relationship and sex has become more regular. I also got a Paragard IUD. I chose this one because it is nonhormonal, and the hormones in birth control gave me chronic bacterial vaginosis and yeast infections, which led to my vulvodynia. I think that I may need to increase my prescription of amitriptyline because my symptoms seem to be returning but, I'm nervous, because I think that the medicine prevents me from having an orgasm. I think that it blocks the good feelings as well as the bad, and I don't think that increasing my prescription would help this. Maybe it is a psychological issue, but I'm not sure. I love my boyfriend very much and trust him, and before my symptoms returned I could come close to an orgasm, but not all the way, but would not experience any kind of pain at the time or afterwards. I have an appointment to talk to my doctor, but I just wanted to get opinions on other treatments out there. I've never met anyone else with this problem, and am so thankful to have found a place to get some feedback. Things to keep in mind: I am in a monogomous relationship, I have an extremely effective form of birth control, and I have tried amitriptyline. I eat fairly healthy, well, for a 21 year-old college student. I will appreciate ANY sort of advice out there. I just want to be able to have a normal, consistent, conventional sex life. Is that too much to ask? Thanks, ladies. I'm really glad I found this group.


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Meds that work

Post  lexiharley on Mon Dec 29, 2014 5:09 am

I was diagnosed with vulvadynia 14 years ago. I suffered horribly for a very long time. I was put on Amytriptyline and clonazepam and I have been mostly pain free for 10 years, I did join a health club and my symptoms returned so I had to quit. I can now walk on the treadmill but that is about it...but I can wear jeans again...so yeah!!!!


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Re: Just found this site.. thank god.

Post  Sparkle on Tue Dec 30, 2014 9:18 pm

Hey abbey, what else have your tried minus the ami? When I went to the doctors she wanted to put me on that too but I went down another route which included vitamins and using no purfumes products down Ther...wasging knickers in non bio powder no Softner and using only aqeous creme to wash with. Maybe your should try those aswell. I have tried anti depressents bwfore wen I got quite depressed and they stopped me from having an orgasm too. I think they block it tbh... That's the main reason I tried other route before trying them and my methods made me better after a month. I get flare ups wen I get lazy and forget stuff or I get thrush can bring it back for a few weeks.
I would suggest trying a few other things after coming off ami. Ami is a last resort and not everyone needs it. If you want Me to send u exactly what I did to get rid of my pain let me no. X


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Post  OBRN2007sms on Tue Feb 10, 2015 4:56 am

Just wondering how taking antidepressants helps with this condition? Other than I am very depressed about the life I am living right now, but if it helps I am willing to try. No


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Join date : 2015-02-10
Age : 48
Location : Alabama

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Re: Just found this site.. thank god.

Post  gsygrl8 on Tue Mar 10, 2015 7:43 am

Anti depressants helps with chronic muscle and nerve pain it helps to relieve it, doctors tend to use them for many other conditions, normally at a lower dosage then they would be used as an anti depressant! X


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Re: Just found this site.. thank god.

Post  Mariek on Tue Mar 10, 2015 6:41 pm

Wellbutrin is the only anti depressant that did not give me sexual side effects. I took them for years, went off them 8 months ago and now due to vulvodynia I'm thinking of going back on them. Can't seem to win! My doctor said use nothing. It water for cleaning that area, no lotions or fabric softeners and only clear detergents.


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anti depressants

Post  desperate on Thu Mar 19, 2015 11:10 am

I am very new to this site, having discovered you through research.   This is a very new issue with me, since the end of Oct.   I'v been to three gynocologist since then and no one has ever mentioned vulvodynia.  I had to discover it on my own through research and I fit to a "T".      I've tried extra strength Tylenol, lidocain, which does not seem to help.  Is there something stronger than that???
I have been taking half of a 2mg Xanax and think I get more relief from that, but really don't want to keep doing that.
I have, or until this at least, a very active sex life and I am NOT ready to give that up.
So thankful to have found this site and all the different things to try.


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Re: Just found this site.. thank god.

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