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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


In desperate need of suggestions for natural remedies

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In desperate need of suggestions for natural remedies

Post  Becca36 on Mon Jan 12, 2015 3:13 pm

Hi, everyone i am new to this forum but not to vulvodynia i have had this condition seince i was 6 yrs. old on and off it turned into a cronic condition after the birth of my first child when i was 17 i am now in my mid. thirties i have delt with condition every day seince i have been to numerous Dr.'s over this condition and have been put on many different antidepressants they have helped somewhat for the pain but they all cause me to have horrible heart burn and have had to stop taking them i told my current Dr. about this and she just shrugged it off and told my to try antiacids which don't really help much.So my question is has anyone ever tried St. John's wort for vulvodynia i was reading it is supposed to be comparible to prozac i am on nothing but lidocain ointment to dull the pain please if anyone has some natural remedies that really worked for them i would be greatful if you would share any suggestion's i am in really bad pain it feels like burning acid down there constantly .Thanks

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Re: In desperate need of suggestions for natural remedies

Post  sailor_moon on Mon Jan 12, 2015 8:32 pm

Hi, sounds like you need to find a proper vulva specialist. Can I ask if you have had your hormones tested over a month, testing your levels every week of your cycle? It may be hormonal, especially seeing as it has gotten worse after having a child. I have had this for 2 years, and 14 doctors later, a good doctor finally did a proper hormone test, which showed my estrogen is low, FSH and LH are too high and I have Polycystic Ovaries. And possible endometriosis on top of that. Unfortunately for me, endometriosis feeds and grows on estrogen so I can't have HRT until I undergo an operation to see if I have endo and remove it if it's there, along with any other problems that may be causing my vulvodynia. Have you been to see a good naturopath? Lidocaine gel is the only thing that gives me any relief.
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Go alkaline!

Post  Lulu on Tue Jan 13, 2015 6:09 pm

Hi Becca!

I've been dealing with this for 6 years. Tried most everything. Stumbled on a post about pH and urine testing. Sure enough, my urine is VERY acidic. So i started being my own guinea pig and testing my urine as I tried different foods, supplements. I am absolutely helped by adding alkaline foods and reducing acidic foods. I can even have full days with no pain. And as soon as I eat chocolate or pasta, etc. the burning comes back. So, perhaps this is something you should give a try. There is lots of good info out there. I like the website alkalinesisters dot com, tho I don't take my diet to their extreme (maybe I should!).

I don't eat much meat or dairy anyway, but I love carbs, coffee and chocolate. So, I have reduced intake of these things and increased veggies and green drinks. I add SuperFood (herbdoc dot com) to my Pea Protein (Nutrasumma) shake. I take Spirulina capsules with meals. And CUCUMBERS are super alkalizing, so I try to eat them often.

It's worth a shot. I wish you relief!! -Oh! Another easy way to reduce acidity is to take a little baking soda in water (1/2 tsp) but this you need to do AWAY from food, a few hours away. Good luck to you! I hope this is helpful!

Lulu

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Re: In desperate need of suggestions for natural remedies

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