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» UK Vulvodynia Clinics
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» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


In desperate need of suggestions for natural remedies

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In desperate need of suggestions for natural remedies

Post  Becca36 on Mon Jan 12, 2015 3:13 pm

Hi, everyone i am new to this forum but not to vulvodynia i have had this condition seince i was 6 yrs. old on and off it turned into a cronic condition after the birth of my first child when i was 17 i am now in my mid. thirties i have delt with condition every day seince i have been to numerous Dr.'s over this condition and have been put on many different antidepressants they have helped somewhat for the pain but they all cause me to have horrible heart burn and have had to stop taking them i told my current Dr. about this and she just shrugged it off and told my to try antiacids which don't really help much.So my question is has anyone ever tried St. John's wort for vulvodynia i was reading it is supposed to be comparible to prozac i am on nothing but lidocain ointment to dull the pain please if anyone has some natural remedies that really worked for them i would be greatful if you would share any suggestion's i am in really bad pain it feels like burning acid down there constantly .Thanks

Becca36

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Re: In desperate need of suggestions for natural remedies

Post  sailor_moon on Mon Jan 12, 2015 8:32 pm

Hi, sounds like you need to find a proper vulva specialist. Can I ask if you have had your hormones tested over a month, testing your levels every week of your cycle? It may be hormonal, especially seeing as it has gotten worse after having a child. I have had this for 2 years, and 14 doctors later, a good doctor finally did a proper hormone test, which showed my estrogen is low, FSH and LH are too high and I have Polycystic Ovaries. And possible endometriosis on top of that. Unfortunately for me, endometriosis feeds and grows on estrogen so I can't have HRT until I undergo an operation to see if I have endo and remove it if it's there, along with any other problems that may be causing my vulvodynia. Have you been to see a good naturopath? Lidocaine gel is the only thing that gives me any relief.
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Go alkaline!

Post  Lulu on Tue Jan 13, 2015 6:09 pm

Hi Becca!

I've been dealing with this for 6 years. Tried most everything. Stumbled on a post about pH and urine testing. Sure enough, my urine is VERY acidic. So i started being my own guinea pig and testing my urine as I tried different foods, supplements. I am absolutely helped by adding alkaline foods and reducing acidic foods. I can even have full days with no pain. And as soon as I eat chocolate or pasta, etc. the burning comes back. So, perhaps this is something you should give a try. There is lots of good info out there. I like the website alkalinesisters dot com, tho I don't take my diet to their extreme (maybe I should!).

I don't eat much meat or dairy anyway, but I love carbs, coffee and chocolate. So, I have reduced intake of these things and increased veggies and green drinks. I add SuperFood (herbdoc dot com) to my Pea Protein (Nutrasumma) shake. I take Spirulina capsules with meals. And CUCUMBERS are super alkalizing, so I try to eat them often.

It's worth a shot. I wish you relief!! -Oh! Another easy way to reduce acidity is to take a little baking soda in water (1/2 tsp) but this you need to do AWAY from food, a few hours away. Good luck to you! I hope this is helpful!

Lulu

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Re: In desperate need of suggestions for natural remedies

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