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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


In desperate need of suggestions for natural remedies

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In desperate need of suggestions for natural remedies

Post  Becca36 on Mon Jan 12, 2015 3:13 pm

Hi, everyone i am new to this forum but not to vulvodynia i have had this condition seince i was 6 yrs. old on and off it turned into a cronic condition after the birth of my first child when i was 17 i am now in my mid. thirties i have delt with condition every day seince i have been to numerous Dr.'s over this condition and have been put on many different antidepressants they have helped somewhat for the pain but they all cause me to have horrible heart burn and have had to stop taking them i told my current Dr. about this and she just shrugged it off and told my to try antiacids which don't really help much.So my question is has anyone ever tried St. John's wort for vulvodynia i was reading it is supposed to be comparible to prozac i am on nothing but lidocain ointment to dull the pain please if anyone has some natural remedies that really worked for them i would be greatful if you would share any suggestion's i am in really bad pain it feels like burning acid down there constantly .Thanks

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Re: In desperate need of suggestions for natural remedies

Post  sailor_moon on Mon Jan 12, 2015 8:32 pm

Hi, sounds like you need to find a proper vulva specialist. Can I ask if you have had your hormones tested over a month, testing your levels every week of your cycle? It may be hormonal, especially seeing as it has gotten worse after having a child. I have had this for 2 years, and 14 doctors later, a good doctor finally did a proper hormone test, which showed my estrogen is low, FSH and LH are too high and I have Polycystic Ovaries. And possible endometriosis on top of that. Unfortunately for me, endometriosis feeds and grows on estrogen so I can't have HRT until I undergo an operation to see if I have endo and remove it if it's there, along with any other problems that may be causing my vulvodynia. Have you been to see a good naturopath? Lidocaine gel is the only thing that gives me any relief.
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Go alkaline!

Post  Lulu on Tue Jan 13, 2015 6:09 pm

Hi Becca!

I've been dealing with this for 6 years. Tried most everything. Stumbled on a post about pH and urine testing. Sure enough, my urine is VERY acidic. So i started being my own guinea pig and testing my urine as I tried different foods, supplements. I am absolutely helped by adding alkaline foods and reducing acidic foods. I can even have full days with no pain. And as soon as I eat chocolate or pasta, etc. the burning comes back. So, perhaps this is something you should give a try. There is lots of good info out there. I like the website alkalinesisters dot com, tho I don't take my diet to their extreme (maybe I should!).

I don't eat much meat or dairy anyway, but I love carbs, coffee and chocolate. So, I have reduced intake of these things and increased veggies and green drinks. I add SuperFood (herbdoc dot com) to my Pea Protein (Nutrasumma) shake. I take Spirulina capsules with meals. And CUCUMBERS are super alkalizing, so I try to eat them often.

It's worth a shot. I wish you relief!! -Oh! Another easy way to reduce acidity is to take a little baking soda in water (1/2 tsp) but this you need to do AWAY from food, a few hours away. Good luck to you! I hope this is helpful!

Lulu

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Re: In desperate need of suggestions for natural remedies

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