Log in

I forgot my password

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


In desperate need of suggestions for natural remedies

View previous topic View next topic Go down

In desperate need of suggestions for natural remedies

Post  Becca36 on Mon Jan 12, 2015 3:13 pm

Hi, everyone i am new to this forum but not to vulvodynia i have had this condition seince i was 6 yrs. old on and off it turned into a cronic condition after the birth of my first child when i was 17 i am now in my mid. thirties i have delt with condition every day seince i have been to numerous Dr.'s over this condition and have been put on many different antidepressants they have helped somewhat for the pain but they all cause me to have horrible heart burn and have had to stop taking them i told my current Dr. about this and she just shrugged it off and told my to try antiacids which don't really help much.So my question is has anyone ever tried St. John's wort for vulvodynia i was reading it is supposed to be comparible to prozac i am on nothing but lidocain ointment to dull the pain please if anyone has some natural remedies that really worked for them i would be greatful if you would share any suggestion's i am in really bad pain it feels like burning acid down there constantly .Thanks

Becca36

Posts : 1
Join date : 2015-01-12
Age : 39
Location : Saginaw,Mi.

View user profile

Back to top Go down

Re: In desperate need of suggestions for natural remedies

Post  sailor_moon on Mon Jan 12, 2015 8:32 pm

Hi, sounds like you need to find a proper vulva specialist. Can I ask if you have had your hormones tested over a month, testing your levels every week of your cycle? It may be hormonal, especially seeing as it has gotten worse after having a child. I have had this for 2 years, and 14 doctors later, a good doctor finally did a proper hormone test, which showed my estrogen is low, FSH and LH are too high and I have Polycystic Ovaries. And possible endometriosis on top of that. Unfortunately for me, endometriosis feeds and grows on estrogen so I can't have HRT until I undergo an operation to see if I have endo and remove it if it's there, along with any other problems that may be causing my vulvodynia. Have you been to see a good naturopath? Lidocaine gel is the only thing that gives me any relief.
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Go alkaline!

Post  Lulu on Tue Jan 13, 2015 6:09 pm

Hi Becca!

I've been dealing with this for 6 years. Tried most everything. Stumbled on a post about pH and urine testing. Sure enough, my urine is VERY acidic. So i started being my own guinea pig and testing my urine as I tried different foods, supplements. I am absolutely helped by adding alkaline foods and reducing acidic foods. I can even have full days with no pain. And as soon as I eat chocolate or pasta, etc. the burning comes back. So, perhaps this is something you should give a try. There is lots of good info out there. I like the website alkalinesisters dot com, tho I don't take my diet to their extreme (maybe I should!).

I don't eat much meat or dairy anyway, but I love carbs, coffee and chocolate. So, I have reduced intake of these things and increased veggies and green drinks. I add SuperFood (herbdoc dot com) to my Pea Protein (Nutrasumma) shake. I take Spirulina capsules with meals. And CUCUMBERS are super alkalizing, so I try to eat them often.

It's worth a shot. I wish you relief!! -Oh! Another easy way to reduce acidity is to take a little baking soda in water (1/2 tsp) but this you need to do AWAY from food, a few hours away. Good luck to you! I hope this is helpful!

Lulu

Lulu

Posts : 2
Join date : 2014-12-22

View user profile

Back to top Go down

Re: In desperate need of suggestions for natural remedies

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum