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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


New diagnosis and feeling defeated

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New diagnosis and feeling defeated

Post  JstMrried on Sun Jan 25, 2015 8:00 am

Curse (Age 25)
I want to leave my body, this broken equipment. And maybe that's selfish considering what so so many others go through. My Aunt with cancer and my sister with heartache. I just can't help but wonder why I would find my perfect match just to punish him like this, me like this. (just married in may) If we hadn't met and I was single, I wouldn't even care about sex, I wouldn't even think about sex. I'd go about my own day, not knowing what I'm missing. But when I see him everyday is like looking outside a window on a gorgeous sunny day and you're working. And you can't get out, no break, no tan, no sunshine, no happiness, and just a tease. And you stay in business mode ; for the first few hours (meaning the first few months) your hopeful that you can maintain order with fluency. But then as the whole day goes by (over half a year) you have a thought thinking "I'm going to get stuck in this persona," bitter and work oriented because it's the only way you can succeed and not fail (be broken). You get turned on by simply watching him grab a drink from the fridge, cold shower. You get wet watching a romantic kiss in a chick flick, cold shower. The thing is, without the cold shower you open yourself up to being touched...to have inflicted, unintentional pain. Sex now associated with that explosion of pain like a deep knife at the most sensitive spot. And when you wait long enough, it doesn't matter...you want something...you take the pain. You want him and anything that comes with it is worth it, until the pain is so unbearable that he notices you crying while he's taking you, instantly killing the mood and any feelings of closeness, wholeness are gone along with his boner. That's how I know he loves me, and that's how I know I should be telling myself I'm lucky. But instead I just feel so broken and slowly losing myself.
After the crying after he's cum, I pull into myself. I feel so selfish for thinking about this pain when he's been in abstinence so long because of me, so I feel like I shouldn't tell him the repercussions. I just bury these feelings in tears and big gulps, and I hide. And I feel more alone because of myself, because I don't tell him how deeply rooted I'm damaged. That part is my fault, but talking about it won't fix my faulty womanhood, and it makes him feel worse.

JstMrried

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Re: New diagnosis and feeling defeated

Post  JstMrried on Sun Jan 25, 2015 7:34 pm

I know there's no question to this passage, but can anyone offer insight to a newlywed?

JstMrried

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Re: New diagnosis and feeling defeated

Post  rmb on Wed May 10, 2017 2:55 am

That's awful. I know what you mean about feeling selfish I was just thinking today how selfish I am for dating. I love my boyfriend so so much but I feel like he deserves someone normal. I have finally opened up to my sister and I think I'm going to try pain meds I made a doc appt. have you tired anything like that?

rmb

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Re: New diagnosis and feeling defeated

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