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» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New diagnosis and feeling defeated

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New diagnosis and feeling defeated

Post  JstMrried on Sun Jan 25, 2015 8:00 am

Curse (Age 25)
I want to leave my body, this broken equipment. And maybe that's selfish considering what so so many others go through. My Aunt with cancer and my sister with heartache. I just can't help but wonder why I would find my perfect match just to punish him like this, me like this. (just married in may) If we hadn't met and I was single, I wouldn't even care about sex, I wouldn't even think about sex. I'd go about my own day, not knowing what I'm missing. But when I see him everyday is like looking outside a window on a gorgeous sunny day and you're working. And you can't get out, no break, no tan, no sunshine, no happiness, and just a tease. And you stay in business mode ; for the first few hours (meaning the first few months) your hopeful that you can maintain order with fluency. But then as the whole day goes by (over half a year) you have a thought thinking "I'm going to get stuck in this persona," bitter and work oriented because it's the only way you can succeed and not fail (be broken). You get turned on by simply watching him grab a drink from the fridge, cold shower. You get wet watching a romantic kiss in a chick flick, cold shower. The thing is, without the cold shower you open yourself up to being touched...to have inflicted, unintentional pain. Sex now associated with that explosion of pain like a deep knife at the most sensitive spot. And when you wait long enough, it doesn't matter...you want something...you take the pain. You want him and anything that comes with it is worth it, until the pain is so unbearable that he notices you crying while he's taking you, instantly killing the mood and any feelings of closeness, wholeness are gone along with his boner. That's how I know he loves me, and that's how I know I should be telling myself I'm lucky. But instead I just feel so broken and slowly losing myself.
After the crying after he's cum, I pull into myself. I feel so selfish for thinking about this pain when he's been in abstinence so long because of me, so I feel like I shouldn't tell him the repercussions. I just bury these feelings in tears and big gulps, and I hide. And I feel more alone because of myself, because I don't tell him how deeply rooted I'm damaged. That part is my fault, but talking about it won't fix my faulty womanhood, and it makes him feel worse.

JstMrried

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Re: New diagnosis and feeling defeated

Post  JstMrried on Sun Jan 25, 2015 7:34 pm

I know there's no question to this passage, but can anyone offer insight to a newlywed?

JstMrried

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Re: New diagnosis and feeling defeated

Post  rmb on Wed May 10, 2017 2:55 am

That's awful. I know what you mean about feeling selfish I was just thinking today how selfish I am for dating. I love my boyfriend so so much but I feel like he deserves someone normal. I have finally opened up to my sister and I think I'm going to try pain meds I made a doc appt. have you tired anything like that?

rmb

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Re: New diagnosis and feeling defeated

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