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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


New diagnosis and feeling defeated

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New diagnosis and feeling defeated

Post  JstMrried on Sun Jan 25, 2015 8:00 am

Curse (Age 25)
I want to leave my body, this broken equipment. And maybe that's selfish considering what so so many others go through. My Aunt with cancer and my sister with heartache. I just can't help but wonder why I would find my perfect match just to punish him like this, me like this. (just married in may) If we hadn't met and I was single, I wouldn't even care about sex, I wouldn't even think about sex. I'd go about my own day, not knowing what I'm missing. But when I see him everyday is like looking outside a window on a gorgeous sunny day and you're working. And you can't get out, no break, no tan, no sunshine, no happiness, and just a tease. And you stay in business mode ; for the first few hours (meaning the first few months) your hopeful that you can maintain order with fluency. But then as the whole day goes by (over half a year) you have a thought thinking "I'm going to get stuck in this persona," bitter and work oriented because it's the only way you can succeed and not fail (be broken). You get turned on by simply watching him grab a drink from the fridge, cold shower. You get wet watching a romantic kiss in a chick flick, cold shower. The thing is, without the cold shower you open yourself up to being touched...to have inflicted, unintentional pain. Sex now associated with that explosion of pain like a deep knife at the most sensitive spot. And when you wait long enough, it doesn't matter...you want something...you take the pain. You want him and anything that comes with it is worth it, until the pain is so unbearable that he notices you crying while he's taking you, instantly killing the mood and any feelings of closeness, wholeness are gone along with his boner. That's how I know he loves me, and that's how I know I should be telling myself I'm lucky. But instead I just feel so broken and slowly losing myself.
After the crying after he's cum, I pull into myself. I feel so selfish for thinking about this pain when he's been in abstinence so long because of me, so I feel like I shouldn't tell him the repercussions. I just bury these feelings in tears and big gulps, and I hide. And I feel more alone because of myself, because I don't tell him how deeply rooted I'm damaged. That part is my fault, but talking about it won't fix my faulty womanhood, and it makes him feel worse.

JstMrried

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Re: New diagnosis and feeling defeated

Post  JstMrried on Sun Jan 25, 2015 7:34 pm

I know there's no question to this passage, but can anyone offer insight to a newlywed?

JstMrried

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Re: New diagnosis and feeling defeated

Post  rmb on Wed May 10, 2017 2:55 am

That's awful. I know what you mean about feeling selfish I was just thinking today how selfish I am for dating. I love my boyfriend so so much but I feel like he deserves someone normal. I have finally opened up to my sister and I think I'm going to try pain meds I made a doc appt. have you tired anything like that?

rmb

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Re: New diagnosis and feeling defeated

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