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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

I was cured 10 years ago, but now it is back...am I allergic to myself?

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I was cured 10 years ago, but now it is back...am I allergic to myself?

Post  texasgirl on Wed Jan 28, 2015 1:54 am

Ok ladies, I wanted to share my story in case it gives anyone else some hope/help. I got Vulvodynia in college after a horrible bout with a combination yeast infection and bacterial infection. We cleared up the infections, but the pain/burning just never went away. I tried everything. Creams, pills, etc, and back then doctors knew even less than they do now. Most thought it was in my head, which only made things worse.

I have to say, I think stress played a HUGE role in my body not healing. Because after six years with this horrible condition, it wasn't until I met my now husband, and I took a weekend to lie in a zero gravity chair on a patio all day, that I think my body finally CALMED down and cured itself. I think around the time I got the infection, I was going though a lot of trauma and stress, though the pain was very REAL, and it took years for me to finally get to a point in my life where I wasn't in a constant state of worry.

Now the pain is BACK.  Evil or Very Mad It was gone for 10+ years (YEA!), but I am now older, savvier, and more prepared this time around. And yes, stress triggered it. But what I think I have figured out is that my secretions are what is irritating my skin down there!!! I noticed around ovulation when I have more secretions, the pain is so much worse! So I have been rinsing the area with cool water, then using the cool setting on my hair dryer to completely dry the area. And yes, the pain is almost gone every time I do it! Sometimes I put a little yeast infection cream on if it is dry afterward. I am kinda wondering if I used the tiniest tampon on a regular basis if I could block the irritation and just cure it completely, but I have not consulted a doctor yet? I don't think wearing a tampon everyday is ideale.

I also need to find ways to calm my body back down again in general..yoga, massages, reading. I hope this story is somewhat helpful to someone? I think I am basically allergic to myself, or at least my secretions. Weird.


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