Log in

I forgot my password

Latest topics
» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Desperate for advice. Bad flare up.

View previous topic View next topic Go down

Desperate for advice. Bad flare up.

Post  sailor_moon on Tue Feb 10, 2015 3:41 am

A few questions to my lovely ladies, any advice would be much appreciated

Does anyone else go through bad flare ups where their "innie bits/vulva" actually become swollen? I have been in so much pain the last 3 days I have been unable to go to work [use the excuse I have a migraine and vomiting], and I am so red and swollen..it's all puffed up! I have been sitting with an ice pack between my legs. nothing gives me relief.

Does anyone else get more irritated the more active they are? The more I walk, the more burny, itchy and chafed I get.

Any tips apart from the usual Lignocaine, ice pack, coconut oil and anti-inflammatories on how to get some relief? Steroid creams and other emollients make me worse. Lignocaine and coconut oil are the only things I can use down there...the pain is so bad atm the lignocaine isn't doing much.

Does anyone else on here suffer from low estrogen? I have low estrogen but my doctor suspects I have endometriosis which feeds on estrogen. I am on a waiting list to have a laproscopy and hystoscopy but the hospital informed me yesterday that I will be waiting up to 10 more moths before my op because the waiting list is so long!! I will be talking to my specialist to try and get him to push it through quicker, I will end up killing myself, unemployed or divorced if I have to wait that long with no form of relief!! I can't take any HRT until the operation gets done. Mad

Has anyone had success with alternative medicine or naturopaths? I am really considering going down that route because I am having no success with western medicine. I am just sick of spending money on remedies that do not work.



And lastly....any tips on how to cope emotionally? I am slowly going downhill again, its coming up to the 2 year anniversary of having V and I am finding it extremely hard. Especially with dealing with being in pain and discomfort at work when you can't escape to "adjust your undies" and are in agony but have to smile and deal with people. I am finding it harder and harder to work like this! especially when I have horrible bosses who have threatened to fire me for having time off dealing with my combined illnesses and hold the health issues I have against me. Also I am finding it hard to cope with not physically being able to have sex with my husband...I try my hardest but with the discomfort of V it has shut down my emotions for intimacy because the discomfort is all I can focus on. I feel constant guilt because my husband deserves a normal, good wife, and a he deserves a great sex life. He has stuck by me through all of this but I cant help thinking he will leave me sooner or later because you cant have a normal marriage with someone who has V. I'd be lying if I said this hasnt affected our marriage. Being young is even harder...we are meant to be at our sexual peak. And wanted to have a baby soon but that's impossible...I am in enough pain and I think pushing out a baby would do more permanent damage to my vulva...let alone the pain of labor with V!!!!

Any advice would be much appreciated ladies.







avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: Desperate for advice. Bad flare up.

Post  kvelipuri on Sun May 17, 2015 6:56 pm

Just a note to let you know you are not alone - I too am suffering from severe swelling. The swelling goes up and down, but at its worst my vagina is totally swollen shut and walking is out of the question. No creams have worked - steroid, estrogen, or lidocaine - and in fact seem to correlate to more swelling (but who knows if there is actual causation). Anyway, still working on a treatment but wanted to let you know I'm going through the same, as it seems this kind of swelling is not a predominant symptom at least based on reading most people's stories.

kvelipuri

Posts : 6
Join date : 2015-05-17

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum