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» UK Vulvodynia Clinics
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» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Desperate for advice. Bad flare up.

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Desperate for advice. Bad flare up.

Post  sailor_moon on Tue Feb 10, 2015 3:41 am

A few questions to my lovely ladies, any advice would be much appreciated

Does anyone else go through bad flare ups where their "innie bits/vulva" actually become swollen? I have been in so much pain the last 3 days I have been unable to go to work [use the excuse I have a migraine and vomiting], and I am so red and swollen..it's all puffed up! I have been sitting with an ice pack between my legs. nothing gives me relief.

Does anyone else get more irritated the more active they are? The more I walk, the more burny, itchy and chafed I get.

Any tips apart from the usual Lignocaine, ice pack, coconut oil and anti-inflammatories on how to get some relief? Steroid creams and other emollients make me worse. Lignocaine and coconut oil are the only things I can use down there...the pain is so bad atm the lignocaine isn't doing much.

Does anyone else on here suffer from low estrogen? I have low estrogen but my doctor suspects I have endometriosis which feeds on estrogen. I am on a waiting list to have a laproscopy and hystoscopy but the hospital informed me yesterday that I will be waiting up to 10 more moths before my op because the waiting list is so long!! I will be talking to my specialist to try and get him to push it through quicker, I will end up killing myself, unemployed or divorced if I have to wait that long with no form of relief!! I can't take any HRT until the operation gets done. Mad

Has anyone had success with alternative medicine or naturopaths? I am really considering going down that route because I am having no success with western medicine. I am just sick of spending money on remedies that do not work.



And lastly....any tips on how to cope emotionally? I am slowly going downhill again, its coming up to the 2 year anniversary of having V and I am finding it extremely hard. Especially with dealing with being in pain and discomfort at work when you can't escape to "adjust your undies" and are in agony but have to smile and deal with people. I am finding it harder and harder to work like this! especially when I have horrible bosses who have threatened to fire me for having time off dealing with my combined illnesses and hold the health issues I have against me. Also I am finding it hard to cope with not physically being able to have sex with my husband...I try my hardest but with the discomfort of V it has shut down my emotions for intimacy because the discomfort is all I can focus on. I feel constant guilt because my husband deserves a normal, good wife, and a he deserves a great sex life. He has stuck by me through all of this but I cant help thinking he will leave me sooner or later because you cant have a normal marriage with someone who has V. I'd be lying if I said this hasnt affected our marriage. Being young is even harder...we are meant to be at our sexual peak. And wanted to have a baby soon but that's impossible...I am in enough pain and I think pushing out a baby would do more permanent damage to my vulva...let alone the pain of labor with V!!!!

Any advice would be much appreciated ladies.







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Re: Desperate for advice. Bad flare up.

Post  kvelipuri on Sun May 17, 2015 6:56 pm

Just a note to let you know you are not alone - I too am suffering from severe swelling. The swelling goes up and down, but at its worst my vagina is totally swollen shut and walking is out of the question. No creams have worked - steroid, estrogen, or lidocaine - and in fact seem to correlate to more swelling (but who knows if there is actual causation). Anyway, still working on a treatment but wanted to let you know I'm going through the same, as it seems this kind of swelling is not a predominant symptom at least based on reading most people's stories.

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