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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Desperate for advice. Bad flare up.

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Desperate for advice. Bad flare up.

Post  sailor_moon on Tue Feb 10, 2015 3:41 am

A few questions to my lovely ladies, any advice would be much appreciated

Does anyone else go through bad flare ups where their "innie bits/vulva" actually become swollen? I have been in so much pain the last 3 days I have been unable to go to work [use the excuse I have a migraine and vomiting], and I am so red and swollen..it's all puffed up! I have been sitting with an ice pack between my legs. nothing gives me relief.

Does anyone else get more irritated the more active they are? The more I walk, the more burny, itchy and chafed I get.

Any tips apart from the usual Lignocaine, ice pack, coconut oil and anti-inflammatories on how to get some relief? Steroid creams and other emollients make me worse. Lignocaine and coconut oil are the only things I can use down there...the pain is so bad atm the lignocaine isn't doing much.

Does anyone else on here suffer from low estrogen? I have low estrogen but my doctor suspects I have endometriosis which feeds on estrogen. I am on a waiting list to have a laproscopy and hystoscopy but the hospital informed me yesterday that I will be waiting up to 10 more moths before my op because the waiting list is so long!! I will be talking to my specialist to try and get him to push it through quicker, I will end up killing myself, unemployed or divorced if I have to wait that long with no form of relief!! I can't take any HRT until the operation gets done. Mad

Has anyone had success with alternative medicine or naturopaths? I am really considering going down that route because I am having no success with western medicine. I am just sick of spending money on remedies that do not work.



And lastly....any tips on how to cope emotionally? I am slowly going downhill again, its coming up to the 2 year anniversary of having V and I am finding it extremely hard. Especially with dealing with being in pain and discomfort at work when you can't escape to "adjust your undies" and are in agony but have to smile and deal with people. I am finding it harder and harder to work like this! especially when I have horrible bosses who have threatened to fire me for having time off dealing with my combined illnesses and hold the health issues I have against me. Also I am finding it hard to cope with not physically being able to have sex with my husband...I try my hardest but with the discomfort of V it has shut down my emotions for intimacy because the discomfort is all I can focus on. I feel constant guilt because my husband deserves a normal, good wife, and a he deserves a great sex life. He has stuck by me through all of this but I cant help thinking he will leave me sooner or later because you cant have a normal marriage with someone who has V. I'd be lying if I said this hasnt affected our marriage. Being young is even harder...we are meant to be at our sexual peak. And wanted to have a baby soon but that's impossible...I am in enough pain and I think pushing out a baby would do more permanent damage to my vulva...let alone the pain of labor with V!!!!

Any advice would be much appreciated ladies.







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Re: Desperate for advice. Bad flare up.

Post  kvelipuri on Sun May 17, 2015 6:56 pm

Just a note to let you know you are not alone - I too am suffering from severe swelling. The swelling goes up and down, but at its worst my vagina is totally swollen shut and walking is out of the question. No creams have worked - steroid, estrogen, or lidocaine - and in fact seem to correlate to more swelling (but who knows if there is actual causation). Anyway, still working on a treatment but wanted to let you know I'm going through the same, as it seems this kind of swelling is not a predominant symptom at least based on reading most people's stories.

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