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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

scared to take Pregabalin/lyrica

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scared to take Pregabalin/lyrica

Post  Jo44 on Tue Feb 10, 2015 10:44 am


Last Friday I was diagnosed by my gynocologist with Vulva Vestibulitus. He's given me 150mg of Pregabalin/lyrica to take, once a day plus Dermovate cream to apply twice a day!
I'm scared to try the meds & would like to hear from anyone whose had success with it please?

Last year I came off Mirtazapine which is been taking for anxiety. It took me from Feb -Oct to wean off it & was still suffering upto Xmas. I had a UTI last Nov, took antibiotics but was left feeling like it was still there, then after my period at the beginning of Dec I had a mild thrush infection which resulted in burning & soreness of my vulva. I currently take 50mgs of Amitriptilyne which the Gyni wants me to wean off.
Please give me some advice re Pregabalin!


Jo x


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I took Lyrica

Post  OBRN2007sms on Tue Feb 10, 2015 4:16 pm

I was prescribed Lyrica for another reason earlier this year; I had knee surgery and my orthopedic said it would help with the pain I only took one pill at night because if I took one in the morning I was too loopy. I do have fibromyalgia and doctors have been trying to get me to take this for years and I have been scared!! While I was on this medicine I had an appointment with my family doc and she sugg for me to take both pills at night to help with the tired feeling in the day so I did this for a few days until one morning I woke up stood up and could not feel my feet and this freaked me out. This was a script for 150mg. After now getting on here and seeing that this medication might help this medication I might try again and see if it helps, maybe the numb feet thing would have gone away in a few days , I know I can deal with some numb feet now if it will numb my vagina!


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Re: scared to take Pregabalin/lyrica

Post  bvnh13 on Thu Feb 12, 2015 2:12 am

I take Lyrica 100mg twice per day. Its been a godsend!!!!! although I do have to warn you…weight gain is horrible Im pretty much pain free but at a 45 pound price


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Re: scared to take Pregabalin/lyrica

Post  Jo44 on Thu Feb 12, 2015 8:17 am

Hi thanks for your replies.

Bvnh13, did it just make you want to eat more? The Mirtazapine I came off last year was like that too! Amitriptilyne also makes people gain weight but I haven't with it. I'm really hoping this doesn't either! Thanks again I sporeciate both you're posts! X


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Re: scared to take Pregabalin/lyrica

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