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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

scared to take Pregabalin/lyrica

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scared to take Pregabalin/lyrica

Post  Jo44 on Tue Feb 10, 2015 10:44 am


Last Friday I was diagnosed by my gynocologist with Vulva Vestibulitus. He's given me 150mg of Pregabalin/lyrica to take, once a day plus Dermovate cream to apply twice a day!
I'm scared to try the meds & would like to hear from anyone whose had success with it please?

Last year I came off Mirtazapine which is been taking for anxiety. It took me from Feb -Oct to wean off it & was still suffering upto Xmas. I had a UTI last Nov, took antibiotics but was left feeling like it was still there, then after my period at the beginning of Dec I had a mild thrush infection which resulted in burning & soreness of my vulva. I currently take 50mgs of Amitriptilyne which the Gyni wants me to wean off.
Please give me some advice re Pregabalin!


Jo x


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I took Lyrica

Post  OBRN2007sms on Tue Feb 10, 2015 4:16 pm

I was prescribed Lyrica for another reason earlier this year; I had knee surgery and my orthopedic said it would help with the pain I only took one pill at night because if I took one in the morning I was too loopy. I do have fibromyalgia and doctors have been trying to get me to take this for years and I have been scared!! While I was on this medicine I had an appointment with my family doc and she sugg for me to take both pills at night to help with the tired feeling in the day so I did this for a few days until one morning I woke up stood up and could not feel my feet and this freaked me out. This was a script for 150mg. After now getting on here and seeing that this medication might help this medication I might try again and see if it helps, maybe the numb feet thing would have gone away in a few days , I know I can deal with some numb feet now if it will numb my vagina!


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Re: scared to take Pregabalin/lyrica

Post  bvnh13 on Thu Feb 12, 2015 2:12 am

I take Lyrica 100mg twice per day. Its been a godsend!!!!! although I do have to warn you…weight gain is horrible Im pretty much pain free but at a 45 pound price


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Re: scared to take Pregabalin/lyrica

Post  Jo44 on Thu Feb 12, 2015 8:17 am

Hi thanks for your replies.

Bvnh13, did it just make you want to eat more? The Mirtazapine I came off last year was like that too! Amitriptilyne also makes people gain weight but I haven't with it. I'm really hoping this doesn't either! Thanks again I sporeciate both you're posts! X


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Re: scared to take Pregabalin/lyrica

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