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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


scared to take Pregabalin/lyrica

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scared to take Pregabalin/lyrica

Post  Jo44 on Tue Feb 10, 2015 10:44 am

Hi

Last Friday I was diagnosed by my gynocologist with Vulva Vestibulitus. He's given me 150mg of Pregabalin/lyrica to take, once a day plus Dermovate cream to apply twice a day!
I'm scared to try the meds & would like to hear from anyone whose had success with it please?

Last year I came off Mirtazapine which is been taking for anxiety. It took me from Feb -Oct to wean off it & was still suffering upto Xmas. I had a UTI last Nov, took antibiotics but was left feeling like it was still there, then after my period at the beginning of Dec I had a mild thrush infection which resulted in burning & soreness of my vulva. I currently take 50mgs of Amitriptilyne which the Gyni wants me to wean off.
Please give me some advice re Pregabalin!

Thanks

Jo x

Jo44

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Join date : 2015-02-10

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I took Lyrica

Post  OBRN2007sms on Tue Feb 10, 2015 4:16 pm

I was prescribed Lyrica for another reason earlier this year; I had knee surgery and my orthopedic said it would help with the pain I only took one pill at night because if I took one in the morning I was too loopy. I do have fibromyalgia and doctors have been trying to get me to take this for years and I have been scared!! While I was on this medicine I had an appointment with my family doc and she sugg for me to take both pills at night to help with the tired feeling in the day so I did this for a few days until one morning I woke up stood up and could not feel my feet and this freaked me out. This was a script for 150mg. After now getting on here and seeing that this medication might help this medication I might try again and see if it helps, maybe the numb feet thing would have gone away in a few days , I know I can deal with some numb feet now if it will numb my vagina!

OBRN2007sms

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Age : 48
Location : Alabama

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Re: scared to take Pregabalin/lyrica

Post  bvnh13 on Thu Feb 12, 2015 2:12 am

I take Lyrica 100mg twice per day. Its been a godsend!!!!! although I do have to warn you…weight gain is horrible Im pretty much pain free but at a 45 pound price

bvnh13

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Re: scared to take Pregabalin/lyrica

Post  Jo44 on Thu Feb 12, 2015 8:17 am

Hi thanks for your replies.

Bvnh13, did it just make you want to eat more? The Mirtazapine I came off last year was like that too! Amitriptilyne also makes people gain weight but I haven't with it. I'm really hoping this doesn't either! Thanks again I sporeciate both you're posts! X

Jo44

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Re: scared to take Pregabalin/lyrica

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