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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


honestly no idea what's wrong with me =(

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honestly no idea what's wrong with me =(

Post  tiramisu on Wed Feb 11, 2015 7:00 pm

My butt has been moist and in some pain for maybe a week and a half now. Boyfriend has hemmoroids right now so we figured maybe I did too somehow. But then last Friday my vagina started hurting and has been extremely sore. One day it did hurt to urinate, but not much on the other days. I've been on my period since it started, but I can tell it's also more moist down there than normal. It is clearing up, so maybe I don't have to go see a gynecologist...the ones at the health center of my university can never figure out anything and I just tried calling one in town who has good reviews online and she isn't accepting new patients. Sad Today there's definitely not as much pain, but it is still sore to touch (wipe) and I can tell it's swollen. pale

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Post  noelle2530 on Thu Feb 12, 2015 6:01 pm

You prob have an anal fissure or something like that I would go and see the doctor

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Re: honestly no idea what's wrong with me =(

Post  chelseax on Thu Feb 12, 2015 6:16 pm

Hi, I've been experiancing the same things as you for around two weeks now.
Moisture around my vagina and my bumole, its been really itchy to the point where it wakes me up during the night, I went to the doctors and they examed me, I had a rash around my bumole, I have thrush.
You can get it around any damp area maybe its something you have too x

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Re: honestly no idea what's wrong with me =(

Post  tiramisu on Fri Feb 13, 2015 9:41 am

chelseax wrote:Hi, I've been experiancing the same things as you for around two weeks now.
Moisture around my vagina and my bumole, its been really itchy to the point where it wakes me up during the night, I went to the doctors and they examed me, I had a rash around my bumole, I have thrush.
You can get it around any damp area maybe its something you have too x

I'm thinking you're right, especially since it's gotten more itchy. I'm going to try to use some meds for it and see if it goes away. Thanks!

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Re: honestly no idea what's wrong with me =(

Post  x_chelss@live.com on Fri Feb 13, 2015 10:51 am

It could just be something as simple as a nappy rash sort of thing because you haven't been able to control the moisture. Don't panic, x

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Re: honestly no idea what's wrong with me =(

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