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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


First Visit To A Naturopath

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First Visit To A Naturopath

Post  sailor_moon on Sat Feb 14, 2015 11:58 pm

Hi ladies,

I visited a Naturopath for the first time ever yesterday and I thought I may as well share the expirience for those who may be considering going down the same road.

I am currently waiting for an operation which is a wait of 6-12 months with no treatment or forms of relief in the meantime. So, out of desperation, I decide to try a Naturopath.

I have low estrogen and PCOS which was confirmed via blood tests and ultrasounds with my current gynecologist.

I was with the Naturopath for about an our. The first thing I have to do is go on a very strict diet, which will help balance my hormones, help my symptoms and detoxify my liver.

So, the diet is strictly no gluten, dairy or fruit! No potato or sweet potato. no sugar! No grains!
Strict right?

So what can I eat? Unprocessed meat - Chicken, Beef or Fish. All Veggies except Potato, Sweet Potato....minimal carrot and beetroot as they contain sugar. I can have coconut Milk or Nut Milk. Nuts,legumes such as kidney beans. Herbal and Green tea. Pure Whey Protein shakes. I can substitute sugar with Stevia. I can use Raw Organic Cacao. I can substitute flour with Almond meal. And add good fats such as coconut or olive oil to every meal.This is going to be SO hard!! No sugar!!

I have to take 2 tablespoons of Coconut oil daily.

I was given a Practitioner Only Strength form of Magnesium, 2 Homeopath medicines and a special Hormone herbal mix medicine. she said I should have a 30% decrease in my symptoms. 30% is sounding pretty good for me ATM. I should notice some form of relief in a weeks time. $300 later...I had wanna get some bloody relief!!!

It is a step-by-step process, this is just the beginning.

I will keep in touch with how things are going. I will be happy to answer any questions, and any advice or stories on experiences with Naturopaths would be very much appreciated!



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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 6:27 pm

I've seen two Naturopaths and a Functional Medicine Practitioner. The first Naturopath seemed to Google my symptoms right in front of me and sent me home with pills and tinctures for my hormones. I never went back to her. The second Naturopath was slightly more helpful since she put me on boric acid suppositories, which did help part of my issue, but she was just like doctors, throwing random "natural" stuff at me. She thought I had a hormone imbalance and recommended I do "seed cycling", which I've read great reviews on, but my cycle is EXTREMELY regular already. So I chose not to do it because I wanted to keep the one piece of normalcy I had left down there.

The Functional Medicine Practitioner was unhelpful and had her own close minded agenda. I was so excited because she wanted me to have all sorts of tests instead of just guessing what my body needed. GREAT! So I spent a ton of money on a stool test (yeah, I know, icky), a saliva hormone test, nutritional deficiency tests, and "gut health" tests. Vitamin D was low, my hormones were normal except for REALLY low testosterone, and I had gut inflammation. I want to add that she had me do these tests within a week of being on several rounds of antibiotics when the tests specifically said not to do it within 21 days of taking antibiotics. I asked her about it, and her response was, "well, I want to see where you're at now." Ugh, waste of money. Anyway...she was just absolutely obsessed with gut health, and although I can respect that a large part of our immune system is in our gut, my pain was in my vagina! I did not have the patience to wait another 3 months to see if improving my gut health would heal my sad vagina.

On top of that she was extremely disrespectful of me being vegan. I told her this DOZENS of times, but she kept handing me pills and products that were not vegan. Then when meeting with her nutritionist, I also told her I was vegan, and she was like, "well, how about a little bone broth?" Really lady?! Long story short, I followed her "treatments" for the full three months, and SURPRISE, my lady bits were still in pain.

Don't get me wrong, I am extremely supportive of natural health and feeding the body what it needs, which, by the way, our bodies need glucose (aka sugar)! I tend to stay away from any provider who tells me I can't eat fruit! Anyway...done with my rant. This was just my experience. I just don't feel Naturopaths are great at treating the "unknown" (like this mysterious condition called vulvodynia).

Hope you had a better experience!

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Re: First Visit To A Naturopath

Post  sailor_moon on Wed Mar 30, 2016 7:26 pm

Yeah the diet helped a lot with regulating my cycle, I'll give it that much. And I have chronic gastritis too so it helped my gut a lot. But did not help my vulvodynia one little bit because as it turns out, the cause of my vulvodynia is my pudental nerve! I either have Pudental neuralgia or Pudental Nerve Entrapment. ..still in the process of finding out what exactly is going on but it is 100% pudental nerve. Naturopath ended up costing me way too much money. couldn't afford it. I have an iridologist who I see from time to time that is so much cheaper and better.
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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 9:38 pm

I'm happy to hear it helped with something at least Smile

I have never heard of an iridologist before. I did a quick Google search, and it sounds interesting. Can you tell me a little bit more about your experience and what they've tried with you?

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