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Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

First Visit To A Naturopath

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First Visit To A Naturopath

Post  sailor_moon on Sat Feb 14, 2015 11:58 pm

Hi ladies,

I visited a Naturopath for the first time ever yesterday and I thought I may as well share the expirience for those who may be considering going down the same road.

I am currently waiting for an operation which is a wait of 6-12 months with no treatment or forms of relief in the meantime. So, out of desperation, I decide to try a Naturopath.

I have low estrogen and PCOS which was confirmed via blood tests and ultrasounds with my current gynecologist.

I was with the Naturopath for about an our. The first thing I have to do is go on a very strict diet, which will help balance my hormones, help my symptoms and detoxify my liver.

So, the diet is strictly no gluten, dairy or fruit! No potato or sweet potato. no sugar! No grains!
Strict right?

So what can I eat? Unprocessed meat - Chicken, Beef or Fish. All Veggies except Potato, Sweet Potato....minimal carrot and beetroot as they contain sugar. I can have coconut Milk or Nut Milk. Nuts,legumes such as kidney beans. Herbal and Green tea. Pure Whey Protein shakes. I can substitute sugar with Stevia. I can use Raw Organic Cacao. I can substitute flour with Almond meal. And add good fats such as coconut or olive oil to every meal.This is going to be SO hard!! No sugar!!

I have to take 2 tablespoons of Coconut oil daily.

I was given a Practitioner Only Strength form of Magnesium, 2 Homeopath medicines and a special Hormone herbal mix medicine. she said I should have a 30% decrease in my symptoms. 30% is sounding pretty good for me ATM. I should notice some form of relief in a weeks time. $300 later...I had wanna get some bloody relief!!!

It is a step-by-step process, this is just the beginning.

I will keep in touch with how things are going. I will be happy to answer any questions, and any advice or stories on experiences with Naturopaths would be very much appreciated!


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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 6:27 pm

I've seen two Naturopaths and a Functional Medicine Practitioner. The first Naturopath seemed to Google my symptoms right in front of me and sent me home with pills and tinctures for my hormones. I never went back to her. The second Naturopath was slightly more helpful since she put me on boric acid suppositories, which did help part of my issue, but she was just like doctors, throwing random "natural" stuff at me. She thought I had a hormone imbalance and recommended I do "seed cycling", which I've read great reviews on, but my cycle is EXTREMELY regular already. So I chose not to do it because I wanted to keep the one piece of normalcy I had left down there.

The Functional Medicine Practitioner was unhelpful and had her own close minded agenda. I was so excited because she wanted me to have all sorts of tests instead of just guessing what my body needed. GREAT! So I spent a ton of money on a stool test (yeah, I know, icky), a saliva hormone test, nutritional deficiency tests, and "gut health" tests. Vitamin D was low, my hormones were normal except for REALLY low testosterone, and I had gut inflammation. I want to add that she had me do these tests within a week of being on several rounds of antibiotics when the tests specifically said not to do it within 21 days of taking antibiotics. I asked her about it, and her response was, "well, I want to see where you're at now." Ugh, waste of money. Anyway...she was just absolutely obsessed with gut health, and although I can respect that a large part of our immune system is in our gut, my pain was in my vagina! I did not have the patience to wait another 3 months to see if improving my gut health would heal my sad vagina.

On top of that she was extremely disrespectful of me being vegan. I told her this DOZENS of times, but she kept handing me pills and products that were not vegan. Then when meeting with her nutritionist, I also told her I was vegan, and she was like, "well, how about a little bone broth?" Really lady?! Long story short, I followed her "treatments" for the full three months, and SURPRISE, my lady bits were still in pain.

Don't get me wrong, I am extremely supportive of natural health and feeding the body what it needs, which, by the way, our bodies need glucose (aka sugar)! I tend to stay away from any provider who tells me I can't eat fruit! Anyway...done with my rant. This was just my experience. I just don't feel Naturopaths are great at treating the "unknown" (like this mysterious condition called vulvodynia).

Hope you had a better experience!


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Re: First Visit To A Naturopath

Post  sailor_moon on Wed Mar 30, 2016 7:26 pm

Yeah the diet helped a lot with regulating my cycle, I'll give it that much. And I have chronic gastritis too so it helped my gut a lot. But did not help my vulvodynia one little bit because as it turns out, the cause of my vulvodynia is my pudental nerve! I either have Pudental neuralgia or Pudental Nerve Entrapment. ..still in the process of finding out what exactly is going on but it is 100% pudental nerve. Naturopath ended up costing me way too much money. couldn't afford it. I have an iridologist who I see from time to time that is so much cheaper and better.

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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 9:38 pm

I'm happy to hear it helped with something at least Smile

I have never heard of an iridologist before. I did a quick Google search, and it sounds interesting. Can you tell me a little bit more about your experience and what they've tried with you?


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Re: First Visit To A Naturopath

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