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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


First Visit To A Naturopath

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First Visit To A Naturopath

Post  sailor_moon on Sat Feb 14, 2015 11:58 pm

Hi ladies,

I visited a Naturopath for the first time ever yesterday and I thought I may as well share the expirience for those who may be considering going down the same road.

I am currently waiting for an operation which is a wait of 6-12 months with no treatment or forms of relief in the meantime. So, out of desperation, I decide to try a Naturopath.

I have low estrogen and PCOS which was confirmed via blood tests and ultrasounds with my current gynecologist.

I was with the Naturopath for about an our. The first thing I have to do is go on a very strict diet, which will help balance my hormones, help my symptoms and detoxify my liver.

So, the diet is strictly no gluten, dairy or fruit! No potato or sweet potato. no sugar! No grains!
Strict right?

So what can I eat? Unprocessed meat - Chicken, Beef or Fish. All Veggies except Potato, Sweet Potato....minimal carrot and beetroot as they contain sugar. I can have coconut Milk or Nut Milk. Nuts,legumes such as kidney beans. Herbal and Green tea. Pure Whey Protein shakes. I can substitute sugar with Stevia. I can use Raw Organic Cacao. I can substitute flour with Almond meal. And add good fats such as coconut or olive oil to every meal.This is going to be SO hard!! No sugar!!

I have to take 2 tablespoons of Coconut oil daily.

I was given a Practitioner Only Strength form of Magnesium, 2 Homeopath medicines and a special Hormone herbal mix medicine. she said I should have a 30% decrease in my symptoms. 30% is sounding pretty good for me ATM. I should notice some form of relief in a weeks time. $300 later...I had wanna get some bloody relief!!!

It is a step-by-step process, this is just the beginning.

I will keep in touch with how things are going. I will be happy to answer any questions, and any advice or stories on experiences with Naturopaths would be very much appreciated!



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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 6:27 pm

I've seen two Naturopaths and a Functional Medicine Practitioner. The first Naturopath seemed to Google my symptoms right in front of me and sent me home with pills and tinctures for my hormones. I never went back to her. The second Naturopath was slightly more helpful since she put me on boric acid suppositories, which did help part of my issue, but she was just like doctors, throwing random "natural" stuff at me. She thought I had a hormone imbalance and recommended I do "seed cycling", which I've read great reviews on, but my cycle is EXTREMELY regular already. So I chose not to do it because I wanted to keep the one piece of normalcy I had left down there.

The Functional Medicine Practitioner was unhelpful and had her own close minded agenda. I was so excited because she wanted me to have all sorts of tests instead of just guessing what my body needed. GREAT! So I spent a ton of money on a stool test (yeah, I know, icky), a saliva hormone test, nutritional deficiency tests, and "gut health" tests. Vitamin D was low, my hormones were normal except for REALLY low testosterone, and I had gut inflammation. I want to add that she had me do these tests within a week of being on several rounds of antibiotics when the tests specifically said not to do it within 21 days of taking antibiotics. I asked her about it, and her response was, "well, I want to see where you're at now." Ugh, waste of money. Anyway...she was just absolutely obsessed with gut health, and although I can respect that a large part of our immune system is in our gut, my pain was in my vagina! I did not have the patience to wait another 3 months to see if improving my gut health would heal my sad vagina.

On top of that she was extremely disrespectful of me being vegan. I told her this DOZENS of times, but she kept handing me pills and products that were not vegan. Then when meeting with her nutritionist, I also told her I was vegan, and she was like, "well, how about a little bone broth?" Really lady?! Long story short, I followed her "treatments" for the full three months, and SURPRISE, my lady bits were still in pain.

Don't get me wrong, I am extremely supportive of natural health and feeding the body what it needs, which, by the way, our bodies need glucose (aka sugar)! I tend to stay away from any provider who tells me I can't eat fruit! Anyway...done with my rant. This was just my experience. I just don't feel Naturopaths are great at treating the "unknown" (like this mysterious condition called vulvodynia).

Hope you had a better experience!

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Re: First Visit To A Naturopath

Post  sailor_moon on Wed Mar 30, 2016 7:26 pm

Yeah the diet helped a lot with regulating my cycle, I'll give it that much. And I have chronic gastritis too so it helped my gut a lot. But did not help my vulvodynia one little bit because as it turns out, the cause of my vulvodynia is my pudental nerve! I either have Pudental neuralgia or Pudental Nerve Entrapment. ..still in the process of finding out what exactly is going on but it is 100% pudental nerve. Naturopath ended up costing me way too much money. couldn't afford it. I have an iridologist who I see from time to time that is so much cheaper and better.
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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 9:38 pm

I'm happy to hear it helped with something at least Smile

I have never heard of an iridologist before. I did a quick Google search, and it sounds interesting. Can you tell me a little bit more about your experience and what they've tried with you?

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