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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

First Visit To A Naturopath

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First Visit To A Naturopath

Post  sailor_moon on Sat Feb 14, 2015 11:58 pm

Hi ladies,

I visited a Naturopath for the first time ever yesterday and I thought I may as well share the expirience for those who may be considering going down the same road.

I am currently waiting for an operation which is a wait of 6-12 months with no treatment or forms of relief in the meantime. So, out of desperation, I decide to try a Naturopath.

I have low estrogen and PCOS which was confirmed via blood tests and ultrasounds with my current gynecologist.

I was with the Naturopath for about an our. The first thing I have to do is go on a very strict diet, which will help balance my hormones, help my symptoms and detoxify my liver.

So, the diet is strictly no gluten, dairy or fruit! No potato or sweet potato. no sugar! No grains!
Strict right?

So what can I eat? Unprocessed meat - Chicken, Beef or Fish. All Veggies except Potato, Sweet Potato....minimal carrot and beetroot as they contain sugar. I can have coconut Milk or Nut Milk. Nuts,legumes such as kidney beans. Herbal and Green tea. Pure Whey Protein shakes. I can substitute sugar with Stevia. I can use Raw Organic Cacao. I can substitute flour with Almond meal. And add good fats such as coconut or olive oil to every meal.This is going to be SO hard!! No sugar!!

I have to take 2 tablespoons of Coconut oil daily.

I was given a Practitioner Only Strength form of Magnesium, 2 Homeopath medicines and a special Hormone herbal mix medicine. she said I should have a 30% decrease in my symptoms. 30% is sounding pretty good for me ATM. I should notice some form of relief in a weeks time. $300 later...I had wanna get some bloody relief!!!

It is a step-by-step process, this is just the beginning.

I will keep in touch with how things are going. I will be happy to answer any questions, and any advice or stories on experiences with Naturopaths would be very much appreciated!


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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 6:27 pm

I've seen two Naturopaths and a Functional Medicine Practitioner. The first Naturopath seemed to Google my symptoms right in front of me and sent me home with pills and tinctures for my hormones. I never went back to her. The second Naturopath was slightly more helpful since she put me on boric acid suppositories, which did help part of my issue, but she was just like doctors, throwing random "natural" stuff at me. She thought I had a hormone imbalance and recommended I do "seed cycling", which I've read great reviews on, but my cycle is EXTREMELY regular already. So I chose not to do it because I wanted to keep the one piece of normalcy I had left down there.

The Functional Medicine Practitioner was unhelpful and had her own close minded agenda. I was so excited because she wanted me to have all sorts of tests instead of just guessing what my body needed. GREAT! So I spent a ton of money on a stool test (yeah, I know, icky), a saliva hormone test, nutritional deficiency tests, and "gut health" tests. Vitamin D was low, my hormones were normal except for REALLY low testosterone, and I had gut inflammation. I want to add that she had me do these tests within a week of being on several rounds of antibiotics when the tests specifically said not to do it within 21 days of taking antibiotics. I asked her about it, and her response was, "well, I want to see where you're at now." Ugh, waste of money. Anyway...she was just absolutely obsessed with gut health, and although I can respect that a large part of our immune system is in our gut, my pain was in my vagina! I did not have the patience to wait another 3 months to see if improving my gut health would heal my sad vagina.

On top of that she was extremely disrespectful of me being vegan. I told her this DOZENS of times, but she kept handing me pills and products that were not vegan. Then when meeting with her nutritionist, I also told her I was vegan, and she was like, "well, how about a little bone broth?" Really lady?! Long story short, I followed her "treatments" for the full three months, and SURPRISE, my lady bits were still in pain.

Don't get me wrong, I am extremely supportive of natural health and feeding the body what it needs, which, by the way, our bodies need glucose (aka sugar)! I tend to stay away from any provider who tells me I can't eat fruit! Anyway...done with my rant. This was just my experience. I just don't feel Naturopaths are great at treating the "unknown" (like this mysterious condition called vulvodynia).

Hope you had a better experience!


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Re: First Visit To A Naturopath

Post  sailor_moon on Wed Mar 30, 2016 7:26 pm

Yeah the diet helped a lot with regulating my cycle, I'll give it that much. And I have chronic gastritis too so it helped my gut a lot. But did not help my vulvodynia one little bit because as it turns out, the cause of my vulvodynia is my pudental nerve! I either have Pudental neuralgia or Pudental Nerve Entrapment. ..still in the process of finding out what exactly is going on but it is 100% pudental nerve. Naturopath ended up costing me way too much money. couldn't afford it. I have an iridologist who I see from time to time that is so much cheaper and better.

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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 9:38 pm

I'm happy to hear it helped with something at least Smile

I have never heard of an iridologist before. I did a quick Google search, and it sounds interesting. Can you tell me a little bit more about your experience and what they've tried with you?


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Re: First Visit To A Naturopath

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