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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


First Visit To A Naturopath

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First Visit To A Naturopath

Post  sailor_moon on Sat Feb 14, 2015 11:58 pm

Hi ladies,

I visited a Naturopath for the first time ever yesterday and I thought I may as well share the expirience for those who may be considering going down the same road.

I am currently waiting for an operation which is a wait of 6-12 months with no treatment or forms of relief in the meantime. So, out of desperation, I decide to try a Naturopath.

I have low estrogen and PCOS which was confirmed via blood tests and ultrasounds with my current gynecologist.

I was with the Naturopath for about an our. The first thing I have to do is go on a very strict diet, which will help balance my hormones, help my symptoms and detoxify my liver.

So, the diet is strictly no gluten, dairy or fruit! No potato or sweet potato. no sugar! No grains!
Strict right?

So what can I eat? Unprocessed meat - Chicken, Beef or Fish. All Veggies except Potato, Sweet Potato....minimal carrot and beetroot as they contain sugar. I can have coconut Milk or Nut Milk. Nuts,legumes such as kidney beans. Herbal and Green tea. Pure Whey Protein shakes. I can substitute sugar with Stevia. I can use Raw Organic Cacao. I can substitute flour with Almond meal. And add good fats such as coconut or olive oil to every meal.This is going to be SO hard!! No sugar!!

I have to take 2 tablespoons of Coconut oil daily.

I was given a Practitioner Only Strength form of Magnesium, 2 Homeopath medicines and a special Hormone herbal mix medicine. she said I should have a 30% decrease in my symptoms. 30% is sounding pretty good for me ATM. I should notice some form of relief in a weeks time. $300 later...I had wanna get some bloody relief!!!

It is a step-by-step process, this is just the beginning.

I will keep in touch with how things are going. I will be happy to answer any questions, and any advice or stories on experiences with Naturopaths would be very much appreciated!



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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 6:27 pm

I've seen two Naturopaths and a Functional Medicine Practitioner. The first Naturopath seemed to Google my symptoms right in front of me and sent me home with pills and tinctures for my hormones. I never went back to her. The second Naturopath was slightly more helpful since she put me on boric acid suppositories, which did help part of my issue, but she was just like doctors, throwing random "natural" stuff at me. She thought I had a hormone imbalance and recommended I do "seed cycling", which I've read great reviews on, but my cycle is EXTREMELY regular already. So I chose not to do it because I wanted to keep the one piece of normalcy I had left down there.

The Functional Medicine Practitioner was unhelpful and had her own close minded agenda. I was so excited because she wanted me to have all sorts of tests instead of just guessing what my body needed. GREAT! So I spent a ton of money on a stool test (yeah, I know, icky), a saliva hormone test, nutritional deficiency tests, and "gut health" tests. Vitamin D was low, my hormones were normal except for REALLY low testosterone, and I had gut inflammation. I want to add that she had me do these tests within a week of being on several rounds of antibiotics when the tests specifically said not to do it within 21 days of taking antibiotics. I asked her about it, and her response was, "well, I want to see where you're at now." Ugh, waste of money. Anyway...she was just absolutely obsessed with gut health, and although I can respect that a large part of our immune system is in our gut, my pain was in my vagina! I did not have the patience to wait another 3 months to see if improving my gut health would heal my sad vagina.

On top of that she was extremely disrespectful of me being vegan. I told her this DOZENS of times, but she kept handing me pills and products that were not vegan. Then when meeting with her nutritionist, I also told her I was vegan, and she was like, "well, how about a little bone broth?" Really lady?! Long story short, I followed her "treatments" for the full three months, and SURPRISE, my lady bits were still in pain.

Don't get me wrong, I am extremely supportive of natural health and feeding the body what it needs, which, by the way, our bodies need glucose (aka sugar)! I tend to stay away from any provider who tells me I can't eat fruit! Anyway...done with my rant. This was just my experience. I just don't feel Naturopaths are great at treating the "unknown" (like this mysterious condition called vulvodynia).

Hope you had a better experience!

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Re: First Visit To A Naturopath

Post  sailor_moon on Wed Mar 30, 2016 7:26 pm

Yeah the diet helped a lot with regulating my cycle, I'll give it that much. And I have chronic gastritis too so it helped my gut a lot. But did not help my vulvodynia one little bit because as it turns out, the cause of my vulvodynia is my pudental nerve! I either have Pudental neuralgia or Pudental Nerve Entrapment. ..still in the process of finding out what exactly is going on but it is 100% pudental nerve. Naturopath ended up costing me way too much money. couldn't afford it. I have an iridologist who I see from time to time that is so much cheaper and better.
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Re: First Visit To A Naturopath

Post  emalita on Wed Mar 30, 2016 9:38 pm

I'm happy to hear it helped with something at least Smile

I have never heard of an iridologist before. I did a quick Google search, and it sounds interesting. Can you tell me a little bit more about your experience and what they've tried with you?

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