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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


miserable for years

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miserable for years

Post  cdrocab on Thu Feb 19, 2015 6:00 pm

I've ridden and shown horses for years and for the last 18 years carried Lidocaine cream in my saddle bags They say if you suffer from Vulvodynia stop riding horses and bikes. I no longer ride motorcycles but still try to bicycle and if armed, am able to ride the trails on my horse for about 2 hours. I had to find a home for my ungaited horse since the bouncing made it worse. No jeans allowed so I use English riding tights that have no seam. I have a short in stature rescue horse but she is not broke to saddle, just a pet. For the first time in 58 years I am not riding. I researched breeds of horses for the smoothest gate and having the best easy going attitude. It happened to be the Rocky Mountain horse which unfortunately are priced like gold here in Texas. An untrained yearling out of pasture is $3000. There are some in Eastern United States but to get it here is muy money.
I want my life back. Through all of this with outsmarting my vulva with numbing medicine, non-seamed pants and ice paks I was diagnosed with ruptured discs and had surgery that failed, got better with exercise and just as I was going to start playing horse again was diagnosed with Leukemia and it took 6 years to get the weight issue from medications under control. Yes the increase weight made my crotch 10x as bad. I started horsing around again in 2012 and got run over by 3 wild rescue horses and broke 2 vertebrae. Duh, wild horses don't stop when you flail your arms. Everything came to a halt, I lost my job and hit a low point in my life. Oh, and by the way, my husband and I have not been intimate in 3.5 years. I guess he is a brute for punishment.
I am waiting for a spinal cord stimulator to be put in to change the type of feeling that the pain receptors receive from my brain related to my back. I am hoping for the best and just maybe it will reduce the vulva pain. We shall see.
To keep me sane I dream of riding my new gaited horse in my nicely padded saddle in the mountains with minimal pain and the option of not hauling along a quart of Lidocaine salve. Oh, and speaking of salve, even though it is recommended for this type of pain my insurance only allows me a 2 oz tube of it a month. I always weigh out what the most important activity is and only use it parsimoniously. I realize I am being a Chatty Cathy but there is no one to talk to about this and wouldn't I blow my FB friends off the page if I brought this up. Vulvodynia has isolated me in doing things and without being able to talk about it to anyone who understands it has been a saddening aspect. Since I have lived with this before it was even a qualified recognized diagnosis I was lucky to have a Gynecologist who would help treat me symptomatically.

Thanks for listening and any one who is a trail rider who has more ideas for dealing with the pain, give me a shout.

cdrocab

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Re: miserable for years

Post  meelie on Fri Feb 20, 2015 3:44 pm

Hi fellow horse gal. Just read your post and feel your pain. You have really bean thru some shit. I live in Georgia. Wish we were closer. I also suffer with this horrible curse. I had back surgery Dec. 31 for spondylothesis. I have been on pain meds since. Not so much as at the beginning but a couple times in 24 hours. I have been spared the V for a while now since surgery but I'm sure it's the percocet or soma but pray pray pray that it is because the Dr. released many pinched nerve endings. He says he doesn't believe that the surgery would help the V but I believe in miracles. I have also been to PT for manual massage down there before the surgery of course. But my insurance, medicare supplement, changed this year and I can't afford PT anymore. I actually gave up riding due to back and leg pain more than the V. Somehow I learned to sit without pressure on the vulva. I have also started taken mucho magnesium, it helps muscles relax. I also soaked in epsom salts baths, it is really magnesium and helps relax those muscles too. I also take calcium citrate. I don't know the cause of your V, I finally after 2 years decided that it was my pelvic floor muscles all knotted up after I took an unscheduled flight off my green Arab in April 2011 and broke my left pelvis therefore I sat on my right side for over 2 years before I deducted what I was doing.
Anyway I guess I'm saying I'm here for you and totally understand. My burning would go away at night while I slept and relaxed I was very glad of that.
Do you know what may have caused your pain? Is it burning or stabbing or what. Is it on touch or general.
I dream of the day that I can ride again. Due to the surgery I have been forbidden by my surgeon not to ride for six months after surgery. I am going to obey his rules.
You can send me private messages if you would like. I have a husband also but I have found "other" ways to help him out sex wise just to keep him half way sane.
Here for you friend.

meelie

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Re: miserable for years

Post  cdrocab on Sat Mar 07, 2015 10:57 pm

....meelie.......I have had a heck of a time getting back onto this site. I think it got attacked by viruses because the next thing I know I am chasing a nasty virus through my laptop. Because it has taken so long to get back on and it just happened today I have now run out of time and need to go do my horse at the barn. I now know what it takes to get back on here so will follow up with you about being a horsewoman with vulvodynia. It was great hearing from you and I will come back and we will proceed.
Thx
Candice Razz

cdrocab

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Re: miserable for years

Post  meelie on Sun Mar 08, 2015 11:57 pm

sounds great, pm me if you want. waiting to hear from you. Very Happy

meelie

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Re: miserable for years

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