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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

miserable for years

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miserable for years

Post  cdrocab on Thu Feb 19, 2015 6:00 pm

I've ridden and shown horses for years and for the last 18 years carried Lidocaine cream in my saddle bags They say if you suffer from Vulvodynia stop riding horses and bikes. I no longer ride motorcycles but still try to bicycle and if armed, am able to ride the trails on my horse for about 2 hours. I had to find a home for my ungaited horse since the bouncing made it worse. No jeans allowed so I use English riding tights that have no seam. I have a short in stature rescue horse but she is not broke to saddle, just a pet. For the first time in 58 years I am not riding. I researched breeds of horses for the smoothest gate and having the best easy going attitude. It happened to be the Rocky Mountain horse which unfortunately are priced like gold here in Texas. An untrained yearling out of pasture is $3000. There are some in Eastern United States but to get it here is muy money.
I want my life back. Through all of this with outsmarting my vulva with numbing medicine, non-seamed pants and ice paks I was diagnosed with ruptured discs and had surgery that failed, got better with exercise and just as I was going to start playing horse again was diagnosed with Leukemia and it took 6 years to get the weight issue from medications under control. Yes the increase weight made my crotch 10x as bad. I started horsing around again in 2012 and got run over by 3 wild rescue horses and broke 2 vertebrae. Duh, wild horses don't stop when you flail your arms. Everything came to a halt, I lost my job and hit a low point in my life. Oh, and by the way, my husband and I have not been intimate in 3.5 years. I guess he is a brute for punishment.
I am waiting for a spinal cord stimulator to be put in to change the type of feeling that the pain receptors receive from my brain related to my back. I am hoping for the best and just maybe it will reduce the vulva pain. We shall see.
To keep me sane I dream of riding my new gaited horse in my nicely padded saddle in the mountains with minimal pain and the option of not hauling along a quart of Lidocaine salve. Oh, and speaking of salve, even though it is recommended for this type of pain my insurance only allows me a 2 oz tube of it a month. I always weigh out what the most important activity is and only use it parsimoniously. I realize I am being a Chatty Cathy but there is no one to talk to about this and wouldn't I blow my FB friends off the page if I brought this up. Vulvodynia has isolated me in doing things and without being able to talk about it to anyone who understands it has been a saddening aspect. Since I have lived with this before it was even a qualified recognized diagnosis I was lucky to have a Gynecologist who would help treat me symptomatically.

Thanks for listening and any one who is a trail rider who has more ideas for dealing with the pain, give me a shout.


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Re: miserable for years

Post  meelie on Fri Feb 20, 2015 3:44 pm

Hi fellow horse gal. Just read your post and feel your pain. You have really bean thru some shit. I live in Georgia. Wish we were closer. I also suffer with this horrible curse. I had back surgery Dec. 31 for spondylothesis. I have been on pain meds since. Not so much as at the beginning but a couple times in 24 hours. I have been spared the V for a while now since surgery but I'm sure it's the percocet or soma but pray pray pray that it is because the Dr. released many pinched nerve endings. He says he doesn't believe that the surgery would help the V but I believe in miracles. I have also been to PT for manual massage down there before the surgery of course. But my insurance, medicare supplement, changed this year and I can't afford PT anymore. I actually gave up riding due to back and leg pain more than the V. Somehow I learned to sit without pressure on the vulva. I have also started taken mucho magnesium, it helps muscles relax. I also soaked in epsom salts baths, it is really magnesium and helps relax those muscles too. I also take calcium citrate. I don't know the cause of your V, I finally after 2 years decided that it was my pelvic floor muscles all knotted up after I took an unscheduled flight off my green Arab in April 2011 and broke my left pelvis therefore I sat on my right side for over 2 years before I deducted what I was doing.
Anyway I guess I'm saying I'm here for you and totally understand. My burning would go away at night while I slept and relaxed I was very glad of that.
Do you know what may have caused your pain? Is it burning or stabbing or what. Is it on touch or general.
I dream of the day that I can ride again. Due to the surgery I have been forbidden by my surgeon not to ride for six months after surgery. I am going to obey his rules.
You can send me private messages if you would like. I have a husband also but I have found "other" ways to help him out sex wise just to keep him half way sane.
Here for you friend.


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Re: miserable for years

Post  cdrocab on Sat Mar 07, 2015 10:57 pm

....meelie.......I have had a heck of a time getting back onto this site. I think it got attacked by viruses because the next thing I know I am chasing a nasty virus through my laptop. Because it has taken so long to get back on and it just happened today I have now run out of time and need to go do my horse at the barn. I now know what it takes to get back on here so will follow up with you about being a horsewoman with vulvodynia. It was great hearing from you and I will come back and we will proceed.
Candice Razz


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Re: miserable for years

Post  meelie on Sun Mar 08, 2015 11:57 pm

sounds great, pm me if you want. waiting to hear from you. Very Happy


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Re: miserable for years

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