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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Newly diagnosed

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Newly diagnosed

Post  drivenbyambition on Mon Mar 02, 2015 11:35 pm

My story started when I noticed a burning sensation last year. My period was late and I wore a maxi pad in fear of my period starting unexpectedly. I got very irritated and eventually ended up with bacterial vaginosis (that I believe happened due to the maxi pads). When I went for my pelvic exam, I was diagnosed with the previous mentioned condition, but was told treating it would not heal my inflammation. I was told to use diaper rash cream, hydrocortisone, etc. Nothing helped. Fast forward to this year, I began seeing another doctor, an OBGYN. He prescribed a cream at first, which gave a little bit of pain relief the first few days, but discontinued when I realized it was not working. He said if this cream did not solve my issue, it would be time for a biopsy. He said it could be a number of conditions because vulvar issues do not present themselves the same way in each woman. This past appointment, last Monday, I had the biopsy. I cannot describe the pain I went through with the lidocaine injection. It was bearable, I did not cry, but I never want to have another one. I was absolutely miserable this past week. I received the official call that I have vulvodynia and will be referred to a specialist. I have been prescribed Gabapentin, which the side effects scare me, and my husband I both wonder how an oral medicine is going to help with the redness and inflammation. I am so very scared to never be the same again. I'm scared about the long-term effects of this medicine on fertility, because I am yet to have children. Sorry for the long post, and as much as I hate this condition, I am glad I have found a place where I'm not ashamed to talk to others about it. It's been hard this past year, because no one has understood my every day struggle. Thanks for reading.

drivenbyambition

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Re: Newly diagnosed

Post  meelie on Thu Mar 05, 2015 1:04 am

Please let us know what your specialist says. Gababentin (Neurontin) is actually a seizure medication that has been discovered to help to numb nerves and decrease nerve pain. It is prescribed a lot for what we have. Also Lyrica is one of those that is newer but costs more. It is also prescribed for people with Fibromyalgia and Diabete nerve pain. You can look it up on the net, google it. It should tell you if it's been okayed if you get pregnant. Don't know anything about a long term effect for when you bet pregnant later. I imagine it doesn't change in Chromosomes so it should not affect a future pregnancy especially if you are already off of it. I can't imagine, though, pushing a baby out of my vulva burning like it does. Ouch. Or even getting pregnant for that matter. Good luck. Hope this helped and don't forget to tell us if your specialist has any new methods.

meelie

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Re: Newly diagnosed

Post  drivenbyambition on Thu Mar 05, 2015 7:23 am

I am still waiting for my appointment to be scheduled. I do know that she will begin by prescribing medicine. Starting with one and going through about five. She has her full treatment plan listed online. Last resort would be surgery.

I have decided not to take the medicine yet if at all until I have my first child. I would prefer to have a C-section due to this condition, which I never thought I would ever say that.

Thanks for taking the time to reply. I'm quite nervous and scared.

drivenbyambition

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Re: Newly diagnosed

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