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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Newly diagnosed

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Newly diagnosed

Post  drivenbyambition on Mon Mar 02, 2015 11:35 pm

My story started when I noticed a burning sensation last year. My period was late and I wore a maxi pad in fear of my period starting unexpectedly. I got very irritated and eventually ended up with bacterial vaginosis (that I believe happened due to the maxi pads). When I went for my pelvic exam, I was diagnosed with the previous mentioned condition, but was told treating it would not heal my inflammation. I was told to use diaper rash cream, hydrocortisone, etc. Nothing helped. Fast forward to this year, I began seeing another doctor, an OBGYN. He prescribed a cream at first, which gave a little bit of pain relief the first few days, but discontinued when I realized it was not working. He said if this cream did not solve my issue, it would be time for a biopsy. He said it could be a number of conditions because vulvar issues do not present themselves the same way in each woman. This past appointment, last Monday, I had the biopsy. I cannot describe the pain I went through with the lidocaine injection. It was bearable, I did not cry, but I never want to have another one. I was absolutely miserable this past week. I received the official call that I have vulvodynia and will be referred to a specialist. I have been prescribed Gabapentin, which the side effects scare me, and my husband I both wonder how an oral medicine is going to help with the redness and inflammation. I am so very scared to never be the same again. I'm scared about the long-term effects of this medicine on fertility, because I am yet to have children. Sorry for the long post, and as much as I hate this condition, I am glad I have found a place where I'm not ashamed to talk to others about it. It's been hard this past year, because no one has understood my every day struggle. Thanks for reading.

drivenbyambition

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Join date : 2015-03-02

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Re: Newly diagnosed

Post  meelie on Thu Mar 05, 2015 1:04 am

Please let us know what your specialist says. Gababentin (Neurontin) is actually a seizure medication that has been discovered to help to numb nerves and decrease nerve pain. It is prescribed a lot for what we have. Also Lyrica is one of those that is newer but costs more. It is also prescribed for people with Fibromyalgia and Diabete nerve pain. You can look it up on the net, google it. It should tell you if it's been okayed if you get pregnant. Don't know anything about a long term effect for when you bet pregnant later. I imagine it doesn't change in Chromosomes so it should not affect a future pregnancy especially if you are already off of it. I can't imagine, though, pushing a baby out of my vulva burning like it does. Ouch. Or even getting pregnant for that matter. Good luck. Hope this helped and don't forget to tell us if your specialist has any new methods.

meelie

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Re: Newly diagnosed

Post  drivenbyambition on Thu Mar 05, 2015 7:23 am

I am still waiting for my appointment to be scheduled. I do know that she will begin by prescribing medicine. Starting with one and going through about five. She has her full treatment plan listed online. Last resort would be surgery.

I have decided not to take the medicine yet if at all until I have my first child. I would prefer to have a C-section due to this condition, which I never thought I would ever say that.

Thanks for taking the time to reply. I'm quite nervous and scared.

drivenbyambition

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Re: Newly diagnosed

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