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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


My vulvodynia challenge

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My vulvodynia challenge

Post  Cbobro on Mon Mar 09, 2015 2:03 am

I was diagnosed with this condition a little under a year ago. I would be in and out of the doctor once a week, trying out different creams, antibiotics or pills that would take away the pain. I went to the gynecologist more than I have been to one my whole life. Every test they ran, would always come out negative. I felt alone and confused as to why this happened to me. I would be in unbearable pain everyday this past summer. I wasn't able to live the life that I wanted. I would constantly be annoying by crying about my pain to my friends all the time. I would feel bad and I would also feel alone because no one understood the amount of pain that I was actually in. Doctors would tell me that it's something to do with psychological issues but I truly don't believe that. I would be the happiest person on earth and still be in pain. But I would also be at my lowest points. I had depression over the summer where I wanted to just give up the fight and take the easy route out. I would cry to my mom every night begging for the pain to go away. Suddenly, after months of dealing with the torture, the pain began to go away, I was happy again and loving my life again. Until once again after 4 months I had a flare up. The burning pain was back, the discharge continued and the shooting pains got progressively worse. I figured that I've been through this challenge before and there's no way I'm letting it control me the way that it did before. I continue to have ice packs water bottles and anything cold between my legs to make the pain seem some what better. It's the biggest challenge I've had to over come but in the long run it has made me a hell of a fighter. I hope one day that the pain will vanish and I will be able to live the life with out pain, and I hope that all of you will continue to do the same thing!
-Chrissy (:

Cbobro

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Re: My vulvodynia challenge

Post  Mariek on Tue Mar 10, 2015 3:31 pm

Trying, it's a tough battle.

Mariek

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Re: My vulvodynia challenge

Post  drivenbyambition on Sat Mar 14, 2015 4:52 am

I hardly ever not feel this condition. It is depressing in a way, but I am trying to stay positive and know that my fertility and life means more than pumping myself with medications with no long term studies. Personal opinion. However, today and the past three days have been very trying.

Feel better.

drivenbyambition

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Re: My vulvodynia challenge

Post  Cbobro on Mon Mar 16, 2015 2:26 am

I know it may seem like its the end of the world now, but I truly believe that everything happens for a reason. This condition can make anyone the strongest person if they persevere from it. I myself continue to start feeling the pain but I don't let it control my life anymore. There is hope, and you just have to believe that from now on!

Cbobro

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look at my post

Post  EverythingIsDifferentNow on Tue Mar 17, 2015 1:45 am

look at the advice category at the home page and you won't feel so alone I love you

EverythingIsDifferentNow

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Re: My vulvodynia challenge

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