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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


My vulvodynia challenge

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My vulvodynia challenge

Post  Cbobro on Mon Mar 09, 2015 2:03 am

I was diagnosed with this condition a little under a year ago. I would be in and out of the doctor once a week, trying out different creams, antibiotics or pills that would take away the pain. I went to the gynecologist more than I have been to one my whole life. Every test they ran, would always come out negative. I felt alone and confused as to why this happened to me. I would be in unbearable pain everyday this past summer. I wasn't able to live the life that I wanted. I would constantly be annoying by crying about my pain to my friends all the time. I would feel bad and I would also feel alone because no one understood the amount of pain that I was actually in. Doctors would tell me that it's something to do with psychological issues but I truly don't believe that. I would be the happiest person on earth and still be in pain. But I would also be at my lowest points. I had depression over the summer where I wanted to just give up the fight and take the easy route out. I would cry to my mom every night begging for the pain to go away. Suddenly, after months of dealing with the torture, the pain began to go away, I was happy again and loving my life again. Until once again after 4 months I had a flare up. The burning pain was back, the discharge continued and the shooting pains got progressively worse. I figured that I've been through this challenge before and there's no way I'm letting it control me the way that it did before. I continue to have ice packs water bottles and anything cold between my legs to make the pain seem some what better. It's the biggest challenge I've had to over come but in the long run it has made me a hell of a fighter. I hope one day that the pain will vanish and I will be able to live the life with out pain, and I hope that all of you will continue to do the same thing!
-Chrissy (:

Cbobro

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Re: My vulvodynia challenge

Post  Mariek on Tue Mar 10, 2015 3:31 pm

Trying, it's a tough battle.

Mariek

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Re: My vulvodynia challenge

Post  drivenbyambition on Sat Mar 14, 2015 4:52 am

I hardly ever not feel this condition. It is depressing in a way, but I am trying to stay positive and know that my fertility and life means more than pumping myself with medications with no long term studies. Personal opinion. However, today and the past three days have been very trying.

Feel better.

drivenbyambition

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Re: My vulvodynia challenge

Post  Cbobro on Mon Mar 16, 2015 2:26 am

I know it may seem like its the end of the world now, but I truly believe that everything happens for a reason. This condition can make anyone the strongest person if they persevere from it. I myself continue to start feeling the pain but I don't let it control my life anymore. There is hope, and you just have to believe that from now on!

Cbobro

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look at my post

Post  EverythingIsDifferentNow on Tue Mar 17, 2015 1:45 am

look at the advice category at the home page and you won't feel so alone I love you

EverythingIsDifferentNow

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Re: My vulvodynia challenge

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