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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


My vulvodynia challenge

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My vulvodynia challenge

Post  Cbobro on Mon Mar 09, 2015 2:03 am

I was diagnosed with this condition a little under a year ago. I would be in and out of the doctor once a week, trying out different creams, antibiotics or pills that would take away the pain. I went to the gynecologist more than I have been to one my whole life. Every test they ran, would always come out negative. I felt alone and confused as to why this happened to me. I would be in unbearable pain everyday this past summer. I wasn't able to live the life that I wanted. I would constantly be annoying by crying about my pain to my friends all the time. I would feel bad and I would also feel alone because no one understood the amount of pain that I was actually in. Doctors would tell me that it's something to do with psychological issues but I truly don't believe that. I would be the happiest person on earth and still be in pain. But I would also be at my lowest points. I had depression over the summer where I wanted to just give up the fight and take the easy route out. I would cry to my mom every night begging for the pain to go away. Suddenly, after months of dealing with the torture, the pain began to go away, I was happy again and loving my life again. Until once again after 4 months I had a flare up. The burning pain was back, the discharge continued and the shooting pains got progressively worse. I figured that I've been through this challenge before and there's no way I'm letting it control me the way that it did before. I continue to have ice packs water bottles and anything cold between my legs to make the pain seem some what better. It's the biggest challenge I've had to over come but in the long run it has made me a hell of a fighter. I hope one day that the pain will vanish and I will be able to live the life with out pain, and I hope that all of you will continue to do the same thing!
-Chrissy (:

Cbobro

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Re: My vulvodynia challenge

Post  Mariek on Tue Mar 10, 2015 3:31 pm

Trying, it's a tough battle.

Mariek

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Re: My vulvodynia challenge

Post  drivenbyambition on Sat Mar 14, 2015 4:52 am

I hardly ever not feel this condition. It is depressing in a way, but I am trying to stay positive and know that my fertility and life means more than pumping myself with medications with no long term studies. Personal opinion. However, today and the past three days have been very trying.

Feel better.

drivenbyambition

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Re: My vulvodynia challenge

Post  Cbobro on Mon Mar 16, 2015 2:26 am

I know it may seem like its the end of the world now, but I truly believe that everything happens for a reason. This condition can make anyone the strongest person if they persevere from it. I myself continue to start feeling the pain but I don't let it control my life anymore. There is hope, and you just have to believe that from now on!

Cbobro

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look at my post

Post  EverythingIsDifferentNow on Tue Mar 17, 2015 1:45 am

look at the advice category at the home page and you won't feel so alone I love you

EverythingIsDifferentNow

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Re: My vulvodynia challenge

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