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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 4

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


My vulvodynia challenge

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My vulvodynia challenge

Post  Cbobro on Mon Mar 09, 2015 2:03 am

I was diagnosed with this condition a little under a year ago. I would be in and out of the doctor once a week, trying out different creams, antibiotics or pills that would take away the pain. I went to the gynecologist more than I have been to one my whole life. Every test they ran, would always come out negative. I felt alone and confused as to why this happened to me. I would be in unbearable pain everyday this past summer. I wasn't able to live the life that I wanted. I would constantly be annoying by crying about my pain to my friends all the time. I would feel bad and I would also feel alone because no one understood the amount of pain that I was actually in. Doctors would tell me that it's something to do with psychological issues but I truly don't believe that. I would be the happiest person on earth and still be in pain. But I would also be at my lowest points. I had depression over the summer where I wanted to just give up the fight and take the easy route out. I would cry to my mom every night begging for the pain to go away. Suddenly, after months of dealing with the torture, the pain began to go away, I was happy again and loving my life again. Until once again after 4 months I had a flare up. The burning pain was back, the discharge continued and the shooting pains got progressively worse. I figured that I've been through this challenge before and there's no way I'm letting it control me the way that it did before. I continue to have ice packs water bottles and anything cold between my legs to make the pain seem some what better. It's the biggest challenge I've had to over come but in the long run it has made me a hell of a fighter. I hope one day that the pain will vanish and I will be able to live the life with out pain, and I hope that all of you will continue to do the same thing!
-Chrissy (:

Cbobro

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Re: My vulvodynia challenge

Post  Mariek on Tue Mar 10, 2015 3:31 pm

Trying, it's a tough battle.

Mariek

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Re: My vulvodynia challenge

Post  drivenbyambition on Sat Mar 14, 2015 4:52 am

I hardly ever not feel this condition. It is depressing in a way, but I am trying to stay positive and know that my fertility and life means more than pumping myself with medications with no long term studies. Personal opinion. However, today and the past three days have been very trying.

Feel better.

drivenbyambition

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Re: My vulvodynia challenge

Post  Cbobro on Mon Mar 16, 2015 2:26 am

I know it may seem like its the end of the world now, but I truly believe that everything happens for a reason. This condition can make anyone the strongest person if they persevere from it. I myself continue to start feeling the pain but I don't let it control my life anymore. There is hope, and you just have to believe that from now on!

Cbobro

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look at my post

Post  EverythingIsDifferentNow on Tue Mar 17, 2015 1:45 am

look at the advice category at the home page and you won't feel so alone I love you

EverythingIsDifferentNow

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Re: My vulvodynia challenge

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