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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

Laser Acupuncture=total success :)

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Laser Acupuncture=total success :)

Post  ebella on Mon Mar 09, 2015 11:23 am

I had vulvodynia for 2 years before I had any success in treating it. I tried amitripyline in this time and did not find it very useful. I started laser therapy (in Melbourne) last September and have had treatment every 2 weeks (now March). Within 3 treatments all the pain was completely gone. This is a treatment I will definitely be sticking with! I'm SO relieved to be free of chronic pain. Give it a go if you haven't already!


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Re: Laser Acupuncture=total success :)

Post  MensRea on Fri May 15, 2015 3:00 pm

Hey!! I am so happy for your results!
Can you tell me more about the laser? Because i have been also offered to have a laser treatment but i was afraid that it will cause me further problems. Laser in nowadays it is not considered as a treatment for vulvodynia. Also, what kind of vulvodynia do you have?
Thank you in advance for your response! Smile


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Laser acupuncture- reply

Post  ebella on Sat May 16, 2015 12:40 am


Yes- I tried laser acupuncture (that is administered by a GP) after contacting the practitioner and asking her about her experience in treating vulvodynia. She suggested I give it a go. The treatment (in Melbourne) cost me around $40 a treatment.

It takes about 10 minutes and is a pain free procedure. It involves using a laser on my acupuncture points (this is around my knees and calves for the area affected by vulvodynia). They also have the option of moving closer to the site. It is low level cold laser therapy. Here is a link to info about it: http://www.acupuncturetoday.com/mpacms/at/article.php?id=32725
Wherever you are in the world, I hope they have it somewhere near you Smile

It took about 2-3 weeks of having the treatment once a week for it to work. I then had to keep going in every week until about the 8th treatment, then I started going every fortnight, then monthly etc.

I have generalised vulvodynia (chronic pain all of the time) as well as scarring on my bladder. The treatment relieved both of these conditions. I also have provoked vulvodynia (which has now arised after going off amitripyline). This is a result of pelvic floor dysfunction. I'm progressing with this with laser acupuncture and dialators.

I hope this is helpful Smile


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Re: Laser Acupuncture=total success :)

Post  Freedom1990 on Wed Jan 31, 2018 12:31 am

Hello! I know this was 2 years ago but do you have the name of the person you saw for the laser acupuncture? I also live in Melbourne and I am eager to try it.

Thank you!!

Sent from Topic'it App


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Re: Laser Acupuncture=total success :)

Post  sophiarp on Wed Jan 31, 2018 3:35 am

Ooh, I just saw this post and am also in Melbourne - also very interested to hear any updates! <3


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Re: Laser Acupuncture=total success :)

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