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» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Laser Acupuncture=total success :)

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Laser Acupuncture=total success :)

Post  ebella on Mon Mar 09, 2015 11:23 am

I had vulvodynia for 2 years before I had any success in treating it. I tried amitripyline in this time and did not find it very useful. I started laser therapy (in Melbourne) last September and have had treatment every 2 weeks (now March). Within 3 treatments all the pain was completely gone. This is a treatment I will definitely be sticking with! I'm SO relieved to be free of chronic pain. Give it a go if you haven't already!

ebella

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Re: Laser Acupuncture=total success :)

Post  MensRea on Fri May 15, 2015 3:00 pm

Hey!! I am so happy for your results!
Can you tell me more about the laser? Because i have been also offered to have a laser treatment but i was afraid that it will cause me further problems. Laser in nowadays it is not considered as a treatment for vulvodynia. Also, what kind of vulvodynia do you have?
Thank you in advance for your response! Smile

MensRea

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Laser acupuncture- reply

Post  ebella on Sat May 16, 2015 12:40 am

Hi!

Yes- I tried laser acupuncture (that is administered by a GP) after contacting the practitioner and asking her about her experience in treating vulvodynia. She suggested I give it a go. The treatment (in Melbourne) cost me around $40 a treatment.

It takes about 10 minutes and is a pain free procedure. It involves using a laser on my acupuncture points (this is around my knees and calves for the area affected by vulvodynia). They also have the option of moving closer to the site. It is low level cold laser therapy. Here is a link to info about it: http://www.acupuncturetoday.com/mpacms/at/article.php?id=32725
Wherever you are in the world, I hope they have it somewhere near you Smile


It took about 2-3 weeks of having the treatment once a week for it to work. I then had to keep going in every week until about the 8th treatment, then I started going every fortnight, then monthly etc.

I have generalised vulvodynia (chronic pain all of the time) as well as scarring on my bladder. The treatment relieved both of these conditions. I also have provoked vulvodynia (which has now arised after going off amitripyline). This is a result of pelvic floor dysfunction. I'm progressing with this with laser acupuncture and dialators.

I hope this is helpful Smile

ebella

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Re: Laser Acupuncture=total success :)

Post  Freedom1990 on Wed Jan 31, 2018 12:31 am

Hello! I know this was 2 years ago but do you have the name of the person you saw for the laser acupuncture? I also live in Melbourne and I am eager to try it.

Thank you!!

Sent from Topic'it App

Freedom1990

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Re: Laser Acupuncture=total success :)

Post  sophiarp on Wed Jan 31, 2018 3:35 am

Ooh, I just saw this post and am also in Melbourne - also very interested to hear any updates! <3

sophiarp

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Re: Laser Acupuncture=total success :)

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