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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Laser Acupuncture=total success :)

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Laser Acupuncture=total success :)

Post  ebella on Mon Mar 09, 2015 11:23 am

I had vulvodynia for 2 years before I had any success in treating it. I tried amitripyline in this time and did not find it very useful. I started laser therapy (in Melbourne) last September and have had treatment every 2 weeks (now March). Within 3 treatments all the pain was completely gone. This is a treatment I will definitely be sticking with! I'm SO relieved to be free of chronic pain. Give it a go if you haven't already!

ebella

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Re: Laser Acupuncture=total success :)

Post  MensRea on Fri May 15, 2015 3:00 pm

Hey!! I am so happy for your results!
Can you tell me more about the laser? Because i have been also offered to have a laser treatment but i was afraid that it will cause me further problems. Laser in nowadays it is not considered as a treatment for vulvodynia. Also, what kind of vulvodynia do you have?
Thank you in advance for your response! Smile

MensRea

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Laser acupuncture- reply

Post  ebella on Sat May 16, 2015 12:40 am

Hi!

Yes- I tried laser acupuncture (that is administered by a GP) after contacting the practitioner and asking her about her experience in treating vulvodynia. She suggested I give it a go. The treatment (in Melbourne) cost me around $40 a treatment.

It takes about 10 minutes and is a pain free procedure. It involves using a laser on my acupuncture points (this is around my knees and calves for the area affected by vulvodynia). They also have the option of moving closer to the site. It is low level cold laser therapy. Here is a link to info about it: http://www.acupuncturetoday.com/mpacms/at/article.php?id=32725
Wherever you are in the world, I hope they have it somewhere near you Smile


It took about 2-3 weeks of having the treatment once a week for it to work. I then had to keep going in every week until about the 8th treatment, then I started going every fortnight, then monthly etc.

I have generalised vulvodynia (chronic pain all of the time) as well as scarring on my bladder. The treatment relieved both of these conditions. I also have provoked vulvodynia (which has now arised after going off amitripyline). This is a result of pelvic floor dysfunction. I'm progressing with this with laser acupuncture and dialators.

I hope this is helpful Smile

ebella

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Re: Laser Acupuncture=total success :)

Post  Freedom1990 on Wed Jan 31, 2018 12:31 am

Hello! I know this was 2 years ago but do you have the name of the person you saw for the laser acupuncture? I also live in Melbourne and I am eager to try it.

Thank you!!

Sent from Topic'it App

Freedom1990

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Re: Laser Acupuncture=total success :)

Post  sophiarp on Wed Jan 31, 2018 3:35 am

Ooh, I just saw this post and am also in Melbourne - also very interested to hear any updates! <3

sophiarp

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Re: Laser Acupuncture=total success :)

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