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» Sex after vulvodynia (husband edition)
Yesterday at 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

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Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Did going off antidepressants cause this?
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» Hi girls! New in this forum
Thu Aug 02, 2018 11:11 am by Taylor1

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Laser Acupuncture=total success :)

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Laser Acupuncture=total success :)

Post  ebella on Mon Mar 09, 2015 11:23 am

I had vulvodynia for 2 years before I had any success in treating it. I tried amitripyline in this time and did not find it very useful. I started laser therapy (in Melbourne) last September and have had treatment every 2 weeks (now March). Within 3 treatments all the pain was completely gone. This is a treatment I will definitely be sticking with! I'm SO relieved to be free of chronic pain. Give it a go if you haven't already!

ebella

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Re: Laser Acupuncture=total success :)

Post  MensRea on Fri May 15, 2015 3:00 pm

Hey!! I am so happy for your results!
Can you tell me more about the laser? Because i have been also offered to have a laser treatment but i was afraid that it will cause me further problems. Laser in nowadays it is not considered as a treatment for vulvodynia. Also, what kind of vulvodynia do you have?
Thank you in advance for your response! Smile

MensRea

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Laser acupuncture- reply

Post  ebella on Sat May 16, 2015 12:40 am

Hi!

Yes- I tried laser acupuncture (that is administered by a GP) after contacting the practitioner and asking her about her experience in treating vulvodynia. She suggested I give it a go. The treatment (in Melbourne) cost me around $40 a treatment.

It takes about 10 minutes and is a pain free procedure. It involves using a laser on my acupuncture points (this is around my knees and calves for the area affected by vulvodynia). They also have the option of moving closer to the site. It is low level cold laser therapy. Here is a link to info about it: http://www.acupuncturetoday.com/mpacms/at/article.php?id=32725
Wherever you are in the world, I hope they have it somewhere near you Smile


It took about 2-3 weeks of having the treatment once a week for it to work. I then had to keep going in every week until about the 8th treatment, then I started going every fortnight, then monthly etc.

I have generalised vulvodynia (chronic pain all of the time) as well as scarring on my bladder. The treatment relieved both of these conditions. I also have provoked vulvodynia (which has now arised after going off amitripyline). This is a result of pelvic floor dysfunction. I'm progressing with this with laser acupuncture and dialators.

I hope this is helpful Smile

ebella

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Re: Laser Acupuncture=total success :)

Post  Freedom1990 on Wed Jan 31, 2018 12:31 am

Hello! I know this was 2 years ago but do you have the name of the person you saw for the laser acupuncture? I also live in Melbourne and I am eager to try it.

Thank you!!

Sent from Topic'it App

Freedom1990

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Re: Laser Acupuncture=total success :)

Post  sophiarp on Wed Jan 31, 2018 3:35 am

Ooh, I just saw this post and am also in Melbourne - also very interested to hear any updates! <3

sophiarp

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Re: Laser Acupuncture=total success :)

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