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» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


I just diagnosed myself and SO happy I found this forum!!!!

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I just diagnosed myself and SO happy I found this forum!!!!

Post  Mamamontez on Thu Mar 12, 2015 5:31 am

Hi! Wanted to vent and get some input because I think I just diagnosed myself with Vulvodynia. My pain started 10 months ago and it came out of nowhere. At first I thought I was experiencing a UTI because that was the only thing I can compare it to. I went to the doctor and she prescribed me some antibiotics for my "Uti" but once I was done with the medication, the pain was still there. I thought this was odd. It felt like a constant, burning, raw, dull pain that came and went in waves. A few weeks later I went to my doctor and told her the pain was still there. She did a Pap smear and I had an ultrasound done to check my cervix, ovaries, uterus etc and everything came back normal. She had no idea what this pain could be so she referred me to a Urologist. The urologist performed several test including swiping cells from my urethra, checked my bladder. All of her tests came back normal. 10 months later im experieing this dull pain almost everyday and it comes and goes in waves. I went back to my doctor yesterday and cried to her. I broke down. I told her if this pain that I'm feeling isn't killing physically (because at times it feels like it is) it's sure as heck going to me mentally! My husband and I have been trying to conceive baby #2 since October and we haven't had any luck. We got pregnant so easily, one time, with my son back before this pain even started. my doctor prescribed me Nortriptyline (a 10 MG starter pack) She said this medicine helps with nerve pain and she wants to see if it could help. I can't wait to email her tomorrow and inform her of what I discovered!!!

Mamamontez

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Re: I just diagnosed myself and SO happy I found this forum!!!!

Post  drivenbyambition on Sat Mar 14, 2015 5:01 am

I was diagnosed through a biopsy. Unfortunately, this condition is not exactly curable. I would not wish it on my worst enemy. Today my pain was quite unbearable. Hope you get some relief soon.

drivenbyambition

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Re: I just diagnosed myself and SO happy I found this forum!!!!

Post  Mamamontez on Sat Mar 14, 2015 5:14 am

Now that I have a name for it, I emailed my dOctor and told her what I diagnosed and she agreed that she thinks it's Vulvodynia even though she was completely clueless before! She referred me to OBGYN and I actually have an appointment with a Pelvic Pain clinic near my home that specializes and cures Vulvodynia! I'm on my 4th day of Nortriptyline and have been applying coconut water and lavender essential oil on my vulva area and have had a lot of relief! So happy to finally see a light at the end of a long, dark tunnel!

Mamamontez

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Re: I just diagnosed myself and SO happy I found this forum!!!!

Post  Mamamontez on Sat Mar 14, 2015 5:15 am

coconut oil* not water!

Mamamontez

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Re: I just diagnosed myself and SO happy I found this forum!!!!

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