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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


I just diagnosed myself and SO happy I found this forum!!!!

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I just diagnosed myself and SO happy I found this forum!!!!

Post  Mamamontez on Thu Mar 12, 2015 5:31 am

Hi! Wanted to vent and get some input because I think I just diagnosed myself with Vulvodynia. My pain started 10 months ago and it came out of nowhere. At first I thought I was experiencing a UTI because that was the only thing I can compare it to. I went to the doctor and she prescribed me some antibiotics for my "Uti" but once I was done with the medication, the pain was still there. I thought this was odd. It felt like a constant, burning, raw, dull pain that came and went in waves. A few weeks later I went to my doctor and told her the pain was still there. She did a Pap smear and I had an ultrasound done to check my cervix, ovaries, uterus etc and everything came back normal. She had no idea what this pain could be so she referred me to a Urologist. The urologist performed several test including swiping cells from my urethra, checked my bladder. All of her tests came back normal. 10 months later im experieing this dull pain almost everyday and it comes and goes in waves. I went back to my doctor yesterday and cried to her. I broke down. I told her if this pain that I'm feeling isn't killing physically (because at times it feels like it is) it's sure as heck going to me mentally! My husband and I have been trying to conceive baby #2 since October and we haven't had any luck. We got pregnant so easily, one time, with my son back before this pain even started. my doctor prescribed me Nortriptyline (a 10 MG starter pack) She said this medicine helps with nerve pain and she wants to see if it could help. I can't wait to email her tomorrow and inform her of what I discovered!!!

Mamamontez

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Re: I just diagnosed myself and SO happy I found this forum!!!!

Post  drivenbyambition on Sat Mar 14, 2015 5:01 am

I was diagnosed through a biopsy. Unfortunately, this condition is not exactly curable. I would not wish it on my worst enemy. Today my pain was quite unbearable. Hope you get some relief soon.

drivenbyambition

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Re: I just diagnosed myself and SO happy I found this forum!!!!

Post  Mamamontez on Sat Mar 14, 2015 5:14 am

Now that I have a name for it, I emailed my dOctor and told her what I diagnosed and she agreed that she thinks it's Vulvodynia even though she was completely clueless before! She referred me to OBGYN and I actually have an appointment with a Pelvic Pain clinic near my home that specializes and cures Vulvodynia! I'm on my 4th day of Nortriptyline and have been applying coconut water and lavender essential oil on my vulva area and have had a lot of relief! So happy to finally see a light at the end of a long, dark tunnel!

Mamamontez

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Re: I just diagnosed myself and SO happy I found this forum!!!!

Post  Mamamontez on Sat Mar 14, 2015 5:15 am

coconut oil* not water!

Mamamontez

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Re: I just diagnosed myself and SO happy I found this forum!!!!

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