Vulvodynia Support
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» Hope to all my suffering ladies
My Vulva hates me!!!! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
My Vulva hates me!!!! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
My Vulva hates me!!!! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
My Vulva hates me!!!! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
My Vulva hates me!!!! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
My Vulva hates me!!!! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
My Vulva hates me!!!! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
My Vulva hates me!!!! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
My Vulva hates me!!!! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


My Vulva hates me!!!!

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My Vulva hates me!!!! Empty My Vulva hates me!!!!

Post  Sebby (Admin) Sat Dec 05, 2009 10:37 pm

I have had Vulvodynia for over 18 months now. Although I can see warning signs previous to this after reading "The Vulvodynia Survival Guide" by Howard I Glazer. Throughout my late teenage years and 20's I had frequent yeast infections and often found sexual intercourse initially painfull at the start of penetration and generally had sensitive skin.
Then 18 months ago the pain started, burning, soreness, rawness. I thought I had a bad case of Thrush again so got some Canesten and an oral pill. I went to the doctor after it would not go away and had a swab done which did not show any infections. Not really knowing what to do with me he continued to give me more creams, cream after cream...yeast infection creams,steriod creams,anti bacterial creams.
I was then sent to a GP with special interet in Gynae issues (yeah whats that?, well let me tell you... a cheap way for the nhs to try and treat you without sending you to a hospital consultant!). Again swabs and no infection, I got told I probably had some sort of allergy. So I changed my sanitary protection to 'Natracare products', only used "Dermo Lotion" when showering myself, 100% cotton knickers etc. That particalr doctor then wrote to my own GP saying I probably needed counselling because I cried during the examination. Of course I did...It Hurt!!
I was also at the time in a relationship and sex was becoming a problem. I could have intercourse only rarely and had to rely on other forms of sexual pleasure without intercourse. Me and my boyfriend eventually split up, mainly for other reasons...(he was an asshole!! lol)
Well I was then sent to another GP with special interests! This time in Dermotology who had never heard of such a problem and was too embarresed to examine me.....she was a doctor and a woman and she was scared of my Vulva! Well to be honest Im scared of my Vulva!! In the end I begged my GP (I have sinced moved my GP after my old one told me there was nothing more they could do for me) to send me to a Hospital Consultant Gynaecologist. It took over a year on the NHS to be finally sent to a Hospital Specialist.
I was privillaged enough to be referred to a private hosptial as an NHS patient. The doctor was very sympathetic and I did feel understood. He figured It maybe my hormones so put me on Cerezette (a mini progestrone only pill which can also stop your periods and stop ovulation) I bled for 3 months! and once my periods stopped the pain just continued.
It was during this period that I came across the term Vulvodynia on the internet and came across Dr Howard Glazer's website "www.vulvodynia.com and his book "The Vulvodynia Survival Guide" When I read up on this condition it sounded like exactly like what I was going through. I have asked at least 3 GP's I have seen if they have heard of the contition and all are clueless, but as the book explains this is quite a normal experience, but why? the reaseach in America has been going on since the 1980's!!.
The book has given me some hope that I can get help with this condition but at the same time as there are so many different approaches, different explanations on why Vulvodynia strikes and most UK docotors dont seem to have ever heard of it I feel simultaneously hopeless.
Well I have now in the last month come off the Cerezette and am waiting to see another Gynae at an NHS Hospital as the private hospital have now stopped seeing NHS patients oh joy now I have to see another doctor and start at the beginging again! I see her next Tuesday and I am hoping she has actually heard of this condition and will have some idea of what she can do to help me!
Firstly the hardest part I find living with Vulvodynia is obviously the pain, sitting down is difficult, buying trousers that are comfortable, walking, and just coping day to day when I get a bad flare up. Secondly I am single again and too be honest this conditon has really put me off even looking for a boyfriend. So Im sorry if I sound down Im a bit nervous about this weeks appointment and well Im hoping this site will give you girls some support and myself some support. Please join.....

Sebby. xxxx
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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