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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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I'm New Here And I Need Help!

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I'm New Here And I Need Help!

Post  vulvodynia_virgin on Wed Jan 13, 2010 7:00 am

Hi everyone, I am so happy to have found this forum. I've had vulvodynia forever(since childhood!) But I never thought about it until now. As a child I always felt pain inside there but figured it was just something that normal people had to "suck up and live with". I am now 19 with my very first boyfriend. I've never had sex with him yet because it hurts me too much. We've tried but would have to stop because the pain was so terrible for me. I can't even let him perform oral or manual sex on me because even those hurt me really badly.

I talked to a neurologist about having pain and being extra sensitive, and he told me that it must be a psychological issue and not a physical one. My gynecologist as well as general practitioner both also told me something similar as well. My gynecologist did prescribe me some numbing cream and an antidepressant/pain relief pill. I don't want to numb my pain! I want it to go away completely. The pain is so bad that my gynecologist couldn't even get a look at my hymen before I made her stop. I feels like I'm being stabbed when I'm touched inside there and it definately is not "all in my head". Please, help me.

Thanks everyone Smile


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Re: I'm New Here And I Need Help!

Post  Sebby (Admin) on Sun Feb 14, 2010 11:04 am


Sorry I have not replied sooner I have been unwell over the last few weeks. Firstly thank you for joining and I do hope you continue using the forum.

Its a slow process getting members once you have set up a forum so please bear with us. I have been advertising it as much as possible!

I have had the same problem with doctors, saying it is all in my head. Let me tell you it is NOT all in your head!

Dr Glazer's book on Vulvodynia states clearly citing research that shows NO link between the women's mental health and Vulvodynia.

If you are getting nowhere with the doctors you are seeing now ask to be refered to someone else. I recently saw a gynea who said the pain was in my head and was very dismissive of me, I have since put in a complaint to my local hospital as I think it is a terrible thing to do to a women in pain!

Have you tried some of the self help techniques? I find that certain sanitary pads irritate me so I have had to shop around to find one that is more suitable. Also I have found that only washing the vulva area with water and NO soap of any kind has helped the pain. Kneel in the bath and do not sit in the water. Wash the rest of your body with a senstive soap that suits your skin but do not get any of it on your vulva. Then with a shower spray, spray the vulva area with warm water.

I have found this helpful so see if it helps you at all? Please also insist you are refered to a gynea with experience and compassion for Vulva pain. If you need to, get the names of the gyneas in your local hospitals and write them a letter asking if they have experience and would be willing to treat you.

As with the difficulties with sex, I would for the present stop the touching of your vulva area until the pain lessens. Still keep up with the cuddling, kissing, caressing and everything else that you can think of that you would both enjoy.

Keep in touch and let us know how you are getting on

Sebby (Admin)
Sebby (Admin)

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Re: I'm New Here And I Need Help!

Post  tweety on Sun Mar 14, 2010 10:36 am


I was just like you. At 19 and a virgin and then realising I had this problem. I was just as sensitive, unable to even handle a cotton swab. I've gone through many types of treatments so this is what I can tell you so far.

The numbing gel is to help you get use to the sensation of have something inserted inside but obviously in the end, I know you don't want to be using number gell all the time.

When your gynaecologist was trying to examine you, did she find that you were sensitive at the hymen but ok just further away from it?

For me, part of my problem is not being aware of my muscles... being too tense. So doing physio on your pelvic floor muscles really helped with this. I found when I did exercises to warm up the muscles, it was slightly easier for the physio to work on my muscles and stretch them a little bit more compared to other days.

Let me know your thoughts. I know it can be extremely difficult going through this for your first time experience but don't be disheartened by it.

I love you


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Re: I'm New Here And I Need Help!

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