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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

I'm New Here And I Need Help!

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I'm New Here And I Need Help!

Post  vulvodynia_virgin on Wed Jan 13, 2010 7:00 am

Hi everyone, I am so happy to have found this forum. I've had vulvodynia forever(since childhood!) But I never thought about it until now. As a child I always felt pain inside there but figured it was just something that normal people had to "suck up and live with". I am now 19 with my very first boyfriend. I've never had sex with him yet because it hurts me too much. We've tried but would have to stop because the pain was so terrible for me. I can't even let him perform oral or manual sex on me because even those hurt me really badly.

I talked to a neurologist about having pain and being extra sensitive, and he told me that it must be a psychological issue and not a physical one. My gynecologist as well as general practitioner both also told me something similar as well. My gynecologist did prescribe me some numbing cream and an antidepressant/pain relief pill. I don't want to numb my pain! I want it to go away completely. The pain is so bad that my gynecologist couldn't even get a look at my hymen before I made her stop. I feels like I'm being stabbed when I'm touched inside there and it definately is not "all in my head". Please, help me.

Thanks everyone Smile


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Re: I'm New Here And I Need Help!

Post  Sebby (Admin) on Sun Feb 14, 2010 11:04 am


Sorry I have not replied sooner I have been unwell over the last few weeks. Firstly thank you for joining and I do hope you continue using the forum.

Its a slow process getting members once you have set up a forum so please bear with us. I have been advertising it as much as possible!

I have had the same problem with doctors, saying it is all in my head. Let me tell you it is NOT all in your head!

Dr Glazer's book on Vulvodynia states clearly citing research that shows NO link between the women's mental health and Vulvodynia.

If you are getting nowhere with the doctors you are seeing now ask to be refered to someone else. I recently saw a gynea who said the pain was in my head and was very dismissive of me, I have since put in a complaint to my local hospital as I think it is a terrible thing to do to a women in pain!

Have you tried some of the self help techniques? I find that certain sanitary pads irritate me so I have had to shop around to find one that is more suitable. Also I have found that only washing the vulva area with water and NO soap of any kind has helped the pain. Kneel in the bath and do not sit in the water. Wash the rest of your body with a senstive soap that suits your skin but do not get any of it on your vulva. Then with a shower spray, spray the vulva area with warm water.

I have found this helpful so see if it helps you at all? Please also insist you are refered to a gynea with experience and compassion for Vulva pain. If you need to, get the names of the gyneas in your local hospitals and write them a letter asking if they have experience and would be willing to treat you.

As with the difficulties with sex, I would for the present stop the touching of your vulva area until the pain lessens. Still keep up with the cuddling, kissing, caressing and everything else that you can think of that you would both enjoy.

Keep in touch and let us know how you are getting on

Sebby (Admin)
Sebby (Admin)

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Re: I'm New Here And I Need Help!

Post  tweety on Sun Mar 14, 2010 10:36 am


I was just like you. At 19 and a virgin and then realising I had this problem. I was just as sensitive, unable to even handle a cotton swab. I've gone through many types of treatments so this is what I can tell you so far.

The numbing gel is to help you get use to the sensation of have something inserted inside but obviously in the end, I know you don't want to be using number gell all the time.

When your gynaecologist was trying to examine you, did she find that you were sensitive at the hymen but ok just further away from it?

For me, part of my problem is not being aware of my muscles... being too tense. So doing physio on your pelvic floor muscles really helped with this. I found when I did exercises to warm up the muscles, it was slightly easier for the physio to work on my muscles and stretch them a little bit more compared to other days.

Let me know your thoughts. I know it can be extremely difficult going through this for your first time experience but don't be disheartened by it.

I love you


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Re: I'm New Here And I Need Help!

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