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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

I'm New Here And I Need Help!

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I'm New Here And I Need Help!

Post  vulvodynia_virgin on Wed Jan 13, 2010 7:00 am

Hi everyone, I am so happy to have found this forum. I've had vulvodynia forever(since childhood!) But I never thought about it until now. As a child I always felt pain inside there but figured it was just something that normal people had to "suck up and live with". I am now 19 with my very first boyfriend. I've never had sex with him yet because it hurts me too much. We've tried but would have to stop because the pain was so terrible for me. I can't even let him perform oral or manual sex on me because even those hurt me really badly.

I talked to a neurologist about having pain and being extra sensitive, and he told me that it must be a psychological issue and not a physical one. My gynecologist as well as general practitioner both also told me something similar as well. My gynecologist did prescribe me some numbing cream and an antidepressant/pain relief pill. I don't want to numb my pain! I want it to go away completely. The pain is so bad that my gynecologist couldn't even get a look at my hymen before I made her stop. I feels like I'm being stabbed when I'm touched inside there and it definately is not "all in my head". Please, help me.

Thanks everyone Smile


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Re: I'm New Here And I Need Help!

Post  Sebby (Admin) on Sun Feb 14, 2010 11:04 am


Sorry I have not replied sooner I have been unwell over the last few weeks. Firstly thank you for joining and I do hope you continue using the forum.

Its a slow process getting members once you have set up a forum so please bear with us. I have been advertising it as much as possible!

I have had the same problem with doctors, saying it is all in my head. Let me tell you it is NOT all in your head!

Dr Glazer's book on Vulvodynia states clearly citing research that shows NO link between the women's mental health and Vulvodynia.

If you are getting nowhere with the doctors you are seeing now ask to be refered to someone else. I recently saw a gynea who said the pain was in my head and was very dismissive of me, I have since put in a complaint to my local hospital as I think it is a terrible thing to do to a women in pain!

Have you tried some of the self help techniques? I find that certain sanitary pads irritate me so I have had to shop around to find one that is more suitable. Also I have found that only washing the vulva area with water and NO soap of any kind has helped the pain. Kneel in the bath and do not sit in the water. Wash the rest of your body with a senstive soap that suits your skin but do not get any of it on your vulva. Then with a shower spray, spray the vulva area with warm water.

I have found this helpful so see if it helps you at all? Please also insist you are refered to a gynea with experience and compassion for Vulva pain. If you need to, get the names of the gyneas in your local hospitals and write them a letter asking if they have experience and would be willing to treat you.

As with the difficulties with sex, I would for the present stop the touching of your vulva area until the pain lessens. Still keep up with the cuddling, kissing, caressing and everything else that you can think of that you would both enjoy.

Keep in touch and let us know how you are getting on

Sebby (Admin)
Sebby (Admin)

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Location : London UK

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Re: I'm New Here And I Need Help!

Post  tweety on Sun Mar 14, 2010 10:36 am


I was just like you. At 19 and a virgin and then realising I had this problem. I was just as sensitive, unable to even handle a cotton swab. I've gone through many types of treatments so this is what I can tell you so far.

The numbing gel is to help you get use to the sensation of have something inserted inside but obviously in the end, I know you don't want to be using number gell all the time.

When your gynaecologist was trying to examine you, did she find that you were sensitive at the hymen but ok just further away from it?

For me, part of my problem is not being aware of my muscles... being too tense. So doing physio on your pelvic floor muscles really helped with this. I found when I did exercises to warm up the muscles, it was slightly easier for the physio to work on my muscles and stretch them a little bit more compared to other days.

Let me know your thoughts. I know it can be extremely difficult going through this for your first time experience but don't be disheartened by it.

I love you


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Re: I'm New Here And I Need Help!

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