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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


I'm New Here And I Need Help!

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I'm New Here And I Need Help!

Post  vulvodynia_virgin on Wed Jan 13, 2010 7:00 am

Hi everyone, I am so happy to have found this forum. I've had vulvodynia forever(since childhood!) But I never thought about it until now. As a child I always felt pain inside there but figured it was just something that normal people had to "suck up and live with". I am now 19 with my very first boyfriend. I've never had sex with him yet because it hurts me too much. We've tried but would have to stop because the pain was so terrible for me. I can't even let him perform oral or manual sex on me because even those hurt me really badly.

I talked to a neurologist about having pain and being extra sensitive, and he told me that it must be a psychological issue and not a physical one. My gynecologist as well as general practitioner both also told me something similar as well. My gynecologist did prescribe me some numbing cream and an antidepressant/pain relief pill. I don't want to numb my pain! I want it to go away completely. The pain is so bad that my gynecologist couldn't even get a look at my hymen before I made her stop. I feels like I'm being stabbed when I'm touched inside there and it definately is not "all in my head". Please, help me.

Thanks everyone Smile

vulvodynia_virgin

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Re: I'm New Here And I Need Help!

Post  Sebby (Admin) on Sun Feb 14, 2010 11:04 am

Hiya

Sorry I have not replied sooner I have been unwell over the last few weeks. Firstly thank you for joining and I do hope you continue using the forum.

Its a slow process getting members once you have set up a forum so please bear with us. I have been advertising it as much as possible!

I have had the same problem with doctors, saying it is all in my head. Let me tell you it is NOT all in your head!

Dr Glazer's book on Vulvodynia states clearly citing research that shows NO link between the women's mental health and Vulvodynia.

If you are getting nowhere with the doctors you are seeing now ask to be refered to someone else. I recently saw a gynea who said the pain was in my head and was very dismissive of me, I have since put in a complaint to my local hospital as I think it is a terrible thing to do to a women in pain!

Have you tried some of the self help techniques? I find that certain sanitary pads irritate me so I have had to shop around to find one that is more suitable. Also I have found that only washing the vulva area with water and NO soap of any kind has helped the pain. Kneel in the bath and do not sit in the water. Wash the rest of your body with a senstive soap that suits your skin but do not get any of it on your vulva. Then with a shower spray, spray the vulva area with warm water.

I have found this helpful so see if it helps you at all? Please also insist you are refered to a gynea with experience and compassion for Vulva pain. If you need to, get the names of the gyneas in your local hospitals and write them a letter asking if they have experience and would be willing to treat you.

As with the difficulties with sex, I would for the present stop the touching of your vulva area until the pain lessens. Still keep up with the cuddling, kissing, caressing and everything else that you can think of that you would both enjoy.

Keep in touch and let us know how you are getting on

Sebby (Admin)
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Sebby (Admin)
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Re: I'm New Here And I Need Help!

Post  tweety on Sun Mar 14, 2010 10:36 am

Hi,

I was just like you. At 19 and a virgin and then realising I had this problem. I was just as sensitive, unable to even handle a cotton swab. I've gone through many types of treatments so this is what I can tell you so far.

The numbing gel is to help you get use to the sensation of have something inserted inside but obviously in the end, I know you don't want to be using number gell all the time.

When your gynaecologist was trying to examine you, did she find that you were sensitive at the hymen but ok just further away from it?

For me, part of my problem is not being aware of my muscles... being too tense. So doing physio on your pelvic floor muscles really helped with this. I found when I did exercises to warm up the muscles, it was slightly easier for the physio to work on my muscles and stretch them a little bit more compared to other days.

Let me know your thoughts. I know it can be extremely difficult going through this for your first time experience but don't be disheartened by it.

I love you

tweety

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Re: I'm New Here And I Need Help!

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