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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


I'm New Here And I Need Help!

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I'm New Here And I Need Help!

Post  vulvodynia_virgin on Wed Jan 13, 2010 7:00 am

Hi everyone, I am so happy to have found this forum. I've had vulvodynia forever(since childhood!) But I never thought about it until now. As a child I always felt pain inside there but figured it was just something that normal people had to "suck up and live with". I am now 19 with my very first boyfriend. I've never had sex with him yet because it hurts me too much. We've tried but would have to stop because the pain was so terrible for me. I can't even let him perform oral or manual sex on me because even those hurt me really badly.

I talked to a neurologist about having pain and being extra sensitive, and he told me that it must be a psychological issue and not a physical one. My gynecologist as well as general practitioner both also told me something similar as well. My gynecologist did prescribe me some numbing cream and an antidepressant/pain relief pill. I don't want to numb my pain! I want it to go away completely. The pain is so bad that my gynecologist couldn't even get a look at my hymen before I made her stop. I feels like I'm being stabbed when I'm touched inside there and it definately is not "all in my head". Please, help me.

Thanks everyone Smile

vulvodynia_virgin

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Re: I'm New Here And I Need Help!

Post  Sebby (Admin) on Sun Feb 14, 2010 11:04 am

Hiya

Sorry I have not replied sooner I have been unwell over the last few weeks. Firstly thank you for joining and I do hope you continue using the forum.

Its a slow process getting members once you have set up a forum so please bear with us. I have been advertising it as much as possible!

I have had the same problem with doctors, saying it is all in my head. Let me tell you it is NOT all in your head!

Dr Glazer's book on Vulvodynia states clearly citing research that shows NO link between the women's mental health and Vulvodynia.

If you are getting nowhere with the doctors you are seeing now ask to be refered to someone else. I recently saw a gynea who said the pain was in my head and was very dismissive of me, I have since put in a complaint to my local hospital as I think it is a terrible thing to do to a women in pain!

Have you tried some of the self help techniques? I find that certain sanitary pads irritate me so I have had to shop around to find one that is more suitable. Also I have found that only washing the vulva area with water and NO soap of any kind has helped the pain. Kneel in the bath and do not sit in the water. Wash the rest of your body with a senstive soap that suits your skin but do not get any of it on your vulva. Then with a shower spray, spray the vulva area with warm water.

I have found this helpful so see if it helps you at all? Please also insist you are refered to a gynea with experience and compassion for Vulva pain. If you need to, get the names of the gyneas in your local hospitals and write them a letter asking if they have experience and would be willing to treat you.

As with the difficulties with sex, I would for the present stop the touching of your vulva area until the pain lessens. Still keep up with the cuddling, kissing, caressing and everything else that you can think of that you would both enjoy.

Keep in touch and let us know how you are getting on

Sebby (Admin)
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Sebby (Admin)
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Re: I'm New Here And I Need Help!

Post  tweety on Sun Mar 14, 2010 10:36 am

Hi,

I was just like you. At 19 and a virgin and then realising I had this problem. I was just as sensitive, unable to even handle a cotton swab. I've gone through many types of treatments so this is what I can tell you so far.

The numbing gel is to help you get use to the sensation of have something inserted inside but obviously in the end, I know you don't want to be using number gell all the time.

When your gynaecologist was trying to examine you, did she find that you were sensitive at the hymen but ok just further away from it?

For me, part of my problem is not being aware of my muscles... being too tense. So doing physio on your pelvic floor muscles really helped with this. I found when I did exercises to warm up the muscles, it was slightly easier for the physio to work on my muscles and stretch them a little bit more compared to other days.

Let me know your thoughts. I know it can be extremely difficult going through this for your first time experience but don't be disheartened by it.

I love you

tweety

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Re: I'm New Here And I Need Help!

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