Log in

I forgot my password

Latest topics
Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Have created a secret facebook group!! Shhhh

Go down

Have created a secret facebook group!! Shhhh

Post  Sebby (Admin) on Wed Dec 29, 2010 12:55 am

https://www.facebook.com/home.php?sk=group_142536492467765

Here is the facebook sister group to the forum.....join if you wana!!

Membership and posts are secret so nothing is posted on your profile

Sebby
xxx


Last edited by Sebby (Admin) on Sun Feb 27, 2011 12:23 am; edited 1 time in total

_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Sebby (Admin) on Wed Dec 29, 2010 1:17 am


Am being daft again!! looks like link is stupid lol and looks like I have to add you guys as friends in order to add you to the group so send me your email address and i'll add you to both

xxx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  jules on Fri Dec 31, 2010 2:12 am

Thanks for do this!

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Mouse on Sat Jan 01, 2011 1:08 am

Have you joined yet Jules? Come on over to the dark side - so we can see your face!!!

BTW I'm Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  mblack on Sun Feb 20, 2011 4:37 pm

Hi

How do I join the group?

Thanks

xx

mblack

Posts : 4
Join date : 2011-02-20

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  tannya on Tue May 31, 2011 9:57 pm

I would like to join the group..

tannya

Posts : 4
Join date : 2011-05-18

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Frustrated and had enough on Sun Aug 21, 2011 9:16 am

Hi,

I'm new here and would like to join your facebook page!! How do I do this??

Frustrated and had enough

Posts : 3
Join date : 2011-08-21

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Mouse on Sun Aug 21, 2011 11:34 pm

See above - you email Sebby Very Happy

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Kam10 on Tue Jan 17, 2012 1:51 am

Is this by any chance The Vulvodynia Support Group on FB? I just joined that a second ago. I hope I found the right one!
avatar
Kam10

Posts : 32
Join date : 2012-01-16

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Tue Jan 17, 2012 6:57 pm

Hey hun, our group is called "Vulvodynia Support Facebook" & has the same photo as the one at the top of the forum, if that helps? You need to be added to it, so if you're not in the right one just PM Naomi xx
avatar
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 33
Location : UK

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Kam10 on Tue Jan 17, 2012 11:12 pm

I think I joined a different one then. The picture for that group is a circle of people holding hands. I can't find your group when I do a search for vulvodynia support in Facebook.

ButterflyLiz wrote:Hey hun, our group is called "Vulvodynia Support Facebook" & has the same photo as the one at the top of the forum, if that helps? You need to be added to it, so if you're not in the right one just PM Naomi xx
avatar
Kam10

Posts : 32
Join date : 2012-01-16

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Wed Jan 18, 2012 5:44 pm

In that case I guess it's completely hidden until you're a member. You'll need to PM Naomi on here and ask her to add you.
avatar
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 33
Location : UK

View user profile

Back to top Go down

Facebook group

Post  b3cka on Fri Feb 24, 2012 10:11 pm

I would be interested in joining the facebook group, but i cant find it....

Many thanks

b3cka

Posts : 3
Join date : 2012-01-12

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Sat Feb 25, 2012 11:21 am

Hiya, it's a secret group so it doesn't show up until you're a member. You'll need to PM Naomi on here and ask her to add you.
avatar
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 33
Location : UK

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Char29 on Fri Oct 05, 2012 2:04 am

please add me - charmaine livingstone

Char29

Posts : 13
Join date : 2012-10-05

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  nova_chek on Fri Oct 05, 2012 1:39 pm

Please add me, when I click on the link or look up the name nothing comes up. On fb I'm on there as Nova Hancock Grilli. Thanks!

nova_chek

Posts : 12
Join date : 2012-09-29

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Sun Oct 07, 2012 11:48 am

Hi ladies, just as a heads up, you are probably best off PM'ing Naomi as she tends to hang out more on the fb page than the forum and may not see the messages you've left here for a while. You can do so here - http://www.vulvodyniasupportforum.com/u18contact
avatar
ButterflyLiz

Posts : 137
Join date : 2011-11-18
Age : 33
Location : UK

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Sparkle on Fri Oct 03, 2014 1:33 pm

Hello all, I'm new here, this forum is a wonderful place to be for women like us, I've been reading over last few weeks and the support here is amazing! BUT I can't seem to access the "support and advice" section. I keep getting an error. Is it the same for everyone? I would really like to access this section.

Sebby, is this your site? I no this is an old post but wasn't sure where else to post about admin type stuff lol

Sparkle

Posts : 84
Join date : 2014-10-03

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  keepsmiling on Sat Dec 13, 2014 3:58 pm

How do I join the group on Facebook? Please help!

keepsmiling

Posts : 3
Join date : 2014-12-13

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Ellsbells on Tue Jul 07, 2015 9:24 am

Is this still running? Can I still join

Ellsbells

Posts : 11
Join date : 2015-06-29

View user profile

Back to top Go down

Re: Have created a secret facebook group!! Shhhh

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum