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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Have created a secret facebook group!! Shhhh

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Have created a secret facebook group!! Shhhh

Post  Sebby (Admin) on Wed Dec 29, 2010 12:55 am

https://www.facebook.com/home.php?sk=group_142536492467765

Here is the facebook sister group to the forum.....join if you wana!!

Membership and posts are secret so nothing is posted on your profile

Sebby
xxx


Last edited by Sebby (Admin) on Sun Feb 27, 2011 12:23 am; edited 1 time in total

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Sebby
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Re: Have created a secret facebook group!! Shhhh

Post  Sebby (Admin) on Wed Dec 29, 2010 1:17 am


Am being daft again!! looks like link is stupid lol and looks like I have to add you guys as friends in order to add you to the group so send me your email address and i'll add you to both

xxx
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Re: Have created a secret facebook group!! Shhhh

Post  jules on Fri Dec 31, 2010 2:12 am

Thanks for do this!

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Re: Have created a secret facebook group!! Shhhh

Post  Mouse on Sat Jan 01, 2011 1:08 am

Have you joined yet Jules? Come on over to the dark side - so we can see your face!!!

BTW I'm Vicki

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Re: Have created a secret facebook group!! Shhhh

Post  mblack on Sun Feb 20, 2011 4:37 pm

Hi

How do I join the group?

Thanks

xx

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Re: Have created a secret facebook group!! Shhhh

Post  tannya on Tue May 31, 2011 9:57 pm

I would like to join the group..

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Re: Have created a secret facebook group!! Shhhh

Post  Frustrated and had enough on Sun Aug 21, 2011 9:16 am

Hi,

I'm new here and would like to join your facebook page!! How do I do this??

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Re: Have created a secret facebook group!! Shhhh

Post  Mouse on Sun Aug 21, 2011 11:34 pm

See above - you email Sebby Very Happy

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Re: Have created a secret facebook group!! Shhhh

Post  Kam10 on Tue Jan 17, 2012 1:51 am

Is this by any chance The Vulvodynia Support Group on FB? I just joined that a second ago. I hope I found the right one!
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Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Tue Jan 17, 2012 6:57 pm

Hey hun, our group is called "Vulvodynia Support Facebook" & has the same photo as the one at the top of the forum, if that helps? You need to be added to it, so if you're not in the right one just PM Naomi xx
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Re: Have created a secret facebook group!! Shhhh

Post  Kam10 on Tue Jan 17, 2012 11:12 pm

I think I joined a different one then. The picture for that group is a circle of people holding hands. I can't find your group when I do a search for vulvodynia support in Facebook.

ButterflyLiz wrote:Hey hun, our group is called "Vulvodynia Support Facebook" & has the same photo as the one at the top of the forum, if that helps? You need to be added to it, so if you're not in the right one just PM Naomi xx
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Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Wed Jan 18, 2012 5:44 pm

In that case I guess it's completely hidden until you're a member. You'll need to PM Naomi on here and ask her to add you.
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Facebook group

Post  b3cka on Fri Feb 24, 2012 10:11 pm

I would be interested in joining the facebook group, but i cant find it....

Many thanks

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Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Sat Feb 25, 2012 11:21 am

Hiya, it's a secret group so it doesn't show up until you're a member. You'll need to PM Naomi on here and ask her to add you.
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Re: Have created a secret facebook group!! Shhhh

Post  Char29 on Fri Oct 05, 2012 2:04 am

please add me - charmaine livingstone

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Re: Have created a secret facebook group!! Shhhh

Post  nova_chek on Fri Oct 05, 2012 1:39 pm

Please add me, when I click on the link or look up the name nothing comes up. On fb I'm on there as Nova Hancock Grilli. Thanks!

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Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Sun Oct 07, 2012 11:48 am

Hi ladies, just as a heads up, you are probably best off PM'ing Naomi as she tends to hang out more on the fb page than the forum and may not see the messages you've left here for a while. You can do so here - http://www.vulvodyniasupportforum.com/u18contact
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Re: Have created a secret facebook group!! Shhhh

Post  Sparkle on Fri Oct 03, 2014 1:33 pm

Hello all, I'm new here, this forum is a wonderful place to be for women like us, I've been reading over last few weeks and the support here is amazing! BUT I can't seem to access the "support and advice" section. I keep getting an error. Is it the same for everyone? I would really like to access this section.

Sebby, is this your site? I no this is an old post but wasn't sure where else to post about admin type stuff lol

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Re: Have created a secret facebook group!! Shhhh

Post  keepsmiling on Sat Dec 13, 2014 3:58 pm

How do I join the group on Facebook? Please help!

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Re: Have created a secret facebook group!! Shhhh

Post  Ellsbells on Tue Jul 07, 2015 9:24 am

Is this still running? Can I still join

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Re: Have created a secret facebook group!! Shhhh

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