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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Have created a secret facebook group!! Shhhh

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Have created a secret facebook group!! Shhhh

Post  Sebby (Admin) on Wed Dec 29, 2010 12:55 am

http://www.facebook.com/home.php?sk=group_142536492467765

Here is the facebook sister group to the forum.....join if you wana!!

Membership and posts are secret so nothing is posted on your profile

Sebby
xxx


Last edited by Sebby (Admin) on Sun Feb 27, 2011 12:23 am; edited 1 time in total

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Sebby
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Re: Have created a secret facebook group!! Shhhh

Post  Sebby (Admin) on Wed Dec 29, 2010 1:17 am


Am being daft again!! looks like link is stupid lol and looks like I have to add you guys as friends in order to add you to the group so send me your email address and i'll add you to both

xxx
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Re: Have created a secret facebook group!! Shhhh

Post  jules on Fri Dec 31, 2010 2:12 am

Thanks for do this!

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Re: Have created a secret facebook group!! Shhhh

Post  Mouse on Sat Jan 01, 2011 1:08 am

Have you joined yet Jules? Come on over to the dark side - so we can see your face!!!

BTW I'm Vicki

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Re: Have created a secret facebook group!! Shhhh

Post  mblack on Sun Feb 20, 2011 4:37 pm

Hi

How do I join the group?

Thanks

xx

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Re: Have created a secret facebook group!! Shhhh

Post  tannya on Tue May 31, 2011 9:57 pm

I would like to join the group..

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Re: Have created a secret facebook group!! Shhhh

Post  Frustrated and had enough on Sun Aug 21, 2011 9:16 am

Hi,

I'm new here and would like to join your facebook page!! How do I do this??

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Re: Have created a secret facebook group!! Shhhh

Post  Mouse on Sun Aug 21, 2011 11:34 pm

See above - you email Sebby Very Happy

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Re: Have created a secret facebook group!! Shhhh

Post  Kam10 on Tue Jan 17, 2012 1:51 am

Is this by any chance The Vulvodynia Support Group on FB? I just joined that a second ago. I hope I found the right one!
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Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Tue Jan 17, 2012 6:57 pm

Hey hun, our group is called "Vulvodynia Support Facebook" & has the same photo as the one at the top of the forum, if that helps? You need to be added to it, so if you're not in the right one just PM Naomi xx
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Re: Have created a secret facebook group!! Shhhh

Post  Kam10 on Tue Jan 17, 2012 11:12 pm

I think I joined a different one then. The picture for that group is a circle of people holding hands. I can't find your group when I do a search for vulvodynia support in Facebook.

ButterflyLiz wrote:Hey hun, our group is called "Vulvodynia Support Facebook" & has the same photo as the one at the top of the forum, if that helps? You need to be added to it, so if you're not in the right one just PM Naomi xx
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Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Wed Jan 18, 2012 5:44 pm

In that case I guess it's completely hidden until you're a member. You'll need to PM Naomi on here and ask her to add you.
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Facebook group

Post  b3cka on Fri Feb 24, 2012 10:11 pm

I would be interested in joining the facebook group, but i cant find it....

Many thanks

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Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Sat Feb 25, 2012 11:21 am

Hiya, it's a secret group so it doesn't show up until you're a member. You'll need to PM Naomi on here and ask her to add you.
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Re: Have created a secret facebook group!! Shhhh

Post  Char29 on Fri Oct 05, 2012 2:04 am

please add me - charmaine livingstone

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Re: Have created a secret facebook group!! Shhhh

Post  nova_chek on Fri Oct 05, 2012 1:39 pm

Please add me, when I click on the link or look up the name nothing comes up. On fb I'm on there as Nova Hancock Grilli. Thanks!

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Re: Have created a secret facebook group!! Shhhh

Post  ButterflyLiz on Sun Oct 07, 2012 11:48 am

Hi ladies, just as a heads up, you are probably best off PM'ing Naomi as she tends to hang out more on the fb page than the forum and may not see the messages you've left here for a while. You can do so here - http://www.vulvodyniasupportforum.com/u18contact
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Re: Have created a secret facebook group!! Shhhh

Post  Sparkle on Fri Oct 03, 2014 1:33 pm

Hello all, I'm new here, this forum is a wonderful place to be for women like us, I've been reading over last few weeks and the support here is amazing! BUT I can't seem to access the "support and advice" section. I keep getting an error. Is it the same for everyone? I would really like to access this section.

Sebby, is this your site? I no this is an old post but wasn't sure where else to post about admin type stuff lol

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Re: Have created a secret facebook group!! Shhhh

Post  keepsmiling on Sat Dec 13, 2014 3:58 pm

How do I join the group on Facebook? Please help!

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Re: Have created a secret facebook group!! Shhhh

Post  Ellsbells on Tue Jul 07, 2015 9:24 am

Is this still running? Can I still join

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Re: Have created a secret facebook group!! Shhhh

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