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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


100% Pain-Free After 4 Years

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100% Pain-Free After 4 Years

Post  katehiggs on Sat Mar 14, 2015 3:59 pm

Hi ladies! I wanted to share my succuss story with you all. After 4 years of awful pain I was absolutely discouraged and depressed. I had tried estrace, amitriptyline, no sex for 6 weeks, pelvic floor pt, and lidocaine (the only thing that made it possible for my husband and I to have sex) among other things. PT helped a bit by helping my to learn to control my muscles but the source of the pain was still there so it didn't solve the problem. I should add that my pain was primarily provoked not constant, but with sex or a tampon I was instantly in excruciating pain.

Finally in a last ditch effort before surgery I found someone's post online about switching hair/body products for vulvadynia. I decided to give it a try. And guess what? It worked!!!! I am now 100% pain free. It was incredible. I am suspecting that I am allergic to something in shampoo (maybe sodium lautyl sulfate?) because I accidently used regular shampoo the other day and all the pain came roaring back. So maybe you don't have to switch all your products? Who knows. It is important to switch to chemical-free stuff, not just hyper-allergentic. Here is my list!

-Dr. Bronner's castille soap mixed with coconut milk from a can for shampoo (there are probably plenty of actual chemical-free shampoos that you can buy, this just seemed the cheapest)
-apple cider vinegar for conditioner
-Nellie's laundry soda
-Diva cup instead of pads and tampons ( had to use lidocaine during the first cycle but by the second I didn't need it anymore!)
-Dr. Bronners castille soap for body wash
-coconut oil for lube, makeup remover, lotion, and shaving

It was soooo important that my husband switched his products too. Basically anything that comes in contact with my vulva needs to be chemical-free.

I hope this helps someone! Don't give up!


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Re: 100% Pain-Free After 4 Years

Post  katehiggs on Sat Mar 14, 2015 4:06 pm

I should also mention that switching body wash and shampoo/ conditioner was so important because when you shower everything runs downs your body and comes in contact with your vulva. I kept reading things that said "keep shampoo away from the vulva" but this is basically impossible if you are showering. Another option may be to wash your hair separately upside down in a sink or tub so that the products do not run down your body.

I should also mention that I have never had any other signs of an allergy. No dry skin, redness, any thing like that on the rest of my body. No reason to think I would have an allergy. Who would have guessed?

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Re: 100% Pain-Free After 4 Years

Post  mrs.optimistic on Thu May 14, 2015 8:18 pm

What type of soap do you use? What type of shampoo? I use organix and dove sensitive and never noticed difference.

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Re: 100% Pain-Free After 4 Years

Post  mikan92 on Fri May 15, 2015 12:21 pm

Hey Mrs Optimistic!

I also tried Dr Bronner's soap and it didn't work for me. I guess everyone's condition is different so what's working for others might not work for us Sad
I've used aveeno which isn't too bad, or aqueous cream which is a substitute of soap that's not irritating either. But important thing is not get any of those in the bits, even if it's a mild organic soap. and defs no shampoo in that area. basically I'm just using water to rinse and water is the only thing that I will expose that area to (except for coconut oil for lubrication and lidocaine for numbing).
There are few things you can start at home that is helpful in relieving the irritation. You can read up on the post by Sparkle, she gave lots of simple but useful tips!

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Re: 100% Pain-Free After 4 Years

Post  mrs.optimistic on Sat May 16, 2015 8:34 am

So you aren't using any soap down there at all? Just water? Maybe I wash too much! Oh my

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Re: 100% Pain-Free After 4 Years

Post  mikan92 on Sat May 16, 2015 9:59 am

Yup! Just plain water to rinse gently Smile
Many doctors also advice that instead of using all the cleansing products cause vagina has it's own maintenance system so you won't want to disturb that balance!

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Re: 100% Pain-Free After 4 Years

Post  emalita on Tue Mar 29, 2016 7:02 pm

I had never used feminine washes, but when my pain started, I noticed a film that kept building up (not horrible but noticeable). The film had the slightest unpleasant smell to it, and I read this was a mix of natural body oils, skin cells, etc. Anyway, even at this point I was still only using water and my hands (as gently as possible) to try to wash it off, which didn't work even though doctors and the internet say this is all that is needed.

The doctor that I'm working with now, Dr. Fowler, told me this is a huge mistake women with sensitive skin make. He says in his treatment protocol that a soap must be used to "prevent buildup of secretions that act as culture media for bacteria and yeast to be present in higher concentrations than usual." I fought with this direction for a LONG time because everything I had read so far said not to use soap. Well, even though I'm not using the soap he recommended, I did do my research and chose to try a feminine wash called Sliquid (unscented). I was concerned about sensitivity because even coconut oil caused me to burn once! However, this product causes no burning or dryness, and it washed away the film and the smell on the first use. My inner labia is no longer swollen since using the product once a day (no idea why the film would cause swelling, but it did). The things to remember are NOT to overwash, NOT to use it internally, and to BE GENTLE.

So finally a doctor gave me okay advice! I hope to not have to use it every day once my treatments are less frequent.

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Re: 100% Pain-Free After 4 Years

Post  web96 on Sun Jun 26, 2016 5:01 am

I had the same thing! Same cause same cure, and probably the same lady's story.

I use Carina Organics shampoo and conditioner, they're really nice. For soaps I just use natural vegetable oil soaps I get at the health food store. Nellie's All Natural Laundry Soda is good as well.

DO NOT USE Dove or Aveeno, both those helped to cause my reaction ugh curse those "natural" and "sensitive" products. You're looking to avoid sodium laurel sulfate and its derivatives.
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Re: 100% Pain-Free After 4 Years

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