Log in

I forgot my password

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


How I cured my Provoked Vestibulodynia

View previous topic View next topic Go down

How I cured my Provoked Vestibulodynia

Post  web96 on Mon Mar 23, 2015 4:02 am

I have posted this a couple of times on here because I am trying to reach other as many women as I can with my condition. Here is my story of relief after 6+ years of pain.

I have had Provoked Vestibulodynia (Also known as VVS) since I was at least 12. I first became aware of pain during my first attempts to insert a tampon. I experienced pain upon even the slightest provocation to the back of the opening of my vagina. The pain I experienced was a severe hot burning/stabbing pain that subsided mostly after pressure was removed but would still linger for up to an hour after. The only immediate relief I found was to douse the area with ice cold water from the shower. I had always experienced painful period because the excess moisture caused chaffing, exacerbating the condition.

Since bringing the issue to my GP and being referred to a Gynecologist, I have had countless yeast swabs performed, test for various infections done, and creams and vaginal suppositories prescribed. I tried going on hormonal birth control, and off again. I tried switching feminine hygiene products. Neither my Gyno nor my GP had been able to provide me with any relief. I had never had penetrative sexual intercourse because I knew that the pain I would experience upon penetration would be unbearable. I was starting to look into multi disciplinary programs and options such as surgery (vestibulectomy), though if found some of the treatments, such as Cognitive Behavioral Therapy, hard to swallow. Being treated psychologically for a physical symptom seemed as though my pain was not being sufficiently recognized.

Here’s the good part;

Then I happened upon a blog of a woman who had very similar experience to mine (see link below). She stated that, after switching unassumingly to completely all-natural shampoos, conditioners, body washes, etc. that her pain had finally been relieved. She was able to have pain free intercourse. I have always had a bit of mild eczema on and off, and I am quite sensitive to body lotions. I had been using an Aveeno Skin Relief body wash, regular shampoo and conditioner and I believe Dove bar soap. Given my history with failed treatment, I felt as though I didn’t have anything to lose. I switch my products to completely all natural, and within a month I noticed about a 50-60% pain reduction. At the same time I also switched my laundry soap to an all-natural brand. About 3 months after the switch, I saw a private MD that prescribed an HRT Estriol compound that I apply locally three times a week (Estriol helps to repair vaginal tissue). My pharmacist was able to compound it in coconut oil, as to a regular cream base to insure that it didn’t irritate my skin. It has been about 5 months since I first switched my bath products and the pain is about 90% gone. For good measure, I also use natural cotton feminine hygiene products, though I had been using them before my irritation subsided and it didn’t seem to improve the condition. In conclusion, I believe my PVD was caused by a sulfate allergy to the detergents in the products that were making contact with the irritated the glands in the area.

Here is the link to the blog that I gained my information from:

http://www.experienceproject.com/stories/Have-Vulvar-Vestibulitis-Syndrome/1324024


This is a list of the products that I use:

• Dr. Bronners Pure Castille Soaps
• Chorus Global/Carina Organics Shampoo and Conditioner
• Mountain Sky Soaps
• Naty feminine hygiene products
• Organyc feminine hygiene products
• Nellie’s All Natural Laundry Soap

There are many other brands that would be suitable to use also. Just remember to read the ingredient label! A lot of labels such as “mild” and “contains natural ingredients” can be misleading. I often use handcrafted natural bath products that I purchase at a local farmers market as well.

I hope my story can help other women and girls. Best of luck to you! Let me know if you have any questions!


Last edited by web96 on Thu Sep 08, 2016 11:50 pm; edited 6 times in total
avatar
web96

Posts : 20
Join date : 2015-03-15
Location : Canada

View user profile

Back to top Go down

Re: How I cured my Provoked Vestibulodynia

Post  web96 on Thu Sep 24, 2015 7:19 am

Update!

Like I mentioned before, I have seen about an 80-90% decrease in pain, and happily continue to use my natural sulphate free bathing products (faithfully packing them with me on all trips!). But I still currently have some burning discomfort with direct pressure to the area. Now that the source of irritation is gone, I am left with a residual nerve pain (allodynia), as the name Provoked Vestibulodynia or Vulvodynia suggests. Applying Lidocaine is a temporary solution, but isn't 100% effective and relief wears off after a half hour.

So, I will be undergoing Prolotherapy/Nueral Therapy, that is, injections (ouch!) of dextrose solution with Lidocaine over the next few months as a final treatment to this problem. In treating this now as chronic nerve pain, I am feeling quite hopeful!


Last edited by web96 on Tue Jul 19, 2016 9:28 pm; edited 1 time in total
avatar
web96

Posts : 20
Join date : 2015-03-15
Location : Canada

View user profile

Back to top Go down

Re: How I cured my Provoked Vestibulodynia

Post  emalita on Tue Jul 19, 2016 7:28 pm

Hi web96,

I wanted to see how you've been since your last update.

Do you still use estrogen? That's the only treatment my specialist has prescribed for me at this point (bioidentical Estradiol and Estrone in a compounded tablet since I don't handle other bases well), and I'm not really seeing any improvements after about 3 or 4 months of using it. He just keeps telling me to "give it more time" and ups my dosage Crying or Very sad

emalita

Posts : 216
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: How I cured my Provoked Vestibulodynia

Post  web96 on Sun Sep 04, 2016 4:52 am

Hey emalita!

I'm doing pretty well thanks. Unfortunately my gyno said it wouldn't be possible to treat me with the injections, which was disappointing. I no longer use the estrogen cream. It helped bring down the initial irritation, but now that that's gone and the tissue is healthy it doesn't do much for me. Things remain relatively the same, I suppose progress has plateaued a bit. I can't complain to much though. I am able to live a normal life now, with the occasional help of lidocaine! I've also very recently switched my toilet paper to a natural one free of bleach, dye etc. because I had heard that it helped some women. Worth a try anyways. I'm open to whatever could improve things.

How are you doing with your estrogen treatment?


Last edited by web96 on Sun Sep 04, 2016 6:29 pm; edited 1 time in total
avatar
web96

Posts : 20
Join date : 2015-03-15
Location : Canada

View user profile

Back to top Go down

Re: How I cured my Provoked Vestibulodynia

Post  emalita on Sun Sep 04, 2016 1:05 pm

The estrogen I use is a vaginal tablet. I think it has helped with my internal health, but it doesn't seem to be having any positive impact on my vulvar skin unfortunately.

emalita

Posts : 216
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: How I cured my Provoked Vestibulodynia

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum