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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


How I cured my Provoked Vestibulodynia

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How I cured my Provoked Vestibulodynia

Post  web96 on Mon Mar 23, 2015 4:04 am

I have posted this a couple of times on here because I am trying to reach other as many women as I can with my condition. Skip to the last paragraph if you don't want to hear my history. Here is my story of relief after 6+ years of pain.

I have had Provoked Vestibulodynia (Also known as VVS) since I was at least 12. I first became aware of pain during my first attempts to insert a tampon. I experienced pain upon even the slightest provocation to the back of the opening of my vagina. The pain I experienced was a severe hot burning/stabbing pain that subsided mostly after pressure was removed but would still linger for up to an hour after. The only immediate relief I found was to douse the area with ice cold water from the shower. I had always experienced painful period because the excess moisture caused chaffing, exacerbating the condition.

Since bringing the issue to my GP and being referred to a Gynecologist, I have had countless yeast swabs performed, test for various infections done, and creams and vaginal suppositories prescribed. I tried going on hormonal birth control, and off again. I tried switching feminine hygiene products. Neither my Gyno nor my GP had been able to provide me with any relief. I had never had penetrative sexual intercourse because I knew that the pain I would experience upon penetration would be unbearable. I was starting to look into multi disciplinary programs and surgery options (vestubulectomy), though if found some of the treatments, such as Cognitive Behavioral Therapy, hard to swallow. Being treated psychologically for a physical symptom seemed as though my pain was not being sufficiently recognized.

Here’s the good part;

Then I happened upon a blog of a woman who had very similar experience to mine (see link below). She stated that, after switching unassumingly to completely all-natural shampoos, conditioners, body washes, etc. that her pain had finally been relieved. She was able to have pain free intercourse. I have always had a bit of mild eczema on and off, and I am quite sensitive to body lotions. I had been using an Aveeno Skin Relief body wash, regular shampoo and conditioner and I believe Dove bar soap. Given my history with failed treatment, I felt as though I didn’t have anything to lose. I switch my products to completely all natural, and within a month I noticed about a 50-60% pain reduction. At the same time I also switched my laundry soap to an all-natural brand. About 3 months after the switch, I saw a private MD that prescribed an HTR Estriol compound that I apply locally three times a week (Estriol helps to repair vaginal tissue). My pharmacist was able to compound it in coconut oil, as to a regular cream base to insure that it didn’t irritate my skin. It has been about 5 months since I first switched my bath products and the pain is about 90% gone. For good measure, I also use natural cotton feminine hygiene products, though I had been using them before my irritation subsided and it didn’t seem to improve the condition. In conclusion, I believe my PVD was caused by a sulfate allergy to the detergents in the products that were making contact with the irritated the glands in the area.

Here is the link to the blog that I gained my information from:

http://www.experienceproject.com/stories/Have-Vulvar-Vestibulitis-Syndrome/1324024



This is a list of the products that I use:

• Dr. Bronners Pure Castille Soaps
• Chorus Global Shampoo and Conditioner
• Mountain Sky Soaps
• Naty feminine hygiene products
• Organyc feminine hygiene products
• Nellie’s All Natural Laundry Soap

There are many other brands that would be suitable to use also. Just remember to read the ingredient label! A lot of labels such as “mild” and “contains natural ingredients” can be misleading. I often use handcrafted natural bath products that I purchase at a local farmers market as well.

I hope my story can help other women and girls. Best of luck to you! Let me know if you have any questions!


Last edited by web96 on Tue Jul 19, 2016 9:36 pm; edited 8 times in total
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Re: How I cured my Provoked Vestibulodynia

Post  naomi on Tue Apr 21, 2015 11:58 pm

I'm just embarking into a more natural approach with the dreaded V so thank you for the link!

I have changed diet, taking supplements and ingesting coconut oil daily. Jojoba oil down there at least x3 times daily. Have bought some Faith in Nature shampoos and conditioners today.

I'll try anything now to gain some results. I'm 33 now and had this ongoing since 18. Too bloody long
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Re: How I cured my Provoked Vestibulodynia

Post  mrs.optimistic on Thu May 14, 2015 6:47 pm

Thank you!! I will give this a try and let you know how it goes. Congrats on pain free sex!

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Re: How I cured my Provoked Vestibulodynia

Post  naomi on Thu May 14, 2015 7:45 pm

Oh I wish I had pain free sex!!! I actually wish I had sex
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Re: How I cured my Provoked Vestibulodynia

Post  web96 on Sun May 17, 2015 4:16 am

naomi wrote:I'm just embarking into a more natural approach with the dreaded V so thank you for the link!

I have changed diet, taking supplements and ingesting coconut oil daily. Jojoba oil down there at least x3 times daily. Have bought some Faith in Nature shampoos and conditioners today.

I'll try anything now to gain some results. I'm 33 now and had this ongoing since 18. Too bloody long

Far too long indeed! How are things going for you? Have you noticed a reduction in your pain? I understand that after all the let downs from previously used pharmaceuticals that it can be hard to believe that they will work, but I would suggest another cream, called Estragyn. I have been applying it twice a day and it helps with the remaining mild irritation. You could ask your gyno about it if you're interested.
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Re: How I cured my Provoked Vestibulodynia

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