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    » New here would very much appreciate advice at the end of my rope
    Fri Jan 11, 2019 1:46 am by Jma990o

    » Diagnosed Recently
    Tue Jan 08, 2019 3:55 pm by flissyg

    » Looking for suggestions or encouragement
    Thu Jan 03, 2019 11:09 am by Gaby

    » Clinical Trial for Vulvodynia Treatment
    Wed Dec 19, 2018 7:13 pm by wramirez

    » New and need advice and help
    Thu Dec 13, 2018 9:48 am by Derry59

    » Things that have worked for me
    Tue Dec 11, 2018 11:32 am by Amethyst

    » Found relief after more than 15 years of pain!
    Tue Dec 11, 2018 11:17 am by Amethyst

    » I'm new to this forum and would love some advice! :)
    Tue Dec 11, 2018 3:06 am by Cin124

    » I think I know what causes vulvodynia-it's the memory of pain
    Sat Dec 08, 2018 1:24 pm by foxysugarpants

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 2

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 0

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 6

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 4

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 13

    Hello. Happy to have found this group.

    Fri Dec 07, 2018 9:01 pm by foxysugarpants

    I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

    Comments: 0

    Had this for 5 years, looking for people who understand

    Sat Oct 06, 2018 9:46 pm by blackberrie

    Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

    Comments: 3

    Anyone have pain with urination?

    Tue Oct 16, 2018 2:35 pm by mertzwl

    Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

    I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

    Comments: 6

    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 4


    How I cured my Provoked Vestibulodynia

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    How I cured my Provoked Vestibulodynia

    Post  web96 on Mon Mar 23, 2015 4:04 am

    I have posted this a couple of times on here because I am trying to reach other as many women as I can with my condition. Skip to the last paragraph if you don't want to hear my history. Here is my story of relief after 6+ years of pain.

    I have had Provoked Vestibulodynia (Also known as VVS) since I was at least 12. I first became aware of pain during my first attempts to insert a tampon. I experienced pain upon even the slightest provocation to the back of the opening of my vagina. The pain I experienced was a severe hot burning/stabbing pain that subsided mostly after pressure was removed but would still linger for up to an hour after. The only immediate relief I found was to douse the area with ice cold water from the shower. I had always experienced painful period because the excess moisture caused chaffing, exacerbating the condition.

    Since bringing the issue to my GP and being referred to a Gynecologist, I have had countless yeast swabs performed, test for various infections done, and creams and vaginal suppositories prescribed. I tried going on hormonal birth control, and off again. I tried switching feminine hygiene products. Neither my Gyno nor my GP had been able to provide me with any relief. I had never had penetrative sexual intercourse because I knew that the pain I would experience upon penetration would be unbearable. I was starting to look into multi disciplinary programs and surgery options (vestubulectomy), though if found some of the treatments, such as Cognitive Behavioral Therapy, hard to swallow. Being treated psychologically for a physical symptom seemed as though my pain was not being sufficiently recognized.

    Here’s the good part;

    Then I happened upon a blog of a woman who had very similar experience to mine (see link below). She stated that, after switching unassumingly to completely all-natural shampoos, conditioners, body washes, etc. that her pain had finally been relieved. She was able to have pain free intercourse. I have always had a bit of mild eczema on and off, and I am quite sensitive to body lotions. I had been using an Aveeno Skin Relief body wash, regular shampoo and conditioner and I believe Dove bar soap. Given my history with failed treatment, I felt as though I didn’t have anything to lose. I switch my products to completely all natural, and within a month I noticed about a 50-60% pain reduction. At the same time I also switched my laundry soap to an all-natural brand. About 3 months after the switch, I saw a private MD that prescribed an HTR Estriol compound that I apply locally three times a week (Estriol helps to repair vaginal tissue). My pharmacist was able to compound it in coconut oil, as to a regular cream base to insure that it didn’t irritate my skin. It has been about 5 months since I first switched my bath products and the pain is about 90% gone. For good measure, I also use natural cotton feminine hygiene products, though I had been using them before my irritation subsided and it didn’t seem to improve the condition. In conclusion, I believe my PVD was caused by a sulfate allergy to the detergents in the products that were making contact with the irritated the glands in the area.

    Here is the link to the blog that I gained my information from:

    http://www.experienceproject.com/stories/Have-Vulvar-Vestibulitis-Syndrome/1324024



    This is a list of the products that I use:

    • Dr. Bronners Pure Castille Soaps
    • Chorus Global Shampoo and Conditioner
    • Mountain Sky Soaps
    • Naty feminine hygiene products
    • Organyc feminine hygiene products
    • Nellie’s All Natural Laundry Soap

    There are many other brands that would be suitable to use also. Just remember to read the ingredient label! A lot of labels such as “mild” and “contains natural ingredients” can be misleading. I often use handcrafted natural bath products that I purchase at a local farmers market as well.

    I hope my story can help other women and girls. Best of luck to you! Let me know if you have any questions!


    Last edited by web96 on Tue Jul 19, 2016 9:36 pm; edited 8 times in total
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    Re: How I cured my Provoked Vestibulodynia

    Post  naomi on Tue Apr 21, 2015 11:58 pm

    I'm just embarking into a more natural approach with the dreaded V so thank you for the link!

    I have changed diet, taking supplements and ingesting coconut oil daily. Jojoba oil down there at least x3 times daily. Have bought some Faith in Nature shampoos and conditioners today.

    I'll try anything now to gain some results. I'm 33 now and had this ongoing since 18. Too bloody long
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    Re: How I cured my Provoked Vestibulodynia

    Post  mrs.optimistic on Thu May 14, 2015 6:47 pm

    Thank you!! I will give this a try and let you know how it goes. Congrats on pain free sex!

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    Re: How I cured my Provoked Vestibulodynia

    Post  naomi on Thu May 14, 2015 7:45 pm

    Oh I wish I had pain free sex!!! I actually wish I had sex
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    Re: How I cured my Provoked Vestibulodynia

    Post  web96 on Sun May 17, 2015 4:16 am

    naomi wrote:I'm just embarking into a more natural approach with the dreaded V so thank you for the link!

    I have changed diet, taking supplements and ingesting coconut oil daily. Jojoba oil down there at least x3 times daily. Have bought some Faith in Nature shampoos and conditioners today.

    I'll try anything now to gain some results. I'm 33 now and had this ongoing since 18. Too bloody long

    Far too long indeed! How are things going for you? Have you noticed a reduction in your pain? I understand that after all the let downs from previously used pharmaceuticals that it can be hard to believe that they will work, but I would suggest another cream, called Estragyn. I have been applying it twice a day and it helps with the remaining mild irritation. You could ask your gyno about it if you're interested.
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    Re: How I cured my Provoked Vestibulodynia

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