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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Lyrica...advice please

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Lyrica...advice please

Post  sailor_moon on Mon Mar 23, 2015 5:46 am

So out of desperation my doctor wants me to try Lyrica. I am scared to take it as I have read about the really bad side effects it has, like constant fatigue and drowsiness, and excessive weight gain . I have PCOS and am struggling with these issues already let alone having this drug make things worse....I can't afford to get any fatter, I can't even lose a single kilogram and I am on a strict sugar free, dairy free gluten free diet! If I put on any more I will be overweight for my height. Fairview ought if the medication weeks, but I have to be on it 3 months and if it doesn't work I will be even fatter and won't be able to lose it. If I am even more fatigued I am at risk of losing my job or having a car accident as I travel to work. My V symptoms are redness, itching and vestibule burning. Any advice on the matter would be very much appreciated. I have had a very bad day... I have a migraine and can't stop crying. My doctor was not as optimistic this time around...he is running out if ideas.
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Re: Lyrica...advice please

Post  BpCookie on Thu Mar 26, 2015 3:25 pm

Hello Sailor hun, I really feel for you. My advice would be to give Lyrica a chance. I take Lyrica and its the only medication that helps. You need to weigh what is most important to you, on one hand you MAY have specific side effect and on the other hand Lyrica MAY help you. If you give Lyrica a try and you don't like any of the side effects that you may get, then you can always quit taking it. If you do want to quit taking Lyrica pls. talk to your Dr. first.

Have you tried Lidocaine %5 ointment yet? When rubbed into the skin it numbs it. So it could help you.

Also, if your Dr. is running out of ideas, then find another Dr. There is always something else that you can try. Finding something to help your symptoms is very frustrating but you have to keep pushing yourself. Giving up is simple but pushing yourself to find help is hard but can be very rewarding!!

I cry off and on too but the next day I find myself putting on my boxing gloves and fighting my way through the day. I find that a great stress reliever is to find someone who annoys me and give them a quick boxing glove to the back of the head, point at my vagina and scream in their face "THIS IS ALL YOUR FAULT JERK FACE" and then walk away. *shrug* Nah, only kidding. But it would be fun to see the look on someones face if I did do that.

Hang in there honey bunny.

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Re: Lyrica...advice please

Post  sailor_moon on Thu Mar 26, 2015 8:15 pm

Thankyou Cookie. I really appreciate the reply.

I took my first Lyrica last night. Only a small dose of 25mg, as I am gradually building up my dose to 150mg. This morning I feel so dizzy and spaced out.

Can I ask what your main symptoms are/ were with V? My main symptoms are chronic inflammation and itch, with random burning in the vestibules that comes and goes.

How long did it take for Lyrica to kick in and really work?

And can I ask what your main side effects are?

Any more advice on the matter would be very much appreciated. Thankyou Smile
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Lyrica

Post  Jo44 on Thu Mar 26, 2015 8:27 pm

Hi hun

I was also scared to take Lyrica too but caved in & took them & apart from a bit of lightheaded ness the following morning it's been fine! I am over weight & was terrified of putting on more weight but I've been on it 6 weeks so far & have only gained a about 2 pounds! I'm also on Amitriptilyne too which is another drug notorious for weight gain but didn't gain whilst on that. I'm weaning off that at the moment.

To be honest it hasn't stopped the soreness I get but it helps me sleep really well, which I love as I suffered insomnia for two years!

I'm on 150mg of the Lyrica.

Hope it helps you xx

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Re: Lyrica...advice please

Post  sailor_moon on Thu Mar 26, 2015 8:38 pm

Thanks for your response Jo44,

I only tool 25mg and I feel really dizzy and light - headed this morning. I think I'll do 25mg for a week and then increase to 75mg for a week and see how I go working up to 150mg.

I am only short, 158cm. And a petite frame. I have PCOS and low estrogen and progesterone, and I am struggling to stay within a healthy weight range. I don't want to put on more weight cause I won't be able to lose it! My V is so bad I can't exercise. I eat super healthy but it's not enough .

Can I ask what your symptoms are? Do you have itching or just burning?

I haven't tried Amitryptilene. Do you think it works?
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Lyrica advice please

Post  Jo44 on Thu Mar 26, 2015 9:08 pm

Hi

Initially my symptoms were burning, soreness and redness, I then started the Amitriptyline just before Xmas, and each time I upped my dose, I had some relief ie: no pain at all, then it would come back after about 10 days or so, so again I increased them once again until I was at 60mgs by the beginning of Feb!! Then I saw my gynae, who wanted me to come off the Ami and take Lyrica and use Dermovate cream twice a day! By that time the burning had actually stopped. Now I'm left with soreness and redness. The cream doesn't seem to be helping at all tho!

If this doesn't help me then wants me to have injections in the bit just below the opening of my vagina!! Ouch!!!!

I think you're wise to start slowly, before increasing the dose. I am very sensitive to meds so thought I would have loads of side effects but haven't, but then again it hasn't helped with the soreness either. I'm going to ask my GP if I can stay on it for sleep!

Hope it helps you, it should kick in pretty quickly.

Xx

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Sailor

Post  BpCookie on Fri Mar 27, 2015 4:19 pm

Hi honey, My main symptom is burning. I don't itch but I do burn most of the time. Sometimes there is redness and swelling. My Dr. started me on 150 mgs right away and it worked right away as well. 150 mgs causes me to have dry mouth and poor concentration. Sometimes I feel like I'm in my own strange world but other times it doesn't bother me as much. You may not have to take 150 mgs, you may find that a lower dose will help you. I have 3 different mgs that I take depending on my burning pain level, 150 mgs, 100 mgs, 75 mgs. Since my burning pain fluctuates, I take the mgs that are needed at that time.

Ask your Dr. about Lidocaine 5% ointment. That will really help.

Ive had 2 surgeries, a number of procedures and pills. blah. The second surgery help me a lot and the last procedure helped also. My pain is starting to increase again so Im going back to my Dr.. Last procedure he injected alcohol under the skin in order to kill the nerve endings and it helped for about 2 months. I may have to have multi procedures.

If you have any other questions feel free to ask.

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Re: Lyrica...advice please

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