Vulvodynia Support
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» Hope to all my suffering ladies
Lyrica...advice please EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Lyrica...advice please EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Lyrica...advice please EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Lyrica...advice please EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Lyrica...advice please EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Lyrica...advice please EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Lyrica...advice please EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Lyrica...advice please EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Lyrica...advice please EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Lyrica...advice please

3 posters

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Lyrica...advice please Empty Lyrica...advice please

Post  sailor_moon Mon Mar 23, 2015 5:46 am

So out of desperation my doctor wants me to try Lyrica. I am scared to take it as I have read about the really bad side effects it has, like constant fatigue and drowsiness, and excessive weight gain . I have PCOS and am struggling with these issues already let alone having this drug make things worse....I can't afford to get any fatter, I can't even lose a single kilogram and I am on a strict sugar free, dairy free gluten free diet! If I put on any more I will be overweight for my height. Fairview ought if the medication weeks, but I have to be on it 3 months and if it doesn't work I will be even fatter and won't be able to lose it. If I am even more fatigued I am at risk of losing my job or having a car accident as I travel to work. My V symptoms are redness, itching and vestibule burning. Any advice on the matter would be very much appreciated. I have had a very bad day... I have a migraine and can't stop crying. My doctor was not as optimistic this time around...he is running out if ideas.
sailor_moon
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Post  BpCookie Thu Mar 26, 2015 3:25 pm

Hello Sailor hun, I really feel for you. My advice would be to give Lyrica a chance. I take Lyrica and its the only medication that helps. You need to weigh what is most important to you, on one hand you MAY have specific side effect and on the other hand Lyrica MAY help you. If you give Lyrica a try and you don't like any of the side effects that you may get, then you can always quit taking it. If you do want to quit taking Lyrica pls. talk to your Dr. first.

Have you tried Lidocaine %5 ointment yet? When rubbed into the skin it numbs it. So it could help you.

Also, if your Dr. is running out of ideas, then find another Dr. There is always something else that you can try. Finding something to help your symptoms is very frustrating but you have to keep pushing yourself. Giving up is simple but pushing yourself to find help is hard but can be very rewarding!!

I cry off and on too but the next day I find myself putting on my boxing gloves and fighting my way through the day. I find that a great stress reliever is to find someone who annoys me and give them a quick boxing glove to the back of the head, point at my vagina and scream in their face "THIS IS ALL YOUR FAULT JERK FACE" and then walk away. *shrug* Nah, only kidding. But it would be fun to see the look on someones face if I did do that.

Hang in there honey bunny.

Cookie
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Post  sailor_moon Thu Mar 26, 2015 8:15 pm

Thankyou Cookie. I really appreciate the reply.

I took my first Lyrica last night. Only a small dose of 25mg, as I am gradually building up my dose to 150mg. This morning I feel so dizzy and spaced out.

Can I ask what your main symptoms are/ were with V? My main symptoms are chronic inflammation and itch, with random burning in the vestibules that comes and goes.

How long did it take for Lyrica to kick in and really work?

And can I ask what your main side effects are?

Any more advice on the matter would be very much appreciated. Thankyou Smile
sailor_moon
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Location : Australia

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Post  Jo44 Thu Mar 26, 2015 8:27 pm

Hi hun

I was also scared to take Lyrica too but caved in & took them & apart from a bit of lightheaded ness the following morning it's been fine! I am over weight & was terrified of putting on more weight but I've been on it 6 weeks so far & have only gained a about 2 pounds! I'm also on Amitriptilyne too which is another drug notorious for weight gain but didn't gain whilst on that. I'm weaning off that at the moment.

To be honest it hasn't stopped the soreness I get but it helps me sleep really well, which I love as I suffered insomnia for two years!

I'm on 150mg of the Lyrica.

Hope it helps you xx

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Post  sailor_moon Thu Mar 26, 2015 8:38 pm

Thanks for your response Jo44,

I only tool 25mg and I feel really dizzy and light - headed this morning. I think I'll do 25mg for a week and then increase to 75mg for a week and see how I go working up to 150mg.

I am only short, 158cm. And a petite frame. I have PCOS and low estrogen and progesterone, and I am struggling to stay within a healthy weight range. I don't want to put on more weight cause I won't be able to lose it! My V is so bad I can't exercise. I eat super healthy but it's not enough .

Can I ask what your symptoms are? Do you have itching or just burning?

I haven't tried Amitryptilene. Do you think it works?
sailor_moon
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Post  Jo44 Thu Mar 26, 2015 9:08 pm

Hi

Initially my symptoms were burning, soreness and redness, I then started the Amitriptyline just before Xmas, and each time I upped my dose, I had some relief ie: no pain at all, then it would come back after about 10 days or so, so again I increased them once again until I was at 60mgs by the beginning of Feb!! Then I saw my gynae, who wanted me to come off the Ami and take Lyrica and use Dermovate cream twice a day! By that time the burning had actually stopped. Now I'm left with soreness and redness. The cream doesn't seem to be helping at all tho!

If this doesn't help me then wants me to have injections in the bit just below the opening of my vagina!! Ouch!!!!

I think you're wise to start slowly, before increasing the dose. I am very sensitive to meds so thought I would have loads of side effects but haven't, but then again it hasn't helped with the soreness either. I'm going to ask my GP if I can stay on it for sleep!

Hope it helps you, it should kick in pretty quickly.

Xx

Jo44

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Lyrica...advice please Empty Sailor

Post  BpCookie Fri Mar 27, 2015 4:19 pm

Hi honey, My main symptom is burning. I don't itch but I do burn most of the time. Sometimes there is redness and swelling. My Dr. started me on 150 mgs right away and it worked right away as well. 150 mgs causes me to have dry mouth and poor concentration. Sometimes I feel like I'm in my own strange world but other times it doesn't bother me as much. You may not have to take 150 mgs, you may find that a lower dose will help you. I have 3 different mgs that I take depending on my burning pain level, 150 mgs, 100 mgs, 75 mgs. Since my burning pain fluctuates, I take the mgs that are needed at that time.

Ask your Dr. about Lidocaine 5% ointment. That will really help.

Ive had 2 surgeries, a number of procedures and pills. blah. The second surgery help me a lot and the last procedure helped also. My pain is starting to increase again so Im going back to my Dr.. Last procedure he injected alcohol under the skin in order to kill the nerve endings and it helped for about 2 months. I may have to have multi procedures.

If you have any other questions feel free to ask.

hugs
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