Log in

I forgot my password

Latest topics
Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Lyrica...advice please

View previous topic View next topic Go down

Lyrica...advice please

Post  sailor_moon on Mon Mar 23, 2015 5:46 am

So out of desperation my doctor wants me to try Lyrica. I am scared to take it as I have read about the really bad side effects it has, like constant fatigue and drowsiness, and excessive weight gain . I have PCOS and am struggling with these issues already let alone having this drug make things worse....I can't afford to get any fatter, I can't even lose a single kilogram and I am on a strict sugar free, dairy free gluten free diet! If I put on any more I will be overweight for my height. Fairview ought if the medication weeks, but I have to be on it 3 months and if it doesn't work I will be even fatter and won't be able to lose it. If I am even more fatigued I am at risk of losing my job or having a car accident as I travel to work. My V symptoms are redness, itching and vestibule burning. Any advice on the matter would be very much appreciated. I have had a very bad day... I have a migraine and can't stop crying. My doctor was not as optimistic this time around...he is running out if ideas.
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: Lyrica...advice please

Post  BpCookie on Thu Mar 26, 2015 3:25 pm

Hello Sailor hun, I really feel for you. My advice would be to give Lyrica a chance. I take Lyrica and its the only medication that helps. You need to weigh what is most important to you, on one hand you MAY have specific side effect and on the other hand Lyrica MAY help you. If you give Lyrica a try and you don't like any of the side effects that you may get, then you can always quit taking it. If you do want to quit taking Lyrica pls. talk to your Dr. first.

Have you tried Lidocaine %5 ointment yet? When rubbed into the skin it numbs it. So it could help you.

Also, if your Dr. is running out of ideas, then find another Dr. There is always something else that you can try. Finding something to help your symptoms is very frustrating but you have to keep pushing yourself. Giving up is simple but pushing yourself to find help is hard but can be very rewarding!!

I cry off and on too but the next day I find myself putting on my boxing gloves and fighting my way through the day. I find that a great stress reliever is to find someone who annoys me and give them a quick boxing glove to the back of the head, point at my vagina and scream in their face "THIS IS ALL YOUR FAULT JERK FACE" and then walk away. *shrug* Nah, only kidding. But it would be fun to see the look on someones face if I did do that.

Hang in there honey bunny.

Cookie
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: Lyrica...advice please

Post  sailor_moon on Thu Mar 26, 2015 8:15 pm

Thankyou Cookie. I really appreciate the reply.

I took my first Lyrica last night. Only a small dose of 25mg, as I am gradually building up my dose to 150mg. This morning I feel so dizzy and spaced out.

Can I ask what your main symptoms are/ were with V? My main symptoms are chronic inflammation and itch, with random burning in the vestibules that comes and goes.

How long did it take for Lyrica to kick in and really work?

And can I ask what your main side effects are?

Any more advice on the matter would be very much appreciated. Thankyou Smile
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Lyrica

Post  Jo44 on Thu Mar 26, 2015 8:27 pm

Hi hun

I was also scared to take Lyrica too but caved in & took them & apart from a bit of lightheaded ness the following morning it's been fine! I am over weight & was terrified of putting on more weight but I've been on it 6 weeks so far & have only gained a about 2 pounds! I'm also on Amitriptilyne too which is another drug notorious for weight gain but didn't gain whilst on that. I'm weaning off that at the moment.

To be honest it hasn't stopped the soreness I get but it helps me sleep really well, which I love as I suffered insomnia for two years!

I'm on 150mg of the Lyrica.

Hope it helps you xx

Jo44

Posts : 28
Join date : 2015-02-10

View user profile

Back to top Go down

Re: Lyrica...advice please

Post  sailor_moon on Thu Mar 26, 2015 8:38 pm

Thanks for your response Jo44,

I only tool 25mg and I feel really dizzy and light - headed this morning. I think I'll do 25mg for a week and then increase to 75mg for a week and see how I go working up to 150mg.

I am only short, 158cm. And a petite frame. I have PCOS and low estrogen and progesterone, and I am struggling to stay within a healthy weight range. I don't want to put on more weight cause I won't be able to lose it! My V is so bad I can't exercise. I eat super healthy but it's not enough .

Can I ask what your symptoms are? Do you have itching or just burning?

I haven't tried Amitryptilene. Do you think it works?
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Lyrica advice please

Post  Jo44 on Thu Mar 26, 2015 9:08 pm

Hi

Initially my symptoms were burning, soreness and redness, I then started the Amitriptyline just before Xmas, and each time I upped my dose, I had some relief ie: no pain at all, then it would come back after about 10 days or so, so again I increased them once again until I was at 60mgs by the beginning of Feb!! Then I saw my gynae, who wanted me to come off the Ami and take Lyrica and use Dermovate cream twice a day! By that time the burning had actually stopped. Now I'm left with soreness and redness. The cream doesn't seem to be helping at all tho!

If this doesn't help me then wants me to have injections in the bit just below the opening of my vagina!! Ouch!!!!

I think you're wise to start slowly, before increasing the dose. I am very sensitive to meds so thought I would have loads of side effects but haven't, but then again it hasn't helped with the soreness either. I'm going to ask my GP if I can stay on it for sleep!

Hope it helps you, it should kick in pretty quickly.

Xx

Jo44

Posts : 28
Join date : 2015-02-10

View user profile

Back to top Go down

Sailor

Post  BpCookie on Fri Mar 27, 2015 4:19 pm

Hi honey, My main symptom is burning. I don't itch but I do burn most of the time. Sometimes there is redness and swelling. My Dr. started me on 150 mgs right away and it worked right away as well. 150 mgs causes me to have dry mouth and poor concentration. Sometimes I feel like I'm in my own strange world but other times it doesn't bother me as much. You may not have to take 150 mgs, you may find that a lower dose will help you. I have 3 different mgs that I take depending on my burning pain level, 150 mgs, 100 mgs, 75 mgs. Since my burning pain fluctuates, I take the mgs that are needed at that time.

Ask your Dr. about Lidocaine 5% ointment. That will really help.

Ive had 2 surgeries, a number of procedures and pills. blah. The second surgery help me a lot and the last procedure helped also. My pain is starting to increase again so Im going back to my Dr.. Last procedure he injected alcohol under the skin in order to kill the nerve endings and it helped for about 2 months. I may have to have multi procedures.

If you have any other questions feel free to ask.

hugs
Cookie
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: Lyrica...advice please

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum