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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

is this normal after surgery? please comment.

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is this normal after surgery? please comment.

Post  x_chelss@live.com on Mon Mar 23, 2015 11:36 am

I'm now 8 weeks post surgery, I was given the all clear to have sex again on the 13/03/15 I've only had sex twice since then. Once wasn't very enjoyable it was just to test the tissue and everything was fine but I did experience some little red lines at the base of my vagina where the skin was removed, they looked like little red bloody veins. Then last night, 22/03/15 I had sex again, this time was a lot faster and I managed to penetrate. It didn't hurt but I did feel right at the bottom of my vagina, I was told it wouldn't be enjoyable for the first couple of weeks but it wasn't anything that made me want to stop. My boyfriend finished, and that's when I felt the stinging when I was cleaning myself up, at the base of my vagina that red line was there again, but it stung like a b@tch!

Is this normal? It isn't an open cut, it didn't bleed it's more of a weird little stretch mark of that makes sense. Has anyone else experienced this who's had the surgery? Or even if you haven't.


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Re: is this normal after surgery? please comment.

Post  x_chelss@live.com on Wed Mar 25, 2015 2:51 pm

29 views and not one comment? Thanks guys


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Re: is this normal after surgery? please comment.

Post  January on Tue Apr 14, 2015 5:08 pm

Hey, I never had the surgery or anything but just wanted to check up and see if all is well now??


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Re: is this normal after surgery? please comment.

Post  x_chelss@live.com on Wed Apr 22, 2015 8:52 pm

Hi. Thanks for wanting to check up with me.

Everything is okay now, I still have some mild burning occasionally but nothing to major, I am now able to have sex. I thought I had lost lubrication but I haven't it just takes longer for me to be able to get wet. I find that a lot of for play before sex makes it a lot easier. ☺️ I do need to have the surgery again though, before I had a partial vestibulectomy but I now want the rest of my vestibule removed because I do still have some painful tissue around my urethra which makes passing wee slightly painful.

Message me if you have any questions x


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Re: is this normal after surgery? please comment.

Post  MensRea on Thu Apr 23, 2015 12:44 am

I have localised vulvodynia since 2006. However after a treatment [anti-fungal and steroid creams basically] that i had 3 years ago [and i paid £1200 only for two sessions!!] i developed pain around my urethra and i have the same problem as you, it is so painful to urinate! My condition, from provoked it became mixed [provoked and unprovoked, it is still localised though]. Also, before that, i was able to have pain free penetration when i was applying lidocaine, but now, during and after the application i am suffering for hours, and all because of those painful tissues i have around the urethra. Just wait to be healed completely and afterwards just try non-surgical options to get rid of that pain. If i find something that helps, i will let u know! Smile After i finish my uni's exams i'll do my best, now i am too busy to bother. Razz


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