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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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is this normal after surgery? please comment.

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is this normal after surgery? please comment.

Post  x_chelss@live.com on Mon Mar 23, 2015 11:36 am

I'm now 8 weeks post surgery, I was given the all clear to have sex again on the 13/03/15 I've only had sex twice since then. Once wasn't very enjoyable it was just to test the tissue and everything was fine but I did experience some little red lines at the base of my vagina where the skin was removed, they looked like little red bloody veins. Then last night, 22/03/15 I had sex again, this time was a lot faster and I managed to penetrate. It didn't hurt but I did feel right at the bottom of my vagina, I was told it wouldn't be enjoyable for the first couple of weeks but it wasn't anything that made me want to stop. My boyfriend finished, and that's when I felt the stinging when I was cleaning myself up, at the base of my vagina that red line was there again, but it stung like a b@tch!

Is this normal? It isn't an open cut, it didn't bleed it's more of a weird little stretch mark of that makes sense. Has anyone else experienced this who's had the surgery? Or even if you haven't.

x_chelss@live.com

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Re: is this normal after surgery? please comment.

Post  x_chelss@live.com on Wed Mar 25, 2015 2:51 pm

29 views and not one comment? Thanks guys

x_chelss@live.com

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Re: is this normal after surgery? please comment.

Post  January on Tue Apr 14, 2015 5:08 pm

Hey, I never had the surgery or anything but just wanted to check up and see if all is well now??

January

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Re: is this normal after surgery? please comment.

Post  x_chelss@live.com on Wed Apr 22, 2015 8:52 pm

Hi. Thanks for wanting to check up with me.

Everything is okay now, I still have some mild burning occasionally but nothing to major, I am now able to have sex. I thought I had lost lubrication but I haven't it just takes longer for me to be able to get wet. I find that a lot of for play before sex makes it a lot easier. ☺️ I do need to have the surgery again though, before I had a partial vestibulectomy but I now want the rest of my vestibule removed because I do still have some painful tissue around my urethra which makes passing wee slightly painful.

Message me if you have any questions x

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Re: is this normal after surgery? please comment.

Post  MensRea on Thu Apr 23, 2015 12:44 am

I have localised vulvodynia since 2006. However after a treatment [anti-fungal and steroid creams basically] that i had 3 years ago [and i paid £1200 only for two sessions!!] i developed pain around my urethra and i have the same problem as you, it is so painful to urinate! My condition, from provoked it became mixed [provoked and unprovoked, it is still localised though]. Also, before that, i was able to have pain free penetration when i was applying lidocaine, but now, during and after the application i am suffering for hours, and all because of those painful tissues i have around the urethra. Just wait to be healed completely and afterwards just try non-surgical options to get rid of that pain. If i find something that helps, i will let u know! Smile After i finish my uni's exams i'll do my best, now i am too busy to bother. Razz

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