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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Pregabalin/Lyrica advices please

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Pregabalin/Lyrica advices please

Post  Jo44 on Fri Mar 27, 2015 5:51 pm

I am on a roll of posting today. I would like to know does Pregabalin/Lyrica take a while to build up in your system, as I've been reading through old posts and saw one which said that it needs to build up in your system, like Amitriptyline etc. My Gynacologist said it can take 2-3months to get under control. The reason I'm asking this is that the past few days I have been suffering from really bad tiredness in the mornings, even though I've slept well, plus my mood has dropped, and I feel low and a bit anxious at times.

The only side effect I had was a little dizziness the following morning after I first took it. Surely the side effects wouldn't kick in this late would they, I've been on it just over six weeks now?

The other things is I've stopped my birth control pills too, so it could be a hormonal thing related to that I guess.

I'd appreciate some advice please?

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Re: Pregabalin/Lyrica advices please

Post  sailor_moon on Mon Apr 13, 2015 10:40 am

Hey there can I ask what your symptoms are? I've been taking Lyrica 150 for 3 weeks and it hasn't done much for me. Except yeah make me tired n dizzy in the morning. My symptoms are intense itching, burning and bad inflammation. Sad I also have a series of hormone problems.
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Pregabalin/Lyrica advice

Post  Jo44 on Mon Apr 13, 2015 1:56 pm

Hi

My initial symptoms when this all started before was intense burning, soreness and redness. I started the Amitriptilyne just before Xmas, and that helped with the burning, but I did have to keep upping the dose about every 10 days or so! By the time I saw my Gynacologist at the beginning of Feb, I only had soreness and redness and some discomfort from my urethra, oh and some pubic discomfort too! He put me on Pregabalin at 150mg once a day, which helped me sleep, as I'd had been having trouble for the past two years with sleep, it V related though! He also wanted me to wean off the Amitriptyline at 10mg per month. I was on 60mg and I've dropped to 30mg as of last night!

I don't have any itching at all, just very sore and red down there. I think the hormone issues were related to coming off the pill, so I went back on it, and am switching to the Mirena Coil, which is being fitted on Weds! I'm seeing my Gynacologist again on Friday, so will be interesting to see what he says then! He did threaten me with steroid injections into my vulvar area at our last meeting, so not too keen on that idea!

Take care hope the Pregabalin kicks in soon for you! Xx

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