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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Pregabalin/Lyrica advices please

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Pregabalin/Lyrica advices please

Post  Jo44 on Fri Mar 27, 2015 5:51 pm

I am on a roll of posting today. I would like to know does Pregabalin/Lyrica take a while to build up in your system, as I've been reading through old posts and saw one which said that it needs to build up in your system, like Amitriptyline etc. My Gynacologist said it can take 2-3months to get under control. The reason I'm asking this is that the past few days I have been suffering from really bad tiredness in the mornings, even though I've slept well, plus my mood has dropped, and I feel low and a bit anxious at times.

The only side effect I had was a little dizziness the following morning after I first took it. Surely the side effects wouldn't kick in this late would they, I've been on it just over six weeks now?

The other things is I've stopped my birth control pills too, so it could be a hormonal thing related to that I guess.

I'd appreciate some advice please?

Jo44

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Re: Pregabalin/Lyrica advices please

Post  sailor_moon on Mon Apr 13, 2015 10:40 am

Hey there can I ask what your symptoms are? I've been taking Lyrica 150 for 3 weeks and it hasn't done much for me. Except yeah make me tired n dizzy in the morning. My symptoms are intense itching, burning and bad inflammation. Sad I also have a series of hormone problems.
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sailor_moon

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Pregabalin/Lyrica advice

Post  Jo44 on Mon Apr 13, 2015 1:56 pm

Hi

My initial symptoms when this all started before was intense burning, soreness and redness. I started the Amitriptilyne just before Xmas, and that helped with the burning, but I did have to keep upping the dose about every 10 days or so! By the time I saw my Gynacologist at the beginning of Feb, I only had soreness and redness and some discomfort from my urethra, oh and some pubic discomfort too! He put me on Pregabalin at 150mg once a day, which helped me sleep, as I'd had been having trouble for the past two years with sleep, it V related though! He also wanted me to wean off the Amitriptyline at 10mg per month. I was on 60mg and I've dropped to 30mg as of last night!

I don't have any itching at all, just very sore and red down there. I think the hormone issues were related to coming off the pill, so I went back on it, and am switching to the Mirena Coil, which is being fitted on Weds! I'm seeing my Gynacologist again on Friday, so will be interesting to see what he says then! He did threaten me with steroid injections into my vulvar area at our last meeting, so not too keen on that idea!

Take care hope the Pregabalin kicks in soon for you! Xx

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Re: Pregabalin/Lyrica advices please

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