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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Not sure what's wrong with me, but....

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Not sure what's wrong with me, but....

Post  haybay on Tue Mar 31, 2015 8:15 am

I'm so glad to have found a group of women experiencing similar symptoms! My symptoms have been progressing for at least five years now. I'm 27 years old, and I'm finding that I'm becoming more and more insecure and depressed as a result of my symptoms, as well as the uncertainty of any diagnosis. Some suggestions have been made by three doctors, but no one has been able to "cure" me or provide me with any guidance to reduce my discomfort.

My case, like many others I've read, is not simply explained. There was no "start date" and old symptoms have manifested into new ones. However, I have noted some variances in my own experience that may or may not fall under the broad vuvlodynia umbrella.

I'm very interested to read more from the members of this forum so that I can be better prepared to choose my next doctor, and more equipped to ask and answer questions when I have my next opportunity.
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Re: Not sure what's wrong with me, but....

Post  x_chelss@live.com on Thu Apr 02, 2015 11:23 pm

You probably haven't found a 'cure' yet because there isn't really one that works for everyone. Most woman have to try a whole range of treatments before finding any relief. I tried 4 different treatments and then ended up having surgery (vestibulectomy). The surgery has definitely helped relieve some symptoms.
Good luck x

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Re: Not sure what's wrong with me, but....

Post  haybay on Fri Apr 03, 2015 2:26 am

What type of symptoms is the surgery intended to relieve?
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Re: Not sure what's wrong with me, but....

Post  sailor_moon on Fri Apr 03, 2015 10:32 am

I'd like to know the answer to the above question too^ the thought of having to have a vestibulectomy really really scares me....On what the area looks like afterwards appearance - wise. ..especially if the surgery is unsuccessful.
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Re: Not sure what's wrong with me, but....

Post  x_chelss@live.com on Fri Apr 03, 2015 3:08 pm

Before the surgery I had constant burning, stinging, like someone was pouring acid into my vagina. I couldn't have pain free sex, I couldnt sit normally or wear tight clothing. I couldn't walk for a very long time which made my job very difficult.
Now I've had the surgery all the symptoms above have vanished really I never have the burning from my vagina hole and sex is getting more and more easier and less painful. I can walk for long periods of times and I can sit normally again.

To the woman who asked about the appearance off the vagina after the surgery, it honestly doesn't look all that different if anything I prefer the way it looks now to the saying used to. They cut away my hymen and the tissue from inside my vagina cut down towards my anus (modified fenton) to make my vagina wider and injected Botox to stop my pelvic floor muscle from spazuming. I'm 9 weeks post op and I do still have red sore tissue from where the stitches were but it takes a year to fully heal from a vestibulectomy. My every day life is so much better than what it was, when I had the surgery I was warned it may not work and I'd loose lubrication, in my eyes it has worked im not 100% at the moment but I'm a lot better than what I was this time last year.
I have lost lubrication so without lube sex won't happen but I'd rather use lube than be in pain for the rest of my life. I only had a parcial vestibulectomy so only half off my vestibule was removed, if you have a full vestibulectomy the WHOLE of your vestibule is removed. I only have half off my labia minor lips as the bottom half was cut away so the tissue from the inside could be sown together.

It took me a year and a half and 4 doctors to finally get the surgery but it was by far the best decision for me, and even if it never worked I'd still do it again because the recovery wasn't that bad. I was back at work after 2 weeks and they told me I'd need 6 weeks off work! I still have irritation with urination and tenderness on my anterior vagina wall but I think that's related to my bladder and NOT vulvodynia.

Private message me if you have anymore questions x

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Re: Not sure what's wrong with me, but....

Post  haybay on Fri Apr 03, 2015 4:30 pm

Thank you for the quick, detailed and well explained response. I do not think my symptoms would benefit from any kind of surgery unless they took off my whole top layer of skin around my labia majora.
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Re: Not sure what's wrong with me, but....

Post  x_chelss@live.com on Sat Apr 04, 2015 9:14 am

A full vestibulectomy would remove the area you are talking about. The vestibulectomy I had only removed the painful tissue, I do still have some painful tissue but nothing compared to what I was experiencing before. And I'm hoping that it's just scar tissue which is causing discomfort x

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Re: Not sure what's wrong with me, but....

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