Vulvodynia Support
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» Hope to all my suffering ladies
New Member Here - I have VVS EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New Member Here - I have VVS EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New Member Here - I have VVS EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New Member Here - I have VVS EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New Member Here - I have VVS EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New Member Here - I have VVS EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New Member Here - I have VVS EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New Member Here - I have VVS EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New Member Here - I have VVS EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New Member Here - I have VVS

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New Member Here - I have VVS Empty New Member Here - I have VVS

Post  srslyskwrrly Fri Mar 27, 2015 1:59 am

Hey everyone,

I am so glad to find a supportive online forum for those of us with Vulvodynia! I was diagnosed with Vulvar Vestibulitis about 14 years ago and back then there just wasn't much information to be found about Vulvodynia issues. Today I am glad to see more medical research is being devoted to it and far more information is available online. Moreover, it is a comfort to now be able to access forums like this and see how we are absolutely not alone in our experiences. It's also fascinating to see how varying and personal the experiences are from person to person.

Anyway, as I mentioned above, I have lived with a diagnosis of VVS for 14 years (since i became sexually active) and I believe I have had it my whole life - likely from being born with neuronal proliferation (NP) or physical trauma suffered during an exploratory medical procedure at age 4 where doctors were attempting to figure out why I had chronic UTIs at the time. I will spare a super-long narrative about my experience here, but in short, it was a rough, confusing and humiliating road to diagnosis and eventually successful treatment (as I am sure it is/was for many women), but I ultimately found that, for me, taking 75 mg a day of the anti-depressant Desipramine is what has worked to take a big edge off the pain for these past many years. While I absolutely recommend people explore Desipramine as an option, I must advise (as I'm sure many of you already know) that anti-depressants don't always work for everyone and Desipramine comes with its own set of delightful side effects, with the most common and annoying being constipation and dry mouth. My other go-to is to always have lubricant readily available during sex. Of course, that is something people have to explore to find what brand or formula works for them, but I am happy to provide a recommendation for anyone who asks.

I have joined this forum today because, for a number of personal reasons, I am currently weaning myself off Desipramine and will need to find alternatives to manage the pain. I have explored the forum a bit and found some interesting leads that I will definitely follow up on. I look forward to finding more information and also to being available to offer up advice or support to anyone who asks for it.

Wishing everyone here the best on your journeys,

Srslyskwrrly

cat
srslyskwrrly
srslyskwrrly

Posts : 1
Join date : 2015-03-26
Age : 40
Location : CT

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