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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


When to ask for a referral to gyn (NHS)?

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When to ask for a referral to gyn (NHS)?

Post  Amy316 on Wed Apr 01, 2015 1:52 pm

Hi everyone,

I'm new... had vulva pain for 4 months now, started off mild now quite a lot worse. My GP has diagnosed me with 'nerve pain' so I don't actually have a vulvodynia diagnosis or anything specific but it sounds awfully like vulvodynia to me.

Anyway, I asked my GP for a referral to gynaecology and he said 'there's no point in reffering to gyn, you have nerve pain and they can't treat that'. Is this true?

My GP is planning to try to treat this with pregabalin or gabapentin or possibly some tricyclic antidepressents (I'm already on Lyrica, 200mg a day but still in pain). Should I push for a refferal or give the drugs a fair chance first?

Any advice appreciated very much Smile

Amy xx

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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Thu Apr 02, 2015 7:55 pm

Hi Amy.
That's completle rubbish, your doctor should of referred you to a gynocologist just for a second opinion! Even if he did only think it was 'nerve pain'.
I've had vulvodynia for three years, I got told I was paranoid and it was in my head, to get used to it there's nothing we can do, and also got told a number of times I had thrush. It was only the third gynocologist I seen at Solihull hospital that diagnosed me with vulvodynia. The NHS take there time with everything so I ended up paying to see a private gynocologist which is what a lot of women do on this forum because of the lack information the NHS actually provide on vulvodynia.

Even if you do just have 'nerve pain' there was still treatments you can have, so I don't understand why they were so reluctant to refer you. I'd definitely keep going back until the referred me to a specialist. Maybe try and see a different GP.

PM me if you have any questions x

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Re: When to ask for a referral to gyn (NHS)?

Post  Amy316 on Sun Apr 05, 2015 9:34 pm

Hi,

Thanks very much for your reply, it's so helpful to speak to someone with experience of this condition - I'm a bit lost! Smile

I think I will try a second GP... I'm a bit puzzled about what vulvodynia actually is... I mean, I thought vulvodynia was 'nerve pain' but nerve pain in the vulva and therefore relevant to gynaecologists...? Or is it something different to nerve pain?

I have elements of PGAD as well, it alternates between pain and annoying persistant arousal, but I've avoided telling the GP in case they think I'm just crazy and send me to a psychologist Sad

So frustrating too cos I know there is a specialist NHS vulval pain clinic in my city! Just wish they'd send me to it

xx

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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Sun Apr 05, 2015 9:40 pm

I would defenitley push on being referred because women suffer for years without having any help from the NHS don't let yourself be told there's nothing they can do because there is x

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Re: When to ask for a referral to gyn (NHS)?

Post  Redhead23 on Tue Apr 21, 2015 11:33 am

My doctor sent me straight to a gynecologist. It was the gynecologist that was useless. Said theres nothing he could do. Didn't even examine me. So I'm off back to my gp on Friday and gonna push for a referral to genitourinary clinic as I've heard of a doctor there who specialises in vulva pain conditions. I found out about her through the vulva pain site. Definitely worth checking out if the gynecologist route is useless x

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Re: When to ask for a referral to gyn (NHS)?

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