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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


When to ask for a referral to gyn (NHS)?

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When to ask for a referral to gyn (NHS)?

Post  Amy316 on Wed Apr 01, 2015 1:52 pm

Hi everyone,

I'm new... had vulva pain for 4 months now, started off mild now quite a lot worse. My GP has diagnosed me with 'nerve pain' so I don't actually have a vulvodynia diagnosis or anything specific but it sounds awfully like vulvodynia to me.

Anyway, I asked my GP for a referral to gynaecology and he said 'there's no point in reffering to gyn, you have nerve pain and they can't treat that'. Is this true?

My GP is planning to try to treat this with pregabalin or gabapentin or possibly some tricyclic antidepressents (I'm already on Lyrica, 200mg a day but still in pain). Should I push for a refferal or give the drugs a fair chance first?

Any advice appreciated very much Smile

Amy xx

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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Thu Apr 02, 2015 7:55 pm

Hi Amy.
That's completle rubbish, your doctor should of referred you to a gynocologist just for a second opinion! Even if he did only think it was 'nerve pain'.
I've had vulvodynia for three years, I got told I was paranoid and it was in my head, to get used to it there's nothing we can do, and also got told a number of times I had thrush. It was only the third gynocologist I seen at Solihull hospital that diagnosed me with vulvodynia. The NHS take there time with everything so I ended up paying to see a private gynocologist which is what a lot of women do on this forum because of the lack information the NHS actually provide on vulvodynia.

Even if you do just have 'nerve pain' there was still treatments you can have, so I don't understand why they were so reluctant to refer you. I'd definitely keep going back until the referred me to a specialist. Maybe try and see a different GP.

PM me if you have any questions x

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Re: When to ask for a referral to gyn (NHS)?

Post  Amy316 on Sun Apr 05, 2015 9:34 pm

Hi,

Thanks very much for your reply, it's so helpful to speak to someone with experience of this condition - I'm a bit lost! Smile

I think I will try a second GP... I'm a bit puzzled about what vulvodynia actually is... I mean, I thought vulvodynia was 'nerve pain' but nerve pain in the vulva and therefore relevant to gynaecologists...? Or is it something different to nerve pain?

I have elements of PGAD as well, it alternates between pain and annoying persistant arousal, but I've avoided telling the GP in case they think I'm just crazy and send me to a psychologist Sad

So frustrating too cos I know there is a specialist NHS vulval pain clinic in my city! Just wish they'd send me to it

xx

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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Sun Apr 05, 2015 9:40 pm

I would defenitley push on being referred because women suffer for years without having any help from the NHS don't let yourself be told there's nothing they can do because there is x

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Re: When to ask for a referral to gyn (NHS)?

Post  Redhead23 on Tue Apr 21, 2015 11:33 am

My doctor sent me straight to a gynecologist. It was the gynecologist that was useless. Said theres nothing he could do. Didn't even examine me. So I'm off back to my gp on Friday and gonna push for a referral to genitourinary clinic as I've heard of a doctor there who specialises in vulva pain conditions. I found out about her through the vulva pain site. Definitely worth checking out if the gynecologist route is useless x

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Re: When to ask for a referral to gyn (NHS)?

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