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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


When to ask for a referral to gyn (NHS)?

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When to ask for a referral to gyn (NHS)?

Post  Amy316 on Wed Apr 01, 2015 1:52 pm

Hi everyone,

I'm new... had vulva pain for 4 months now, started off mild now quite a lot worse. My GP has diagnosed me with 'nerve pain' so I don't actually have a vulvodynia diagnosis or anything specific but it sounds awfully like vulvodynia to me.

Anyway, I asked my GP for a referral to gynaecology and he said 'there's no point in reffering to gyn, you have nerve pain and they can't treat that'. Is this true?

My GP is planning to try to treat this with pregabalin or gabapentin or possibly some tricyclic antidepressents (I'm already on Lyrica, 200mg a day but still in pain). Should I push for a refferal or give the drugs a fair chance first?

Any advice appreciated very much Smile

Amy xx

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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Thu Apr 02, 2015 7:55 pm

Hi Amy.
That's completle rubbish, your doctor should of referred you to a gynocologist just for a second opinion! Even if he did only think it was 'nerve pain'.
I've had vulvodynia for three years, I got told I was paranoid and it was in my head, to get used to it there's nothing we can do, and also got told a number of times I had thrush. It was only the third gynocologist I seen at Solihull hospital that diagnosed me with vulvodynia. The NHS take there time with everything so I ended up paying to see a private gynocologist which is what a lot of women do on this forum because of the lack information the NHS actually provide on vulvodynia.

Even if you do just have 'nerve pain' there was still treatments you can have, so I don't understand why they were so reluctant to refer you. I'd definitely keep going back until the referred me to a specialist. Maybe try and see a different GP.

PM me if you have any questions x

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Re: When to ask for a referral to gyn (NHS)?

Post  Amy316 on Sun Apr 05, 2015 9:34 pm

Hi,

Thanks very much for your reply, it's so helpful to speak to someone with experience of this condition - I'm a bit lost! Smile

I think I will try a second GP... I'm a bit puzzled about what vulvodynia actually is... I mean, I thought vulvodynia was 'nerve pain' but nerve pain in the vulva and therefore relevant to gynaecologists...? Or is it something different to nerve pain?

I have elements of PGAD as well, it alternates between pain and annoying persistant arousal, but I've avoided telling the GP in case they think I'm just crazy and send me to a psychologist Sad

So frustrating too cos I know there is a specialist NHS vulval pain clinic in my city! Just wish they'd send me to it

xx

Amy316

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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Sun Apr 05, 2015 9:40 pm

I would defenitley push on being referred because women suffer for years without having any help from the NHS don't let yourself be told there's nothing they can do because there is x

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Re: When to ask for a referral to gyn (NHS)?

Post  Redhead23 on Tue Apr 21, 2015 11:33 am

My doctor sent me straight to a gynecologist. It was the gynecologist that was useless. Said theres nothing he could do. Didn't even examine me. So I'm off back to my gp on Friday and gonna push for a referral to genitourinary clinic as I've heard of a doctor there who specialises in vulva pain conditions. I found out about her through the vulva pain site. Definitely worth checking out if the gynecologist route is useless x

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Re: When to ask for a referral to gyn (NHS)?

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