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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

When to ask for a referral to gyn (NHS)?

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When to ask for a referral to gyn (NHS)?

Post  Amy316 on Wed Apr 01, 2015 1:52 pm

Hi everyone,

I'm new... had vulva pain for 4 months now, started off mild now quite a lot worse. My GP has diagnosed me with 'nerve pain' so I don't actually have a vulvodynia diagnosis or anything specific but it sounds awfully like vulvodynia to me.

Anyway, I asked my GP for a referral to gynaecology and he said 'there's no point in reffering to gyn, you have nerve pain and they can't treat that'. Is this true?

My GP is planning to try to treat this with pregabalin or gabapentin or possibly some tricyclic antidepressents (I'm already on Lyrica, 200mg a day but still in pain). Should I push for a refferal or give the drugs a fair chance first?

Any advice appreciated very much Smile

Amy xx


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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Thu Apr 02, 2015 7:55 pm

Hi Amy.
That's completle rubbish, your doctor should of referred you to a gynocologist just for a second opinion! Even if he did only think it was 'nerve pain'.
I've had vulvodynia for three years, I got told I was paranoid and it was in my head, to get used to it there's nothing we can do, and also got told a number of times I had thrush. It was only the third gynocologist I seen at Solihull hospital that diagnosed me with vulvodynia. The NHS take there time with everything so I ended up paying to see a private gynocologist which is what a lot of women do on this forum because of the lack information the NHS actually provide on vulvodynia.

Even if you do just have 'nerve pain' there was still treatments you can have, so I don't understand why they were so reluctant to refer you. I'd definitely keep going back until the referred me to a specialist. Maybe try and see a different GP.

PM me if you have any questions x


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Re: When to ask for a referral to gyn (NHS)?

Post  Amy316 on Sun Apr 05, 2015 9:34 pm


Thanks very much for your reply, it's so helpful to speak to someone with experience of this condition - I'm a bit lost! Smile

I think I will try a second GP... I'm a bit puzzled about what vulvodynia actually is... I mean, I thought vulvodynia was 'nerve pain' but nerve pain in the vulva and therefore relevant to gynaecologists...? Or is it something different to nerve pain?

I have elements of PGAD as well, it alternates between pain and annoying persistant arousal, but I've avoided telling the GP in case they think I'm just crazy and send me to a psychologist Sad

So frustrating too cos I know there is a specialist NHS vulval pain clinic in my city! Just wish they'd send me to it



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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Sun Apr 05, 2015 9:40 pm

I would defenitley push on being referred because women suffer for years without having any help from the NHS don't let yourself be told there's nothing they can do because there is x


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Re: When to ask for a referral to gyn (NHS)?

Post  Redhead23 on Tue Apr 21, 2015 11:33 am

My doctor sent me straight to a gynecologist. It was the gynecologist that was useless. Said theres nothing he could do. Didn't even examine me. So I'm off back to my gp on Friday and gonna push for a referral to genitourinary clinic as I've heard of a doctor there who specialises in vulva pain conditions. I found out about her through the vulva pain site. Definitely worth checking out if the gynecologist route is useless x


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Re: When to ask for a referral to gyn (NHS)?

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