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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


When to ask for a referral to gyn (NHS)?

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When to ask for a referral to gyn (NHS)?

Post  Amy316 on Wed Apr 01, 2015 1:52 pm

Hi everyone,

I'm new... had vulva pain for 4 months now, started off mild now quite a lot worse. My GP has diagnosed me with 'nerve pain' so I don't actually have a vulvodynia diagnosis or anything specific but it sounds awfully like vulvodynia to me.

Anyway, I asked my GP for a referral to gynaecology and he said 'there's no point in reffering to gyn, you have nerve pain and they can't treat that'. Is this true?

My GP is planning to try to treat this with pregabalin or gabapentin or possibly some tricyclic antidepressents (I'm already on Lyrica, 200mg a day but still in pain). Should I push for a refferal or give the drugs a fair chance first?

Any advice appreciated very much Smile

Amy xx

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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Thu Apr 02, 2015 7:55 pm

Hi Amy.
That's completle rubbish, your doctor should of referred you to a gynocologist just for a second opinion! Even if he did only think it was 'nerve pain'.
I've had vulvodynia for three years, I got told I was paranoid and it was in my head, to get used to it there's nothing we can do, and also got told a number of times I had thrush. It was only the third gynocologist I seen at Solihull hospital that diagnosed me with vulvodynia. The NHS take there time with everything so I ended up paying to see a private gynocologist which is what a lot of women do on this forum because of the lack information the NHS actually provide on vulvodynia.

Even if you do just have 'nerve pain' there was still treatments you can have, so I don't understand why they were so reluctant to refer you. I'd definitely keep going back until the referred me to a specialist. Maybe try and see a different GP.

PM me if you have any questions x

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Re: When to ask for a referral to gyn (NHS)?

Post  Amy316 on Sun Apr 05, 2015 9:34 pm

Hi,

Thanks very much for your reply, it's so helpful to speak to someone with experience of this condition - I'm a bit lost! Smile

I think I will try a second GP... I'm a bit puzzled about what vulvodynia actually is... I mean, I thought vulvodynia was 'nerve pain' but nerve pain in the vulva and therefore relevant to gynaecologists...? Or is it something different to nerve pain?

I have elements of PGAD as well, it alternates between pain and annoying persistant arousal, but I've avoided telling the GP in case they think I'm just crazy and send me to a psychologist Sad

So frustrating too cos I know there is a specialist NHS vulval pain clinic in my city! Just wish they'd send me to it

xx

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Re: When to ask for a referral to gyn (NHS)?

Post  x_chelss@live.com on Sun Apr 05, 2015 9:40 pm

I would defenitley push on being referred because women suffer for years without having any help from the NHS don't let yourself be told there's nothing they can do because there is x

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Re: When to ask for a referral to gyn (NHS)?

Post  Redhead23 on Tue Apr 21, 2015 11:33 am

My doctor sent me straight to a gynecologist. It was the gynecologist that was useless. Said theres nothing he could do. Didn't even examine me. So I'm off back to my gp on Friday and gonna push for a referral to genitourinary clinic as I've heard of a doctor there who specialises in vulva pain conditions. I found out about her through the vulva pain site. Definitely worth checking out if the gynecologist route is useless x

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Re: When to ask for a referral to gyn (NHS)?

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