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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Just diagnosed today: A bit about my case. Information about diagnosis appreciated.
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Just diagnosed today: A bit about my case. Information about diagnosis appreciated.
So 15 months ago I went to my gynocologist at the onset of my symptoms. After a few tests she ended up telling me that I had a bacterial infection and gave me some antibiotics. Now I have Cystic Fibrosis which is a genetic disease that is treated often with antibiotics so I have resistances to many of them. She put me on one that whether a placebo effect happened or what I don't know but I felt like I started to get a little better.
A week later my symptoms started to come back and I went back into my gyno again. She tried me on several different antibiotics, topical and oral. None of which seemed to work. Finally after months of trying different treatments with no success, she sent me to an infectious disease specialist to see if he could help. The infectious disease specialist tried a couple medications. None of course worked. He suggested I get a second opinion. This was 3-4 months ago. I started seeing a new gyno about 3 months ago and he had me try several topical steroids. Again none of them worked. He ended up sending me to a dermatologist.
The dermatologist did a few tests, ended up taking a biopsy of the skin. He said he thought it was vulvoddynia but he wanted to make sure. My iron level was low but not low enough for him to want to treat. The nerves were inlarged so he told me that it was vulvodynia. He gave me two topical treatments one was lidocain and another I haven't received in the mail yet so I am not sure what it is. I looked up on a few medical websites what it was but there was limited information out there. Can anyone tell me a bit more about it? I'll peruse some of the topics here but it is overwhelming and I don't even know where to start. I am glad that I finally got a diagnosis for this pain I have been having but I don't know much about this other than what my symptoms are.
Thanks for the support and any information you can give. <3
A week later my symptoms started to come back and I went back into my gyno again. She tried me on several different antibiotics, topical and oral. None of which seemed to work. Finally after months of trying different treatments with no success, she sent me to an infectious disease specialist to see if he could help. The infectious disease specialist tried a couple medications. None of course worked. He suggested I get a second opinion. This was 3-4 months ago. I started seeing a new gyno about 3 months ago and he had me try several topical steroids. Again none of them worked. He ended up sending me to a dermatologist.
The dermatologist did a few tests, ended up taking a biopsy of the skin. He said he thought it was vulvoddynia but he wanted to make sure. My iron level was low but not low enough for him to want to treat. The nerves were inlarged so he told me that it was vulvodynia. He gave me two topical treatments one was lidocain and another I haven't received in the mail yet so I am not sure what it is. I looked up on a few medical websites what it was but there was limited information out there. Can anyone tell me a bit more about it? I'll peruse some of the topics here but it is overwhelming and I don't even know where to start. I am glad that I finally got a diagnosis for this pain I have been having but I don't know much about this other than what my symptoms are.
Thanks for the support and any information you can give. <3
sweetstarfire- Posts : 4
Join date : 2015-07-02
Age : 35
Similar topics
» My experience with VVS. Insight would be truly appreciated!
» Diagnosed Today, Skeptical
» New, and a bit overwhelmed! Any advice would be appreciated
» Diagnosed Today, Skeptical
» New, and a bit overwhelmed! Any advice would be appreciated
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer