Vulvodynia Support
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» Hope to all my suffering ladies
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Just diagnosed today: A bit about my case. Information about diagnosis appreciated.

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Just diagnosed today: A bit about my case.  Information about diagnosis appreciated.  Empty Just diagnosed today: A bit about my case. Information about diagnosis appreciated.

Post  sweetstarfire Fri Jul 03, 2015 4:01 pm

So 15 months ago I went to my gynocologist at the onset of my symptoms.  After a few tests she ended up telling me that I had a bacterial infection and gave me some antibiotics.  Now I have Cystic Fibrosis which is a genetic disease that is treated often with antibiotics so I have resistances to many of them.  She put me on one that whether a placebo effect happened or what I don't know but I felt like I started to get a little better.  

A week later my symptoms started to come back and I went back into my gyno again.  She tried me on several different antibiotics, topical and oral.  None of which seemed to work.  Finally after months of trying different treatments with no success, she sent me to an infectious disease specialist to see if he could help.  The infectious disease specialist tried a couple medications.  None of course worked.  He suggested I get a second opinion.  This was 3-4 months ago.  I started seeing a new gyno about 3 months ago and he had me try several topical steroids.  Again none of them worked.  He ended up sending me to a dermatologist.  

The dermatologist did a few tests, ended up taking a biopsy of the skin.  He said he thought it was vulvoddynia but he wanted to make sure. My iron level was low but not low enough for him to want to treat.  The nerves were inlarged so he told me that it was vulvodynia. He gave me two topical treatments one was lidocain and another I haven't received in the mail yet so I am not sure what it is.  I looked up on a few medical websites what it was but there was limited information out there.  Can anyone tell me a bit more about it?  I'll peruse some of the topics here but it is overwhelming and I don't even know where to start.  I am glad that I finally got a diagnosis for this pain I have been having but I don't know much about this other than what my symptoms are.  

Thanks for the support and any information you can give. <3
sweetstarfire
sweetstarfire

Posts : 4
Join date : 2015-07-02
Age : 35

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