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    » Can you guys tell me your experiences with diflucan/Fluconazole?
    Yesterday at 1:29 am by ryn207

    » So frustrating!!
    Yesterday at 1:25 am by ryn207

    » Looking for suggestions or encouragement
    Yesterday at 1:19 am by ryn207

    » Looking for a friend..... and new problems
    Mon Jan 15, 2018 10:00 pm by VVSSufferer

    » Vestibulectomy recovery question!
    Sun Jan 14, 2018 11:37 pm by Kezz

    » Prescription creams that work!
    Sun Jan 14, 2018 4:46 am by Mintaherb

    » Struggling
    Sun Jan 14, 2018 4:29 am by Mintaherb

    » Went Away and Came Back
    Sat Jan 13, 2018 10:56 am by mary jane

    » Amitriptyline given for vulvodyina pain
    Sat Jan 13, 2018 1:39 am by ryn207

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 5

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 7

    Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

    Sun Jan 07, 2018 9:38 am by sophiarp

    Hi everyone,

    I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

    I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

    Comments: 2

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1


    Diagnosing Vulvodynia

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    Diagnosing Vulvodynia

    Post  amh521 on Thu Apr 09, 2015 12:06 am

    Does anyone know if it's possible to definitively diagnose vulvodynia? From what I have read, it seems like doctors arrive on vulvodynia when tests for all other infections/skin diseases come back negative. I have yet to be diagnosed, but after all the research I've done, I firmly believe this is what it is.

    After 7 months of stinging and itching, I had a vulvar biopsy last week. It hurt a LOT and a week later, I am 99% recovered. I'm also on my second week of a low dose antidepressant, but I haven't seen a real improvement yet. My doctor says I'll probably get the biopsy test results back in another week, but I still don't really know what those results could possibly say. I would love to just get this diagnosis, because I've read that getting diagnosed with vulvodynia can be half the battle.

    I am at a total loss. I definitely have moments where I feel like this is just what my life is going to be like. I'm sure a lot of people feel this way - you're just tired of thinking and talking about your vagina! A year ago, I never gave my vagina any thought, and now I think about it nonstop, every day.

    Thanks for any help anyone can offer.

    amh521

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    Re: Diagnosing Vulvodynia

    Post  jen007 on Tue Apr 14, 2015 7:32 pm

    Hi amh521,

    I was diagnosed around 2012 by a vulvodynia specialist. There is no sure fire way to diagnose vulvodynia. You can't take a test that will definitively say you have vulvodynia. It's when you've tried it all and nothing seems to work pretty much. I had gone thru quite a few doctors before anyone could give me an answer. I had to do most of the research myself because no one really knew what to do with me. This is because vulvodynia is not a widely known disorder even though many women suffer with it. Also, it depends on where you are from. I think being is the U.S it's a little easier to find a specialist. I've read about a lot of women in other countries who struggle to find the proper care.

    I never had a biopsy or anything like that. I had done every swab test imaginable and blood tests with no results accept for chronic yeast infections - some how tied to my vulvodynia. Every woman is different. Different things work for different people/ bodies. Some women use medications that actually help them, some use homeopathic remedies that help and others, like myself, have surgery - aka a vestibulectomy.

    Sometimes it feels like you're stuck in a maze. Vulvodynia is a confusing disorder. No one knows exactly why it happens to people or 100% what causes it. One day, hopefully, there will be better treatments for it. As for now we all have to find what works for us. I was once where you were, constantly thinking why and how. At one point I just had to stop thinking and start doing. I did all the research I could and found the proper support system. This site really helped me thru those dark times.

    I hope this was helpful!

    -Jen

    jen007

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    Location : U.S.A

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