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    » Looking to meet up in LA/OC CA
    Yesterday at 3:43 am by crypticcalico

    » Vulvadynia
    Mon Jul 24, 2017 11:35 pm by Linda Williams

    » Just Diagnosed with Vulvadynia
    Mon Jul 24, 2017 1:57 am by angelique2016

    » Constant pain, I want to die.
    Sat Jul 22, 2017 9:41 pm by Meggiemay

    » What is Vulvodynia?
    Sat Jul 22, 2017 9:21 pm by mary jane

    » Will I ever be able to wear jeans?
    Wed Jul 19, 2017 11:02 pm by jungleclover

    » Looking for a friend IRL; LA/OC
    Wed Jul 19, 2017 10:58 pm by jungleclover

    » Anyone else get this from yeast infections? (new member)
    Wed Jul 19, 2017 10:37 pm by jungleclover

    » Owner of vulvodyniSuppoet.com
    Wed Jul 19, 2017 10:28 pm by LaurenVV

    Vulvadynia

    Fri Jul 21, 2017 11:53 pm by Linda Williams

    I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

    Comments: 4

    Just Diagnosed with Vulvadynia

    Tue Aug 02, 2016 9:11 pm by CherryTree23

    Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

    Comments: 7

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 21

    Looking for a friend IRL; LA/OC

    Tue Jul 18, 2017 2:51 am by crypticcalico

    Hello!

    I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

    Comments: 1

    Owner of vulvodyniSuppoet.com

    Wed Jul 19, 2017 10:28 pm by LaurenVV

    Hi, I started vulvodyniasupport.com at the age of 28.
    I was a leader when there was no help, no forums etc.

    As I went on my path, I found acupuncture, herbs and time helped me recover.
    Most never do.

    I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

    I have moved on from the support world and found a career that allowed
    Me to bring my …

    Comments: 0

    anyone from southern california in here?

    Tue Jul 12, 2011 6:43 pm by Melissa777

    Hi Im just wondering if anyone here is from so cal- USA
    I am in san diego- but from LA!!!

    Comments: 6

    Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

    Tue Jul 04, 2017 9:01 am by Tired89

    Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

    Comments: 2

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 1

    New member

    Sat Mar 18, 2017 7:37 pm by Lisa1627

    Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

    Comments: 12


    Diagnosing Vulvodynia

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    Diagnosing Vulvodynia

    Post  amh521 on Thu Apr 09, 2015 12:06 am

    Does anyone know if it's possible to definitively diagnose vulvodynia? From what I have read, it seems like doctors arrive on vulvodynia when tests for all other infections/skin diseases come back negative. I have yet to be diagnosed, but after all the research I've done, I firmly believe this is what it is.

    After 7 months of stinging and itching, I had a vulvar biopsy last week. It hurt a LOT and a week later, I am 99% recovered. I'm also on my second week of a low dose antidepressant, but I haven't seen a real improvement yet. My doctor says I'll probably get the biopsy test results back in another week, but I still don't really know what those results could possibly say. I would love to just get this diagnosis, because I've read that getting diagnosed with vulvodynia can be half the battle.

    I am at a total loss. I definitely have moments where I feel like this is just what my life is going to be like. I'm sure a lot of people feel this way - you're just tired of thinking and talking about your vagina! A year ago, I never gave my vagina any thought, and now I think about it nonstop, every day.

    Thanks for any help anyone can offer.

    amh521

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    Re: Diagnosing Vulvodynia

    Post  jen007 on Tue Apr 14, 2015 7:32 pm

    Hi amh521,

    I was diagnosed around 2012 by a vulvodynia specialist. There is no sure fire way to diagnose vulvodynia. You can't take a test that will definitively say you have vulvodynia. It's when you've tried it all and nothing seems to work pretty much. I had gone thru quite a few doctors before anyone could give me an answer. I had to do most of the research myself because no one really knew what to do with me. This is because vulvodynia is not a widely known disorder even though many women suffer with it. Also, it depends on where you are from. I think being is the U.S it's a little easier to find a specialist. I've read about a lot of women in other countries who struggle to find the proper care.

    I never had a biopsy or anything like that. I had done every swab test imaginable and blood tests with no results accept for chronic yeast infections - some how tied to my vulvodynia. Every woman is different. Different things work for different people/ bodies. Some women use medications that actually help them, some use homeopathic remedies that help and others, like myself, have surgery - aka a vestibulectomy.

    Sometimes it feels like you're stuck in a maze. Vulvodynia is a confusing disorder. No one knows exactly why it happens to people or 100% what causes it. One day, hopefully, there will be better treatments for it. As for now we all have to find what works for us. I was once where you were, constantly thinking why and how. At one point I just had to stop thinking and start doing. I did all the research I could and found the proper support system. This site really helped me thru those dark times.

    I hope this was helpful!

    -Jen

    jen007

    Posts : 151
    Join date : 2012-11-05
    Age : 24
    Location : U.S.A

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