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    » Vestibulectomy today and no pain
    Today at 3:28 pm by Dsrt16

    » vestibulectomy success
    Yesterday at 12:41 am by Hopeitworks

    » MY STORY & Vestibulectomy 2/8/17
    Yesterday at 12:06 am by Jgreen81

    » Pain aftee vestibulectimy
    Yesterday at 12:03 am by Jgreen81

    » Freaking out because I don't think surgery worked HELP!!!!
    Yesterday at 12:01 am by Jgreen81

    » Vulvodynia help
    Wed Nov 15, 2017 1:04 pm by ekaterina1996

    » FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
    Tue Nov 14, 2017 9:53 pm by Dsrt16

    » Needing some reassurance
    Sun Nov 12, 2017 3:04 pm by Nicmay

    » Vulvodynia burning mouth and bladder discomfort
    Fri Nov 10, 2017 7:26 pm by Zbrown

    Vulvodynia help

    Tue Nov 14, 2017 4:27 pm by Katiej

    Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

    Comments: 3

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 0

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7


    Diagnosing Vulvodynia

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    Diagnosing Vulvodynia

    Post  amh521 on Thu Apr 09, 2015 12:06 am

    Does anyone know if it's possible to definitively diagnose vulvodynia? From what I have read, it seems like doctors arrive on vulvodynia when tests for all other infections/skin diseases come back negative. I have yet to be diagnosed, but after all the research I've done, I firmly believe this is what it is.

    After 7 months of stinging and itching, I had a vulvar biopsy last week. It hurt a LOT and a week later, I am 99% recovered. I'm also on my second week of a low dose antidepressant, but I haven't seen a real improvement yet. My doctor says I'll probably get the biopsy test results back in another week, but I still don't really know what those results could possibly say. I would love to just get this diagnosis, because I've read that getting diagnosed with vulvodynia can be half the battle.

    I am at a total loss. I definitely have moments where I feel like this is just what my life is going to be like. I'm sure a lot of people feel this way - you're just tired of thinking and talking about your vagina! A year ago, I never gave my vagina any thought, and now I think about it nonstop, every day.

    Thanks for any help anyone can offer.

    amh521

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    Re: Diagnosing Vulvodynia

    Post  jen007 on Tue Apr 14, 2015 7:32 pm

    Hi amh521,

    I was diagnosed around 2012 by a vulvodynia specialist. There is no sure fire way to diagnose vulvodynia. You can't take a test that will definitively say you have vulvodynia. It's when you've tried it all and nothing seems to work pretty much. I had gone thru quite a few doctors before anyone could give me an answer. I had to do most of the research myself because no one really knew what to do with me. This is because vulvodynia is not a widely known disorder even though many women suffer with it. Also, it depends on where you are from. I think being is the U.S it's a little easier to find a specialist. I've read about a lot of women in other countries who struggle to find the proper care.

    I never had a biopsy or anything like that. I had done every swab test imaginable and blood tests with no results accept for chronic yeast infections - some how tied to my vulvodynia. Every woman is different. Different things work for different people/ bodies. Some women use medications that actually help them, some use homeopathic remedies that help and others, like myself, have surgery - aka a vestibulectomy.

    Sometimes it feels like you're stuck in a maze. Vulvodynia is a confusing disorder. No one knows exactly why it happens to people or 100% what causes it. One day, hopefully, there will be better treatments for it. As for now we all have to find what works for us. I was once where you were, constantly thinking why and how. At one point I just had to stop thinking and start doing. I did all the research I could and found the proper support system. This site really helped me thru those dark times.

    I hope this was helpful!

    -Jen

    jen007

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    Age : 25
    Location : U.S.A

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