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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Severe pain after sitting??

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Severe pain after sitting??

Post  shope610 on Thu Apr 16, 2015 2:36 pm

Hello I have not been officially diagnosed but I have an appt with a specialist in August. Does anyone have pain and rawness after sitting for long or short periods of time? I cannot wear underwear and I have to sit on a donut at work and in the car. I cannot tell my boss or co workers what the real problem is so I told them that I hurt my tail bone. I have tried Premarin cream, evening primrose oil, steroid creams and sitz baths with little or no relief. I just joined this site so I am still reading about things that others have tried. Any suggestions would be great!!

shope610

Posts : 3
Join date : 2015-04-10
Age : 44
Location : Michigan

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amitriptyline worked for me

Post  Karen8 on Mon May 04, 2015 12:57 pm

That seems an awefully long time to wait for an appointment. When my vulvodynia was diagnosis in November 2013 I was prescribed 10mg Amitriptyline a day and within just a few days the pain was getting less. As I was still getting some discomfort the following February the dose was increased to 20mg a day to be taken before going to bed as it can make you drowsy.Since then I have hardly had any pain and am able to fully enjoy life.
Before I got my diagnosis I was surprised to find that paracetamol worked quite well.I was taking the full 8 paracetamol per 24 hours and was always looking forward to my next dose but at least I could have a more normal life. Once I got the amitriptyline I stopped taking paracetamole withinin a week. I think amitriptyline is quite cheap for the doctor to prescribe.

Karen8

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Location : Woodbridge, Suffolk

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Re: Severe pain after sitting??

Post  shope610 on Tue May 05, 2015 8:13 pm

Thank you Karen I actually just got a script for that. I have not picked it up yet but I am hopeful. Thank you for the info!!

shope610

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Age : 44
Location : Michigan

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Re: Severe pain after sitting??

Post  mikan92 on Thu May 07, 2015 10:57 am

Hi!

Do you recall how this started? and which areas are affected?
I think you should try the natural remedies before jumping to medications if possible, which is what I am currently doing Smile

mikan92

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Re: Severe pain after sitting??

Post  toosore on Thu May 07, 2015 7:59 pm

My symptoms were like yours - big trouble sitting. It's so embarrassing at work - I know what you are going through. I had my coworkers giving me so much advice about back pain, nonstop, that I finally broke down and said it's not my back! My immediate colleagues were all women, but it was still embarrassing. They finally shut about it when they figured out where my pain was!

Anyhow, I had to have extensive physiotherapy (19 sessions), and I follow a low oxalate diet. I hope you get some relief soon.

toosore

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Location : Vancouver

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Re: Severe pain after sitting??

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