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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Severe pain after sitting??

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Severe pain after sitting??

Post  shope610 on Thu Apr 16, 2015 2:36 pm

Hello I have not been officially diagnosed but I have an appt with a specialist in August. Does anyone have pain and rawness after sitting for long or short periods of time? I cannot wear underwear and I have to sit on a donut at work and in the car. I cannot tell my boss or co workers what the real problem is so I told them that I hurt my tail bone. I have tried Premarin cream, evening primrose oil, steroid creams and sitz baths with little or no relief. I just joined this site so I am still reading about things that others have tried. Any suggestions would be great!!

shope610

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Age : 43
Location : Michigan

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amitriptyline worked for me

Post  Karen8 on Mon May 04, 2015 12:57 pm

That seems an awefully long time to wait for an appointment. When my vulvodynia was diagnosis in November 2013 I was prescribed 10mg Amitriptyline a day and within just a few days the pain was getting less. As I was still getting some discomfort the following February the dose was increased to 20mg a day to be taken before going to bed as it can make you drowsy.Since then I have hardly had any pain and am able to fully enjoy life.
Before I got my diagnosis I was surprised to find that paracetamol worked quite well.I was taking the full 8 paracetamol per 24 hours and was always looking forward to my next dose but at least I could have a more normal life. Once I got the amitriptyline I stopped taking paracetamole withinin a week. I think amitriptyline is quite cheap for the doctor to prescribe.

Karen8

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Re: Severe pain after sitting??

Post  shope610 on Tue May 05, 2015 8:13 pm

Thank you Karen I actually just got a script for that. I have not picked it up yet but I am hopeful. Thank you for the info!!

shope610

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Age : 43
Location : Michigan

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Re: Severe pain after sitting??

Post  mikan92 on Thu May 07, 2015 10:57 am

Hi!

Do you recall how this started? and which areas are affected?
I think you should try the natural remedies before jumping to medications if possible, which is what I am currently doing Smile

mikan92

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Re: Severe pain after sitting??

Post  toosore on Thu May 07, 2015 7:59 pm

My symptoms were like yours - big trouble sitting. It's so embarrassing at work - I know what you are going through. I had my coworkers giving me so much advice about back pain, nonstop, that I finally broke down and said it's not my back! My immediate colleagues were all women, but it was still embarrassing. They finally shut about it when they figured out where my pain was!

Anyhow, I had to have extensive physiotherapy (19 sessions), and I follow a low oxalate diet. I hope you get some relief soon.

toosore

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Re: Severe pain after sitting??

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