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» Anyone have pain with urination?
Yesterday at 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

» Dose HAVING VULVODYNIA MEANS YOU HAVE LUPUS?? HELP IM FREAKING OUT!
Wed Oct 10, 2018 2:01 pm by pussycat

» From a concerned husband
Wed Oct 10, 2018 1:46 pm by shope610

» Had this for 5 years, looking for people who understand
Wed Oct 10, 2018 1:55 am by Npage14

» 6 year sufferer but I’ve found some hope
Wed Oct 10, 2018 1:33 am by Npage14

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Severe pain after sitting??

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Severe pain after sitting??

Post  shope610 on Thu Apr 16, 2015 2:36 pm

Hello I have not been officially diagnosed but I have an appt with a specialist in August. Does anyone have pain and rawness after sitting for long or short periods of time? I cannot wear underwear and I have to sit on a donut at work and in the car. I cannot tell my boss or co workers what the real problem is so I told them that I hurt my tail bone. I have tried Premarin cream, evening primrose oil, steroid creams and sitz baths with little or no relief. I just joined this site so I am still reading about things that others have tried. Any suggestions would be great!!

shope610

Posts : 3
Join date : 2015-04-10
Age : 44
Location : Michigan

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amitriptyline worked for me

Post  Karen8 on Mon May 04, 2015 12:57 pm

That seems an awefully long time to wait for an appointment. When my vulvodynia was diagnosis in November 2013 I was prescribed 10mg Amitriptyline a day and within just a few days the pain was getting less. As I was still getting some discomfort the following February the dose was increased to 20mg a day to be taken before going to bed as it can make you drowsy.Since then I have hardly had any pain and am able to fully enjoy life.
Before I got my diagnosis I was surprised to find that paracetamol worked quite well.I was taking the full 8 paracetamol per 24 hours and was always looking forward to my next dose but at least I could have a more normal life. Once I got the amitriptyline I stopped taking paracetamole withinin a week. I think amitriptyline is quite cheap for the doctor to prescribe.

Karen8

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Join date : 2014-02-18
Location : Woodbridge, Suffolk

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Re: Severe pain after sitting??

Post  shope610 on Tue May 05, 2015 8:13 pm

Thank you Karen I actually just got a script for that. I have not picked it up yet but I am hopeful. Thank you for the info!!

shope610

Posts : 3
Join date : 2015-04-10
Age : 44
Location : Michigan

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Re: Severe pain after sitting??

Post  mikan92 on Thu May 07, 2015 10:57 am

Hi!

Do you recall how this started? and which areas are affected?
I think you should try the natural remedies before jumping to medications if possible, which is what I am currently doing Smile

mikan92

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Join date : 2015-04-22

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Re: Severe pain after sitting??

Post  toosore on Thu May 07, 2015 7:59 pm

My symptoms were like yours - big trouble sitting. It's so embarrassing at work - I know what you are going through. I had my coworkers giving me so much advice about back pain, nonstop, that I finally broke down and said it's not my back! My immediate colleagues were all women, but it was still embarrassing. They finally shut about it when they figured out where my pain was!

Anyhow, I had to have extensive physiotherapy (19 sessions), and I follow a low oxalate diet. I hope you get some relief soon.

toosore

Posts : 18
Join date : 2012-06-18
Location : Vancouver

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Re: Severe pain after sitting??

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