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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Severe pain after sitting??

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Severe pain after sitting??

Post  shope610 on Thu Apr 16, 2015 2:36 pm

Hello I have not been officially diagnosed but I have an appt with a specialist in August. Does anyone have pain and rawness after sitting for long or short periods of time? I cannot wear underwear and I have to sit on a donut at work and in the car. I cannot tell my boss or co workers what the real problem is so I told them that I hurt my tail bone. I have tried Premarin cream, evening primrose oil, steroid creams and sitz baths with little or no relief. I just joined this site so I am still reading about things that others have tried. Any suggestions would be great!!

shope610

Posts : 2
Join date : 2015-04-10
Age : 42
Location : Michigan

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amitriptyline worked for me

Post  Karen8 on Mon May 04, 2015 12:57 pm

That seems an awefully long time to wait for an appointment. When my vulvodynia was diagnosis in November 2013 I was prescribed 10mg Amitriptyline a day and within just a few days the pain was getting less. As I was still getting some discomfort the following February the dose was increased to 20mg a day to be taken before going to bed as it can make you drowsy.Since then I have hardly had any pain and am able to fully enjoy life.
Before I got my diagnosis I was surprised to find that paracetamol worked quite well.I was taking the full 8 paracetamol per 24 hours and was always looking forward to my next dose but at least I could have a more normal life. Once I got the amitriptyline I stopped taking paracetamole withinin a week. I think amitriptyline is quite cheap for the doctor to prescribe.

Karen8

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Location : Woodbridge, Suffolk

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Re: Severe pain after sitting??

Post  shope610 on Tue May 05, 2015 8:13 pm

Thank you Karen I actually just got a script for that. I have not picked it up yet but I am hopeful. Thank you for the info!!

shope610

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Age : 42
Location : Michigan

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Re: Severe pain after sitting??

Post  mikan92 on Thu May 07, 2015 10:57 am

Hi!

Do you recall how this started? and which areas are affected?
I think you should try the natural remedies before jumping to medications if possible, which is what I am currently doing Smile

mikan92

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Re: Severe pain after sitting??

Post  toosore on Thu May 07, 2015 7:59 pm

My symptoms were like yours - big trouble sitting. It's so embarrassing at work - I know what you are going through. I had my coworkers giving me so much advice about back pain, nonstop, that I finally broke down and said it's not my back! My immediate colleagues were all women, but it was still embarrassing. They finally shut about it when they figured out where my pain was!

Anyhow, I had to have extensive physiotherapy (19 sessions), and I follow a low oxalate diet. I hope you get some relief soon.

toosore

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Location : Vancouver

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Re: Severe pain after sitting??

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