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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 6

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


My experience

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My experience

Post  rosechar on Thu Apr 16, 2015 8:46 pm

Hello all,

I have been debating joining a forum like this one for a while, but the thought of discovering hardly any cases of recovery scared me a bit. I've been suffering with vulvodynia since the age of about 13/14, I am now 18 and it is still as chronic as it has always been. I wasn't diagnosed until after several hospital, doctors and clinic appointments. It gave me some relief knowing that the pain I felt had a name, but I still had to live with it. My pain is present all the time, although it is at its worst when I have flare ups.

I've tried various creams and natural remedies such as E45, Vagisil, Canesten, Aqueous cream, coconut oil, Vaseline, aloe vera and many vitamins to try and boost my immune system but none have helped me on a permanent basis. I also took Amitriptyline for a while and that didn't help a lot either and it wiped me out.

Any other easily accessible treatment method ideas I could try would be very much appreciated. I'll take anything I can get at this point as it is getting in the way of every day life.

-Char Smile

rosechar

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Join date : 2015-04-16

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Re: My experience

Post  x_chelss@live.com on Sat Apr 18, 2015 4:51 pm

Hiya, there's a lower dose of medication you could take called Nortriptyline it helped for me for around six months and eased my pain a little. You could also try lidocaine or instillagel. The gel numbs the area for a slight while to give you a resting period of relief

x_chelss@live.com

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Re: My experience

Post  mrs.optimistic on Thu May 14, 2015 6:42 pm

My doctor has me taking a probiotic to promote vaginal health. I'm using estrogen cream at night. I tried creams for fungal/skin infections and it just about killed me. Honestly the only thing that helps is warm baths and ice packs. And of coarse ibuprofen for swelling. I've had vulvar vestibulitis/vulvodynia since I was 17 and I am now turning 21 so I feel your pain. I'm here if you need anything xo

mrs.optimistic

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Re: My experience

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