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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


My experience

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My experience

Post  rosechar on Thu Apr 16, 2015 8:46 pm

Hello all,

I have been debating joining a forum like this one for a while, but the thought of discovering hardly any cases of recovery scared me a bit. I've been suffering with vulvodynia since the age of about 13/14, I am now 18 and it is still as chronic as it has always been. I wasn't diagnosed until after several hospital, doctors and clinic appointments. It gave me some relief knowing that the pain I felt had a name, but I still had to live with it. My pain is present all the time, although it is at its worst when I have flare ups.

I've tried various creams and natural remedies such as E45, Vagisil, Canesten, Aqueous cream, coconut oil, Vaseline, aloe vera and many vitamins to try and boost my immune system but none have helped me on a permanent basis. I also took Amitriptyline for a while and that didn't help a lot either and it wiped me out.

Any other easily accessible treatment method ideas I could try would be very much appreciated. I'll take anything I can get at this point as it is getting in the way of every day life.

-Char Smile

rosechar

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Re: My experience

Post  x_chelss@live.com on Sat Apr 18, 2015 4:51 pm

Hiya, there's a lower dose of medication you could take called Nortriptyline it helped for me for around six months and eased my pain a little. You could also try lidocaine or instillagel. The gel numbs the area for a slight while to give you a resting period of relief

x_chelss@live.com

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Re: My experience

Post  mrs.optimistic on Thu May 14, 2015 6:42 pm

My doctor has me taking a probiotic to promote vaginal health. I'm using estrogen cream at night. I tried creams for fungal/skin infections and it just about killed me. Honestly the only thing that helps is warm baths and ice packs. And of coarse ibuprofen for swelling. I've had vulvar vestibulitis/vulvodynia since I was 17 and I am now turning 21 so I feel your pain. I'm here if you need anything xo

mrs.optimistic

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Re: My experience

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