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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


My experience

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My experience

Post  rosechar on Thu Apr 16, 2015 8:46 pm

Hello all,

I have been debating joining a forum like this one for a while, but the thought of discovering hardly any cases of recovery scared me a bit. I've been suffering with vulvodynia since the age of about 13/14, I am now 18 and it is still as chronic as it has always been. I wasn't diagnosed until after several hospital, doctors and clinic appointments. It gave me some relief knowing that the pain I felt had a name, but I still had to live with it. My pain is present all the time, although it is at its worst when I have flare ups.

I've tried various creams and natural remedies such as E45, Vagisil, Canesten, Aqueous cream, coconut oil, Vaseline, aloe vera and many vitamins to try and boost my immune system but none have helped me on a permanent basis. I also took Amitriptyline for a while and that didn't help a lot either and it wiped me out.

Any other easily accessible treatment method ideas I could try would be very much appreciated. I'll take anything I can get at this point as it is getting in the way of every day life.

-Char Smile

rosechar

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Re: My experience

Post  x_chelss@live.com on Sat Apr 18, 2015 4:51 pm

Hiya, there's a lower dose of medication you could take called Nortriptyline it helped for me for around six months and eased my pain a little. You could also try lidocaine or instillagel. The gel numbs the area for a slight while to give you a resting period of relief

x_chelss@live.com

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Re: My experience

Post  mrs.optimistic on Thu May 14, 2015 6:42 pm

My doctor has me taking a probiotic to promote vaginal health. I'm using estrogen cream at night. I tried creams for fungal/skin infections and it just about killed me. Honestly the only thing that helps is warm baths and ice packs. And of coarse ibuprofen for swelling. I've had vulvar vestibulitis/vulvodynia since I was 17 and I am now turning 21 so I feel your pain. I'm here if you need anything xo

mrs.optimistic

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Re: My experience

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