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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Alternatives to intercourse?

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Alternatives to intercourse?

Post  geog272 on Wed Apr 22, 2015 1:15 am

I have DIV, vaginismus, and mild vulvodynia. Intercourse is always painful to some degree. Sometimes it is tolerable, sometimes not, occasionally it is actually pleasurable but overall I dread sex and hate it. Can anyone give me some ideas for other things that you are able to do with your DH to keep him happy? I have given so many BJs in the past five years that I am starting to find them repulsive. I am also the sleep deprived mother of a one year old who still doesn't sleep through the night and I am just so tired. I am feeling like sex and anything close to it requires an emotional energy reserve I no longer have. I wish that sex didn't exist! No

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Re: Alternatives to intercourse?

Post  toosore on Thu May 07, 2015 8:37 pm

I totally understand your situation!  I too am so sick of BJs!  I didn't mind doing them before, as part of foreplay, briefly for fun, but when it's the whole meal deal, yuck!  Anyhow, the only other option I know of is a really good hand job.  I found this tip on the tv show Sex Tips of Girls.  You need lots of lube to make it work, and you use both hands.  You probably need to be sitting up, facing him.  So, grasp his member with both hands, one hand above the other, and twist your hands in opposite directions (kind of like wringing out a cloth - except more gently (or not!)).  While twisting, move your hands up and down.  Again, lots of lube.  My hubby loves this!  He actually asks for it, and enjoys the change from BJ, too.  Keep a towel handy, as it gets messy. I hope you can follow this explanation, as it's kind of hard to describe without pictures!  Best of luck!

PS:  I was unable to have intercourse for five years.  Sometimes my hubby will handle himself while I kiss his neck and cuddle with him.

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Re: Alternatives to intercourse?

Post  mrs.optimistic on Sat May 16, 2015 8:47 am

^^ that's what me and my husband do! I too can't stand blow jobs. Just not my thing, never has been my favorite and now that my V is temporarily out of order - I too dread it! LOL

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Re: Alternatives to intercourse?

Post  Hwhitt03 on Mon May 18, 2015 8:33 am

Hey there! ive been treated for vulvodynia for the past two years sex was so unbearable and I got given all the creams and nothing worked. It seemed to hurt inside not necessarily on the vulva. I also had bleeding after intercourse so a couple weeks ago I had a surgery to fix that. Before the surgery I asked the doctor to have a look at my vulvodynia while she was doing it to see if it could be anything else. Anyway it turns out it was! I had long hymen tags/remnants that didn't break properly so that's why it was so painful during sex. I had a simple hymenectony and can't have sex for 6 weeks but am so hopeful it'll be pain free and will update. You should get another opinion you could be surprised. It made a lot of sense and matched all my symptoms that imitated vulvodynia and vaginismus (I was given all the trainers and was told for so long it was in my head). Thought it'll be worth sharing the word just in case know how awful it is Smile

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Re: Alternatives to intercourse?

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