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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Alternatives to intercourse?

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Alternatives to intercourse?

Post  geog272 on Wed Apr 22, 2015 1:15 am

I have DIV, vaginismus, and mild vulvodynia. Intercourse is always painful to some degree. Sometimes it is tolerable, sometimes not, occasionally it is actually pleasurable but overall I dread sex and hate it. Can anyone give me some ideas for other things that you are able to do with your DH to keep him happy? I have given so many BJs in the past five years that I am starting to find them repulsive. I am also the sleep deprived mother of a one year old who still doesn't sleep through the night and I am just so tired. I am feeling like sex and anything close to it requires an emotional energy reserve I no longer have. I wish that sex didn't exist! No


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Re: Alternatives to intercourse?

Post  toosore on Thu May 07, 2015 8:37 pm

I totally understand your situation!  I too am so sick of BJs!  I didn't mind doing them before, as part of foreplay, briefly for fun, but when it's the whole meal deal, yuck!  Anyhow, the only other option I know of is a really good hand job.  I found this tip on the tv show Sex Tips of Girls.  You need lots of lube to make it work, and you use both hands.  You probably need to be sitting up, facing him.  So, grasp his member with both hands, one hand above the other, and twist your hands in opposite directions (kind of like wringing out a cloth - except more gently (or not!)).  While twisting, move your hands up and down.  Again, lots of lube.  My hubby loves this!  He actually asks for it, and enjoys the change from BJ, too.  Keep a towel handy, as it gets messy. I hope you can follow this explanation, as it's kind of hard to describe without pictures!  Best of luck!

PS:  I was unable to have intercourse for five years.  Sometimes my hubby will handle himself while I kiss his neck and cuddle with him.


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Re: Alternatives to intercourse?

Post  mrs.optimistic on Sat May 16, 2015 8:47 am

^^ that's what me and my husband do! I too can't stand blow jobs. Just not my thing, never has been my favorite and now that my V is temporarily out of order - I too dread it! LOL


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Re: Alternatives to intercourse?

Post  Hwhitt03 on Mon May 18, 2015 8:33 am

Hey there! ive been treated for vulvodynia for the past two years sex was so unbearable and I got given all the creams and nothing worked. It seemed to hurt inside not necessarily on the vulva. I also had bleeding after intercourse so a couple weeks ago I had a surgery to fix that. Before the surgery I asked the doctor to have a look at my vulvodynia while she was doing it to see if it could be anything else. Anyway it turns out it was! I had long hymen tags/remnants that didn't break properly so that's why it was so painful during sex. I had a simple hymenectony and can't have sex for 6 weeks but am so hopeful it'll be pain free and will update. You should get another opinion you could be surprised. It made a lot of sense and matched all my symptoms that imitated vulvodynia and vaginismus (I was given all the trainers and was told for so long it was in my head). Thought it'll be worth sharing the word just in case know how awful it is Smile


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Re: Alternatives to intercourse?

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