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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Alternatives to intercourse?

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Alternatives to intercourse?

Post  geog272 on Wed Apr 22, 2015 1:15 am

I have DIV, vaginismus, and mild vulvodynia. Intercourse is always painful to some degree. Sometimes it is tolerable, sometimes not, occasionally it is actually pleasurable but overall I dread sex and hate it. Can anyone give me some ideas for other things that you are able to do with your DH to keep him happy? I have given so many BJs in the past five years that I am starting to find them repulsive. I am also the sleep deprived mother of a one year old who still doesn't sleep through the night and I am just so tired. I am feeling like sex and anything close to it requires an emotional energy reserve I no longer have. I wish that sex didn't exist! No

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Re: Alternatives to intercourse?

Post  toosore on Thu May 07, 2015 8:37 pm

I totally understand your situation!  I too am so sick of BJs!  I didn't mind doing them before, as part of foreplay, briefly for fun, but when it's the whole meal deal, yuck!  Anyhow, the only other option I know of is a really good hand job.  I found this tip on the tv show Sex Tips of Girls.  You need lots of lube to make it work, and you use both hands.  You probably need to be sitting up, facing him.  So, grasp his member with both hands, one hand above the other, and twist your hands in opposite directions (kind of like wringing out a cloth - except more gently (or not!)).  While twisting, move your hands up and down.  Again, lots of lube.  My hubby loves this!  He actually asks for it, and enjoys the change from BJ, too.  Keep a towel handy, as it gets messy. I hope you can follow this explanation, as it's kind of hard to describe without pictures!  Best of luck!

PS:  I was unable to have intercourse for five years.  Sometimes my hubby will handle himself while I kiss his neck and cuddle with him.

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Re: Alternatives to intercourse?

Post  mrs.optimistic on Sat May 16, 2015 8:47 am

^^ that's what me and my husband do! I too can't stand blow jobs. Just not my thing, never has been my favorite and now that my V is temporarily out of order - I too dread it! LOL

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Re: Alternatives to intercourse?

Post  Hwhitt03 on Mon May 18, 2015 8:33 am

Hey there! ive been treated for vulvodynia for the past two years sex was so unbearable and I got given all the creams and nothing worked. It seemed to hurt inside not necessarily on the vulva. I also had bleeding after intercourse so a couple weeks ago I had a surgery to fix that. Before the surgery I asked the doctor to have a look at my vulvodynia while she was doing it to see if it could be anything else. Anyway it turns out it was! I had long hymen tags/remnants that didn't break properly so that's why it was so painful during sex. I had a simple hymenectony and can't have sex for 6 weeks but am so hopeful it'll be pain free and will update. You should get another opinion you could be surprised. It made a lot of sense and matched all my symptoms that imitated vulvodynia and vaginismus (I was given all the trainers and was told for so long it was in my head). Thought it'll be worth sharing the word just in case know how awful it is Smile

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Re: Alternatives to intercourse?

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