Log in

I forgot my password

Latest topics
Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Allergic reaction to silicone lubricant AND polyesoprine condoms

View previous topic View next topic Go down

Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  Trees_trees on Thu Apr 23, 2015 2:57 am

So I have the good fortune to be allergic to Latex AND Silicone (dimethicone -in a lot of lubricant, lotions, conditioners, gives a silky feel). I mistakenly thought an episode triggered in 2010 was from polyesoprine (latex with the chemical most people are allergic to) condoms after mistakenly being told I had a yeast infection, herpes, and being put on acyclovir and diflucan for months with no effect because I didn't have herpes. I went on the IC diet, tried the candida diet and just about gave up.

So after 2 years I finally had intercourse again with Sagami polyurethane condoms, and unfortunately I had a horrible reaction because it turns out I am allergic to the silicone lube they put on the condom.

I think the whole thing was triggered by allergic reaction to lubricant years ago...

A) I am in pain ( it feels like broken glass is being shoved up my urethra)
B) The doctor only gave me a prescription for antibiotics


What can I do? I'm icing and heating. Im drinking wine, because 3 advil does not seem to be doing anything to help.

Also don't know what to do about birth control/ std protection because all non-latex condoms have silicone lubricant on them. I read somewhere to get a nitrile female condom and try to wash to lubricant off, but that's tricky because silicone is engineered not to go anywhere.

Thanks.

SusieQ


Last edited by Trees_trees on Thu Apr 23, 2015 3:00 am; edited 1 time in total (Reason for editing : edit on what polyesoprine is and additional question)

Trees_trees

Posts : 3
Join date : 2015-04-23

View user profile

Back to top Go down

Re: Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  toosore on Thu May 07, 2015 7:53 pm

Are you absolutely sure that your reactions are due to allergy? The pain and burning after or during intercourse are typical of vulvodynia all by itself, without condoms or lubricant to cause additional problems. What exactly are your symptoms? Rash, hives, itching? or burning pain?

It's so hard to know what's going on, especially since proper medical care is so hard to find...

toosore

Posts : 18
Join date : 2012-06-18
Location : Vancouver

View user profile

Back to top Go down

Yes, pain started after using condoms

Post  Trees_trees on Fri May 08, 2015 4:37 am

Hi toosore. Thanks for your reply. The pain started after using condoms back in 2010. I never had a reaction with the Avanti Polyurethane condoms and they stopped making them. So when I tried the new ones that were polyesoprine was when I started having problems. That was back in 2010.

I did a test with the lubricant from a sagami condom on the inside of my elbow and it gave me a hive. Who knows what it did to the inside of my vagina and vulva. When I get dimethicone/silicone on my hands there are tiny blisters and eczema.

So I get varying rates of pain from acute to dull, more acute since recent exposure. The pain makes me tired.

Trees_trees

Posts : 3
Join date : 2015-04-23

View user profile

Back to top Go down

Allergic Reactions and Risk of Vulvodynia

Post  Trees_trees on Thu May 14, 2015 7:11 pm

Our data suggest that women with a history of urticaria, seasonal allergies or reaction to insect stings appear to be more prone to later development of vulvodynia than women with no history of these allergic reactions. We also showed that this association was largely confined to exposures that occurred before the first onset of vulvar pain, suggesting that allergenic exposures could be involved as, or a marker of, factors involved in the development of vulvodynia. We also observed that a history of other skin conditions, not as strongly related to an immune response, generally were not associated with the risk of vulvodynia.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2773800/

Vulvodynia is a complex disorder and described as discomfort or intense burning pain in the vulvar area. Such chronic pain affects 5 to 15% of women and many suffer of misdiagnosis. For sure the aetiology is multifactorial. Through few studies we consider the inflammatory response plays a major role. There is a genetic profile of women suffering of vulvodynia, especially genetic polymorphisms from genes coding for cytokines, Interleukin-1 receptor antagonist and Interleukin-1 beta, and gene coding for mannose-binding lectin (MBL). These polymorphisms result in a stronger inflammatory response and lay these women in a susceptibility situation. Histological analysis showed a chronic non specific inflammation. We have also demonstrated that these patients present in normal state or under infectious induction an inadequate inflammatory response. But there is still a variety of mechanisms which can interact with the inflammatory response. Management of such vulvar pain syndrome could be very frustrating, but the first step for improvement is to get the right diagnosis.

http://www.ncbi.nlm.nih.gov/pubmed/20108524v

Trees_trees

Posts : 3
Join date : 2015-04-23

View user profile

Back to top Go down

Re: Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum