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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Allergic reaction to silicone lubricant AND polyesoprine condoms

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Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  Trees_trees on Thu Apr 23, 2015 2:57 am

So I have the good fortune to be allergic to Latex AND Silicone (dimethicone -in a lot of lubricant, lotions, conditioners, gives a silky feel). I mistakenly thought an episode triggered in 2010 was from polyesoprine (latex with the chemical most people are allergic to) condoms after mistakenly being told I had a yeast infection, herpes, and being put on acyclovir and diflucan for months with no effect because I didn't have herpes. I went on the IC diet, tried the candida diet and just about gave up.

So after 2 years I finally had intercourse again with Sagami polyurethane condoms, and unfortunately I had a horrible reaction because it turns out I am allergic to the silicone lube they put on the condom.

I think the whole thing was triggered by allergic reaction to lubricant years ago...

A) I am in pain ( it feels like broken glass is being shoved up my urethra)
B) The doctor only gave me a prescription for antibiotics


What can I do? I'm icing and heating. Im drinking wine, because 3 advil does not seem to be doing anything to help.

Also don't know what to do about birth control/ std protection because all non-latex condoms have silicone lubricant on them. I read somewhere to get a nitrile female condom and try to wash to lubricant off, but that's tricky because silicone is engineered not to go anywhere.

Thanks.

SusieQ


Last edited by Trees_trees on Thu Apr 23, 2015 3:00 am; edited 1 time in total (Reason for editing : edit on what polyesoprine is and additional question)

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Re: Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  toosore on Thu May 07, 2015 7:53 pm

Are you absolutely sure that your reactions are due to allergy? The pain and burning after or during intercourse are typical of vulvodynia all by itself, without condoms or lubricant to cause additional problems. What exactly are your symptoms? Rash, hives, itching? or burning pain?

It's so hard to know what's going on, especially since proper medical care is so hard to find...

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Yes, pain started after using condoms

Post  Trees_trees on Fri May 08, 2015 4:37 am

Hi toosore. Thanks for your reply. The pain started after using condoms back in 2010. I never had a reaction with the Avanti Polyurethane condoms and they stopped making them. So when I tried the new ones that were polyesoprine was when I started having problems. That was back in 2010.

I did a test with the lubricant from a sagami condom on the inside of my elbow and it gave me a hive. Who knows what it did to the inside of my vagina and vulva. When I get dimethicone/silicone on my hands there are tiny blisters and eczema.

So I get varying rates of pain from acute to dull, more acute since recent exposure. The pain makes me tired.

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Allergic Reactions and Risk of Vulvodynia

Post  Trees_trees on Thu May 14, 2015 7:11 pm

Our data suggest that women with a history of urticaria, seasonal allergies or reaction to insect stings appear to be more prone to later development of vulvodynia than women with no history of these allergic reactions. We also showed that this association was largely confined to exposures that occurred before the first onset of vulvar pain, suggesting that allergenic exposures could be involved as, or a marker of, factors involved in the development of vulvodynia. We also observed that a history of other skin conditions, not as strongly related to an immune response, generally were not associated with the risk of vulvodynia.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2773800/

Vulvodynia is a complex disorder and described as discomfort or intense burning pain in the vulvar area. Such chronic pain affects 5 to 15% of women and many suffer of misdiagnosis. For sure the aetiology is multifactorial. Through few studies we consider the inflammatory response plays a major role. There is a genetic profile of women suffering of vulvodynia, especially genetic polymorphisms from genes coding for cytokines, Interleukin-1 receptor antagonist and Interleukin-1 beta, and gene coding for mannose-binding lectin (MBL). These polymorphisms result in a stronger inflammatory response and lay these women in a susceptibility situation. Histological analysis showed a chronic non specific inflammation. We have also demonstrated that these patients present in normal state or under infectious induction an inadequate inflammatory response. But there is still a variety of mechanisms which can interact with the inflammatory response. Management of such vulvar pain syndrome could be very frustrating, but the first step for improvement is to get the right diagnosis.

http://www.ncbi.nlm.nih.gov/pubmed/20108524v

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Re: Allergic reaction to silicone lubricant AND polyesoprine condoms

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