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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Allergic reaction to silicone lubricant AND polyesoprine condoms

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Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  Trees_trees on Thu Apr 23, 2015 2:57 am

So I have the good fortune to be allergic to Latex AND Silicone (dimethicone -in a lot of lubricant, lotions, conditioners, gives a silky feel). I mistakenly thought an episode triggered in 2010 was from polyesoprine (latex with the chemical most people are allergic to) condoms after mistakenly being told I had a yeast infection, herpes, and being put on acyclovir and diflucan for months with no effect because I didn't have herpes. I went on the IC diet, tried the candida diet and just about gave up.

So after 2 years I finally had intercourse again with Sagami polyurethane condoms, and unfortunately I had a horrible reaction because it turns out I am allergic to the silicone lube they put on the condom.

I think the whole thing was triggered by allergic reaction to lubricant years ago...

A) I am in pain ( it feels like broken glass is being shoved up my urethra)
B) The doctor only gave me a prescription for antibiotics


What can I do? I'm icing and heating. Im drinking wine, because 3 advil does not seem to be doing anything to help.

Also don't know what to do about birth control/ std protection because all non-latex condoms have silicone lubricant on them. I read somewhere to get a nitrile female condom and try to wash to lubricant off, but that's tricky because silicone is engineered not to go anywhere.

Thanks.

SusieQ


Last edited by Trees_trees on Thu Apr 23, 2015 3:00 am; edited 1 time in total (Reason for editing : edit on what polyesoprine is and additional question)

Trees_trees

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Re: Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  toosore on Thu May 07, 2015 7:53 pm

Are you absolutely sure that your reactions are due to allergy? The pain and burning after or during intercourse are typical of vulvodynia all by itself, without condoms or lubricant to cause additional problems. What exactly are your symptoms? Rash, hives, itching? or burning pain?

It's so hard to know what's going on, especially since proper medical care is so hard to find...

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Yes, pain started after using condoms

Post  Trees_trees on Fri May 08, 2015 4:37 am

Hi toosore. Thanks for your reply. The pain started after using condoms back in 2010. I never had a reaction with the Avanti Polyurethane condoms and they stopped making them. So when I tried the new ones that were polyesoprine was when I started having problems. That was back in 2010.

I did a test with the lubricant from a sagami condom on the inside of my elbow and it gave me a hive. Who knows what it did to the inside of my vagina and vulva. When I get dimethicone/silicone on my hands there are tiny blisters and eczema.

So I get varying rates of pain from acute to dull, more acute since recent exposure. The pain makes me tired.

Trees_trees

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Allergic Reactions and Risk of Vulvodynia

Post  Trees_trees on Thu May 14, 2015 7:11 pm

Our data suggest that women with a history of urticaria, seasonal allergies or reaction to insect stings appear to be more prone to later development of vulvodynia than women with no history of these allergic reactions. We also showed that this association was largely confined to exposures that occurred before the first onset of vulvar pain, suggesting that allergenic exposures could be involved as, or a marker of, factors involved in the development of vulvodynia. We also observed that a history of other skin conditions, not as strongly related to an immune response, generally were not associated with the risk of vulvodynia.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2773800/

Vulvodynia is a complex disorder and described as discomfort or intense burning pain in the vulvar area. Such chronic pain affects 5 to 15% of women and many suffer of misdiagnosis. For sure the aetiology is multifactorial. Through few studies we consider the inflammatory response plays a major role. There is a genetic profile of women suffering of vulvodynia, especially genetic polymorphisms from genes coding for cytokines, Interleukin-1 receptor antagonist and Interleukin-1 beta, and gene coding for mannose-binding lectin (MBL). These polymorphisms result in a stronger inflammatory response and lay these women in a susceptibility situation. Histological analysis showed a chronic non specific inflammation. We have also demonstrated that these patients present in normal state or under infectious induction an inadequate inflammatory response. But there is still a variety of mechanisms which can interact with the inflammatory response. Management of such vulvar pain syndrome could be very frustrating, but the first step for improvement is to get the right diagnosis.

http://www.ncbi.nlm.nih.gov/pubmed/20108524v

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Re: Allergic reaction to silicone lubricant AND polyesoprine condoms

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