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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hope some of you can help me

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Hope some of you can help me

Post  martinifaerie on Sun May 03, 2015 8:13 pm

Hi everyone, I am so glad i have found this site and have read through a few of the topics, I'm so happy we all have people we can talk to about this. I try and talk to my friends but they don't really understand and it can get a bit awkward. Here is my story...
I am 27 and have been with my current partner for 3 and a half years. Around a year into our relationship I started experiencing severe pain during intercourse. It was, and still is, a burning sensation that I describe as a red hot poker being put in there. It came from nowhere and for a year i did nothing, thinking it would go and making up excuses for it. I saw an episode of Embarrassing Bodies and someone had symptoms like mine which prompted me to go to the doctor. I knew i wasn't alone and it was a real thing, not just my mind. My doctor was very helpful and i have had various treatments over the last year and a half. I am currently on amytriptaline and it has helped me. I have also had physio which have given me exercises i can do to help. I tend to forget to do these though as i find it awkward and really just hope i can get on without them. we come to now and i still get pain. I tense up when we start having sex and i think it is causing problems now. I just feel so upset when i think about it, i want to enjoy it but now i dont feel any kind of drive to have sex because i know it will hurt and i dont get any pleasure from it now. Sometimes i cry when we try and i feel so bad when we have to stop. My boyfriend has been supportive and understanding, though i think now it is starting to bother him more and i totally understand why. really what i am looking for here, if anyone has read all this, is for people who get how i feel and can maybe help and support me. I just want to be able to feel good again and not like a failure as a girlfriend. I kind of feel at a loss with what to do. I am worried i will lose my boyfriend and dont know how i could possible start another relationship when i am like this.
Thanks to anyone who takes the time to read, and even more thanks to anyone who replies with words of support, encouragement or help.
xxx

martinifaerie

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Join date : 2015-05-03
Location : Dundee

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Re: Hope some of you can help me

Post  Guest on Mon May 04, 2015 1:27 am

I too am glad you found this website. As we sometimes feel we are walking this road by ourselves, as family and friends have no clue how we feel. It is a struggle, but helps when a Dr understands what is going on and can offer you help! I see my Specialist again on Wed, possibly with a new med to try. Here we can offer support and encourage one another not to give up.
You are lucky to have a partner that cares and there are men that just walk right out,


Hang in there.

Guest
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Re: Hope some of you can help me

Post  martinifaerie on Mon May 04, 2015 9:14 pm

Thank you! you are right, i know there are men who would have just left and that is my comfort in that matter. To know he is still here, though i feel over time it has started to wear him down a bit. In a way, where is the help for the men? Good luck for your appointment, hopefully if you get something new it works for you! it is what we hope for. I need to get back into doing my stretches and hope that and the amytriptyline will work. I kind of have a fear of if i need surgery and it never getting better. Anyway didnt mean to ramble again, just thanks for the reply and support!

martinifaerie

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Location : Dundee

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Re: Hope some of you can help me

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