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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Hope some of you can help me

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Hope some of you can help me

Post  martinifaerie on Sun May 03, 2015 8:13 pm

Hi everyone, I am so glad i have found this site and have read through a few of the topics, I'm so happy we all have people we can talk to about this. I try and talk to my friends but they don't really understand and it can get a bit awkward. Here is my story...
I am 27 and have been with my current partner for 3 and a half years. Around a year into our relationship I started experiencing severe pain during intercourse. It was, and still is, a burning sensation that I describe as a red hot poker being put in there. It came from nowhere and for a year i did nothing, thinking it would go and making up excuses for it. I saw an episode of Embarrassing Bodies and someone had symptoms like mine which prompted me to go to the doctor. I knew i wasn't alone and it was a real thing, not just my mind. My doctor was very helpful and i have had various treatments over the last year and a half. I am currently on amytriptaline and it has helped me. I have also had physio which have given me exercises i can do to help. I tend to forget to do these though as i find it awkward and really just hope i can get on without them. we come to now and i still get pain. I tense up when we start having sex and i think it is causing problems now. I just feel so upset when i think about it, i want to enjoy it but now i dont feel any kind of drive to have sex because i know it will hurt and i dont get any pleasure from it now. Sometimes i cry when we try and i feel so bad when we have to stop. My boyfriend has been supportive and understanding, though i think now it is starting to bother him more and i totally understand why. really what i am looking for here, if anyone has read all this, is for people who get how i feel and can maybe help and support me. I just want to be able to feel good again and not like a failure as a girlfriend. I kind of feel at a loss with what to do. I am worried i will lose my boyfriend and dont know how i could possible start another relationship when i am like this.
Thanks to anyone who takes the time to read, and even more thanks to anyone who replies with words of support, encouragement or help.
xxx

martinifaerie

Posts : 4
Join date : 2015-05-03
Location : Dundee

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Re: Hope some of you can help me

Post  Guest on Mon May 04, 2015 1:27 am

I too am glad you found this website. As we sometimes feel we are walking this road by ourselves, as family and friends have no clue how we feel. It is a struggle, but helps when a Dr understands what is going on and can offer you help! I see my Specialist again on Wed, possibly with a new med to try. Here we can offer support and encourage one another not to give up.
You are lucky to have a partner that cares and there are men that just walk right out,


Hang in there.

Guest
Guest


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Re: Hope some of you can help me

Post  martinifaerie on Mon May 04, 2015 9:14 pm

Thank you! you are right, i know there are men who would have just left and that is my comfort in that matter. To know he is still here, though i feel over time it has started to wear him down a bit. In a way, where is the help for the men? Good luck for your appointment, hopefully if you get something new it works for you! it is what we hope for. I need to get back into doing my stretches and hope that and the amytriptyline will work. I kind of have a fear of if i need surgery and it never getting better. Anyway didnt mean to ramble again, just thanks for the reply and support!

martinifaerie

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Location : Dundee

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