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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Hope some of you can help me

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Hope some of you can help me

Post  martinifaerie on Sun May 03, 2015 8:13 pm

Hi everyone, I am so glad i have found this site and have read through a few of the topics, I'm so happy we all have people we can talk to about this. I try and talk to my friends but they don't really understand and it can get a bit awkward. Here is my story...
I am 27 and have been with my current partner for 3 and a half years. Around a year into our relationship I started experiencing severe pain during intercourse. It was, and still is, a burning sensation that I describe as a red hot poker being put in there. It came from nowhere and for a year i did nothing, thinking it would go and making up excuses for it. I saw an episode of Embarrassing Bodies and someone had symptoms like mine which prompted me to go to the doctor. I knew i wasn't alone and it was a real thing, not just my mind. My doctor was very helpful and i have had various treatments over the last year and a half. I am currently on amytriptaline and it has helped me. I have also had physio which have given me exercises i can do to help. I tend to forget to do these though as i find it awkward and really just hope i can get on without them. we come to now and i still get pain. I tense up when we start having sex and i think it is causing problems now. I just feel so upset when i think about it, i want to enjoy it but now i dont feel any kind of drive to have sex because i know it will hurt and i dont get any pleasure from it now. Sometimes i cry when we try and i feel so bad when we have to stop. My boyfriend has been supportive and understanding, though i think now it is starting to bother him more and i totally understand why. really what i am looking for here, if anyone has read all this, is for people who get how i feel and can maybe help and support me. I just want to be able to feel good again and not like a failure as a girlfriend. I kind of feel at a loss with what to do. I am worried i will lose my boyfriend and dont know how i could possible start another relationship when i am like this.
Thanks to anyone who takes the time to read, and even more thanks to anyone who replies with words of support, encouragement or help.
xxx

martinifaerie

Posts : 4
Join date : 2015-05-03
Location : Dundee

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Re: Hope some of you can help me

Post  Guest on Mon May 04, 2015 1:27 am

I too am glad you found this website. As we sometimes feel we are walking this road by ourselves, as family and friends have no clue how we feel. It is a struggle, but helps when a Dr understands what is going on and can offer you help! I see my Specialist again on Wed, possibly with a new med to try. Here we can offer support and encourage one another not to give up.
You are lucky to have a partner that cares and there are men that just walk right out,


Hang in there.

Guest
Guest


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Re: Hope some of you can help me

Post  martinifaerie on Mon May 04, 2015 9:14 pm

Thank you! you are right, i know there are men who would have just left and that is my comfort in that matter. To know he is still here, though i feel over time it has started to wear him down a bit. In a way, where is the help for the men? Good luck for your appointment, hopefully if you get something new it works for you! it is what we hope for. I need to get back into doing my stretches and hope that and the amytriptyline will work. I kind of have a fear of if i need surgery and it never getting better. Anyway didnt mean to ramble again, just thanks for the reply and support!

martinifaerie

Posts : 4
Join date : 2015-05-03
Location : Dundee

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Re: Hope some of you can help me

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