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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Hope some of you can help me

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Hope some of you can help me

Post  martinifaerie on Sun May 03, 2015 8:13 pm

Hi everyone, I am so glad i have found this site and have read through a few of the topics, I'm so happy we all have people we can talk to about this. I try and talk to my friends but they don't really understand and it can get a bit awkward. Here is my story...
I am 27 and have been with my current partner for 3 and a half years. Around a year into our relationship I started experiencing severe pain during intercourse. It was, and still is, a burning sensation that I describe as a red hot poker being put in there. It came from nowhere and for a year i did nothing, thinking it would go and making up excuses for it. I saw an episode of Embarrassing Bodies and someone had symptoms like mine which prompted me to go to the doctor. I knew i wasn't alone and it was a real thing, not just my mind. My doctor was very helpful and i have had various treatments over the last year and a half. I am currently on amytriptaline and it has helped me. I have also had physio which have given me exercises i can do to help. I tend to forget to do these though as i find it awkward and really just hope i can get on without them. we come to now and i still get pain. I tense up when we start having sex and i think it is causing problems now. I just feel so upset when i think about it, i want to enjoy it but now i dont feel any kind of drive to have sex because i know it will hurt and i dont get any pleasure from it now. Sometimes i cry when we try and i feel so bad when we have to stop. My boyfriend has been supportive and understanding, though i think now it is starting to bother him more and i totally understand why. really what i am looking for here, if anyone has read all this, is for people who get how i feel and can maybe help and support me. I just want to be able to feel good again and not like a failure as a girlfriend. I kind of feel at a loss with what to do. I am worried i will lose my boyfriend and dont know how i could possible start another relationship when i am like this.
Thanks to anyone who takes the time to read, and even more thanks to anyone who replies with words of support, encouragement or help.
xxx

martinifaerie

Posts : 4
Join date : 2015-05-03
Location : Dundee

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Re: Hope some of you can help me

Post  Guest on Mon May 04, 2015 1:27 am

I too am glad you found this website. As we sometimes feel we are walking this road by ourselves, as family and friends have no clue how we feel. It is a struggle, but helps when a Dr understands what is going on and can offer you help! I see my Specialist again on Wed, possibly with a new med to try. Here we can offer support and encourage one another not to give up.
You are lucky to have a partner that cares and there are men that just walk right out,


Hang in there.

Guest
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Re: Hope some of you can help me

Post  martinifaerie on Mon May 04, 2015 9:14 pm

Thank you! you are right, i know there are men who would have just left and that is my comfort in that matter. To know he is still here, though i feel over time it has started to wear him down a bit. In a way, where is the help for the men? Good luck for your appointment, hopefully if you get something new it works for you! it is what we hope for. I need to get back into doing my stretches and hope that and the amytriptyline will work. I kind of have a fear of if i need surgery and it never getting better. Anyway didnt mean to ramble again, just thanks for the reply and support!

martinifaerie

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Join date : 2015-05-03
Location : Dundee

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