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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Hope some of you can help me

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Hope some of you can help me

Post  martinifaerie on Sun May 03, 2015 8:13 pm

Hi everyone, I am so glad i have found this site and have read through a few of the topics, I'm so happy we all have people we can talk to about this. I try and talk to my friends but they don't really understand and it can get a bit awkward. Here is my story...
I am 27 and have been with my current partner for 3 and a half years. Around a year into our relationship I started experiencing severe pain during intercourse. It was, and still is, a burning sensation that I describe as a red hot poker being put in there. It came from nowhere and for a year i did nothing, thinking it would go and making up excuses for it. I saw an episode of Embarrassing Bodies and someone had symptoms like mine which prompted me to go to the doctor. I knew i wasn't alone and it was a real thing, not just my mind. My doctor was very helpful and i have had various treatments over the last year and a half. I am currently on amytriptaline and it has helped me. I have also had physio which have given me exercises i can do to help. I tend to forget to do these though as i find it awkward and really just hope i can get on without them. we come to now and i still get pain. I tense up when we start having sex and i think it is causing problems now. I just feel so upset when i think about it, i want to enjoy it but now i dont feel any kind of drive to have sex because i know it will hurt and i dont get any pleasure from it now. Sometimes i cry when we try and i feel so bad when we have to stop. My boyfriend has been supportive and understanding, though i think now it is starting to bother him more and i totally understand why. really what i am looking for here, if anyone has read all this, is for people who get how i feel and can maybe help and support me. I just want to be able to feel good again and not like a failure as a girlfriend. I kind of feel at a loss with what to do. I am worried i will lose my boyfriend and dont know how i could possible start another relationship when i am like this.
Thanks to anyone who takes the time to read, and even more thanks to anyone who replies with words of support, encouragement or help.
xxx

martinifaerie

Posts : 4
Join date : 2015-05-03
Location : Dundee

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Re: Hope some of you can help me

Post  Guest on Mon May 04, 2015 1:27 am

I too am glad you found this website. As we sometimes feel we are walking this road by ourselves, as family and friends have no clue how we feel. It is a struggle, but helps when a Dr understands what is going on and can offer you help! I see my Specialist again on Wed, possibly with a new med to try. Here we can offer support and encourage one another not to give up.
You are lucky to have a partner that cares and there are men that just walk right out,


Hang in there.

Guest
Guest


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Re: Hope some of you can help me

Post  martinifaerie on Mon May 04, 2015 9:14 pm

Thank you! you are right, i know there are men who would have just left and that is my comfort in that matter. To know he is still here, though i feel over time it has started to wear him down a bit. In a way, where is the help for the men? Good luck for your appointment, hopefully if you get something new it works for you! it is what we hope for. I need to get back into doing my stretches and hope that and the amytriptyline will work. I kind of have a fear of if i need surgery and it never getting better. Anyway didnt mean to ramble again, just thanks for the reply and support!

martinifaerie

Posts : 4
Join date : 2015-05-03
Location : Dundee

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Re: Hope some of you can help me

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