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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Hi, new member here :]

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Hi, new member here :]

Post  [Sara] on Sat Jan 01, 2011 1:52 am

My name is Sara and I am 22 years old. I was diagnosed when I was 21 and have been battling vulvodynia since then. I posted my story in the "My Story" section of the forum. But enough about the depressing stuff: I have one semester of college left and I will have my bachelor's degree, my husband and I just bought our first house, and we have an amazing dog.

I joined this site in hopes of helping others with similar conditions and to give myself hope that one day, this will get better for all of us. :]


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Join date : 2011-01-01

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Re: Hi, new member here :]

Post  Mouse on Sat Jan 01, 2011 11:46 pm

Hi Sara, welcome!!! Good luck with your last semester! Phewww almost done. We have a lovely dog as well, he's a miniature schnauzer named Riley. He's had a huge walk this morning around the lake and along the beach. It's summer where I live Smile

Things will get better for us and in the meantime we have this great network of women helping each other out. Having a silent illness is hard work but we all know what it's like so this is a great forum. Sarah has also started a page on FB. It's great to put faces to names and also reinforces that we are real people with real lives.

Since this crap started for me I've discovered that someone in my family also has vulvodynia. It's weird that I've known for years she didn't use tampons and she probably even told me why but recently I thought to ask her again and was blown away to find out she has never had pain free sex either and thought that was completely normal.

How exciting to have a new home! Take care.


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Re: Hi, new member here :]

Post  [Sara] on Sun Jan 02, 2011 4:22 am

Oh, I wish it was summer here! I can't wait to be done with college...maybe the removal of college stress after I graduate will help my hoo-ha get back to normal? Every little bit helps, I suppose.

Our dog is named Flapjack, and he's a rat terrier/whippet mix. He has huge ears that stand straight up, and he's brindle. He is so rotten but sweet at the same time (hmm...my husband says he might get his traits from me).

Do you have a link to the facebook page? I'll take a look at it. I'd like to join the page, but at the same time I don't want my friends and family seeing it and knowing about my "problem". I have only told a handful of trusted people about my condition. I know it's pretty much still the beginning for me so I'm still a little embarrassed about sharing. I may feel differently in the future though. Shocked

Thanks for the welcome! cheers


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Re: Hi, new member here :]

Post  Mouse on Sun Jan 02, 2011 6:07 am

Hi Sara, I like your hoo-ha description! Our dog is pretty naughty as well but the cat sorts him out Smile My husband said we were getting a dog "over his dead body", they are great mates now.

The FB group is completely private, it doesn't show on your wall at all. That's the reason I didn't join the other vulvodynia FB group, I wouldn't even want my friends who know what this is about seeing. You need to give your name to Sebby (admin) and she will invite you to join. See you on the other side!



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Re: Hi, new member here :]

Post  Ellie on Sun Jan 02, 2011 6:52 pm

Welcome Sara! We have a few things in common (aside from vulvodynia). I am also 22 and just finished my last semester of college! It was very stressful and I'm not sure if I told anyone here yet, but two days before finals ended I got into a car crash and totaled my car, I am alive and well thank godness, but geeze the stress level was at max! Not good for my poor lady bits either @.@

So it great to see you here and have others to talk to! Very Happy My boyfriend is the only one that knows about my condition because it is hard sharing and I am not sure many will actually understand the emotional and physical stress behind it.

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Re: Hi, new member here :]

Post  jules on Mon Jan 03, 2011 3:38 am

Welcome! I responded to your other post. I hate winter too. it was well below zero today where i live. i'm in my house w/ a heater right next to me and my bones are still frozen. Ellie, I'm glad you made it through the accident. Accidents can change your life. Hope you weren't injured.


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Re: Hi, new member here :]

Post  Sebby (Admin) on Mon Jan 03, 2011 11:14 pm

Welcome Sara

I have private messaged you regarding the facebook group.

Take care and I hope we can be a source of support for you

Sebby (Admin)

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Location : London UK

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Re: Hi, new member here :]

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