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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hi, new member here :]

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Hi, new member here :]

Post  [Sara] on Sat Jan 01, 2011 1:52 am

My name is Sara and I am 22 years old. I was diagnosed when I was 21 and have been battling vulvodynia since then. I posted my story in the "My Story" section of the forum. But enough about the depressing stuff: I have one semester of college left and I will have my bachelor's degree, my husband and I just bought our first house, and we have an amazing dog.

I joined this site in hopes of helping others with similar conditions and to give myself hope that one day, this will get better for all of us. :]

[Sara]

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Re: Hi, new member here :]

Post  Mouse on Sat Jan 01, 2011 11:46 pm

Hi Sara, welcome!!! Good luck with your last semester! Phewww almost done. We have a lovely dog as well, he's a miniature schnauzer named Riley. He's had a huge walk this morning around the lake and along the beach. It's summer where I live Smile

Things will get better for us and in the meantime we have this great network of women helping each other out. Having a silent illness is hard work but we all know what it's like so this is a great forum. Sarah has also started a page on FB. It's great to put faces to names and also reinforces that we are real people with real lives.

Since this crap started for me I've discovered that someone in my family also has vulvodynia. It's weird that I've known for years she didn't use tampons and she probably even told me why but recently I thought to ask her again and was blown away to find out she has never had pain free sex either and thought that was completely normal.

How exciting to have a new home! Take care.
Vicki

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Re: Hi, new member here :]

Post  [Sara] on Sun Jan 02, 2011 4:22 am

Oh, I wish it was summer here! I can't wait to be done with college...maybe the removal of college stress after I graduate will help my hoo-ha get back to normal? Every little bit helps, I suppose.

Our dog is named Flapjack, and he's a rat terrier/whippet mix. He has huge ears that stand straight up, and he's brindle. He is so rotten but sweet at the same time (hmm...my husband says he might get his traits from me).

Do you have a link to the facebook page? I'll take a look at it. I'd like to join the page, but at the same time I don't want my friends and family seeing it and knowing about my "problem". I have only told a handful of trusted people about my condition. I know it's pretty much still the beginning for me so I'm still a little embarrassed about sharing. I may feel differently in the future though. Shocked

Thanks for the welcome! cheers

[Sara]

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Re: Hi, new member here :]

Post  Mouse on Sun Jan 02, 2011 6:07 am

Hi Sara, I like your hoo-ha description! Our dog is pretty naughty as well but the cat sorts him out Smile My husband said we were getting a dog "over his dead body", they are great mates now.

The FB group is completely private, it doesn't show on your wall at all. That's the reason I didn't join the other vulvodynia FB group, I wouldn't even want my friends who know what this is about seeing. You need to give your name to Sebby (admin) and she will invite you to join. See you on the other side!

Vicki

Mouse

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Re: Hi, new member here :]

Post  Ellie on Sun Jan 02, 2011 6:52 pm

Welcome Sara! We have a few things in common (aside from vulvodynia). I am also 22 and just finished my last semester of college! It was very stressful and I'm not sure if I told anyone here yet, but two days before finals ended I got into a car crash and totaled my car, I am alive and well thank godness, but geeze the stress level was at max! Not good for my poor lady bits either @.@

So it great to see you here and have others to talk to! Very Happy My boyfriend is the only one that knows about my condition because it is hard sharing and I am not sure many will actually understand the emotional and physical stress behind it.
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Ellie

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Re: Hi, new member here :]

Post  jules on Mon Jan 03, 2011 3:38 am

Welcome! I responded to your other post. I hate winter too. it was well below zero today where i live. i'm in my house w/ a heater right next to me and my bones are still frozen. Ellie, I'm glad you made it through the accident. Accidents can change your life. Hope you weren't injured.

jules

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Re: Hi, new member here :]

Post  Sebby (Admin) on Mon Jan 03, 2011 11:14 pm


Welcome Sara

I have private messaged you regarding the facebook group.

Take care and I hope we can be a source of support for you

Sebby
xx
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Re: Hi, new member here :]

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