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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

Hi, new member here :]

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Hi, new member here :]

Post  [Sara] on Sat Jan 01, 2011 1:52 am

My name is Sara and I am 22 years old. I was diagnosed when I was 21 and have been battling vulvodynia since then. I posted my story in the "My Story" section of the forum. But enough about the depressing stuff: I have one semester of college left and I will have my bachelor's degree, my husband and I just bought our first house, and we have an amazing dog.

I joined this site in hopes of helping others with similar conditions and to give myself hope that one day, this will get better for all of us. :]


Posts : 26
Join date : 2011-01-01

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Re: Hi, new member here :]

Post  Mouse on Sat Jan 01, 2011 11:46 pm

Hi Sara, welcome!!! Good luck with your last semester! Phewww almost done. We have a lovely dog as well, he's a miniature schnauzer named Riley. He's had a huge walk this morning around the lake and along the beach. It's summer where I live Smile

Things will get better for us and in the meantime we have this great network of women helping each other out. Having a silent illness is hard work but we all know what it's like so this is a great forum. Sarah has also started a page on FB. It's great to put faces to names and also reinforces that we are real people with real lives.

Since this crap started for me I've discovered that someone in my family also has vulvodynia. It's weird that I've known for years she didn't use tampons and she probably even told me why but recently I thought to ask her again and was blown away to find out she has never had pain free sex either and thought that was completely normal.

How exciting to have a new home! Take care.


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Join date : 2010-09-09
Location : New Zealand

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Re: Hi, new member here :]

Post  [Sara] on Sun Jan 02, 2011 4:22 am

Oh, I wish it was summer here! I can't wait to be done with college...maybe the removal of college stress after I graduate will help my hoo-ha get back to normal? Every little bit helps, I suppose.

Our dog is named Flapjack, and he's a rat terrier/whippet mix. He has huge ears that stand straight up, and he's brindle. He is so rotten but sweet at the same time (hmm...my husband says he might get his traits from me).

Do you have a link to the facebook page? I'll take a look at it. I'd like to join the page, but at the same time I don't want my friends and family seeing it and knowing about my "problem". I have only told a handful of trusted people about my condition. I know it's pretty much still the beginning for me so I'm still a little embarrassed about sharing. I may feel differently in the future though. Shocked

Thanks for the welcome! cheers


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Re: Hi, new member here :]

Post  Mouse on Sun Jan 02, 2011 6:07 am

Hi Sara, I like your hoo-ha description! Our dog is pretty naughty as well but the cat sorts him out Smile My husband said we were getting a dog "over his dead body", they are great mates now.

The FB group is completely private, it doesn't show on your wall at all. That's the reason I didn't join the other vulvodynia FB group, I wouldn't even want my friends who know what this is about seeing. You need to give your name to Sebby (admin) and she will invite you to join. See you on the other side!



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Re: Hi, new member here :]

Post  Ellie on Sun Jan 02, 2011 6:52 pm

Welcome Sara! We have a few things in common (aside from vulvodynia). I am also 22 and just finished my last semester of college! It was very stressful and I'm not sure if I told anyone here yet, but two days before finals ended I got into a car crash and totaled my car, I am alive and well thank godness, but geeze the stress level was at max! Not good for my poor lady bits either @.@

So it great to see you here and have others to talk to! Very Happy My boyfriend is the only one that knows about my condition because it is hard sharing and I am not sure many will actually understand the emotional and physical stress behind it.

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Join date : 2010-12-08
Location : Minnesota, USA

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Re: Hi, new member here :]

Post  jules on Mon Jan 03, 2011 3:38 am

Welcome! I responded to your other post. I hate winter too. it was well below zero today where i live. i'm in my house w/ a heater right next to me and my bones are still frozen. Ellie, I'm glad you made it through the accident. Accidents can change your life. Hope you weren't injured.


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Re: Hi, new member here :]

Post  Sebby (Admin) on Mon Jan 03, 2011 11:14 pm

Welcome Sara

I have private messaged you regarding the facebook group.

Take care and I hope we can be a source of support for you

Sebby (Admin)

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Join date : 2009-12-03
Age : 37
Location : London UK

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Re: Hi, new member here :]

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