Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Hi, new member here :]

View previous topic View next topic Go down

Hi, new member here :]

Post  [Sara] on Sat Jan 01, 2011 1:52 am

My name is Sara and I am 22 years old. I was diagnosed when I was 21 and have been battling vulvodynia since then. I posted my story in the "My Story" section of the forum. But enough about the depressing stuff: I have one semester of college left and I will have my bachelor's degree, my husband and I just bought our first house, and we have an amazing dog.

I joined this site in hopes of helping others with similar conditions and to give myself hope that one day, this will get better for all of us. :]

[Sara]

Posts : 26
Join date : 2011-01-01

View user profile

Back to top Go down

Re: Hi, new member here :]

Post  Mouse on Sat Jan 01, 2011 11:46 pm

Hi Sara, welcome!!! Good luck with your last semester! Phewww almost done. We have a lovely dog as well, he's a miniature schnauzer named Riley. He's had a huge walk this morning around the lake and along the beach. It's summer where I live Smile

Things will get better for us and in the meantime we have this great network of women helping each other out. Having a silent illness is hard work but we all know what it's like so this is a great forum. Sarah has also started a page on FB. It's great to put faces to names and also reinforces that we are real people with real lives.

Since this crap started for me I've discovered that someone in my family also has vulvodynia. It's weird that I've known for years she didn't use tampons and she probably even told me why but recently I thought to ask her again and was blown away to find out she has never had pain free sex either and thought that was completely normal.

How exciting to have a new home! Take care.
Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Hi, new member here :]

Post  [Sara] on Sun Jan 02, 2011 4:22 am

Oh, I wish it was summer here! I can't wait to be done with college...maybe the removal of college stress after I graduate will help my hoo-ha get back to normal? Every little bit helps, I suppose.

Our dog is named Flapjack, and he's a rat terrier/whippet mix. He has huge ears that stand straight up, and he's brindle. He is so rotten but sweet at the same time (hmm...my husband says he might get his traits from me).

Do you have a link to the facebook page? I'll take a look at it. I'd like to join the page, but at the same time I don't want my friends and family seeing it and knowing about my "problem". I have only told a handful of trusted people about my condition. I know it's pretty much still the beginning for me so I'm still a little embarrassed about sharing. I may feel differently in the future though. Shocked

Thanks for the welcome! cheers

[Sara]

Posts : 26
Join date : 2011-01-01

View user profile

Back to top Go down

Re: Hi, new member here :]

Post  Mouse on Sun Jan 02, 2011 6:07 am

Hi Sara, I like your hoo-ha description! Our dog is pretty naughty as well but the cat sorts him out Smile My husband said we were getting a dog "over his dead body", they are great mates now.

The FB group is completely private, it doesn't show on your wall at all. That's the reason I didn't join the other vulvodynia FB group, I wouldn't even want my friends who know what this is about seeing. You need to give your name to Sebby (admin) and she will invite you to join. See you on the other side!

Vicki

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Hi, new member here :]

Post  Ellie on Sun Jan 02, 2011 6:52 pm

Welcome Sara! We have a few things in common (aside from vulvodynia). I am also 22 and just finished my last semester of college! It was very stressful and I'm not sure if I told anyone here yet, but two days before finals ended I got into a car crash and totaled my car, I am alive and well thank godness, but geeze the stress level was at max! Not good for my poor lady bits either @.@

So it great to see you here and have others to talk to! Very Happy My boyfriend is the only one that knows about my condition because it is hard sharing and I am not sure many will actually understand the emotional and physical stress behind it.
avatar
Ellie

Posts : 13
Join date : 2010-12-08
Location : Minnesota, USA

View user profile

Back to top Go down

Re: Hi, new member here :]

Post  jules on Mon Jan 03, 2011 3:38 am

Welcome! I responded to your other post. I hate winter too. it was well below zero today where i live. i'm in my house w/ a heater right next to me and my bones are still frozen. Ellie, I'm glad you made it through the accident. Accidents can change your life. Hope you weren't injured.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Hi, new member here :]

Post  Sebby (Admin) on Mon Jan 03, 2011 11:14 pm


Welcome Sara

I have private messaged you regarding the facebook group.

Take care and I hope we can be a source of support for you

Sebby
xx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Hi, new member here :]

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum