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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


May Not Be Vulvodynia!

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May Not Be Vulvodynia!

Post  lonelyone48 on Tue May 12, 2015 3:55 am

Ok so after being treated for vulvodynia for 10 years, I've been told it's possible that the vulva pain is due to Urethral Diverticulum which will have to be surgically removed.

lonelyone48

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Re: May Not Be Vulvodynia!

Post  girlcraft on Sat Jun 04, 2016 11:37 pm

Can you elaborate on this! And have you had the surgery ?

girlcraft

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Re: May Not Be Vulvodynia!

Post  lonelyone48 on Wed Jun 08, 2016 1:31 pm

Yes I had the surgery to remove the cyst and although they couldn't remove all of it, it has relieved most of my pain. The cyst was located between the urethra and vaginal wall. When I say it relieved most of the pain I mean it doesn't hurt daily anymore. If I am too physically active I can feel a little twinge that let's me I have over exerted myself. I'm just praying the little that was left will not grow and I end up having to have a repeat surgery.

lonelyone48

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Maybe not vulvodynia

Post  let's kick this on Wed Jun 08, 2016 1:42 pm

Lonelyone 48,

How did the find the cyst ?

let's kick this

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Re: May Not Be Vulvodynia!

Post  lonelyone48 on Wed Jun 08, 2016 1:50 pm

Vaginal examination. I had been to many doctors over the years and as soon as he look there he asked had anyone ever talked to me about this cyst. It amazed me that during those 10 years no one ever saw it. He says he may have taken that long to grow to the size it was to see with the naked eye and I'm assuming because he is a Vulvodynia specialist he knew exactly what to look for.

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vulvodynia

Post  why57 on Thu Jun 30, 2016 12:13 am

I'm not seeing that anything will help The doctor says this is what I have. all I know is razor blade pain on the bottom of vagina if I try sex this all started about a year ago I have not been able to find help
I just signed up on this site and cant figure out how to send this message for help

does anyone have information for me I really really don't want surgery

thank you

why57

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Re: May Not Be Vulvodynia!

Post  emalita on Thu Jun 30, 2016 12:49 pm

Hi why57,

To add your own post, just click on the grayish black button near the top or bottom of the page that says "New Topic". Can you tell us a little more about your pain?

- Do you only have pain with sex, or is it with any type of penetration (finger, tampon, etc.)?
- What treatments have you tried so far (antidepressants, anticonvulsants, lidocaine, physical therapy, etc.)?
- Do you know what triggered this pain (infection, trauma, etc.), or have you always had it with penetration?
- Have you AND your partner switched to all hypoallergenic products to rule out an allergic reaction? See the following post link for more info on that: http://vulvodyniasupport.forumotion.net/t2299-good-place-to-start-hypoallergenic-products-temporary-lifestyle-changes

emalita

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Re: May Not Be Vulvodynia!

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