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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


May Not Be Vulvodynia!

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May Not Be Vulvodynia!

Post  lonelyone48 on Tue May 12, 2015 3:55 am

Ok so after being treated for vulvodynia for 10 years, I've been told it's possible that the vulva pain is due to Urethral Diverticulum which will have to be surgically removed.

lonelyone48

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Re: May Not Be Vulvodynia!

Post  girlcraft on Sat Jun 04, 2016 11:37 pm

Can you elaborate on this! And have you had the surgery ?

girlcraft

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Re: May Not Be Vulvodynia!

Post  lonelyone48 on Wed Jun 08, 2016 1:31 pm

Yes I had the surgery to remove the cyst and although they couldn't remove all of it, it has relieved most of my pain. The cyst was located between the urethra and vaginal wall. When I say it relieved most of the pain I mean it doesn't hurt daily anymore. If I am too physically active I can feel a little twinge that let's me I have over exerted myself. I'm just praying the little that was left will not grow and I end up having to have a repeat surgery.

lonelyone48

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Maybe not vulvodynia

Post  let's kick this on Wed Jun 08, 2016 1:42 pm

Lonelyone 48,

How did the find the cyst ?

let's kick this

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Re: May Not Be Vulvodynia!

Post  lonelyone48 on Wed Jun 08, 2016 1:50 pm

Vaginal examination. I had been to many doctors over the years and as soon as he look there he asked had anyone ever talked to me about this cyst. It amazed me that during those 10 years no one ever saw it. He says he may have taken that long to grow to the size it was to see with the naked eye and I'm assuming because he is a Vulvodynia specialist he knew exactly what to look for.

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vulvodynia

Post  why57 on Thu Jun 30, 2016 12:13 am

I'm not seeing that anything will help The doctor says this is what I have. all I know is razor blade pain on the bottom of vagina if I try sex this all started about a year ago I have not been able to find help
I just signed up on this site and cant figure out how to send this message for help

does anyone have information for me I really really don't want surgery

thank you

why57

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Re: May Not Be Vulvodynia!

Post  emalita on Thu Jun 30, 2016 12:49 pm

Hi why57,

To add your own post, just click on the grayish black button near the top or bottom of the page that says "New Topic". Can you tell us a little more about your pain?

- Do you only have pain with sex, or is it with any type of penetration (finger, tampon, etc.)?
- What treatments have you tried so far (antidepressants, anticonvulsants, lidocaine, physical therapy, etc.)?
- Do you know what triggered this pain (infection, trauma, etc.), or have you always had it with penetration?
- Have you AND your partner switched to all hypoallergenic products to rule out an allergic reaction? See the following post link for more info on that: http://vulvodyniasupport.forumotion.net/t2299-good-place-to-start-hypoallergenic-products-temporary-lifestyle-changes

emalita

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Re: May Not Be Vulvodynia!

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