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» I'm sorry im rambling
Today at 5:49 am by Jet227

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


May Not Be Vulvodynia!

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May Not Be Vulvodynia!

Post  lonelyone48 on Tue May 12, 2015 3:55 am

Ok so after being treated for vulvodynia for 10 years, I've been told it's possible that the vulva pain is due to Urethral Diverticulum which will have to be surgically removed.

lonelyone48

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Re: May Not Be Vulvodynia!

Post  girlcraft on Sat Jun 04, 2016 11:37 pm

Can you elaborate on this! And have you had the surgery ?

girlcraft

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Re: May Not Be Vulvodynia!

Post  lonelyone48 on Wed Jun 08, 2016 1:31 pm

Yes I had the surgery to remove the cyst and although they couldn't remove all of it, it has relieved most of my pain. The cyst was located between the urethra and vaginal wall. When I say it relieved most of the pain I mean it doesn't hurt daily anymore. If I am too physically active I can feel a little twinge that let's me I have over exerted myself. I'm just praying the little that was left will not grow and I end up having to have a repeat surgery.

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Maybe not vulvodynia

Post  let's kick this on Wed Jun 08, 2016 1:42 pm

Lonelyone 48,

How did the find the cyst ?

let's kick this

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Re: May Not Be Vulvodynia!

Post  lonelyone48 on Wed Jun 08, 2016 1:50 pm

Vaginal examination. I had been to many doctors over the years and as soon as he look there he asked had anyone ever talked to me about this cyst. It amazed me that during those 10 years no one ever saw it. He says he may have taken that long to grow to the size it was to see with the naked eye and I'm assuming because he is a Vulvodynia specialist he knew exactly what to look for.

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vulvodynia

Post  why57 on Thu Jun 30, 2016 12:13 am

I'm not seeing that anything will help The doctor says this is what I have. all I know is razor blade pain on the bottom of vagina if I try sex this all started about a year ago I have not been able to find help
I just signed up on this site and cant figure out how to send this message for help

does anyone have information for me I really really don't want surgery

thank you

why57

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Re: May Not Be Vulvodynia!

Post  emalita on Thu Jun 30, 2016 12:49 pm

Hi why57,

To add your own post, just click on the grayish black button near the top or bottom of the page that says "New Topic". Can you tell us a little more about your pain?

- Do you only have pain with sex, or is it with any type of penetration (finger, tampon, etc.)?
- What treatments have you tried so far (antidepressants, anticonvulsants, lidocaine, physical therapy, etc.)?
- Do you know what triggered this pain (infection, trauma, etc.), or have you always had it with penetration?
- Have you AND your partner switched to all hypoallergenic products to rule out an allergic reaction? See the following post link for more info on that: http://vulvodyniasupport.forumotion.net/t2299-good-place-to-start-hypoallergenic-products-temporary-lifestyle-changes

emalita

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Re: May Not Be Vulvodynia!

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