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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

May Not Be Vulvodynia!

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May Not Be Vulvodynia!

Post  lonelyone48 on Tue May 12, 2015 3:55 am

Ok so after being treated for vulvodynia for 10 years, I've been told it's possible that the vulva pain is due to Urethral Diverticulum which will have to be surgically removed.


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Re: May Not Be Vulvodynia!

Post  girlcraft on Sat Jun 04, 2016 11:37 pm

Can you elaborate on this! And have you had the surgery ?


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Re: May Not Be Vulvodynia!

Post  lonelyone48 on Wed Jun 08, 2016 1:31 pm

Yes I had the surgery to remove the cyst and although they couldn't remove all of it, it has relieved most of my pain. The cyst was located between the urethra and vaginal wall. When I say it relieved most of the pain I mean it doesn't hurt daily anymore. If I am too physically active I can feel a little twinge that let's me I have over exerted myself. I'm just praying the little that was left will not grow and I end up having to have a repeat surgery.


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Maybe not vulvodynia

Post  let's kick this on Wed Jun 08, 2016 1:42 pm

Lonelyone 48,

How did the find the cyst ?

let's kick this

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Re: May Not Be Vulvodynia!

Post  lonelyone48 on Wed Jun 08, 2016 1:50 pm

Vaginal examination. I had been to many doctors over the years and as soon as he look there he asked had anyone ever talked to me about this cyst. It amazed me that during those 10 years no one ever saw it. He says he may have taken that long to grow to the size it was to see with the naked eye and I'm assuming because he is a Vulvodynia specialist he knew exactly what to look for.


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Post  why57 on Thu Jun 30, 2016 12:13 am

I'm not seeing that anything will help The doctor says this is what I have. all I know is razor blade pain on the bottom of vagina if I try sex this all started about a year ago I have not been able to find help
I just signed up on this site and cant figure out how to send this message for help

does anyone have information for me I really really don't want surgery

thank you


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Re: May Not Be Vulvodynia!

Post  emalita on Thu Jun 30, 2016 12:49 pm

Hi why57,

To add your own post, just click on the grayish black button near the top or bottom of the page that says "New Topic". Can you tell us a little more about your pain?

- Do you only have pain with sex, or is it with any type of penetration (finger, tampon, etc.)?
- What treatments have you tried so far (antidepressants, anticonvulsants, lidocaine, physical therapy, etc.)?
- Do you know what triggered this pain (infection, trauma, etc.), or have you always had it with penetration?
- Have you AND your partner switched to all hypoallergenic products to rule out an allergic reaction? See the following post link for more info on that: http://vulvodyniasupport.forumotion.net/t2299-good-place-to-start-hypoallergenic-products-temporary-lifestyle-changes


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Re: May Not Be Vulvodynia!

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