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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


20 years old with vulvar vestibulitis

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20 years old with vulvar vestibulitis

Post  mrs.optimistic on Thu May 14, 2015 6:29 pm

My name is Jess- this is my story.
I met the love of my life in highschool, sex was amazing and we never had a single problem. At just 17, I fell pregnant with twins. During my third trimester, i had a yeast infection and treated it (or tried to anyway) with monostate one. It was so strong that it felt as if I was being burned by acid from the inside out. I jumped in the shower and tried my hardest to get the medication out, with no success. I laid in bed in agony that night and cried myself to sleep. Since that day things haven't been the same. I had a c-section and waited 6 weeks before having sex with my husband. All I experienced was pain, but didn't think too much of it. I was put on depo and literally bled for 3 months straight, so I changed contraceptives. I had back-to-back yeast/bacterial infections and UTI bladder infections during this time. I was treated with constant antibiotics with no relief. After two years, my doctor told me i was experiencing swelling and discomfort because my birth control was causing an hormonal imbalance. So, I stopped taking the pill to let my body return to its normal state. With no luck I saw a handful of different doctors, that told me everything looked fine and I was just paranoid. Tests were negative for STDs, doctors didn't know what to do with me. My family physician told me my husband was probably too big, and I should practice with dildos to widen my vagina. I was sick and tired of no one knowing what the hell was wrong with me, and belittling my problems because I was young. Last year I got really sick, throwing up for days with intense back pain. I couldn't get out of bed, so I finally went to the E.R. I found out I had ovarian cysts and one of them ruptured, causing fluid build up in my back and abdomen. I saw an obgyn to follow up, and she told me the only way to control cysts is by taking birth control to stop the function of my ovaries. Due to my trouble with the pill in the past, I gave up and forgot about it. A few months ago the swelling really took a toll, becoming worst and worst. I couldnt take the pain and burning anymore, so I did some research and self diagnosed myself with vulvodynia. Now knowing vaginal pain was a condition, I was able to find myself a vulvar specialist who specialized in the treatment of vaginal pain. He recently diagnosed me with vulvar vestibulitis and pelvic floor dysfunction. All in all, I've been battling with vulvodynia for 4 years now. I can't have sex or use tampons (which sucks because without the use of birth control my periods are wicked heavy). My husband is extremely supportive of my condition (thank god) and we are taking things one step at a time. My advice to those of you with vaginal pain.. Seek a specialist. Don't waste years of your life bouncing from doctor to doctor like I did! They made me feel like I was crazy, and what was happening to me wasn't real. Turns out it's very real, health professionals just don't know what to look for. My vulvodynia hasn't gotten better, in fact it had been getting even worst. But, I take comfort in knowing I have a diagnosis now, and im not the only one. You'll feel better when you find out what's wrong. It kills me knowing im so young battling this, i cry constantly. All i can do is keep trying, and hope for the best.

mrs.optimistic

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Re: 20 years old with vulvar vestibulitis

Post  mikan92 on Fri May 15, 2015 12:08 pm

Hi!

Just wanted to say you are not alone in this!
It's really horrible to be going through all these esp at such a young age Sad I'm 23 this year and at first was really really scared about having this for the whole life, not being able to have pain free sex etc. But after reading all the successful stories here I think everyone can get relief, it's just the matter of time in finding the right one Smile I did cry a lot too, but impt thing is not to lose hope! Please believe that there is something for you (at least that's what I'm trying to do now). You can talk to others in this forum they are all really helpful and nice. Some posts have good advice on treatment options too. Don't be scared, even though we are young we can still win this battle! We can't let this ruin our lives we still have so many things to explore and so many things to enjoy in life Very Happy

mikan92

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Re: 20 years old with vulvar vestibulitis

Post  mrs.optimistic on Sat May 16, 2015 8:27 am

Thanks so much, that means a lot to me right now. If you aren't giving up, well I can't either. I'll keep reading and researching. So far I'll be trying coconut oil and a probiotic. Maybe even switching to all natural soaps/washes. Wish me luck!

mrs.optimistic

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Re: 20 years old with vulvar vestibulitis

Post  mikan92 on Sat May 16, 2015 10:05 am

No prob!
Coconut oil is good I'm using that too. Some people ingest 2 spoonful daily and got relief, I've been trying but personally don't think it's working for me Sad
Hope the probiotic works for you! Keep me updated with your progress cause I'm also in search of more things that might work for me Smile

mikan92

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Re: 20 years old with vulvar vestibulitis

Post  Breathe46 on Mon Jun 29, 2015 3:47 pm

Hi Mrs Optimistic,

I am shocked to hear your story because mine is very similar. I have had vulvodynia for the last four years (started at 25 ans im 30 now) and it all started with a yeast infection that I tried to treat with Monistat. Like you, I had intense itching and pain and had to jump in the shower and nearly screamed in pain (worst pain of my life!). I had to go to the ER where they told me I probably had some kind of allergic reaction and gave me anti-yeast pills to treat the infection. Things got better for a few months until I noticed intense itching periodically and also severe pain when I tried to have a pelvic exam to the point where I could not tolerate it. I was diagnosed with vulvar vestibulitis and I went to see a specialist who told me she thought it was all muscle related. I went to pelvic physical therapy for three months which initially hurt a lot but I tthink helped eventually but I had to stop going bc I needed to go to school and didn't have time or a nearby physical therapy place for this (it is somewhat rare). Since then I have had flares that come and go, especially at the end of the day and during periods. It never goes away completely but some days it almost does only to come back Witt a vengeance the next for no foreseeable reason. I currently use lidocaine gel when it hurts a lot, all hypoallergenic products, and cold water after going to the bathroom which numbs the area. I still can't have a pelvic exam (I refuse to) and I also refuse to date bc it causes me to much stress dealing with this problem. I think the Monistat caused everything and I severely regret using it and ruining my life. I think we should all band together and get them to write a warning label on it because NOBODY deserves to have his happen to them.

Mrs Optomistic, I am so glad your husband is supportive of you. If you ever want to talk we should exchange emails because it's always good to have support. I currently hope to be able to try physical therapy again in a year bc I have an intense job right now. Prayers to all of us who are suffering from this dreadful condition.

Breathe46

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Re: 20 years old with vulvar vestibulitis

Post  Emmae394 on Tue Jun 30, 2015 4:13 am

What is this "physio" that everyone is speaking of? I'm new to this forum and am seeking out any options to help manage my PVD!! Currently on 30mg of Nortriptyline, daily use of an estrogen/lidocaine compound cream and self pelvic floor muscle therapy with a therawand. All prescribed and suggested by my doctor who specializes in vestibulodynia. I'm 21 years old and have been dealing with this ever since recovering from chronic uti's for 2 years. Never thought I would have issues like this! My vestibulodynia has developed over the course of a year and a half. Started out with no pain, to slight pain in one small spot, to intense burning in generalized area after sex. This sucks! Trying to stay hopeful though

Emmae394

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Re: 20 years old with vulvar vestibulitis

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