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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Please help

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Re: Please help

Post  A2015 on Thu Jun 04, 2015 8:03 am

Hi sgw11,

No he didn't prescribe anything for now.
I'm concerned that Ami cream or other antidepressants (topical or oral) simply mask the symptoms, rather than actually curing the Vestibulitis for good. Though I imagine that'll be my next treatment. I wonder if it actually would have resolved completely if you had used it for longer? I'm not sure. Does anyone know of someone cured for good after doing this?

I commented yesterday on a post by anon99 titled 'Stop taking your birth control!'. She had been taking BC since 16 with no problems til she was 21, came off the Pill and was cured. I feel you should consider this as it sounds like your situation!

Positive thoughts. Again, while it feels like a permanent situation, my body went back to normal completely (tampons, painless sex) so it has to do be able to do that again, one way or another.


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I'm 16 now

Post  EverythingIsDifferentNow on Wed Jul 01, 2015 6:17 pm

Hi Lady Smile I was 14 when I started experiencing problems with my vulvar area. When I was 15, I was diagnosed with vulvodynia. Nobody in my family really cared until I stopped going out, I got depressed, I started crying more often, and I felt utterly depressed and hopeless. I thought my dreams were crushed because of this condition. However, I didn't fully give up. I started doing intensive research and found that what I was experiencing was like a REALLY BAD yeast infection. So this is what I did to cure myself (I've been cured for almost a year now! Very Happy )
-Core exercises
-Calcium Citrate everyday (you can get it at Walgreens or CVS)
-NO MORE SPINACH. I used to have it three times a day. (cut down on high oxalate foods)
-No more bubble baths
-Vitamin pills everyday

DO NOT USE ANYTHING ANTI-FUNGAL. You'll only make the imbalance of bacteria in your vaginal more imbalanced.
Do it the natural way, and you'll be cured. It takes time, but it does work flower


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New diagnosis

Post  curlyblondegirlie on Fri Jul 10, 2015 9:35 am

Hey all,

I'm 23 and was diagnoses with provoked vestibulodynia about a month ago.
I've just read through the previous threads and am amazed by all the different treatments you have all been offered!
My consultant, who diagnosed me, has given me oestrogen pessaries and an numbing gel. He believes the disease was triggered by a change in hormone levels (I've tried about 5 different oral contraceptives in 2 years) so the oestrogen is meant to help. However, the pessaries are so painful to put in, even with the numbing gel, and I'm feeling really hopeless. I wasn't offered an oral alternative to the pessaries, but surely they would make so much more sense.
I've also read a lot about about women taking calcium tablets- Are these worthwhile trying?
To be honest, I'm really struggling at the moment. The diagnosis is just hitting home and I'm starting to feel really low. I try to have non-penatrative sex with my boyfriend to try and keep some passion, but every time I do I end up in tears because it reminds me of what I can't do anymore. I worry I will never have a healthy, passionate sex life again and it makes me so sad to think about all the wonderful sex I've had in the past.
I don't know how to move forward really, what treatments to pursue or how to handle my relationship with this issue. At the moment I've asked my partner not to initiate anything sexual as it makes me so upset. Maybe I'm just coming to terms with it.
Any advice or help would be amazing, I'm so grateful there is a forum available!


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Age : 26
Location : Bristol, UK

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Re: Please help

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