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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Please help

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Re: Please help

Post  A2015 on Thu Jun 04, 2015 8:03 am

Hi sgw11,

No he didn't prescribe anything for now.
I'm concerned that Ami cream or other antidepressants (topical or oral) simply mask the symptoms, rather than actually curing the Vestibulitis for good. Though I imagine that'll be my next treatment. I wonder if it actually would have resolved completely if you had used it for longer? I'm not sure. Does anyone know of someone cured for good after doing this?

I commented yesterday on a post by anon99 titled 'Stop taking your birth control!'. She had been taking BC since 16 with no problems til she was 21, came off the Pill and was cured. I feel you should consider this as it sounds like your situation!

Positive thoughts. Again, while it feels like a permanent situation, my body went back to normal completely (tampons, painless sex) so it has to do be able to do that again, one way or another.


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I'm 16 now

Post  EverythingIsDifferentNow on Wed Jul 01, 2015 6:17 pm

Hi Lady Smile I was 14 when I started experiencing problems with my vulvar area. When I was 15, I was diagnosed with vulvodynia. Nobody in my family really cared until I stopped going out, I got depressed, I started crying more often, and I felt utterly depressed and hopeless. I thought my dreams were crushed because of this condition. However, I didn't fully give up. I started doing intensive research and found that what I was experiencing was like a REALLY BAD yeast infection. So this is what I did to cure myself (I've been cured for almost a year now! Very Happy )
-Core exercises
-Calcium Citrate everyday (you can get it at Walgreens or CVS)
-NO MORE SPINACH. I used to have it three times a day. (cut down on high oxalate foods)
-No more bubble baths
-Vitamin pills everyday

DO NOT USE ANYTHING ANTI-FUNGAL. You'll only make the imbalance of bacteria in your vaginal more imbalanced.
Do it the natural way, and you'll be cured. It takes time, but it does work flower


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New diagnosis

Post  curlyblondegirlie on Fri Jul 10, 2015 9:35 am

Hey all,

I'm 23 and was diagnoses with provoked vestibulodynia about a month ago.
I've just read through the previous threads and am amazed by all the different treatments you have all been offered!
My consultant, who diagnosed me, has given me oestrogen pessaries and an numbing gel. He believes the disease was triggered by a change in hormone levels (I've tried about 5 different oral contraceptives in 2 years) so the oestrogen is meant to help. However, the pessaries are so painful to put in, even with the numbing gel, and I'm feeling really hopeless. I wasn't offered an oral alternative to the pessaries, but surely they would make so much more sense.
I've also read a lot about about women taking calcium tablets- Are these worthwhile trying?
To be honest, I'm really struggling at the moment. The diagnosis is just hitting home and I'm starting to feel really low. I try to have non-penatrative sex with my boyfriend to try and keep some passion, but every time I do I end up in tears because it reminds me of what I can't do anymore. I worry I will never have a healthy, passionate sex life again and it makes me so sad to think about all the wonderful sex I've had in the past.
I don't know how to move forward really, what treatments to pursue or how to handle my relationship with this issue. At the moment I've asked my partner not to initiate anything sexual as it makes me so upset. Maybe I'm just coming to terms with it.
Any advice or help would be amazing, I'm so grateful there is a forum available!


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Age : 26
Location : Bristol, UK

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Re: Please help

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