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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

Please help

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Re: Please help

Post  A2015 on Thu Jun 04, 2015 8:03 am

Hi sgw11,

No he didn't prescribe anything for now.
I'm concerned that Ami cream or other antidepressants (topical or oral) simply mask the symptoms, rather than actually curing the Vestibulitis for good. Though I imagine that'll be my next treatment. I wonder if it actually would have resolved completely if you had used it for longer? I'm not sure. Does anyone know of someone cured for good after doing this?

I commented yesterday on a post by anon99 titled 'Stop taking your birth control!'. She had been taking BC since 16 with no problems til she was 21, came off the Pill and was cured. I feel you should consider this as it sounds like your situation!

Positive thoughts. Again, while it feels like a permanent situation, my body went back to normal completely (tampons, painless sex) so it has to do be able to do that again, one way or another.


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I'm 16 now

Post  EverythingIsDifferentNow on Wed Jul 01, 2015 6:17 pm

Hi Lady Smile I was 14 when I started experiencing problems with my vulvar area. When I was 15, I was diagnosed with vulvodynia. Nobody in my family really cared until I stopped going out, I got depressed, I started crying more often, and I felt utterly depressed and hopeless. I thought my dreams were crushed because of this condition. However, I didn't fully give up. I started doing intensive research and found that what I was experiencing was like a REALLY BAD yeast infection. So this is what I did to cure myself (I've been cured for almost a year now! Very Happy )
-Core exercises
-Calcium Citrate everyday (you can get it at Walgreens or CVS)
-NO MORE SPINACH. I used to have it three times a day. (cut down on high oxalate foods)
-No more bubble baths
-Vitamin pills everyday

DO NOT USE ANYTHING ANTI-FUNGAL. You'll only make the imbalance of bacteria in your vaginal more imbalanced.
Do it the natural way, and you'll be cured. It takes time, but it does work flower


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New diagnosis

Post  curlyblondegirlie on Fri Jul 10, 2015 9:35 am

Hey all,

I'm 23 and was diagnoses with provoked vestibulodynia about a month ago.
I've just read through the previous threads and am amazed by all the different treatments you have all been offered!
My consultant, who diagnosed me, has given me oestrogen pessaries and an numbing gel. He believes the disease was triggered by a change in hormone levels (I've tried about 5 different oral contraceptives in 2 years) so the oestrogen is meant to help. However, the pessaries are so painful to put in, even with the numbing gel, and I'm feeling really hopeless. I wasn't offered an oral alternative to the pessaries, but surely they would make so much more sense.
I've also read a lot about about women taking calcium tablets- Are these worthwhile trying?
To be honest, I'm really struggling at the moment. The diagnosis is just hitting home and I'm starting to feel really low. I try to have non-penatrative sex with my boyfriend to try and keep some passion, but every time I do I end up in tears because it reminds me of what I can't do anymore. I worry I will never have a healthy, passionate sex life again and it makes me so sad to think about all the wonderful sex I've had in the past.
I don't know how to move forward really, what treatments to pursue or how to handle my relationship with this issue. At the moment I've asked my partner not to initiate anything sexual as it makes me so upset. Maybe I'm just coming to terms with it.
Any advice or help would be amazing, I'm so grateful there is a forum available!


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Age : 25
Location : Bristol, UK

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Re: Please help

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