Log in

I forgot my password

Latest topics
Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


anyone from ireland please???

View previous topic View next topic Go down

anyone from ireland please???

Post  mcc on Mon May 25, 2015 12:16 pm

Hiya ive been suffering since last dec with burning had biopsy done and it came back non specific inflamation..im at my wits end with this and im trying to find a specialist in ireland please...

mcc

Posts : 9
Join date : 2015-05-24

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  Zbrown on Mon May 25, 2015 10:35 pm

Hey I'm from Belfast I had a blood test to see for inflammation and it just said there was a small marker for it...Iv not had much luck it has calmed down a bit but still painful at times x

Zbrown

Posts : 131
Join date : 2014-02-26

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  mcc on Tue May 26, 2015 6:49 pm

Hi zbrown thanks for replying..if u dont mind me asking has ur doc giving u anythin to help?

mcc

Posts : 9
Join date : 2015-05-24

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  Zbrown on Tue May 26, 2015 11:22 pm

No problem it's good to chat here Smile to start with they tried yeast treatments then antibiotics which didn't help at all, then steroid cream made my skin split open so bad:(, I then had various swabs blood tests at a GUM clinic on referral nothing came back with any answers.
I then paid to go private and they suspected some sort of nerve issue first of had 6-7 acupuncture sessions helped very slightly, then self referred to a woman's physio this helped aloe ad my pelvic floor muscles where quite tight used dilators after 8 sessions I was ok to stop just use them at home but still Had burning was on at the highest 700 mg gapabentin which helped so much I took myself of it to early now have slight burning again but a more severe burning on one side of mouth so strange!!
Sorry for long reply I tend to get my frustrations out here Smile wbu what have u tried xo

Zbrown

Posts : 131
Join date : 2014-02-26

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  mcc on Wed May 27, 2015 11:08 am

Hi zbrown
thanks again for the reply.u poor thing u sure have been through the mill and i can totally understand about getting frustrated.my whole life at the moment is revolving around the pain down their.i had a biopsy in march which came back as non specific inflamation.that dermo doc gave me daktacort cream and that was it.my own doc prescribed amitriptyline only helped for about a wk.then i took trilptal and recently cymbalta with no relief.im just back from seeing a different dermotologist today she was very nice and she said i have lichen scelerous and has prescribed me dermovate ointment.i dont have the usual symptoms for it but she is convinced thats what i have.im feeling very anxious about it maybe because ive read so many horror stories about this skin condition.im just hoping that i will get relief from using this cream.i really hope u get some relief from what ur goin through xxx

mcc

Posts : 9
Join date : 2015-05-24

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  Zbrown on Wed May 27, 2015 5:32 pm

It is a frustrating time I try not to stress as I know this triggers aloe of things and brings it on its hard not too thowe :/ well I hope u get some relief and now they finally know what it is hopefully can get sorted how long have u had these symptoms? Did it start just from nowhere xoxo

Zbrown

Posts : 131
Join date : 2014-02-26

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  mcc on Wed May 27, 2015 6:39 pm

I know how that feels stress is a bigger trigger and i find it so hard not to stress when im feelin like this.my own doc tried to give me antidepressants cause id saw he thought i had lost the plot i was crying so much in his surgery.i have the symptoms since dec i thought i had thrush but the swab results came back clear twice.i did have a lot of stress beforehand with family stuff so weather that brought it to a head im not sure.im hoping that the dermovate will help me and that maybe ill start feeling a bit better.

mcc

Posts : 9
Join date : 2015-05-24

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  Zbrown on Thu May 28, 2015 11:07 pm

Yeah like I notice if I get run down lack of sleep ect I do get cold sores and just general feeling down along with vulvodynia worsening, I hope it helps you feel better too!!!! Is your generalised or vestibule? Xo

Zbrown

Posts : 131
Join date : 2014-02-26

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  mcc on Fri May 29, 2015 8:10 am

Im the exact same my mouth is all broken out at the moment with cold sores and id say its from the stress of it all.i was bein treated for vulvodynia by my doc for the last 6 months and only had relief for a wk with the amitriptyline and then it got worse and i was given few different tablets but none helped so it turns out i dont have vulvodynia at all its lichen scelerous i have even though i dont have the white skin only a burning pain and some pigment discoloration which looks like brusing.i only wish i had been diagnosed earlier but im hoping that i will get some relief as the wks go on with the dermovate cream im using.

mcc

Posts : 9
Join date : 2015-05-24

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  Zbrown on Fri May 29, 2015 11:24 pm

Awww well hopefully it helps iv never been to a dermatologist that might be a good.idea just to rule out skin conditions, tbh I'm definitely not as bad as I was at the start of All this! Although it still does get me down at times xx

Zbrown

Posts : 131
Join date : 2014-02-26

View user profile

Back to top Go down

Re: anyone from ireland please???

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum