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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


anyone from ireland please???

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anyone from ireland please???

Post  mcc on Mon May 25, 2015 12:16 pm

Hiya ive been suffering since last dec with burning had biopsy done and it came back non specific inflamation..im at my wits end with this and im trying to find a specialist in ireland please...

mcc

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Re: anyone from ireland please???

Post  Zbrown on Mon May 25, 2015 10:35 pm

Hey I'm from Belfast I had a blood test to see for inflammation and it just said there was a small marker for it...Iv not had much luck it has calmed down a bit but still painful at times x

Zbrown

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Re: anyone from ireland please???

Post  mcc on Tue May 26, 2015 6:49 pm

Hi zbrown thanks for replying..if u dont mind me asking has ur doc giving u anythin to help?

mcc

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Re: anyone from ireland please???

Post  Zbrown on Tue May 26, 2015 11:22 pm

No problem it's good to chat here Smile to start with they tried yeast treatments then antibiotics which didn't help at all, then steroid cream made my skin split open so bad:(, I then had various swabs blood tests at a GUM clinic on referral nothing came back with any answers.
I then paid to go private and they suspected some sort of nerve issue first of had 6-7 acupuncture sessions helped very slightly, then self referred to a woman's physio this helped aloe ad my pelvic floor muscles where quite tight used dilators after 8 sessions I was ok to stop just use them at home but still Had burning was on at the highest 700 mg gapabentin which helped so much I took myself of it to early now have slight burning again but a more severe burning on one side of mouth so strange!!
Sorry for long reply I tend to get my frustrations out here Smile wbu what have u tried xo

Zbrown

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Re: anyone from ireland please???

Post  mcc on Wed May 27, 2015 11:08 am

Hi zbrown
thanks again for the reply.u poor thing u sure have been through the mill and i can totally understand about getting frustrated.my whole life at the moment is revolving around the pain down their.i had a biopsy in march which came back as non specific inflamation.that dermo doc gave me daktacort cream and that was it.my own doc prescribed amitriptyline only helped for about a wk.then i took trilptal and recently cymbalta with no relief.im just back from seeing a different dermotologist today she was very nice and she said i have lichen scelerous and has prescribed me dermovate ointment.i dont have the usual symptoms for it but she is convinced thats what i have.im feeling very anxious about it maybe because ive read so many horror stories about this skin condition.im just hoping that i will get relief from using this cream.i really hope u get some relief from what ur goin through xxx

mcc

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Re: anyone from ireland please???

Post  Zbrown on Wed May 27, 2015 5:32 pm

It is a frustrating time I try not to stress as I know this triggers aloe of things and brings it on its hard not too thowe :/ well I hope u get some relief and now they finally know what it is hopefully can get sorted how long have u had these symptoms? Did it start just from nowhere xoxo

Zbrown

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Re: anyone from ireland please???

Post  mcc on Wed May 27, 2015 6:39 pm

I know how that feels stress is a bigger trigger and i find it so hard not to stress when im feelin like this.my own doc tried to give me antidepressants cause id saw he thought i had lost the plot i was crying so much in his surgery.i have the symptoms since dec i thought i had thrush but the swab results came back clear twice.i did have a lot of stress beforehand with family stuff so weather that brought it to a head im not sure.im hoping that the dermovate will help me and that maybe ill start feeling a bit better.

mcc

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Re: anyone from ireland please???

Post  Zbrown on Thu May 28, 2015 11:07 pm

Yeah like I notice if I get run down lack of sleep ect I do get cold sores and just general feeling down along with vulvodynia worsening, I hope it helps you feel better too!!!! Is your generalised or vestibule? Xo

Zbrown

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Re: anyone from ireland please???

Post  mcc on Fri May 29, 2015 8:10 am

Im the exact same my mouth is all broken out at the moment with cold sores and id say its from the stress of it all.i was bein treated for vulvodynia by my doc for the last 6 months and only had relief for a wk with the amitriptyline and then it got worse and i was given few different tablets but none helped so it turns out i dont have vulvodynia at all its lichen scelerous i have even though i dont have the white skin only a burning pain and some pigment discoloration which looks like brusing.i only wish i had been diagnosed earlier but im hoping that i will get some relief as the wks go on with the dermovate cream im using.

mcc

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Re: anyone from ireland please???

Post  Zbrown on Fri May 29, 2015 11:24 pm

Awww well hopefully it helps iv never been to a dermatologist that might be a good.idea just to rule out skin conditions, tbh I'm definitely not as bad as I was at the start of All this! Although it still does get me down at times xx

Zbrown

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Re: anyone from ireland please???

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