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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


anyone from ireland please???

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anyone from ireland please???

Post  mcc on Mon May 25, 2015 12:16 pm

Hiya ive been suffering since last dec with burning had biopsy done and it came back non specific inflamation..im at my wits end with this and im trying to find a specialist in ireland please...

mcc

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Re: anyone from ireland please???

Post  Zbrown on Mon May 25, 2015 10:35 pm

Hey I'm from Belfast I had a blood test to see for inflammation and it just said there was a small marker for it...Iv not had much luck it has calmed down a bit but still painful at times x

Zbrown

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Re: anyone from ireland please???

Post  mcc on Tue May 26, 2015 6:49 pm

Hi zbrown thanks for replying..if u dont mind me asking has ur doc giving u anythin to help?

mcc

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Re: anyone from ireland please???

Post  Zbrown on Tue May 26, 2015 11:22 pm

No problem it's good to chat here Smile to start with they tried yeast treatments then antibiotics which didn't help at all, then steroid cream made my skin split open so bad:(, I then had various swabs blood tests at a GUM clinic on referral nothing came back with any answers.
I then paid to go private and they suspected some sort of nerve issue first of had 6-7 acupuncture sessions helped very slightly, then self referred to a woman's physio this helped aloe ad my pelvic floor muscles where quite tight used dilators after 8 sessions I was ok to stop just use them at home but still Had burning was on at the highest 700 mg gapabentin which helped so much I took myself of it to early now have slight burning again but a more severe burning on one side of mouth so strange!!
Sorry for long reply I tend to get my frustrations out here Smile wbu what have u tried xo

Zbrown

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Re: anyone from ireland please???

Post  mcc on Wed May 27, 2015 11:08 am

Hi zbrown
thanks again for the reply.u poor thing u sure have been through the mill and i can totally understand about getting frustrated.my whole life at the moment is revolving around the pain down their.i had a biopsy in march which came back as non specific inflamation.that dermo doc gave me daktacort cream and that was it.my own doc prescribed amitriptyline only helped for about a wk.then i took trilptal and recently cymbalta with no relief.im just back from seeing a different dermotologist today she was very nice and she said i have lichen scelerous and has prescribed me dermovate ointment.i dont have the usual symptoms for it but she is convinced thats what i have.im feeling very anxious about it maybe because ive read so many horror stories about this skin condition.im just hoping that i will get relief from using this cream.i really hope u get some relief from what ur goin through xxx

mcc

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Re: anyone from ireland please???

Post  Zbrown on Wed May 27, 2015 5:32 pm

It is a frustrating time I try not to stress as I know this triggers aloe of things and brings it on its hard not too thowe :/ well I hope u get some relief and now they finally know what it is hopefully can get sorted how long have u had these symptoms? Did it start just from nowhere xoxo

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Re: anyone from ireland please???

Post  mcc on Wed May 27, 2015 6:39 pm

I know how that feels stress is a bigger trigger and i find it so hard not to stress when im feelin like this.my own doc tried to give me antidepressants cause id saw he thought i had lost the plot i was crying so much in his surgery.i have the symptoms since dec i thought i had thrush but the swab results came back clear twice.i did have a lot of stress beforehand with family stuff so weather that brought it to a head im not sure.im hoping that the dermovate will help me and that maybe ill start feeling a bit better.

mcc

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Re: anyone from ireland please???

Post  Zbrown on Thu May 28, 2015 11:07 pm

Yeah like I notice if I get run down lack of sleep ect I do get cold sores and just general feeling down along with vulvodynia worsening, I hope it helps you feel better too!!!! Is your generalised or vestibule? Xo

Zbrown

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Re: anyone from ireland please???

Post  mcc on Fri May 29, 2015 8:10 am

Im the exact same my mouth is all broken out at the moment with cold sores and id say its from the stress of it all.i was bein treated for vulvodynia by my doc for the last 6 months and only had relief for a wk with the amitriptyline and then it got worse and i was given few different tablets but none helped so it turns out i dont have vulvodynia at all its lichen scelerous i have even though i dont have the white skin only a burning pain and some pigment discoloration which looks like brusing.i only wish i had been diagnosed earlier but im hoping that i will get some relief as the wks go on with the dermovate cream im using.

mcc

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Re: anyone from ireland please???

Post  Zbrown on Fri May 29, 2015 11:24 pm

Awww well hopefully it helps iv never been to a dermatologist that might be a good.idea just to rule out skin conditions, tbh I'm definitely not as bad as I was at the start of All this! Although it still does get me down at times xx

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Re: anyone from ireland please???

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