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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


anyone from ireland please???

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anyone from ireland please???

Post  mcc on Mon May 25, 2015 12:16 pm

Hiya ive been suffering since last dec with burning had biopsy done and it came back non specific inflamation..im at my wits end with this and im trying to find a specialist in ireland please...

mcc

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Re: anyone from ireland please???

Post  Zbrown on Mon May 25, 2015 10:35 pm

Hey I'm from Belfast I had a blood test to see for inflammation and it just said there was a small marker for it...Iv not had much luck it has calmed down a bit but still painful at times x

Zbrown

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Re: anyone from ireland please???

Post  mcc on Tue May 26, 2015 6:49 pm

Hi zbrown thanks for replying..if u dont mind me asking has ur doc giving u anythin to help?

mcc

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Re: anyone from ireland please???

Post  Zbrown on Tue May 26, 2015 11:22 pm

No problem it's good to chat here Smile to start with they tried yeast treatments then antibiotics which didn't help at all, then steroid cream made my skin split open so bad:(, I then had various swabs blood tests at a GUM clinic on referral nothing came back with any answers.
I then paid to go private and they suspected some sort of nerve issue first of had 6-7 acupuncture sessions helped very slightly, then self referred to a woman's physio this helped aloe ad my pelvic floor muscles where quite tight used dilators after 8 sessions I was ok to stop just use them at home but still Had burning was on at the highest 700 mg gapabentin which helped so much I took myself of it to early now have slight burning again but a more severe burning on one side of mouth so strange!!
Sorry for long reply I tend to get my frustrations out here Smile wbu what have u tried xo

Zbrown

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Re: anyone from ireland please???

Post  mcc on Wed May 27, 2015 11:08 am

Hi zbrown
thanks again for the reply.u poor thing u sure have been through the mill and i can totally understand about getting frustrated.my whole life at the moment is revolving around the pain down their.i had a biopsy in march which came back as non specific inflamation.that dermo doc gave me daktacort cream and that was it.my own doc prescribed amitriptyline only helped for about a wk.then i took trilptal and recently cymbalta with no relief.im just back from seeing a different dermotologist today she was very nice and she said i have lichen scelerous and has prescribed me dermovate ointment.i dont have the usual symptoms for it but she is convinced thats what i have.im feeling very anxious about it maybe because ive read so many horror stories about this skin condition.im just hoping that i will get relief from using this cream.i really hope u get some relief from what ur goin through xxx

mcc

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Re: anyone from ireland please???

Post  Zbrown on Wed May 27, 2015 5:32 pm

It is a frustrating time I try not to stress as I know this triggers aloe of things and brings it on its hard not too thowe :/ well I hope u get some relief and now they finally know what it is hopefully can get sorted how long have u had these symptoms? Did it start just from nowhere xoxo

Zbrown

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Re: anyone from ireland please???

Post  mcc on Wed May 27, 2015 6:39 pm

I know how that feels stress is a bigger trigger and i find it so hard not to stress when im feelin like this.my own doc tried to give me antidepressants cause id saw he thought i had lost the plot i was crying so much in his surgery.i have the symptoms since dec i thought i had thrush but the swab results came back clear twice.i did have a lot of stress beforehand with family stuff so weather that brought it to a head im not sure.im hoping that the dermovate will help me and that maybe ill start feeling a bit better.

mcc

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Re: anyone from ireland please???

Post  Zbrown on Thu May 28, 2015 11:07 pm

Yeah like I notice if I get run down lack of sleep ect I do get cold sores and just general feeling down along with vulvodynia worsening, I hope it helps you feel better too!!!! Is your generalised or vestibule? Xo

Zbrown

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Re: anyone from ireland please???

Post  mcc on Fri May 29, 2015 8:10 am

Im the exact same my mouth is all broken out at the moment with cold sores and id say its from the stress of it all.i was bein treated for vulvodynia by my doc for the last 6 months and only had relief for a wk with the amitriptyline and then it got worse and i was given few different tablets but none helped so it turns out i dont have vulvodynia at all its lichen scelerous i have even though i dont have the white skin only a burning pain and some pigment discoloration which looks like brusing.i only wish i had been diagnosed earlier but im hoping that i will get some relief as the wks go on with the dermovate cream im using.

mcc

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Re: anyone from ireland please???

Post  Zbrown on Fri May 29, 2015 11:24 pm

Awww well hopefully it helps iv never been to a dermatologist that might be a good.idea just to rule out skin conditions, tbh I'm definitely not as bad as I was at the start of All this! Although it still does get me down at times xx

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Re: anyone from ireland please???

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