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    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 23

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25


    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 1

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured


    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 1

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0


    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 9

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 12

    Can A Cut In Vestibule cause Vulvodynia?

    Thu Mar 01, 2018 1:07 am by rockylife

    Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

    Comments: 0

    Not mad, just miserable.

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    Not mad, just miserable.

    Post  mrs.optimistic on Wed May 27, 2015 6:49 am

    I can't be optimistic. I feel like I'm building myself up to let myself down again. I'm so tired. I'm tired of trying, having hope. I keep asking myself why. How? I'm letting this take control of my life. Happiness is slipping further away from me. I feel invisible, my words don't mean a thing. I don't want to be touched, or loved. I can't make love. Will this ruin everything? Everything we've worked so hard for? I've battled other medical conditions. But this? This is just hell. Its an unrecognized, belittled, curse. I want to sob forever and drown in my tears, like crying will make the pain go away. Another bacterial infection, who knew? Nothing. Nothing helps. Screw optimism. It's such a waste.


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    Re: Not mad, just miserable.

    Post  mikan92 on Thu May 28, 2015 11:30 am

    I feel your pain. I also have moments when I just want to curl up and sob and not wanting to deal with any of this, I wish I can wake up one day realising all this was just a nightmare. I'm also scared of having hopes sometimes, because when the hope is high I'll fall harder when the it fails. But look at all the ladies in this forum, many of them have battled this horrible thing for so many years (some for their whole life)and they did not give up. If they can do it, why can't we? There are so many things we have not tried and I think it'll be too early to say nothing works.
    I think it's okay to have down moments but we need to pull ourselves tgt after that. I tell myself everyday: don't think about what you have lost, think about what you have. I rmb this quote from the movieThe Theory of Everything 'However bad life may seem, while there is life, there's hope". Please don't give up no matter what! Optimism is super hard and it seems useless, but being pessimistic definitely won't bring us anywhere.


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    I Agree!

    Post  Sincere1738 on Sun May 31, 2015 6:10 pm

    yes living with this is a curse. Thats exactly what it is. I really do try to thank god for what I do have. Which is so much compared to this. Honestly I bet there are men and women who have life in prision, lost a child, or people living in fear everyday in other countries wish they could trade places with us if given a chance. So I really count my blessing and a don't add up my problems( Joel Olsteen) Wink
    We just have to take it day by day, and PRAY. Besides all of the remedies and treatments those are most important. Stay strong. I miss my sex life dearly, it is apart of being a woman and not being able to have sex when I want is devastating. This motivates me even more to find what will work for me. When God is ready. Not when I am.


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    Re: Not mad, just miserable.

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