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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Not mad, just miserable.

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Not mad, just miserable.

Post  mrs.optimistic on Wed May 27, 2015 6:49 am

I can't be optimistic. I feel like I'm building myself up to let myself down again. I'm so tired. I'm tired of trying, having hope. I keep asking myself why. How? I'm letting this take control of my life. Happiness is slipping further away from me. I feel invisible, my words don't mean a thing. I don't want to be touched, or loved. I can't make love. Will this ruin everything? Everything we've worked so hard for? I've battled other medical conditions. But this? This is just hell. Its an unrecognized, belittled, curse. I want to sob forever and drown in my tears, like crying will make the pain go away. Another bacterial infection, who knew? Nothing. Nothing helps. Screw optimism. It's such a waste.


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Re: Not mad, just miserable.

Post  mikan92 on Thu May 28, 2015 11:30 am

I feel your pain. I also have moments when I just want to curl up and sob and not wanting to deal with any of this, I wish I can wake up one day realising all this was just a nightmare. I'm also scared of having hopes sometimes, because when the hope is high I'll fall harder when the it fails. But look at all the ladies in this forum, many of them have battled this horrible thing for so many years (some for their whole life)and they did not give up. If they can do it, why can't we? There are so many things we have not tried and I think it'll be too early to say nothing works.
I think it's okay to have down moments but we need to pull ourselves tgt after that. I tell myself everyday: don't think about what you have lost, think about what you have. I rmb this quote from the movieThe Theory of Everything 'However bad life may seem, while there is life, there's hope". Please don't give up no matter what! Optimism is super hard and it seems useless, but being pessimistic definitely won't bring us anywhere.


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I Agree!

Post  Sincere1738 on Sun May 31, 2015 6:10 pm

yes living with this is a curse. Thats exactly what it is. I really do try to thank god for what I do have. Which is so much compared to this. Honestly I bet there are men and women who have life in prision, lost a child, or people living in fear everyday in other countries wish they could trade places with us if given a chance. So I really count my blessing and a don't add up my problems( Joel Olsteen) Wink
We just have to take it day by day, and PRAY. Besides all of the remedies and treatments those are most important. Stay strong. I miss my sex life dearly, it is apart of being a woman and not being able to have sex when I want is devastating. This motivates me even more to find what will work for me. When God is ready. Not when I am.


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Re: Not mad, just miserable.

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