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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Not mad, just miserable.

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Not mad, just miserable.

Post  mrs.optimistic on Wed May 27, 2015 6:49 am

I can't be optimistic. I feel like I'm building myself up to let myself down again. I'm so tired. I'm tired of trying, having hope. I keep asking myself why. How? I'm letting this take control of my life. Happiness is slipping further away from me. I feel invisible, my words don't mean a thing. I don't want to be touched, or loved. I can't make love. Will this ruin everything? Everything we've worked so hard for? I've battled other medical conditions. But this? This is just hell. Its an unrecognized, belittled, curse. I want to sob forever and drown in my tears, like crying will make the pain go away. Another bacterial infection, who knew? Nothing. Nothing helps. Screw optimism. It's such a waste.


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Re: Not mad, just miserable.

Post  mikan92 on Thu May 28, 2015 11:30 am

I feel your pain. I also have moments when I just want to curl up and sob and not wanting to deal with any of this, I wish I can wake up one day realising all this was just a nightmare. I'm also scared of having hopes sometimes, because when the hope is high I'll fall harder when the it fails. But look at all the ladies in this forum, many of them have battled this horrible thing for so many years (some for their whole life)and they did not give up. If they can do it, why can't we? There are so many things we have not tried and I think it'll be too early to say nothing works.
I think it's okay to have down moments but we need to pull ourselves tgt after that. I tell myself everyday: don't think about what you have lost, think about what you have. I rmb this quote from the movieThe Theory of Everything 'However bad life may seem, while there is life, there's hope". Please don't give up no matter what! Optimism is super hard and it seems useless, but being pessimistic definitely won't bring us anywhere.


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I Agree!

Post  Sincere1738 on Sun May 31, 2015 6:10 pm

yes living with this is a curse. Thats exactly what it is. I really do try to thank god for what I do have. Which is so much compared to this. Honestly I bet there are men and women who have life in prision, lost a child, or people living in fear everyday in other countries wish they could trade places with us if given a chance. So I really count my blessing and a don't add up my problems( Joel Olsteen) Wink
We just have to take it day by day, and PRAY. Besides all of the remedies and treatments those are most important. Stay strong. I miss my sex life dearly, it is apart of being a woman and not being able to have sex when I want is devastating. This motivates me even more to find what will work for me. When God is ready. Not when I am.


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Re: Not mad, just miserable.

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