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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

My Story ..Ups Downs and Support!

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My Story ..Ups Downs and Support!

Post  Sincere1738 on Sun May 31, 2015 5:13 pm

Hello, I have been suffering from this chronic and cursed condition for 5 months now. It has really taken a toll on me physically and emotionally. I have had sex okay in the beginning and it was not very painful. Now I am afraid to have sex as the skin right around the entrance to my vagina feels like it stings when I wipe after going to the bathroom or wash it in the shower. It does not hurt at all when I urinate. I have had oral sex performed on me and I had a stinging sensation when he went toward the entrance of my vagina but not toward the clitoris (sorry if TMI!!) It does not hurt with sitting or tampons or does not bleed or anything like that(I try to appreciate the small things). When I scratch it feels so good but then I know I am ready for pain and trouble afterwards. I have seen 4 doctors, I thought maybe I had herpes but they found nothing!! No bacteria, yeast, nothing!After doing research I have decided to self diagnose myself at this point. I have another appointment with someone else in the next week. Anyway I have had 2 stds in the past and I am also a nursing student so my life is the definition of stress. I believe these have caused my vulvodynia. I am a college student so I am on a budget as I can not afford much and so I have been trying to treat this anyway I can. I have worn 100% white cotton panties, used Dove sensitive skin(fragrance free), summers eve, ice/cold rags, vaseline, and no panties at night, I even stopped taking my birth control pills. I also am now trying to stick to a low oxalate diet(which isn't bad at all, there aren't that many restrictions)- Go to thevpfoundation.org for a list of foods. The worst thing is no chocolate but I will give up anything to make this go away. White chocolate is a great alternative if you need a fix! lol.  These comfort measures provide moderate relief but not too much. One thing that has helped me tremendously is kegal exercises. I was laying on the couch one morning and I just decided to give them a try. Best decision ever because this has made living with this a little easer. Now I am on to trying Coconut Oil. I have bought Finest Nutrition softgel tablets. I purchased them at wal greens. I do not actually swallow the pills but I take 3 (poke with a needle) and squeeze the oil out. This makes about 2 tsp. I may just go out and buy the actual oil as this may be easier and also has so many health benefits.I believe I may have a undetectable infection because sometimes I have discharge (which is normal for me) but sometimes it has a slight greenish tint to it. The oil has antifungal and anti microbial properties so I am hoping this helps. I will ask my ob/gyn (which I now have saved as a contact, sadly this shows me how much this has been a problem in my life)  about steroid cream or antidepressants as a next option! Living with this is miserable and I want my sex life back!! I PRAY everyday and I hope God listens to me. I can't imagine living with this for the rest of my life ! I want to have a good relationship and not have to punish my man because we can't have sex as often and I want to be able to have a pregnancy where I won't have to fear how it may affect my vulvodynia. I just cant so I am going to do whatever it takes until this goes away and I never have to look back. I pray for women living with severe cases of this and I feel for you guys so much. At least we have forums like this to vent and share advice until we all find what works for us and can live the pain free life we are all so desperate for ! Thanks.


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Join date : 2015-05-31

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