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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

My Story ..Ups Downs and Support!

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My Story ..Ups Downs and Support!

Post  Sincere1738 on Sun May 31, 2015 5:13 pm

Hello, I have been suffering from this chronic and cursed condition for 5 months now. It has really taken a toll on me physically and emotionally. I have had sex okay in the beginning and it was not very painful. Now I am afraid to have sex as the skin right around the entrance to my vagina feels like it stings when I wipe after going to the bathroom or wash it in the shower. It does not hurt at all when I urinate. I have had oral sex performed on me and I had a stinging sensation when he went toward the entrance of my vagina but not toward the clitoris (sorry if TMI!!) It does not hurt with sitting or tampons or does not bleed or anything like that(I try to appreciate the small things). When I scratch it feels so good but then I know I am ready for pain and trouble afterwards. I have seen 4 doctors, I thought maybe I had herpes but they found nothing!! No bacteria, yeast, nothing!After doing research I have decided to self diagnose myself at this point. I have another appointment with someone else in the next week. Anyway I have had 2 stds in the past and I am also a nursing student so my life is the definition of stress. I believe these have caused my vulvodynia. I am a college student so I am on a budget as I can not afford much and so I have been trying to treat this anyway I can. I have worn 100% white cotton panties, used Dove sensitive skin(fragrance free), summers eve, ice/cold rags, vaseline, and no panties at night, I even stopped taking my birth control pills. I also am now trying to stick to a low oxalate diet(which isn't bad at all, there aren't that many restrictions)- Go to thevpfoundation.org for a list of foods. The worst thing is no chocolate but I will give up anything to make this go away. White chocolate is a great alternative if you need a fix! lol.  These comfort measures provide moderate relief but not too much. One thing that has helped me tremendously is kegal exercises. I was laying on the couch one morning and I just decided to give them a try. Best decision ever because this has made living with this a little easer. Now I am on to trying Coconut Oil. I have bought Finest Nutrition softgel tablets. I purchased them at wal greens. I do not actually swallow the pills but I take 3 (poke with a needle) and squeeze the oil out. This makes about 2 tsp. I may just go out and buy the actual oil as this may be easier and also has so many health benefits.I believe I may have a undetectable infection because sometimes I have discharge (which is normal for me) but sometimes it has a slight greenish tint to it. The oil has antifungal and anti microbial properties so I am hoping this helps. I will ask my ob/gyn (which I now have saved as a contact, sadly this shows me how much this has been a problem in my life)  about steroid cream or antidepressants as a next option! Living with this is miserable and I want my sex life back!! I PRAY everyday and I hope God listens to me. I can't imagine living with this for the rest of my life ! I want to have a good relationship and not have to punish my man because we can't have sex as often and I want to be able to have a pregnancy where I won't have to fear how it may affect my vulvodynia. I just cant so I am going to do whatever it takes until this goes away and I never have to look back. I pray for women living with severe cases of this and I feel for you guys so much. At least we have forums like this to vent and share advice until we all find what works for us and can live the pain free life we are all so desperate for ! Thanks.


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