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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

My Story ..Ups Downs and Support!

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My Story ..Ups Downs and Support!

Post  Sincere1738 on Sun May 31, 2015 5:13 pm

Hello, I have been suffering from this chronic and cursed condition for 5 months now. It has really taken a toll on me physically and emotionally. I have had sex okay in the beginning and it was not very painful. Now I am afraid to have sex as the skin right around the entrance to my vagina feels like it stings when I wipe after going to the bathroom or wash it in the shower. It does not hurt at all when I urinate. I have had oral sex performed on me and I had a stinging sensation when he went toward the entrance of my vagina but not toward the clitoris (sorry if TMI!!) It does not hurt with sitting or tampons or does not bleed or anything like that(I try to appreciate the small things). When I scratch it feels so good but then I know I am ready for pain and trouble afterwards. I have seen 4 doctors, I thought maybe I had herpes but they found nothing!! No bacteria, yeast, nothing!After doing research I have decided to self diagnose myself at this point. I have another appointment with someone else in the next week. Anyway I have had 2 stds in the past and I am also a nursing student so my life is the definition of stress. I believe these have caused my vulvodynia. I am a college student so I am on a budget as I can not afford much and so I have been trying to treat this anyway I can. I have worn 100% white cotton panties, used Dove sensitive skin(fragrance free), summers eve, ice/cold rags, vaseline, and no panties at night, I even stopped taking my birth control pills. I also am now trying to stick to a low oxalate diet(which isn't bad at all, there aren't that many restrictions)- Go to thevpfoundation.org for a list of foods. The worst thing is no chocolate but I will give up anything to make this go away. White chocolate is a great alternative if you need a fix! lol.  These comfort measures provide moderate relief but not too much. One thing that has helped me tremendously is kegal exercises. I was laying on the couch one morning and I just decided to give them a try. Best decision ever because this has made living with this a little easer. Now I am on to trying Coconut Oil. I have bought Finest Nutrition softgel tablets. I purchased them at wal greens. I do not actually swallow the pills but I take 3 (poke with a needle) and squeeze the oil out. This makes about 2 tsp. I may just go out and buy the actual oil as this may be easier and also has so many health benefits.I believe I may have a undetectable infection because sometimes I have discharge (which is normal for me) but sometimes it has a slight greenish tint to it. The oil has antifungal and anti microbial properties so I am hoping this helps. I will ask my ob/gyn (which I now have saved as a contact, sadly this shows me how much this has been a problem in my life)  about steroid cream or antidepressants as a next option! Living with this is miserable and I want my sex life back!! I PRAY everyday and I hope God listens to me. I can't imagine living with this for the rest of my life ! I want to have a good relationship and not have to punish my man because we can't have sex as often and I want to be able to have a pregnancy where I won't have to fear how it may affect my vulvodynia. I just cant so I am going to do whatever it takes until this goes away and I never have to look back. I pray for women living with severe cases of this and I feel for you guys so much. At least we have forums like this to vent and share advice until we all find what works for us and can live the pain free life we are all so desperate for ! Thanks.


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Join date : 2015-05-31

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