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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

My Story ..Ups Downs and Support!

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My Story ..Ups Downs and Support!

Post  Sincere1738 on Sun May 31, 2015 5:13 pm

Hello, I have been suffering from this chronic and cursed condition for 5 months now. It has really taken a toll on me physically and emotionally. I have had sex okay in the beginning and it was not very painful. Now I am afraid to have sex as the skin right around the entrance to my vagina feels like it stings when I wipe after going to the bathroom or wash it in the shower. It does not hurt at all when I urinate. I have had oral sex performed on me and I had a stinging sensation when he went toward the entrance of my vagina but not toward the clitoris (sorry if TMI!!) It does not hurt with sitting or tampons or does not bleed or anything like that(I try to appreciate the small things). When I scratch it feels so good but then I know I am ready for pain and trouble afterwards. I have seen 4 doctors, I thought maybe I had herpes but they found nothing!! No bacteria, yeast, nothing!After doing research I have decided to self diagnose myself at this point. I have another appointment with someone else in the next week. Anyway I have had 2 stds in the past and I am also a nursing student so my life is the definition of stress. I believe these have caused my vulvodynia. I am a college student so I am on a budget as I can not afford much and so I have been trying to treat this anyway I can. I have worn 100% white cotton panties, used Dove sensitive skin(fragrance free), summers eve, ice/cold rags, vaseline, and no panties at night, I even stopped taking my birth control pills. I also am now trying to stick to a low oxalate diet(which isn't bad at all, there aren't that many restrictions)- Go to thevpfoundation.org for a list of foods. The worst thing is no chocolate but I will give up anything to make this go away. White chocolate is a great alternative if you need a fix! lol.  These comfort measures provide moderate relief but not too much. One thing that has helped me tremendously is kegal exercises. I was laying on the couch one morning and I just decided to give them a try. Best decision ever because this has made living with this a little easer. Now I am on to trying Coconut Oil. I have bought Finest Nutrition softgel tablets. I purchased them at wal greens. I do not actually swallow the pills but I take 3 (poke with a needle) and squeeze the oil out. This makes about 2 tsp. I may just go out and buy the actual oil as this may be easier and also has so many health benefits.I believe I may have a undetectable infection because sometimes I have discharge (which is normal for me) but sometimes it has a slight greenish tint to it. The oil has antifungal and anti microbial properties so I am hoping this helps. I will ask my ob/gyn (which I now have saved as a contact, sadly this shows me how much this has been a problem in my life)  about steroid cream or antidepressants as a next option! Living with this is miserable and I want my sex life back!! I PRAY everyday and I hope God listens to me. I can't imagine living with this for the rest of my life ! I want to have a good relationship and not have to punish my man because we can't have sex as often and I want to be able to have a pregnancy where I won't have to fear how it may affect my vulvodynia. I just cant so I am going to do whatever it takes until this goes away and I never have to look back. I pray for women living with severe cases of this and I feel for you guys so much. At least we have forums like this to vent and share advice until we all find what works for us and can live the pain free life we are all so desperate for ! Thanks.


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