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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
My Story ..Ups Downs and Support!
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My Story ..Ups Downs and Support!
Hello, I have been suffering from this chronic and cursed condition for 5 months now. It has really taken a toll on me physically and emotionally. I have had sex okay in the beginning and it was not very painful. Now I am afraid to have sex as the skin right around the entrance to my vagina feels like it stings when I wipe after going to the bathroom or wash it in the shower. It does not hurt at all when I urinate. I have had oral sex performed on me and I had a stinging sensation when he went toward the entrance of my vagina but not toward the clitoris (sorry if TMI!!) It does not hurt with sitting or tampons or does not bleed or anything like that(I try to appreciate the small things). When I scratch it feels so good but then I know I am ready for pain and trouble afterwards. I have seen 4 doctors, I thought maybe I had herpes but they found nothing!! No bacteria, yeast, nothing!After doing research I have decided to self diagnose myself at this point. I have another appointment with someone else in the next week. Anyway I have had 2 stds in the past and I am also a nursing student so my life is the definition of stress. I believe these have caused my vulvodynia. I am a college student so I am on a budget as I can not afford much and so I have been trying to treat this anyway I can. I have worn 100% white cotton panties, used Dove sensitive skin(fragrance free), summers eve, ice/cold rags, vaseline, and no panties at night, I even stopped taking my birth control pills. I also am now trying to stick to a low oxalate diet(which isn't bad at all, there aren't that many restrictions)- Go to thevpfoundation.org for a list of foods. The worst thing is no chocolate but I will give up anything to make this go away. White chocolate is a great alternative if you need a fix! lol. These comfort measures provide moderate relief but not too much. One thing that has helped me tremendously is kegal exercises. I was laying on the couch one morning and I just decided to give them a try. Best decision ever because this has made living with this a little easer. Now I am on to trying Coconut Oil. I have bought Finest Nutrition softgel tablets. I purchased them at wal greens. I do not actually swallow the pills but I take 3 (poke with a needle) and squeeze the oil out. This makes about 2 tsp. I may just go out and buy the actual oil as this may be easier and also has so many health benefits.I believe I may have a undetectable infection because sometimes I have discharge (which is normal for me) but sometimes it has a slight greenish tint to it. The oil has antifungal and anti microbial properties so I am hoping this helps. I will ask my ob/gyn (which I now have saved as a contact, sadly this shows me how much this has been a problem in my life) about steroid cream or antidepressants as a next option! Living with this is miserable and I want my sex life back!! I PRAY everyday and I hope God listens to me. I can't imagine living with this for the rest of my life ! I want to have a good relationship and not have to punish my man because we can't have sex as often and I want to be able to have a pregnancy where I won't have to fear how it may affect my vulvodynia. I just cant so I am going to do whatever it takes until this goes away and I never have to look back. I pray for women living with severe cases of this and I feel for you guys so much. At least we have forums like this to vent and share advice until we all find what works for us and can live the pain free life we are all so desperate for ! Thanks.
Sincere1738- Posts : 2
Join date : 2015-05-31
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer